Ataxia, Did You Know?
BookmarkDana Mauro
Ataxia, Did You Know? is a education podcast hosted by Dana Mauro. It has 55 episodes, with the latest published December 2020.
Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it robs someone of their balance, coordination, ability to walk, talk, swallow, and see.
education ·en ·55 episodes
Maximize your Doctor Visits
Dr. Jeremy Schmahmann explains Ataxia patients how important to exercise
Dr Jeremy Schmahmann Ataxia patients prevent infection COVID-19
Be a part of the Joint Mission Bataan
SCAR Scale
Feeling alone in your Ataxia diagnosis – finding the right support system is key.
Making the most out of the first appointment with your neurologist.
Ataxia neurologists how to prepare
Spinocerebellar #Ataxia? Biohaven is sponsoring a clinical trial
How is Ataxia is diagnosed
What is Friedreich Ataxia
Today’s topic is Doctor Visits
What is Hereditary Ataxias? #kNOwATAXIA
What is a clinical trial
What is Episodic Ataxia
What are you eating?
Patient Registries are essential tools for Ataxia
Caregivers, Independence is something we all want
What is Community fundraising
Ataxia Awareness Day Senate Resolution
The Cerebellum neurologists call 'the little brain'.
Exercising, What are you waiting for
National Ataxia Foundation established in 1957
Massachusetts General Hospital (MGH) Ataxia Unit
3 Faces Of Ataxia
Cameryn Cobb An inspirational young advocate for Ataxia
Lauren Sormani An inspirational young advocate for Ataxia a Rare Disease
Expanded analysis of their data from their first clinical trial of troriluzole in SCA patients.
Andrew Rosen Announced as Executive Director For National Ataxia Foundation
#26 Kyle Bryant: Shifting Into High Gear at #2019AAC
Joel Sutherland, the Development Director for the National Ataxia Foundation
Ataxian preps for the holidays
Joint Mission Bataan
Dr. Schmahmann and Melissa Biener sit down with Did You Know to talk ATAXIA. Part 1
You signed up for the Sanford Cords registry yet?
Azorean Pride Team raises funds and awareness of SCA3( Machado-Joseph Disease)
Kara Eichelraut - patient advocate for Reata Pharmaceutical
Cory Hannan explains the life of an Ataxian in Latin America with Dana Mauro
Up close and personal with @KyleaBryant
Do you know what Schmahmann’s syndrome is?
Alan Thomas is a patient engagement advocate for rare diseases in general and Ataxia
Want to be involved in the Ataxian PROM?
Cindy DeMint support Group leader making a different
Joel Sutherland with DYK
Megan Kaiser discovering latest research.
Harry Orr about discovering the first Ataxia gene and his latest research. Live at #2018AAC
Tips for first time attendees to the Ataxia Conference
Keeping a Medical Binder
Ataxia Suport Groups They get me !
Did You Know Suport Groups are extended family and friends
Loading reviews...
Loading similar podcasts...