The Grief Pod with Venetia Quick - Lets Talk About Grief featuring Emma Fogarty

Emma Fogarty was baptised a few days after birth, as the doctor didn’t expect her to live for long, probably not even a week. Now at 41, Emma is the longest living person in Ireland with EB, or Butterfly Skin as it in better known. In her first ever podcast interview, Emma talks about the life she would have had without EB, and while it may have robbed her of a future it’s given her things she would have never had without it. Never asking ‘why me’, Emma talks about the psychological pain of Secondary school, her thoughts on dying, and her work with Debra Ireland. Emma’s new book ‘Being Emma, Living my Best Life with Butterfly Skin’ is out now!