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You Are Not Your Diagnosis: Building A Life That Fits You with Kyle Willpower episode artwork

EPISODE · Nov 20, 2025 · 33 MIN

You Are Not Your Diagnosis: Building A Life That Fits You with Kyle Willpower

from Wine with Wita | Speech Pathology & Parenting Support · host Rita Shamoun

Hey everyone, This week, I sit down with disability advocate and motivational speaker Kyle “Willpower,” a man who has been defying expectations since he was diagnosed with Charcot Marie Tooth disease at just five years old. ​Kyle shares what it was really like growing up as “the onlydisabled kid at school” in a small country town, from athletics carnivals and soccer on legs that would not cooperate, to the bullying, the long pants, and the cover stories he used for years to hide his disability. ​ We also talk about the moment everything shifted - when hedecided to stop hiding, step into the gym, lose 40 kilos and start showing up online exactly as he is. That discipline and mindset now flow into his life as a business owner, running 11 Airbnb's, creating content and building new ventures that work with his body, not against it. ​ We talk about: 💫 Growing up with CMT and refusing to sit on the sidelines 💫 The reality of bullying, shame and hiding his disability for years 💫 How fitness, discipline and losing 40 kilos changed his life 💫 From horse manure and computer repairs to running 11 Airbnb's 💫 The message he wants every parent of a disabled child to hear about fear, risk and “letting them have a go” 💫 Why you are not your diagnosis, and how to stop building your whole identity around it If you want to learn more about Kyle, follow his journey here.​ ​Lots of love, Rita P.S.: follow me on ⁠Instagram⁠ for more tips,insights and updates. Disclaimer: the purpose of this podcast is to provideinformation. You must not rely on the information on this podcast as an alternative to speech and language therapy. You must always consult with a Speech Pathologist, GP and/or paediatrician if you have any concerns about yourchild's communication and/development.

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You Are Not Your Diagnosis: Building A Life That Fits You with Kyle Willpower

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