Children and young adults - The Bloodline with Blood Cancer United Podcast

Chris Pagliarulo A cancer diagnosis in your 20s or 30s can raise questions most people never expect to face so early in life. In this episode, we speak with Chris Pagliarulo, who was diagnosed with Hodgkin lymphoma at the age of 29, about the medical, emotional, and practical realities of cancer during early adulthood. We explore issues that are especially relevant for adolescent and young adult (AYA) patients, including delayed diagnosis, fertility preservation, treatment side effects, career disruption, relationships, and finding connection with others who understand. While this conversation highlights experiences unique to AYAs, patients and caregivers of all ages may hear pieces of their own experience reflected in what Chris shares. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Young Adult Resources Hodgkin lymphoma Fertility and family planning resources Patti Robinson Kauffman First Connection® Light The Night Additional Blood Cancer United Support Resources:  Information Specialists  Financial support Online Chat Free Nutrition Consultations Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook Advocacy and Public Policy Patient Community Mental Health Resources The post A Young Adult Story: Cancer, Connection, and Life After Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Michell Fullmer, RDN, LDN, CSP, CNSC Nutrition plays a powerful role in supporting children through cancer treatment, but it’s not always easy for caregivers to know what’s best, especially when there are taste changes, appetite shifts, and treatment side effects. In this episode, we sit down with Michell Fullmer, a registered dietitian at Nemours Children’s Hospital, to share practical insights that simplify nutrition during cancer care, reduce mealtime stress, and empower caregivers to make choices that help their child feel better every day. Join us for myth-busting, actionable tips, and reassurance from an expert who has guided countless families through this important part of care. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Free Nutrition Consultations Nemours Children’s Health Blood Cancer United Dare To Dream Project Navigating Cancer for Children and Teens HealthyWeight.gov Additional Blood Cancer United Support Resources:  Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Advocacy and Public Policy Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Caregiver support  Caregiver Workbook Mental Health Resources Supported by Nemours Children’s Health. The post Nutrition Made Simple: Helping Kids Thrive During Cancer Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Julie Larson, LCSW Simantinee Roy, Matt Hunt, Alfredo Martinez, and Casey Kang The cancer experience isn’t just physical—it’s deeply emotional. Join us for this special episode recorded onsite while filming our SHARE Project video series, exploring emotional well-being in cancer survivorship. Listen in as four blood cancer survivors share how their diagnoses impacted their mental health and what helped them cope. Key Opinion Leader, psychotherapist Julie Larson, LCSW, then joins us to discuss signs of emotional distress, the role of therapy, and how resilience and support can shape the healing journey. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  SHARE Project Video Series Young Adult Resources YAconnect: Young Adults Living with Blood Cancer Online Chat Mental Health Resources How Do I Use Breathing To Manage Anxiety Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Free telephone/web patient programs  LLS Clinical Trial Support Center Advocacy and Public Policy Free booklets  LLS Online Chat Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook LLS Community The post LIVE! At SHARE: Emotional Wellness in Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

Cliff Davis Cliff Davis was only sixteen weeks away from graduating medical school when he received the shocking news that he had Hodgkin Lymphoma.  His path has been unique and his story will inspire you. Cliff has a story that is familiar to many patients –a cancer diagnosis that resulted in pausing his schooling and career aspirations. In this case, going back to finish medical school proved much more difficult than expected when he took a leave of absence. Be sure to tune into this incredible story of resilience, as Cliff never gave up on the one thing he felt like he was meant to do – while learning so much about the world of patient care along the way.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Hodgkin Lymphoma Financial support Team In Training Additional LLS Support Resources:  Information Specialists  Free telephone/web patient programs  Free booklets  Clinical Trial Support Center Young Adult Resources Caregiver support  Caregiver Workbook Survivorship Workbook Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.The post Continuing The Dream: An Inspiring Story of Resilience first appeared on The Bloodline with Blood Cancer United Podcast.

