S2 Ep3: What Happens When We Stop Funding Science: How Chronic Illness and Rare Disease Communities Could Be Left Behind

This week on The Chronically Positive Podcast, I’m joined by a very special guest, my brother Elias. Elias is a rare disease researcher and we’re talking about something that impacts all of us: science funding. Recent cuts to research funding may feel distant, but they directly affect people living with chronic illness and rare disease. In this conversation, Elias explains how science funding actually works, what’s currently at risk, and why it matters for patients, clinicians, and the future of healthcare. We talk about how genetic research moves from the lab to treatment, and what could happen if we lose the next generation of scientists. Whether you live with chronic illness, care about innovation, or just want to understand what’s going on, this is a conversation you don’t want to miss. Disclaimer: Elias's views are his own and do not represent any institution or employer. Nothing in this episode is intended as medical advice. Please consult with a healthcare professional for medical guidance.