Patient Registries are essential tools for Ataxia

from Ataxia, Did You Know? · host Dana Mauro

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Episode metadata supplied by the publisher feed · Published Sep 12, 2019

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Patient Registries are essential tools for Ataxia researchers. The purpose of a patient registry is to advance the development of treatments for a disease by connecting researchers with those who are affected with that disease. If you or a family member are affected by Ataxia or are at risk for Ataxia, we recommend that you sign up on the appropriate patient registry #kNOwATAXIA

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Patient Registries are essential tools for Ataxia

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