Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS)

Join us as we start a brand new series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. In this episode, we speak to Ashley Cámara, a Myelodysplastic Syndromes (MDS) survivor and advocate and Dr. Lucy Godley from The University of Chicago Medicine. Ashley shares her story of having two MDS diagnoses in her family – first her brother and then herself. Dr. Godley then delves deeper into inherited myeloid malignancies and how genetic links may lead to preventative treatment options.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Myelodysplastic Sydromes (MDS)Stem Cell TransplantationHereditary Myeloid Malignancies – University of Chicago MedicineDr. Lucy Godly ContactYoung Adult Resources Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations Support for this episode provided by Taiho Oncology. The post Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with Blood Cancer United Podcast.