Folge 8: Der LHON e. V. – für mehr Awareness und Austausch

from rare stories Podcast - gemeinsam weniger selten · host CHIESI & Patients

Lennart und Tom engagieren sich aktiv im LHON e. V. – dem Verein für an LHON Erkrankte, deren Angehörige und alle Interessierten. Hauptziele des Vereins sind die Vernetzung untereinander und das gemeinsame Schaffen von mehr Aufmerksamkeit für die seltene Augenerkrankung. Der LHON Awareness Day im September und das Jahrestreffen sind nur zwei der vielen Aktivitäten des Vereins.

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This episode was published on September 15, 2023.

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