The real, raw reality of having a mother with FTD, and the scientific advancements surrounding the diagnosis, with Jacquelyn Shapiro (Episode 72)

In this episode, Jacquelyn Shapiro shares her experiences as a daughter of FTD in a very vulnerable way. She and Stephanie compare their experiences having mothers with this very difficult diagnosis and the daily rollercoaster it can entail. Jacquelyn also shares her knowledge and details surrounding the genetic components and advancements behind the disease. About Jacquelyn: Jackie was born and raised in New York to Russian-Jewish immigrant parents. In 2020, her mom was diagnosed with bvFTD at the age of 56 when Jackie was only 30 years old. Her family later learned that her mom is a carrier of GRN (FTD gene), causing FTD. Though the disease is genetic, her family had no known history of dementia. Today, Jackie has become an advocate for genetic testing and support for caregivers. Find Jacquelyn on instagram: @ftdalovestory*The content shared on this podcast is for educational and informational purposes only. It is not intended to be a substitute for professional advice, diagnosis, or treatment, and it does not constitute therapy or counselling. If you are in need of mental health support or professional guidance, please reach out to a qualified healthcare provider or mental health professional. The views expressed by guests are their own and do not necessarily reflect those of the host.*Visit us on our website:www.compassionincaregiving.comFor more visit our Instagram! @compassionincaregiving