PODCAST · health
From The Heart: The HeartKids Podcast
by HeartKids
Join us as we explore stories of Australians impacted by childhood-onset heart disease (CoHD) - including congenital heart disease. We'll tackle the big issues - what it's like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. The show features cardiologists and experts sharing their knowledge about the topics you want to know more about. This show is for anyone impacted by CoHD - parents, carers, family members, friends, and those of us living with CoHD. Your hosts are Rachael Knowles, a young adult with CoHD, and Sami Glastonbury, a mother of two children with CoHD. From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for all people impacted by CoHD.
Episodes
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From the Heart: Sami Glastonbury and Simon Reeve In-Conversation
In this special episode of From the Heart, HeartKids CEO Sami Glastonbury swaps seats with Heart Dad, ambassador and broadcaster Simon Reeve, who steps in to ask the questions. Simon shares the story of his son Sam, who was diagnosed with transposition of the great arteries shortly after birth…
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Transitioning to Adult Care with Nurse Dr Mary Tallon
What does it mean to move from children's cardiac care into the adult healthcare system, and how can young people feel confident and empowered through the process? In this episode of From the Heart, host Rachel Knowles sits down with Nurse Dr Mary Tallon, Clinical Nurse Specialist in Cardiology…
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Resilience and Perspective: Holly’s Story
In this episode, host Rachel Knowles speaks with Holly Cuthbert, a 25-year-old living with childhood-onset heart disease from Busselton in Western Australia. Holly shares her experience growing up with a complex heart condition and undergoing four open-heart surgeries, including three during her...
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100 Episodes of From the Heart: Stories, Lessons and What’s Next
This special 100th episode brings Sammy and Rachel together to revisit the moments, people and insights that have defined From the Heart. They explore the power of shared stories, the evolving experiences of heart parents and heart adults, and how community connection continues to shape the...
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Navigating Life and Health: Brodie’s Journey Through Two Heart Transplants
In this episode of the HeartKids Podcast, host Rachel Knowles speaks with 20-year-old Brodie and his mum, Annie, from Tasmania. Brodie has lived with childhood-onset heart disease and has undergone not one, but two heart transplants — the first during the height of COVID-19, and the second just...
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Tanya Hall from Hearts4heart: The Power of the Patient Voice
Tanya Hall, CEO and founder of Hearts4heart and member of the World Heart Federation Board, joins us to share how lived experience can reshape care, policy and community. Diagnosed in infancy and navigating a complex journey that includes open heart surgery, arrhythmias, ablations and a…
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Shaping Better Care Through Education with Mark Edmonds
In this episode, host Sami Glastonbury speaks with Mark Edmonds, Education Project Coordinator at HeartKids, about the power of co-design and education in transforming care for people living with childhood-onset heart disease. Mark shares how his background in neurophysiology and teaching has...
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Supporting Heart Families in WA and Beyond with Natasha D'Souza
In this episode, host Sami is joined by Natasha D'Souza, one of our dedicated Family Support Coordinators in Western Australia. Drawing on her own experience as a heart parent, Tash shares how she and the WA team walk alongside families through hospital stays, unexpected admissions, and the...
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CHD, RHD and Cultural Identity with Heart Mum Maria Tass
In this episode of From The Heart, Angela Webb, our Aboriginal and Torres Strait Islander Community Engagement Manager, speaks with Maria Tass and her twin sons, Benson and Albert, from Mackay, Queensland. Born with congenital heart conditions in 2015 and later diagnosed with rheumatic heart...
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Fontan Surgery, ANZFAC and Lived Experience with Jonathan Mackley
In this episode of From the Heart, Jonathan Mackley shares his journey from being born with a complex heart condition and undergoing one of the earliest Fontan surgeries, to becoming a strong voice in the HeartKids community. Jonathan talks about growing up in the 70s and 80s, the shift from...
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Hugo and Louise Taheny: Sport, Advocacy and Life with CHD and Down Syndrome
In this episode of From the Heart, host Sami Glastonbury speaks with world champion athlete and health ambassador Hugo Taheny and his mum, Louise. Hugo is a Heart Kid living with Down syndrome, along with vision and hearing impairments. His journey has been shaped by resilience, family, and...
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Inside Paediatric Heart Surgery with Dr Stephanie Perrier
In this episode of From the Heart, host Sami Glastonbury sits down with Dr Stephanie Perrier, Paediatric and Congenital Cardiac Surgeon at the Royal Children's Hospital Melbourne. From her early training in France to performing life-changing surgeries in Australia, Stephanie shares her path into...
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Feeding and Speech Development with Speech Therapist Emily Hayes
In this episode of From The Heart Sami chats with Emily Hayes, a speech pathologist and feeding specialist who works closely with babies and young children, including those who’ve had surgery or spent time in intensive care. Listen as Sami and Emily discuss nasogastric (NG) tubes, feeding...
