I was so fatigued... Brushing my teeth was a win

In this episode of the Running for Resilience podcast, Matt Breen is joined by Tim Fulton and Lauren Geatches to explore the lived reality of rare disease in Australia through the story of Lauren’s child, Sage. They talk about diagnosis, day-to-day resilience, and what it takes for families to keep going when the path is uncertain. The conversation also looks at how advocacy and community can reduce isolation and drive better systems of care.Tim and Lauren share the lessons they have learned, including how to hold onto hope, notice small wins, and make the most of moments of energy and clarity. Together, they connect rare disease advocacy with the idea of shared struggle, and how collaboration can create real change at scale. This is an honest, practical, and uplifting discussion about persistence, kindness, and finding meaning in hard seasons.Links:https://rarevoices.org.au/people/lauren-geatches/https://rarevoices.org.au/launched-rare-metabolic-disease-workforce-white-paper/https://runningrare.com/lifes-unpredictable-and-maybe-that-is-okay/📞 Support ServicesMedicare Mental Health Centre Canberra – 1800 595 212Lifeline – 13 11 14 (24/7 crisis support)Beyond Blue – 1300 22 4636 | https://www.beyondblue.org.au🔗 Connect with Running for Resilience🌐 Website: https://www.runningforresilience.com📸 Instagram: / runningforresilience 📘 Facebook: / runningforresilience 🏃 Strava: https://strava.app.link/eGHjt285jTb