How I got DNA testing for the whole family free on the NHS: In Search for Answers for Autism

In this episode of Beyond All Borders, Kelly talks about something that can become a huge part of life as a SEND parent: the constant search for answers.From the moment your child receives an autism diagnosis, there can be so many questions. Is there something genetic? Are there other underlying factors? Is there anything that could support communication, development, diet or everyday life?Kelly shares some of the investigations her family has undertaken, including whole genome sequencing, which looked for genetic conditions that could help explain Forrest’s autism diagnosis. She also discusses their recent folate receptor antibody testing (FRAAT) and why they are waiting for those results before deciding what to explore next.The conversation moves into gut health, the microbiome and nutrition. Kelly talks about being curious but cautious about claims surrounding the gut-brain connection, while wanting to investigate whether nutritional deficiencies or dietary changes could better support Forrest.Kelly also shares her recent ADHD diagnosis, sensory sensitivity and what she has learnt about neurodivergence within the wider family.Kelly talks honestly about the reality of raising an autistic child, including Forrest’s restrictive diet and the exhausting cycle of serving the same safe foods because you know they will actually be eaten.She also shares a recent experience on public transport which raises a bigger question: what does disability actually look like?After being challenged while using an accessible area on a train, despite wearing a sunflower lanyard and travelling with her disabled son, Kelly discusses hidden disabilities, judgement and why families should not have to prove they are “disabled enough” to use accessible spaces.Kelly also shares how the Hidden Disabilities Sunflower lanyard has made travelling through airports easier for their family, helping staff recognise that Forrest may need additional patience and support.This episode is about continuing to ask questions, advocate, investigate and learn, while trying to give your child the best possible support.Please remember: this episode shares Kelly and her family’s personal experiences. It is not medical advice. Testing, medication, supplements and dietary interventions should be discussed with an appropriately qualified healthcare professional.Chapters00:00 – Introduction to Kelly’s Autism Testing Journey01:21 – Whole Genome Sequencing and Primary Diagnosis03:10 – Testing for Folate Receptor Antibodies and Treatment Options04:57 – Investigating the Gut Microbiome and Dietary Support06:15 – Kelly’s Personal Experience with ADHD and Genetic Predisposition08:03 – Parenting Challenges and Advocacy in Public Spaces10:18 – Diet Management and Food Restrictions for Her Son13:41 – Using Disability Lanyards and Accessibility Tips17:31 – Travel Experiences and Public Interactions21:20 – Awaiting Test Results and Future Plans💬 Join the conversation: Have you explored genetic testing, FRAAT testing, dietary support or other avenues following your child’s autism diagnosis? What has helped your family? Share your experiences in the comments.🌐 Journawell: journawell.com🎙️ Beyond All Borders📱 Follow our journey across TikTok @kellyjacehalls, Instagram and Facebook.Subscribe to Beyond All Borders for honest conversations about autism, ADHD, SEND parenting, family life and the challenges that come with it.