Aerial Donovan Alique Topalian, PhD, MPH Peter Drahms, RN, BSN, C. Robert Bennett, PhD, CPNP-AC Please join us for this second live episode from CancerCon® 2023, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with experts who discussed “chemo brain”, palliative care, and healing through writing. Cancer patients and survivors of all ages, whether newly diagnosed, in treatment or post-treatment, can benefit from hearing from these experts. Be sure to tune into the previous episode from CancerCon, where we heard from young adult cancer patients and survivors on the milestones and challenges that they have experienced along the road of survivorship. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Young Adult Resources Survivorship Workbook YAConnect: Young Adults Living with Blood Cancer Online Chat Stupid Cancer® Cactus Cancer Society “Chemo brain” Palliative Care Voicing My Choices Additional LLS Support Resources:  Information Specialists Financial support Free telephone/web patient programs  Patti Robinson Kaufmann First Connection® Program Free booklets  LLS Public Policy & Advocacy Online chats  Caregiver support  Support groups  Free Nutrition Consultations  LLS Advocacy Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.The post LIVE! At CancerCon: Coping with Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Click image to view full size. Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with patients and survivors about where they are along the road of survivorship. In the exhibit hall, we displayed a roadmap of survivorship, which had many detours and pit stops along the way towards long-term survivorship. The responses from young adult patients and survivors varied and each person had different milestones or points along the road that that they found significant. We encourage our listeners to view the roadmap on the episode page. To our patients and survivors, where do YOU fit along the road? Be sure to share in the comments or discuss in the PodClub in our Subscriber Lounge. Be sure to stay tuned for the next episode from CancerCon, where we will be hearing from experts who presented on various ways to cope with a cancer diagnosis and treatment. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Young Adult Resources Survivorship Definition – National Cancer Institute Survivorship Workbook YAConnect: Young Adults Living with Blood Cancer Online Chat LLS Dare to Dream Stem Cell Transplant Stupid Cancer® Additional LLS Support Resources:  Information Specialists Financial support Free telephone/web patient programs  Patti Robinson Kaufmann First Connection® Program Free booklets  LLS Public Policy & Advocacy Online chats  Caregiver support  Support groups  Free Nutrition Consultations  LLS Advocacy Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.The post LIVE! At CancerCon: The Roadmap of Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

When adolescents and young adults (AYA) are diagnosed with cancer, they face unique challenges that aren’t seen as frequently in other age groups.  Healthcare and nonprofit professionals around the world are listening to patients and researching these issues to improve quality of life during and after treatment. In this episode, we are taking you onsite to the 5th Annual Global Adolescent and Young Adult Cancer Congress in Long Beach, CA. Elissa met with experts who discussed mental health, the resiliency of AYA patients when facing uncertainty, healthcare transitions and disparities, and how patients can advocate for their care.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Young Adult Resources Promoting Resilience in Stress Management Stupid Cancer CancerCon First Descents True North Treks Additional LLS Support Resources:  Information Specialists  LLS Financial support (Copay assistance) Free telephone/web patient programs  Free booklets  Caregiver support  Survivorship Workbook Clinical Trial Support Center LLS Public Policy and Advocacy Online chats  LLS Community  Support groups  Patti Robinson Kaufmann First Connection Program  Free Nutrition Consultations The post The Bloodline Live: Emphasizing the Patient Voice in Young Adult Cancer Care first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we highlight how pivots in therapy and self-advocacy were used to treat a young woman’s diagnosis of non-Hodgkin lymphoma. In this episode, Caitlyn Householder, diagnosed with diffuse large B-cell lymphoma in 2019, shares her incredible journey after finding out that she was pregnant the day she was admitted to the hospital to treat her lymphoma. An ever-evolving plan was then set into motion to not only save Caitlyn’s life but allow for her pregnancy to continue.   DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Non-Hodgkin lymphoma Diffuse large B cell lymphoma Shared decision making podcast Fertility information Fertility and cancer fact sheet Additional LLS Support Resources:  Information Specialists  Free telephone/web patient programs  Free booklets  Financial support Patti Robinson Kaufmann First Connection Program  LLS Community  Young Adult Resources Survivorship Workbook Online chats  Clinical Trial Support Center Caregiver support  Support groups  Free Nutrition Consultations Support for this episode provided by: Bristol Myers Squibb, Eli Lilly and Company, Genentech, Inc. & Biogen, and Merck & Company.The post Non-Hodgkin Lymphoma:  Cancer & Pregnancy first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to John Falco, who was diagnosed with chronic myeloid leukemia (CML) in 2019 and then […] The post A Young Adult’s Journey Through Two Leukemia Diagnoses first appeared on The Bloodline with Blood Cancer United Podcast.

