Introduction

Hello and welcome! This episode is just a quick bit of background on why I have decided to start the podcast. Over the last two and a half years I have noticed that there aren't a lot of people in the grief space talking about loosing a child that was multiply disabled. In my case, I am the mom to Claire, who lived with Rett Syndrome for 15 years. When she was first diagnosed there was little information online about living with this disorder, so I started a blog. I am finding myself in a similar situation now, with little information or stories about life after the loss of a child that was multiply disabled. So I figured I would ramble a bit, share what I know and hopefully make somebody out there feel a little less alone in this.