Next Steps: Gene Therapy for Dravet Syndrome - A Rare Epilepsy – Moran Rubinstein & Eric Kremer #02

Talking to scientists Moran Rubinstein from Tel Aviv University in Israel and Eric Krema from Universite de Montpellier in France who together work on a project into gene therapy for the rare genetic epilepsy Dravet Syndrome. They speak of their research, its exciting outcomes, and the positive impact that this could have on treatments for patients! If you haven't yet seen the first in this set of two episodes then check it out! ------------------------------------------ 👉🏻 T-shirts: https://epilepsy-sparks.creator-spring.com  ------------------------------------------ More about Moran & Eric: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/moran-rubinstein-eric-kremer-02 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ Chapters 📖 00:00 Intro 00:37 How the therapy shall be used 02:16 Therapy for children and adults 03:05 Use in other epilepsies 04:32 Patents and alterations 05:17 Pharma companies 06:11 Safety: the long journey from mice to patients 07:17 Success, editing & retesting the therapy 08:01 Treating the cause rather than the symptoms 08:43 Where and when to inject the virus - an analogy 10:42 Relating as a patient without Dravet 12:02 Next steps with pharma & governments 14:13 Special thanks ---------------------------------------- Join me on: - Twitter: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - Check out the website: https://www.torierobinson.com