Rare Diseases - when medicine meets the uncommon

Episode 215 of the Saving Lives In Slow Motion podcast, hosted by Dr Ayan Panja, titled "Rare Diseases - when medicine meets the uncommon" was published on April 2, 2026 and runs 14 minutes.

April 2, 2026 ·14m · Saving Lives In Slow Motion

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Summary

I thought in this episode I would acknowledge people living with rare diseases as they can be hard to diagnose and live with.Links:Batten Disease: https://my.clevelandclinic.org/health/diseases/6018-batten-diseaseLorenzo's Oil: https://www.healthline.com/health/neurological-health/lorenzos-oil-does-it-workMoya Moya Syndrome: https://www.mayoclinic.org/diseases-conditions/moyamoya-disease/symptoms-causes/syc-20355586CRISPR gene technology: https://www.broadinstitute.org/what-broad/areas-focus/project-spotlight/questions-and-answers-about-crisprHuntington’s Disease therapy: https://www.bbc.co.uk/news/articles/cevz13xkxproSave your life in slow motion and those of others by subscribing now and sharing. Thank you for listening and for your support. It means a lot to me. Hosted on Acast. See acast.com/privacy for more information.

Episode Description

I thought in this episode I would acknowledge people living with rare diseases as they can be hard to diagnose and live with.

Links:

Batten Disease: https://my.clevelandclinic.org/health/diseases/6018-batten-disease

Lorenzo's Oil: https://www.healthline.com/health/neurological-health/lorenzos-oil-does-it-work

Moya Moya Syndrome: https://www.mayoclinic.org/diseases-conditions/moyamoya-disease/symptoms-causes/syc-20355586

CRISPR gene technology: https://www.broadinstitute.org/what-broad/areas-focus/project-spotlight/questions-and-answers-about-crispr

Huntington’s Disease therapy: https://www.bbc.co.uk/news/articles/cevz13xkxpro

Save your life in slow motion and those of others by subscribing now and sharing. Thank you for listening and for your support. It means a lot to me.

Hosted on Acast. See acast.com/privacy for more information.

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