Please join us for our second live episode from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with experts who discussed survivorship planning, imposter syndrome, and developing a growth mindset. Cancer patients and survivors of all ages, whether newly diagnosed, in treatment or post-treatment, can benefit from hearing from these experts. Be sure to tune into the previous episode from CancerCon, where we hear from young adult cancer patients and survivors on what the word, “survivorship” means to them and how that meaning may have changed throughout their cancer experience. *NOTE: For the safety of all participants, masks were required at all times during the conference. All cancer patients and survivors were encouraged to speak to their doctor prior to participating. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Survivorship Definition – National Cancer InstituteSurvivorship WorkbookYoung Adult Online ChatYoung Adult ResourcesStupid Cancer®National Cancer Institute Cancer CentersGrow Into GreatnessFirst Descents® Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Patti Robinson Kaufmann First Connection ProgramFree booklets LLS Public Policy & AdvocacyOnline chats Caregiver support Support groups Free Nutrition Consultations LLS AdvocacyThe post LIVE! at CancerCon: Navigating Young Adult Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with patients and survivors about what the word, “survivorship” means to them. We found the responses to this question can vary from patient to patient and even change once treatment ends. We hope that through their words, listeners will find a sense of connection and evaluate their own meaning of survivorship. Be sure to stay tuned for the next episode from CancerCon, where we will be hearing from experts who presented on various aspects of survivorship, such as the growth mindset, creating a survivorship plan, and imposter syndrome. *NOTE: For the safety of all participants, masks were required at all times during the conference. All cancer patients and survivors were encouraged to speak to their doctor prior to participating. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Survivorship Definition – National Cancer InstituteSurvivorship WorkbookYoung Adult Online ChatStupid CancerLLS Dare to DreamStem Cell TransplantBe The MatchArmenian Bone Marrow Registry Additional LLS Support Resources:  Information SpecialistsFinancial supportFree telephone/web patient programs Patti Robinson Kaufmann First Connection ProgramFree booklets LLS Public Policy & AdvocacyOnline chats Caregiver support Support groups Free Nutrition Consultations LLS AdvocacyThe post LIVE! At CancerCon: A Journey Through Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Hongtao Liu and Dr. Adam DuVall from University of Chicago Medicine, about current […] The post Innovative Therapies for Acute Leukemias first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we […] The post Cancer & Caregiving: Navigating My Child’s Cancer – Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school. In the third episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Maggie Tappana about the experience of caregiving for her young son, Benjamin, through the schooling stage of acute lymphoblastic leukemia (ALL). DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Acute Lymphoblastic Leukemia (ALL)Caregiver support Hopecam Additional LLS Support Resources:  Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Support for this episode provided by the Carolan Research Institute. The post Cancer & Caregiving: Navigating My Child’s Cancer – Schooling first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school. In the second episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Maggie Tappana about the experience of caregiving for her young son, Benjamin, through the treatment stage of acute lymphoblastic leukemia (ALL). DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Acute Lymphoblastic Leukemia (ALL)Caregiver support  Additional LLS Support Resources:  Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations Support for this episode provided by the Carolan Research Institute. The post Cancer & Caregiving: Navigating My Child’s Cancer – Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we […] The post Cancer & Caregiving: Navigating My Child’s Cancer – Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home.  In this fourth episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the survivorship stage of Acute Lymphoblastic Leukemia (ALL). DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Lymphoblastic Leukemia (ALL)I Will Survive: A Viral Tiktok Star’s Journey Through ALLCAR T-cell TherapyYoung Adult ResourcesCaregiver support  Additional LLS Support Resources: Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by the Carolan Research Institute.The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home.  