EPISODE · Jun 16, 2025 · 1H 1M
Wiggle Room in People & Systems: a Necessary Part of FASD Life
from Living with FASD · host Patricia Kasper
In this thought-provoking episode of Living with FASD, hostPatti Kasper continues her engaging Meliorist Mondays series with guests Jodee Kulp and Antonia Rathbun Lindsay. This week, they delve into the concept of "wiggle room" in both life and the systems that support individuals with Fetal Alcohol Spectrum Disorder (FASD).The conversation highlights the significant time lag—often17 years—between scientific discoveries and societal acceptance, demonstrating this in the recent passage through the US House of Representatives of the long-fought-for FASD Respect Act. The trio reflects on the challenges faced by families navigating complex systems, emphasizing the need for adaptability and understanding within medical and social frameworks.Listeners will gain insight into the importance of effectivecommunication and the necessity of presenting data in a manner that resonates with professionals. The discussion also touches on the personal experiences of the Meliorist Team members, illustrating the struggles and triumphs ofadvocating for loved ones in a world that often lacks awareness about neurodiversity.This episode is essential for anyone looking to understandthe intricacies of living with FASD and the importance of community, research, and personal narratives in driving change. Join Patti, Jodee, and Antonia as they navigate these vital conversations and inspire listeners to embrace thewiggle room in their own lives.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services. To order Sip by Sip: Candid Conversations with Adults Living with FASD, go to books.by/yourfasdcoach#FASD #MelioristMondays #WiggleRoom FASDRespectAct#CommunitySupport #LivingWithFASD
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Wiggle Room in People & Systems: a Necessary Part of FASD Life
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