EPISODE · Feb 20, 2026 · 52 MIN
Maevine: Strength and Surrender | Living with Chronic Illness and Caring for a Parent with Dementia and ALS
from How to Deal When the Shit Gets Real Podcast · host Rietta Boksha
In this episode of How to Deal When the Sht Gets Real*, Maevine shares what it’s like living with chronic illness while caring for a parent diagnosed with both dementia and ALS. Together, we explore the emotional and physical toll of long-term illness, caregiver burnout, and the quiet weight of anticipatory grief.Maevine opens up about exhaustion that goes beyond sleep, the identity shifts that come with chronic health challenges, and the heartbreak of watching someone you love slowly change. We talk about navigating medical uncertainty, balancing self-care with caregiving responsibilities, and finding resilience in seasons that don’t offer easy answers.In this conversation, we discuss:• Living with chronic illness• Caring for a parent with dementia and ALS• Understanding anticipatory grief• Caregiver burnout and emotional exhaustion• Strength, surrender, and redefining resilienceThis isn’t a polished story or a highlight reel. It’s honest. It’s heavy. It’s real.If you’re supporting a parent through dementia, navigating ALS, managing chronic illness, or trying to hold both love and loss at the same time — this episode is for you.
What this episode covers
In this episode of How to Deal When the Sht Gets Real*, Maevine shares what it’s like living with chronic illness while caring for a parent diagnosed with both dementia and ALS. Together, we explore the emotional and physical toll of long-term illness, caregiver burnout, and the quiet weight of anticipatory grief.Maevine opens up about exhaustion that goes beyond sleep, the identity shifts that come with chronic health challenges, and the heartbreak of watching someone you love slowly change. We talk about navigating medical uncertainty, balancing self-care with caregiving responsibilities, and finding resilience in seasons that don’t offer easy answers.In this conversation, we discuss:• Living with chronic illness• Caring for a parent with dementia and ALS• Understanding anticipatory grief• Caregiver burnout and emotional exhaustion• Strength, surrender, and redefining resilienceThis isn’t a polished story or a highlight reel. It’s honest. It’s heavy. It’s real.If you’re supporting a parent through dementia, navigating ALS, managing chronic illness, or trying to hold both love and loss at the same time — this episode is for you.
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Maevine: Strength and Surrender | Living with Chronic Illness and Caring for a Parent with Dementia and ALS
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