S2:E9 – Inside the Sotatercept (Winrevair) Trial: My Life-Changing PAH Clinical Trial Experience

In this episode of Rarely Typical, I’m pulling back the curtain on my own journey as a participant in the sotatercept (Winrevair) clinical trial for Pulmonary Arterial Hypertension (PAH).I share what a clinical trial actually is, why it’s such an important step in advancing treatment options, and why the sotatercept trial had the PAH community buzzing with hope. From there, I walk you through my own experience—the excitement, the setbacks, and yes, the exhausting parts too.It hasn’t all been smooth sailing. There have been hiccups, moments of frustration, and times I questioned if I could keep going. But more than anything, this trial has been life-changing for me, and I want to encourage others to consider participating in research that could change lives—yours and others’.If you’ve ever wondered what it’s really like to be part of a clinical trial, or you’re curious about what this breakthrough treatment means for the PAH community, this episode is for you.Listen in to hear:* What a clinical trial is (and isn’t)* Why sotatercept is such a big deal in PAH treatment* The real-world challenges and rewards of participation* How research can feel exhausting… and still be worth it* Why I believe in saying “yes” to the opportunity to make a difference🎧 Listen now and join me as I share one of the most impactful chapters of my PAH journey. Get full access to Rarely Typical, by Gerry Langan at itsgerrylangan.substack.com/subscribe