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23 Surgeries Before 23 with Annabel Turner
In this episode of 'From The Heart', our host Rachael chats to Annabel Turner - a young heart adult who has tricuspid artresia. Listen as Rachael and Annabel chat about having a heart condition has not stopped Annabel from living a full, rich and exciting life. HEARTKIDS From The Heart is brought...
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Sexual Health and Wellbeing with Sexologist Stacey Micallef
In this episode of 'From The Heart', our host Rachael chats to Stacey Micallef - a sexologist and relationship & trauma counsellor based in Geelong, Victoria. Listen as Rachael and Stacey chat about how CoHD can impact sexual health and relationships, and the strategies you can employ to build...
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Medical Trauma with clinical psychologist Carlye Crank
In this episode of 'From The Heart', our host Rachael chats to clinical psychologist Carlye Crank about mental health, medical trauma and the unique ways in which physical health can impact your mental health. HEARTKIDS From The Heart is brought to you by HeartKids, the only national…
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RHD and Better Community Care with Tanika Parker and Genavie Tabuai
In this special episode for Reconciliation Week, Angela Webb, HeartKids’ Aboriginal and Torres Strait Islander Community Engagement Manager, has a yarn with Tanika Parker, RHD Nurse Navigator, and Genavie Tabuai, Health Worker Coordinator for Maternal, Child and Family Health Programs, both from...
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Mitch McGovern: An Ambassador in Honour of his Friend's Memory
In this episode of "From the Heart," join our host, Sami, for a conversation with Mitch McGovern. Mitch is a football player with Carlton, and a HeartKids Ambassador. Sami and Mitch chat about Mitch's connection with CoHD, and how his trajectory changed after his best friend, Logan, passed away…
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Acknowledging and Supporting the Sibling Journey - Dr Shannon Schedlich of Siblings Australia
In this episode of "From the Heart," join our host, Sami, for a conversation with Dr Shannon Schedlich. Shannon joins the podcast this episode, to chat with Sami about strengthening family units, and promoting nuanced support for all members. Shannon shares critical insights in acknowledging...
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Curtis McGrath: Paralympian, Soldier, Order of Australia Recipient, and Heart Dad
In this episode of "From the Heart," join our host, Sami, for a conversation with Curtis McGrath. Curtis is an Australian Paralympic gold medalist in paracanoe who lost both his legs while serving as a combat engineer in Afghanistan. His extraordinary evolution from soldier to Paralympic icon has...
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Managing my Complex CHD... Mahan Ahmadiram's Story
In this episode of "From the Heart," join our host, Sami, for a conversation with Mahan Ahmadiram, an adult navigating her life with CHD, with CH-FIT, community, and exceptional strength. Sami and Mahan discuss the significant journey Mahan and her family have experienced across several…
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A Grandparent's Care... Cindy Hutchison's Story
In this episode of "From the Heart," join our host, Sami, for a conversation with Cindy Hutchison. Cindy and Sami chat about Cindy's extraordinary experiences with supporting her daughter Maddi, and grandson York, through their exceptionally challenging heart journey. Cindy shares incredible...
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Supporting the Sibling... Chloe Peck's Heart Sibling Journey.
Welcome to From the Heart: The HeartKids Podcast, Season 4. In this episode of "From the Heart," join our host, Sami, for a conversation with Chloe Peck, a young adult who is a sibling to a heart teen. Join Sami and Chloe as they discuss the complexities of a heart journey, for siblings and...
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From the Heart: 2024 Wrapped. Erin Ferguson and Happy Heart Clinic
Welcome to From the Heart: 2024 Wrapped! As we have closed off 2024 and into 2025, we're bringing you some fan favourite episodes of From the Heart, season 3. Here is Encore #5 - Erin Ferguson In this episode of From the Heart, Tahnee Jash is joined by Erin Ferguson, a dedicated paediatric...
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From the Heart: 2024 Wrapped. Danielle Green's Story
Welcome to From the Heart: 2024 Wrapped! As we have closed off 2024 and looking into 2025, we're bringing you some fan favourite episodes of From the Heart, season 3. Here is Encore #4 - Danielle Green Danielle is a mother to two children, Sonny and Airlie, who have both passed away due to a rare...
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From the Heart: 2024 Wrapped. Amber Adamson: Ask a Nurse Anything!
