Pediatric Rare Disease Information Tracking for Caregivers with Ryan Sheedy

In this interview, we talk with Ryan Sheedy, Caregiver and Founder at Mejo, a web app that helps families track their child's most important medical & care information.  Sheedy's story starts when his son was diagnosed with a rare genetic condition called Costello Syndrome.  Frustrated by the number of times he was asked "tell me about what's going on with your son?" and needing to be able to explain all the complexities to new caregivers, he first started created a PowerPoint to solve the problem.  Years of work later, he's created the web app Mejo for pediatric rare disease patients and their caregivers to easily capture their child's health information, organize the information in a useful way, and then an easy way to safely share that information with medical professionals.  It's one of the most comprehensive and beautiful exports of a patient's health history I've seen.   Learn more about Mejo: https://www.mymejo.com/  Find more great health IT content: https://www.healthcareittoday.com/