In this third episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the moving home stage of Acute Lymphoblastic Leukemia (ALL). DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Lymphoblastic Leukemia (ALL)I Will Survive: A Viral Tiktok Star’s Journey Through ALLCaregiver support COVID resources Additional LLS Support Resources: Caregiver WorkbookYoung AdultsInformation Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by the Carolan Research Institute.The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Moving Home first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home.  In this second episode of the series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the treatment stage of Acute Lymphoblastic Leukemia (ALL). DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Lymphoblastic Leukemia (ALL)I Will Survive: A Viral Tiktok Star’s Journey Through ALLCaregiver support Medical Power of AttorneyUlman Foundation Additional LLS Support Resources: Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by the Carolan Research Institute.The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home.  In the first episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the diagnosis stage of Acute Lymphoblastic Leukemia (ALL). DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Lymphoblastic Leukemia (ALL)I Will Survive: A Viral Tiktok Star’s Journey Through ALLCaregiver support  Additional LLS Support Resources: Information Specialists Clinical Trial Support CenterFree telephone/web patient programs Free booklets Financial support Online chats LLS Community Support groups Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations  Support for this episode provided by the Carolan Research Institute.The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Nikki Steltenkamp, a young adult, non-Hodgkin lymphoma survivor.  Nikki, an engineer, was 24 years old […] The post Cancer and a Pandemic – A Non-Hodgkin Lymphoma Story first appeared on The Bloodline with Blood Cancer United Podcast.

William Yank Join us as we speak to William Yank, a 23-year-old, three-time Acute Lymphoblastic Leukemia (ALL) survivor. In this episode, we hear about the variety of treatments William went through, his relapses and then subsequent stem cell transplant. Now one year out of transplant, he shares about his post-cancer journey – going viral on TikTok, becoming the face of the LLS Giving Tuesday campaign and then starting a podcast with another Young Adult Cancer survivor. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Lymphoblastic LeukemiaCancerCon by Stupid CancerClonoSeq®CAR T-cell TherapyStem Cell TransplantThe Illest. PodcastWilliam’s TikTok pageFamily Service Society, Inc.LLS Young Adult Resources Additional LLS Support Resources: Information SpecialistsClinical Trial Support CenterFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations Support for this episode provided by Amgen Inc. and Jazz Pharmaceuticals.The post I Will Survive: A Viral TikTok Star’s Journey through Acute Lymphoblastic Leukemia (ALL) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we start a brand new series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. In this episode, we speak to Ashley Cámara, a Myelodysplastic Syndromes (MDS) survivor and advocate and Dr. Lucy Godley from The University of Chicago Medicine. Ashley shares her story of having two MDS diagnoses in her family – first her brother and then herself. Dr. Godley then delves deeper into inherited myeloid malignancies and how genetic links may lead to preventative treatment options.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Myelodysplastic Sydromes (MDS)Stem Cell TransplantationHereditary Myeloid Malignancies – University of Chicago MedicineDr. Lucy Godly ContactYoung Adult Resources Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations Support for this episode provided by Taiho Oncology. The post Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we report from the 2020 Virtual CancerCon and speak to Kyle Benner, a young adult survivor of Acute Lymphoblastic Leukemia (ALL), and Nikki Yuill, a social worker with the LLS Information Resource Center. In this episode, we discuss young adult cancer (15-39 yrs) and what happens from diagnosis through survivorship. Learn about the unique issues that young adults face and how LLS is here to help them through. