PPA2: Rare Genetic Conditions - Danielle Green's Story

In this episode of "From the Heart," join our host, Sami, for a conversation with Danielle Green. Danielle is a mother to two children, Sonny and Airlie, who have both passed away due to a rare genetic condition known only as PPA2. Sami and Danielle chat about Danielle and her husband Leon's journey with this extremely rare condition, advocating for genetic testing and counselling, and the importance of family and community during the most difficult of times.A content warning: This episode will touch on grief, and bereavement that some may find challenging. If you choose to listen, please listen in a safe space and remember you can pause if you need to. HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.For support, information or guidance on your CoHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.auOUR RARE LIFEDanielle and Leon run Our Rare Life, a group to raise awareness and platform rare genetic conditions. Head to their instagram page here, and be sure to check their link in bio for more resources and information about rare conditions.CREDITSHost: Sami GlastonburyGuest: Danielle GreenProducer:  Melissa Clarke