When lived experience and science clash with Fabian Hoff

When we asked Fabian what his autism diagnosis meant to him, he didn’t beat around the bush. ‘I was lost and then I was found’ he said. Fabian collected several psychiatric diagnoses before he realised that he might be autistic. He worked it out for himself and then a psychiatrist confirmed it. He says that seeing himself as disabled, rather than having a psychiatric illness, changed everything.But Fabian is sceptical about some of the ways that autism is being portrayed and discussed online. While he thinks that people should be able to self-identify, he recognises that lived experience is a complicated thing and there are multiple incentives at place. When people post reels of themselves having meltdowns on social media, for example, what is that about? Should we value lived experience over research - and what happens when they point us in different directions? This was an unusually open conversation and we hope you enjoy it. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit neurosense.substack.com