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Lymphomblastic Leukemia (ALL)Communicating with your Healthcare TeamCancerConStupid CancerYoung Adult ChatMore Young Adult Specific ResourcesBone Marrow Transplant Additional LLS Support Resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations The post I Am a Young Adult With Cancer…Now What? first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Ola Ojewumi, a patient and health advocate with Post-Transplant Lymphoproliferative Disorder (PTLD), a type […] The post Facing Racial Disparities as a Black Disabled Patient first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for Part Two of a special two-part series as we speak to Dr. Christabel Cheung, a two-time Hodgkin […] The post Hodgkin Lymphoma Part 2: Struggles of a Young Adult with Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for a special two-part episode as we speak to Dr. Christabel Cheung, a two-time Hodgkin Lymphoma Survivor. In […] The post Hodgkin Lymphoma Part 1: Struggles of a Young Adult with Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Brett Hagler Join this conversation as Alicia, Edith and Lizette sit down to chat with Brett Hagler.  Brett is an author, cancer survivor, and CEO of New Story, an organization that pioneers solutions to end global homelessness by working to create the world’s first 3D-printed community. On this episode, Brett explains how his chondrosarcoma diagnosis helped to refine his focus and future goals, putting him on the path of creating something bigger than himself. Despite diagnosis, Brett challenges patients to reflect on the question, “How do I want to remember this moment 10 years from now?”, to help gather strength and purpose to push forward. He also describes the crucial role of caregivers and the importance of having a supportive community rallying around each person facing a serious illness. Listen in and be sure to tell us how you liked the episode, by commenting below! Download Transcript CLICK HERE to participate in our episode survey. Mentioned on this episode: New StoryChondrosarcoma LLS CommunityLLS resources about COVID-19 Additional LLS support resources: Information SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS CommunitySupport groupsPatti Robinson Kaufmann First Connection Program Free Nutrition Consultations Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Creating Something Bigger Than Myself Despite Cancer: Brett Hagler’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Bishoy Tadros Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society speak with Bishoy Tadros.  Bishoy was diagnosed with acute lymphoblastic leukemia (ALL) at three years old. As an Egyptian immigrant with many things for his family to consider such as, where the best treatment would be and how to go about relocating, Bishoy describes his journey as a cancer survivor. He explains the challenges he faced both individually and as a family, his turning point which occurred in 2017 at Mile 40 of an IronMan, and what his diagnosis has taught him about overcoming life’s obstacles. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Acute Lymphoblastic LeukemiaLeukemiaBishoy TadrosVenous HemangiomaLLS Team in TrainingFree bookletsPatti Robinson Kaufmann First Connection ProgramOther podcasts addressing survivorship issues Additional LLS support resources: Information SpecialistsFree telephone/web patient programsLLS CommunityFinancial supportOnline ChatsCaregiver supportSupport groups Support for this episode provided by Amgen and Takeda Oncology. Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Survivor, Author, Athlete & Overcomer: Bishoy’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Chelsea Keeler, MSW, LSW When you think about a pediatric patient, they are not a child living in a vacuum. They are part of a very complex system that is suddenly impacted by a cancer diagnosis. Psychosocial care helps to address every piece of that complicated system to successfully get patients the treatment that they need. Join Alicia and Lizette from The Leukemia & Lymphoma Society (LLS), as they speak with pediatric oncology social worker, Chelsea Keeler, from the Children’s Hospital of Philadelphia. Chelsea provides services to patients and families to help optimize functioning, such as psychosocial assessments, supportive counseling around disease diagnosis, coping, decision-making, and connection to community resources as needed. On this episode, they’ll discuss the growing field of psychosocial care for pediatric patients, how psychosocial care differs between children and young adult populations, advancements in technology that have improved how support is provided around the world and the role of a psychosocial team and their relationship with patients and families. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode: Childhood Blood CancerYoung AdultsLong-Term And Late Effects Of Treatment For Childhood Cancer SurvivorsFollow-Up Care For Childhood Cancer SurvivorsChildhood Blood Cancer Facts and Statistics Additional LLS Support Resources: Understanding the Emotional Effects of CancerPsycho-Oncology: Caring for Body & MindInformation SpecialistsFree telephone/web patient programsFree bookletsFinancial supportOnline chatsCaregiver supportLLS Community Support groups Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post How Will My Child’s Cancer Diagnosis Impact Their Emotions? first appeared on The Bloodline with Blood Cancer United Podcast.

