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EPISODE · Oct 21, 2025 · 55 MIN

The Power of Advocacy- James McGoram

from Rare Aware · host Alanna

In this episode of Rare Aware, we explore the power of advocacy — and just how far we’ve come in New Zealand.We’re joined by James McGoram, Chair of the Board for Rare Disorders NZ, who shares his personal journey from receiving a rare diagnosis to becoming a passionate advocate for change.James opens up about the challenges of navigating the health system, what inspired him to get involved with RDNZ, and the progress he’s seen over his six years as Chair.We’ll also unpack what advocacy really means, why it’s so vital for people living with rare disorders, and how each of us can play a role in driving change.Stay tuned — this is a powerful conversation about resilience, community, and the difference one voice can make.Support the showThank you so much for listening to this episode of Rare Aware. If you would like to learn more about rare disorders in New Zealand go to our website or follow us on Facebook, Instagram or LinkedIn.

Episode metadata supplied by the publisher feed · Published Oct 21, 2025

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In this episode of Rare Aware, we explore the power of advocacy — and just how far we’ve come in New Zealand. We’re joined by James McGoram, Chair of the Board for Rare Disorders NZ, who shares his personal journey from receiving a rare diagnosis to becoming a passionate advocate for change. James opens up about the challenges of navigating the health system, what inspired him to get involved with RDNZ, and the progress he’s seen over his six years as Chair. We’ll also unpack what advocacy re...

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This episode was published on October 21, 2025.

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