Raising a child with neurofibromatosis type 1 and additional needs with Renee Bell

Renee Bell knew that something was wrong with her son Nik, despite her GP not addressing her concerns. Like all parents, her mother's intuition would not budge. Unknowingly, she did like all parents and referred to Dr. Google.After a few consultations, her GP referred her to a paediatrician, which led to the journey of her son's diagnosis of Neurofibromatosis type 1. Neurofibromatosis type 1 (NF1) is a genetic condition that causes changes in skin pigment and tumours on nerve tissue. It can likely contribute to learning and developmental delays. This week on Wine with Wita, Renee's personal story was raw and a true representation of any parents' endless strength to advocate for their child. I absolutely loved this interview. Despite Renee discussing her frustrations and challenges, we both expressed the joy and wonder her son and other special needs children bring to our world. It was beautiful. Disclaimer: the purpose of this podcast is to provide information. You must not rely on the information on this podcast as an alterative to speech and language therapy. You must always consult with a Speech Pathologist, GP and/or paediatrician if you have any concerns about your child's speech, language and communication skills.