每两周必须进一次医院？与法布瑞氏症共存

面对无法根治的罕见基因病，治疗的核心往往不只是冰冷的医学技术，更是关于“如何与疾病共处”的现实博弈。当科学已经能够延长寿命，社会和个人又该如何应对随之而来的生活挑战？受访专家：新加坡中央医院，肾科，副顾问医生李栋林主持人：邓薪萤 AuroraSee omnystudio.com/listener for privacy information.

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每两周必须进一次医院？与法布瑞氏症共存

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