Join in as Shona sits down with Elissa Baldwin onsite at CancerCon 2019. CancerCon is an annual conference held every […] The post My AML Diagnosis: Elissa’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Young adult cancer survivors have unique needs, different from pediatric and adult patients. Live on June 21, 2018, the first ever Young Adult Cancer Action Day, listen in as Guest Speaker Shona Lovie, from The Leukemia & Lymphoma Society, speaks with Kate Houghton, President and CEO of Critical Mass of The Young Adult Cancer Alliance, and Sarah Milberg, Senior Manager of Federal Affairs at The Leukemia & Lymphoma Society’s Office of Public Policy in Washington, DC. June 21st is a special day because it marks the introduction of the first young adult cancer bill by Congress, HR2976, the Deferment for Active Cancer Treatment Act. This bill calls for federal student loan borrowers to be eligible for deferment while they are receiving treatment for cancer. On this episode, they discuss the importance of advocacy, who can be an advocate, the needs of young adult cancer survivors, and the work both organizations are doing to ensure that young adults not only have a voice, but an impact on issues pertaining to young adult cancer survivorship. CLICK HERE to participate in our episode survey. Mentioned on this episode: LLS LLS Beat AML Master Trial Critical Mass The Samfund HR 2976, the Deferment for Active Cancer Treatment Act LLS Advocacy Teens and Young Adults Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Young Adult Cancer Action Day: Advocating for Young Adult Survivors first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Founder of Stupid Cancer, Matthew Zachary onsite at CancerCon 2018 in Denver, Colorado. Film composer and concert pianist by the age of 21, Matthew was confident about what his next steps would be until life threw him the proverbial curve ball. After feeling strange sensations in his left arm and ignoring it for some time, while also being told it ‘was all in his head’, Matthew was floored when he learned he would need surgery on his brain for what was later diagnosed to be medulloblastoma, a cancerous tumor, also called cerebellar primitive. Matthew shares how this diagnosis changed his life and at time when he was supposed to be focused on the usual ‘hard things’ like high school, college, jobs, dating, a family, and buying a house, he was met with limited resources necessary for his age at a very challenging time of his life. With 1.4 million young adult cancer survivors in America alone, Matthews shares that he began Stupid Cancer to let other young adult cancer survivors know that they are not alone and have resources available for them. Stupid Cancer addresses the main concerns for the young adult population (ages 15- 39) including mental health, social media, isolation, fear, anxiety, fertility and recurrence while also looking at the practical issues that are unique to this group regarding insurance, and employment. Looking back on how far Stupid Cancer has come, Matthew also shares their proudest moments. CancerCon is the annual, international gathering, organized by Stupid Cancer, that brings together patients, survivors, caregivers, advocates, and activists, along with oncology team professionals and the healthcare industry through a shared goal of improving young adult cancer health outcomes. CLICK HERE to participate in our episode survey. Mentioned on this episode: Stupid Cancer Children’s Cause for Cancer Advocacy National Coalition for Cancer Survivorship LIVESRTONG, Adolescents & Young Adult Alliance Medulloblastoma Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Live at CancerCon with Matthew Zachary: Founder of ‘Stupid Cancer’ first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Heather Juliet, a young adult survivor and an attendee onsite at CancerCon 2018 in Denver, Colorado. Heather knew something was wrong for many years but each time she went to the doctor she was met with ‘you’re fine’, ‘you’re too young’, or ‘you’re too healthy’. When symptoms became severe, she was diagnosed with stage 4 Hodgkin lymphoma. Being in the health and wellness field and describing herself as ‘extremely healthy’, she was shocked by the news but also relieved to know that there was finally an explanation for the way she had been feeling. Realizing that finding survivorship resources was incredibly challenging, she was inspired and motivated to be that source for other survivors. She understands how it feels to be diagnosed and to have your life change so quickly and not knowing where to go first. She also shares how she made ‘finding herself again’ her goal by adjusting her mindset