Vol 26 | 与死神拔河的这七年

从2018年开始，商老师拍摄“小白家庭”（白血病患儿家庭）的生活。他举着镜头跟着这些孩子一路拍摄，从普通病房到隔离舱，从医院到临时租屋，从看病的城市到村里的老家。商老师的镜头里面有孩子治疗的过程，有他们和父母的温馨日常，有面对疾病奋力一搏的勇气，也有无力和绝望。除记录之外，商老师拍摄的照片常常被用于筹款中，筹得的款项支撑了很多小白家庭的医疗或生活开销。他们的人生走向也非常不同。有的孩子的人生还没有展开就已经被合上，商老师记录下了他们生命中的最后时光。也有的孩子痊愈康复，多年后带着自己的宝宝从天南地北回来，找商老师再次拍摄痊愈后的生活。更重要的是，“患儿”和“小白家庭”的背后，是一个个完整的人、复杂的家庭。他们无法被疾病所概括，但每天都被疾病所撕扯。商老师记录下的故事中，一对父子都被确诊白血病，父亲坚持把有限的财力都给孩子，最终孩子成功痊愈，父亲离世。而对于孩子去世的父母来说，很多夫妻都...去小宇宙查看完整单集简介在小宇宙查看该单集文稿

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Vol 26 | 与死神拔河的这七年

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This episode was published on July 27, 2025.

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