PODCAST · health
The Chronically Positive Podcast
by The Chronically Positive Podcast
Episodes
-
S2 Ep7: Dateability: The Dating App for People with Disabilities & Chronic Illness
You can watch this episode on YouTube In this episode of The Chronically Positive Podcast, I talk with sisters Jacqueline and Alexa, co-founders of Dateability— the first dating app created for people with disabilities and chronic illness. Jacqueline shares her personal journey navigating dating...
-
S2 Ep6: Crohn’s, Comedy, and Creating Your Own Spotlight with Anna Snapp S2 EP6
You can watch this episode on youtube In this episode, Anna Snapp joins me to share how she transformed years of medical trauma, mental health struggles, and invisible illness into powerful creative expression. From hospital stays and misdiagnoses to performing her story on stage for med students...
-
S2 Ep5: My First Trip Abroad with a Chronic Illness: How I Survived Italy S2 EP5
You can watch the episode on YouTube here In this episode of The Chronically Positive Podcast, I’m sharing my first experience traveling abroad with a chronic illness. I recently went to Italy, and while it was an incredible adventure, it came with its own set of challenges. From managing my…
more -
S2 Ep4: Building Resilience Together: The Impact of Chronic Illness on Relationships | Ft. Olivia Haning
You can watch this episode on youtube In this episode, I sit down with Olivia aka @chronicallyillandhot to discuss our experiences with chronic illness, focusing on the importance of community support, humor, and the emotional toll of living with conditions like Ehlers-Danlos syndrome and mast…
more -
S2 Ep3: What Happens When We Stop Funding Science: How Chronic Illness and Rare Disease Communities Could Be Left Behind
This week on The Chronically Positive Podcast, I’m joined by a very special guest, my brother Elias. Elias is a rare disease researcher and we’re talking about something that impacts all of us: science funding. Recent cuts to research funding may feel distant, but they directly affect people…
more -
S2 Ep2: Dating with Chronic Illness | Featuring my Boyfriend
In this episode, I sit down with my boyfriend, Matthew, to talk about the realities of love, support, and navigating life together with a chronic illness. We’re answering your questions, sharing personal stories, and tackling the tough topics—like feeling like a burden, managing household...
-
S2 Ep1: Navigating Relationships and Intimacy with Chronic Illness | Featuring Danni Hertel
Welcome to season two of the Chronically Positive podcast! This season, we're diving deep into the complexities of love, dating, and intimacy for those living with chronic illnesses. Today, we are joined by Danni Hertel, who shares her powerful story of navigating relationships while dealing with...
-
S1 Ep10: Trapped in His Own Body: Jake Haendel’s Unbelievable Survival Story Ep. 10
In this gripping episode, the 'Miracle Man' Jake Haendel shares his extraordinary journey of surviving stage four acute toxic progressive leukoencephalopathy, a rare brain disease that left him fully conscious but unable to move or speak for ten months. Jake opens up about his descent into...
-
S1 Ep9: Tyler Scheviak on Creating Fig: A Game-Changer for Food Allergies and Food Sensitivities
On this episode of The Chronically Positive Podcast, I sit down with Tyler Scheviak, the creator of the Fig app—a game-changing tool for anyone with chronic illnesses or food sensitivities trying to navigate their dietary restrictions. Tyler opens up about his journey, the challenges faced by…
more -
S1 Ep7: Teaching Dance with EDS: An Inspiring Journey of Adaptation and Resilience with Sami Leyde
In this episode of the Chronically Positive Podcast, I sit down with Sami Leyde, a chronic illness advocate and dance teacher. We dive into her journey with chronic pain, her experiences with Ehlers-Danlos syndrome and POTS, and how she’s adapted her teaching methods to accommodate her health...
-
S1 Ep6: Empowering Chronic Illness Management: Emily Von Weis on Guava and the Power of Community Support
In this episode of The Chronically Positive Podcast, I talk with Emily von Weise, Head of Marketing at Guava. Emily shares her personal journey with chronic illnesses such as Ehlers-Danlos Syndrome, POTS, and MCAS, and discusses how her experiences influenced her role at Guava. We dive into how…
more -
S1 Ep5: Tayler Goectau: Embracing Life with an Ileostomy
This week, I spoke with Tayler Goectau about her journey navigating life with disabilities, particularly her transition to living with an ostomy. Tayler opened up about the emotional challenges she faced, the importance of community support, and how she turned her experiences into a creative…
more -
S1 Ep4: Navigating Chronic Illness Through Creativity with Joe Glasgow
In this episode of the Chronically Positive Podcast, I sit down with Joe Glasgow, a talented writer and creative powerhouse, to discuss his journey with chronic illness, especially the impact of COVID-19. We explore the challenges of living with chronic conditions, the role of creativity and…
more -
S1 Ep3: Breaking Barriers: Kaylee Bays on Redefining Dance and Disability
In this episode of The Chronically Positive Podcast, I’m joined by Kaylee Bays, a dancer who is breaking barriers and redefining what’s possible in the performing arts. Kaylee shares her journey from discovering her passion for dance to navigating the challenges of living with Ehlers-Danlos...
-
S1 Ep2: One-on-One with Ila: Finding Your New Normal
Today, it’s just you and me! In this solo episode of The Chronically Positive Podcast, I’m sharing my personal journey of finding a new normal after being diagnosed with POTS and EDS. I’ll take you through the ups and downs of accepting my new reality and how I turned my challenges into...
-
S1 Ep1: Disability Has No Dress Code: Samantha Jade Durán's Journey to Becoming @adisabledicon
In this episode of The Chronically Positive Podcast, I’m joined by Samantha Jade Durán, a powerhouse designer, activist, and influencer known online as @adisabledicon. Samantha opens up about her journey as a Latina navigating life with complex disabilities and chronic illnesses while breaking...
-
S1 Ep1: Chronically Positive: Redefining Life with Chronic Illness
Welcome to the very first episode of The Chronically Positive Podcast! I’m your host, Ila, and I’m excited to share my journey with you. In this episode, I’ll dive into my personal story of living with chronic illnesses, including POTS and Ehlers-Danlos Syndrome, and how I’ve turned my…
more
We're indexing this podcast's transcripts for the first time — this can take a minute or two. We'll show results as soon as they're ready.
No matches for "" in this podcast's transcripts.
No topics indexed yet for this podcast.
Loading reviews...
Loading similar podcasts...