Matt J IV with Agnes Nsofwa 190620.WAV

gnes is a mother of four, their youngest child was born with sickle cell anaemia. Agnes is a Registered Nurse / Data Analyst by profession, working in the aged care industry. In 2012, Agnes changed careers from Business to Nursing so that she could understand SCD and what their child was going through. Agnes also has a bachelor’s degree in Business and Diploma of accounting with experiences in the taxation and banking industries. Agnes is the co-founder of Australian Sickle Cell Advocacy Inc. Her passion to advocate for Sickle Cell Disease (SCD) was as a result of having their youngest child being diagnosed with Sickle Cell Anaemia in 2009. In 2014, Agnes and husband started the SCD awareness Facebook page to support other people affected by this disease. The group was formally registered as a not for profit association in October 2018. Agnes’ passion is to support programs and initiatives that enhance lives of people from disadvantaged backgrounds. She also volunteers her time to different projects which raise funds to support scientific research. https://aussicklecelladvocacy.org/