EPISODE · Jul 28, 2026 · 34 MIN
The Future of EDS Starts HERE
from Runnah: Running Cape Cod, Massachusetts, and Beyond! · host Julianna Coughlin with The Falmouth Running Club and Falmouth Community TV
As someone living with Hypermobile Ehlers-Danlos Syndrome (hEDS) myself, this conversation is incredibly personal. Laura shares what EDS really is, why awareness matters, the challenges patients face on their diagnostic journey, and how The Ehlers-Danlos Society is working to improve research, education, and access to care around the world. The Society's mission is to advance research, education, and equitable care for people with EDS and hypermobility spectrum disorders.Whether you're living with EDS, suspect you may have a connective tissue disorder, are a healthcare provider, or simply want to learn more, this episode is packed with valuable insights and hope for the future.🌐 Website: https://www.ehlers-danlos.com/📚 What is EDS?https://www.ehlers-danlos.com/what-is-eds/💙 Get Involved, Find Resources & Supporthttps://www.ehlers-danlos.com/get-involved/🎥 Watch Laura Bloom's documentary, Issues With My Tissueshttps://www.larabloom.com/post/issues-with-my-tissues-documentary📧 [email protected]📱 Instagram: https://www.instagram.com/runnahpod/Have a guest suggestion, sponsorship inquiry, or just want to share your running story? I'd love to hear from you!If you enjoyed this episode, please subscribe, leave a review, and share it with someone who could benefit from learning more about EDS. Every conversation helps raise awareness.Learn More About The Ehlers-Danlos Society
Embed this episode
NOW PLAYING
The Future of EDS Starts HERE
No transcript for this episode yet
Similar Episodes
No similar episodes found.
Similar Podcasts
No similar podcasts found.