What's the Human Side of Inflammatory Arthritis?

Debbie and Katy sit down after a whirlwind few weeks, including their first ever live podcast event, a national conference, and even a little “pod‑adultery” (appearing on someone else’s podcast). They reflect on the nerves, the joy, and the powerful audience reactions during the live show, where themes like shame, disclosure, grief after diagnosis, and identity came through strongly.The pair also dive into the everyday realities of living with inflammatory arthritis, opening up about the often-invisible challenges behind simple daily tasks like washing and brushing hair, cycling, and managing pain and fatigue. They also discuss concerns around digital-only NHS healthcare pathways, the importance of pacing and rest, and share updates on upcoming IAUK plans, including the return of live Q&As and volunteer opportunities.Key topics: First live podcast experience and audience reactions“Pod‑adultery” — appearing on Mel Brooks’ PSA HQ podcastCommon themes: shame, disclosure, grief after diagnosisEveryday challenges: hair care, cycling, makeup, pain managementNHS App + NHS Online Trust concerns and digital‑only healthcareStress, pacing, grief, and taking time offWeather changes, flares, sun safety on biologicsIAUK updates: live Q&A plans, Volunteers Week, newsletter and socialsKey words: inflammatory arthritis, psoriatic arthritis, chronic illness, live podcast, patient stories, NHS App, NHS Online Trust, digital healthcare, arthritis fatigue, arthritis pain, biologics sun safety, chronic illness grief, disability disclosureResources: PSA HQ Podcast with Mel Brooks — episode coming JuneIAUK Newsletter & Website: inflammatoryarthritis.orgIAUK Socials: Instagram, Facebook, LinkedIn, BlueSkyYouTube Channel: Watch full podcast episodesNational Voices — discussion on NHS Online Trust plansVolunteers Week (June) — opportunities to support IAUKDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/