Welcome to From the Heart: 2024 Wrapped! As we close off the end of this year, we're bringing you some fan favourite episodes of From the Heart, season 3. Here is Encore #3 - Amber Adamson: Ask a Nurse In this episode Rachael chats with Amber Adamson, a dedicated Clinical Nurse Consultant at…
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From the Heart: 2024 Wrapped. Kate Strickland's Story
Welcome to From the Heart: 2024 Wrapped! As we close off the end of this year, we're bringing you some fan favourite episodes of From the Heart, season 3. Here is Encore #2 - Kate Strickland, Child Life Therapist. Kate is a Child Life Therapist, who works in the community with children - one of…
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From the Heart: 2024 Wrapped. Elijah Hill's Story
Welcome to From the Heart: 2024 Wrapped! As we close off the end of this year, we're bringing you some fan favourite episodes of From the Heart, season 3. Here is Encore #1 - Elijah's Story Elijah, a proud Kamilaroi/Wiradjuri man, shares his remarkable journey living with childhood-onset heart...
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Navigating a New Diagnosis Pathway, for Heart Kid # 2... Sami Glastonbury's Life Updates
In this episode of "From the Heart," join our host, Sami, for a catch-up conversation with podcast producer, Mel. Mel and Sami chat about Sami's current pathway to seeking a diagnosis for her daughter, as well as updates from all the incredible events and outcomes from HeartKids for the year....
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Supporting a Heart Kid, to a Heart Teen... Amy Heafield's Story
In this episode of "From the Heart," join our host, Sami, for a conversation with Amy Heafield. Many families who have spent time at the Royal Children's Hospital in Melbourne will have crossed paths with Amy; Amy is a Support Coordinator with HeartKids, and a parent to a heart teen. Amy and Sami...
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Life as an Adult with CHD... Jaden Dixon's Story
In this episode of "From the Heart," join our host, Rachael, for a conversation with Jaden Dixon. Jaden is a 29-year-old from Brisbane who was born with Hypoplastic Left Heart Syndrome (HLHS). Jaden studied social work and now works for Queensland Health. Listen in as Rachael and Jaden discuss...
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The Complete Race Driver... Wes McDougall's journey with Tetralogy of Fallot
In this episode of "From the Heart," join our host, Sami, for a conversation with Wes McDougall. Wes is a heart adult, who has a stunning career as a racing engineer – now working with Supercheap Auto as chief engineer, as well as an instructional coach for his own business, the Complete Race...
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My CHD Journey: Audrey Keillor
In this episode of "From the Heart," join our host, Rachael, for a conversation with Audrey Keillor. Audrey is a 19-year-old heart adult, who was born with Tetralogy of Fallot. Audrey and Rachael connect over their experiences as young adults with CHD, transitioning to adult care, and the...
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PPA2: Rare Genetic Conditions - Danielle Green's Story
In this episode of "From the Heart," join our host, Sami, for a conversation with Danielle Green. Danielle is a mother to two children, Sonny and Airlie, who have both passed away due to a rare genetic condition known only as PPA2. Sami and Danielle chat about Danielle and her husband Leon's...
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Child Life Therapy and CoHD: Kate Strickland
In this episode of "From the Heart," join our host, Sami, for a conversation with Kate Strickland. Kate is a Child Life Therapist, who works in the community with children - one of the first Child Life Therapists to work outside of a hospital framework. Sami and Kate chat about how to prepare a...
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Health, happiness and connection: Emma Psaros CHD journey
In this episode of From the Heart, host Rachael chats with Emma Psaros, a 25-year-old who has grown up with congenital heart disease (CHD). Emma shares her journey of managing her heart condition while leading a balanced and full life. Emma discusses her transition from paediatric to adult care,...
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Growth and Resilience Through the Journey: Laura Achilles' Adult CHD Story
In this episode of From the Heart, Rachael sits down with Laura Achilles, a heart adult living with congenital heart disease (CHD). Laura, an actor in her 30s, shares her journey of growing up with CHD, moving from the UK to Australia, and navigating a new healthcare system on her own. She opens…
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An active and full life with CHD: Jeremy Richardson's Story
Join our host Rachael Knowles as she chats with Jeremy Richardson, an adventurous adult in his 30s living with truncus arteriosus. Jeremy leads an active life filled with travel, a passion for the snow fields, and has a family history connected to the origins of HeartKids. Tune in to hear about...
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Elijah's Journey: Embracing Identity, Culture, and Confidence as a Young Adult with CHD
In this episode of From the Heart, Elijah, a proud Kamilaroi/Wiradjuri man, shares his remarkable journey living with childhood-onset heart disease (CoHD) with our host, Tahnee Jash. Elijah, now 24, works as an Indigenous Liaison Officer for the Department of Infrastructure in Meanjin (Brisbane)....
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Better Care for RHD: Insights from Erin Ferguson at Happy Heart Clinic
In this episode of From the Heart, Tahnee Jash is joined by Erin Ferguson, a dedicated paediatric Rheumatic Heart Disease (RHD) clinical nurse consultant from the Happy Heart Clinic in Far North Queensland. Erin discusses her team's efforts to improve healthcare experiences for young patients…
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Resilience & Discovery: Sarah's heart journey
In this episode, Rachael chats to Sarah Purdom, a wonderful heart adult who is not only navigating life with a heart condition (Transposition of the Great Arteries (DTGA) and pulmonary stenosis) but is also excelling in her academic and personal pursuits. Sarah is currently in her Honours year in...
