The ILC Foundation & Supporting Those With Rare Chronic Pain Disorders With Sandy Smeenk

In this episode we speak with Sandy Smeenk about chronic pain disorders and the ILC Foundation. Sandy is the Co-Founder & Executive Director of The ILC Charitable Foundation (“The ILC”). The “ILC” is the abbreviation for “Improving the Lives of Children” touching children of all ages and throughout adult-life. Sandy has worked with and led teams of people on the development of programs to improve the lives of individuals living with Ehlers Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), related disorders and Chronic Pain. Sandy is a member of the Patient-Engagement Committee with the CIHR funded Chronic Pain Network, is a member of the Chronic Pain Care Forum whose aim is to support the development of a National Pain Strategy and is recognized by Patient Commando as a Canadian Women Changing Healthcare. Learning Points: 1. Who does the The ILC Charitable Foundation serve? 2. Why are people with Ehlers Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), related disorders and Chronic Pain so underserved? 3. What are some foundational programs offered by the ILC? Social Media Handles/Website Address www.TheILCFoundation.org https://twitter.com/ILC_Foundation https://www.facebook.com/TheILCFoundation?fref=ts https://www.instagram.com/theilcfoundation/ https://www.linkedin.com/company/2047512/admin/ https://www.youtube.com/channel/UCsWpRQ2sCHKEC9SsjH196AA/videos