and intentionally creating a happy space around her. Taking yoga and seeing the impact it had on her own life, she decided to get certified so that she too can be a mentor and advocate for other cancer survivors. CancerCon is the annual, international gathering, organized by Stupid Cancer, that brings together patients, survivors, caregivers, advocates, and activists, along with oncology team professionals and the healthcare industry through a shared goal of improving young adult cancer health outcomes. CLICK HERE to participate in our episode survey. Mentioned on this episode: Hodgkin Lymphoma Long-Term and Late Effects of Treatment for Childhood Leukemia or Lymphoma Facts Long-Term and Late Effects of Treatment in Adults Facts Fertility LLS Community Patti Robinson Kaufmann First Connection Program Co-Pay Assistance Cancer Support Community Stupid Cancer CancerCon Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of future episodes. Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Live at CancerCon with Heather Juliet: Young Adult Advocate & Mentor first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Melanie Stachelski onsite at […] The post Live at CancerCon with Melanie Stachelski: Therapist & Young Adult Survivor first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Sara Davenport, a young adult survivor and Blood Cancer panelist, onsite at CancerCon 2018 in Denver, Colorado. Having been diagnosed with thyroid cancer first and later with non-Hodgkin lymphoma, Sara talks about her journey, how she was introduced to The Leukemia & Lymphoma Society, fertility, long- term and late effects of cancer treatment, and the importance of patience during one’s journey. Sara also shares how she combats ‘survivorship guilt’ with the decision to live a life that strives to understand and help others as a way to ‘pay it forward’ and honor those who have passed. CancerCon is the annual, international gathering, organized by Stupid Cancer, that brings together patients, survivors, caregivers, advocates, and activists, along with oncology team professionals and the healthcare industry through a shared goal of improving young adult cancer health outcomes. CLICK HERE to participate in our episode survey. Mentioned on this episode: Non-Hodgkin Lymphoma Long-Term and Late Effects of Treatment for Childhood Leukemia or Lymphoma Facts Long-Term and Late Effects of Treatment in Adults Facts LLS Community Patti Robinson Kaufmann First Connection Program LLS Team in Training Stupid Cancer CancerCon Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of future episodes. Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Live at CancerCon with Sara Davenport: Panelist & Young Adult Survivor first appeared on The Bloodline with Blood Cancer United Podcast.

Twenty-three years old and living in New York City, Glamour magazine Editor Erin Zammett Ruddy finds herself writing her biggest […] The post Stopped Treatment, Started a Family first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Timothy, an ALL young adult survivor, who shares how his culture, attitude and relationship with his healthcare team during treatment steered him towards a profession he would have never envisioned for himself. Download Transcript CLICK HERE to participate in our episode survey. Mentioned in this episode: Stupid Cancer, visit www.stupidcancer.org LLS Community, visit www.LLS.org/community Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. Support for this episode provided by Amgen. Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. The post Timothy’s Turning Point first appeared on The Bloodline with Blood Cancer United Podcast.

In her junior year of college and new to Los Angeles, Hodgkin’s Lymphoma was the furthest thing from Racheli’s mind. Join Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) as Racheli walks them through how a presumed head cold was misdiagnosed. Listen in as she shares how she was able to press play on her life, with treatment and support from her healthcare team, family and growing online support. Download Transcript CLICK HERE to participate in our episode survey. Additional LLS Support Resources: Information Specialists Free telephone/web patient programs Free booklets Financial support Online chats Caregiver support LLS Community Support groups Patti Robinson Kaufmann First Connection Program Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode. Follow Racheli: Instagram Twitter YouTube Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists. Support for this episode provided by Bristol-Myers Squibb.The post Life on Pause: Racheli’s Story first appeared on The Bloodline with Blood Cancer United Podcast.