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Creativity, optimism, and community: CJ's journey with bicuspid aortic valve
In this episode, meet CJ , a 17-year-old from Melbourne, Victoria, who shares his experiences of growing up with bicuspid aortic valve. Tune in to hear CJ's story, how he managed his surgeries, and finds positivity through art and support through friends and community. CREDITS Host: Rachael…
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Amber Adamson - Ask a nurse anything!
Welcome to a very special episode of the HeartKids From The Heart. n this episode Rachael chats with Amber Adamson, a dedicated Clinical Nurse Consultant at Prince Charles Hospital, who specialises in Adult Congenital Heart Disease. Before the episode was recorded, we put out a call on social…
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My heart kid dad journey: From childhood to adulthood - Matt's Story
In this episode of "From the Heart," join our host, Sami, for a conversation with Matt Tognini. Matt is the father of a heart kid, Alessandra, who was born with a complex congenital heart condition. Sami and Matt chat about the impacts of flying across the country for heart surgery, the parent...
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Missing School, and the impact of critical health on education, and social experiences - Megan Gilmour
In this episode of "From the Heart," join our host, Sami, for a conversation with Missing School CEO Megan Gilmour. Sami and Megan chat about the impact of periods of absence from school, for those with critical health concerns. Megan takes us through initiatives that Missing School can put in...
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What is Childhood-onset Heart Disease? HeartKids CEO Lesley Jordan takes us through this term
In this episode of "From the Heart," join our host, Sami, for a conversation with HeartKids CEO Lesley Jordan. Sami and Lesley chat about congenital heart disease, as well as the term Childhood-onset Heart Disease (CoHD) and what this means. Lesley gives us a quick catch-up on all things CoHD for...
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2023 Encore #3: What is Genetic Counselling? Laura Yeates
This summer (in Australia!), we're bringing you some fan favourite episodes of From the Heart Season 2, 2023! Here is Encore #3 - Genetic Counselling with Laura Yeates. Laura is a cardiac genetic counsellor and current PhD candidate with research projects focusing on inherited cardiomyopathy and...
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2023 Encore #2: How Cardiomyopathy Impacted My Family... Matt Nelson's Story
This summer (in Australia!), we're bringing you some fan favourite episodes of From the Heart Season 2, 2023! Here is Encore #2 - Matt Nelson's Story Matt has been touched by childhood heart disease (CHD) as both a husband and a father. Matt’s first wife Tina passed away in 2013 due to...
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2023 Encore #1: Growing Up With A Heart Condition... Eve's Story
This summer (in Australia!), we're bringing you some fan favourite episodes of From the Heart Season 2, 2023! Here is Encore #1 - Eve's Story Eve is a 23-year-old from Melbourne who lives with a congenital heart condition. Eve is a keen skier, ice hockey player and cold water swimmer! In this...
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Life, footy and supporting the HeartKids community with Jaidyn Stephenson, HeartKids Ambassador
In this episode of "From the Heart," join our host, Rachel, for a special conversation with Jaidyn Stephenson, North Melbourne AFL Player, and dedicated HeartKids Ambassador. Rachel and Jaidyn discuss navigating his heart condition and achieving success in his AFL career. Tune in as Jaidyn shares...
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ABOUT THIS SHOW
Join us as we explore stories of Australians impacted by childhood-onset heart disease (CoHD) - including congenital heart disease. We'll tackle the big issues - what it's like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. The show features cardiologists and experts sharing their knowledge about the topics you want to know more about. This show is for anyone impacted by CoHD - parents, carers, family members, friends, and those of us living with CoHD. Your hosts are Rachael Knowles, a young adult with CoHD, and Sami Glastonbury, a mother of two children with CoHD. From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for all people impacted by CoHD.
HOSTED BY
HeartKids
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Frequently Asked Questions
How many episodes does From The Heart: The HeartKids Podcast have?
From The Heart: The HeartKids Podcast currently has 103 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is From The Heart: The HeartKids Podcast about?
Join us as we explore stories of Australians impacted by childhood-onset heart disease (CoHD) - including congenital heart disease. We'll tackle the big issues - what it's like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. The show...
How often does From The Heart: The HeartKids Podcast release new episodes?
From The Heart: The HeartKids Podcast publishes regularly with 103 episodes available. Check the episode list for the typical release schedule.
Where can I listen to From The Heart: The HeartKids Podcast?
You can listen to From The Heart: The HeartKids Podcast on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts From The Heart: The HeartKids Podcast?
From The Heart: The HeartKids Podcast is created and hosted by HeartKids.
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