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AliveandKick'n the podcast

by David Dubin

Health

The movers and shakers in the lynch syndrome field. Join patient advocates, physicians, geneticists, genetic counselors and others in the space, as we go deep into what it's like to LIVE in a world with Lynch Syndrome genetic mutations.

From the show's RSS feed, refreshed Oct 6, 2026. Source feed.

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Episodes

  1. AliveAndKickn Podcast - Amanda Wagner

    I sit down with Amanda Wagner, dietician and certified running coach and former soccer player. Amanda also has a lynch syndrome story. Everyone has been supportive of Amanda in her Lynch Syndrome journey, which has been beneficial for her own mindset. I learned quarter life crisis was a thing, so…

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  2. AliveAndKickn Podcast - Jean Edelstein

    I sit down with Jean Edelstein, Lynch Syndrome patient advocate and author of Breasts a Relatively Brief Relationship and It's Really Not About You. We discuss New Jersey, family, fiber, and MRI's, you know your typical conversation. Enjoy.

  3. AliveAndKicin Podcast - Hannah Ditchfield and Stefania Vicari

    I sit down with Dr Hannah Ditchfield and Professor Stefania Vicari from Loughborough University to discuss social media and Lynch Syndrome, a topic not normally associated with Lynch Syndrome. Fascinating stuff. They discuss the Previvorship Project, which started in 2022, which analyzed public...

  4. AliveAndKickn Podcast - Sara Kavanaugh

    I sit down with Sara Kavanaugh, Lynch Syndrome patient, part of Lynch Syndrome Awareness non profit, and Connect My Variant. Sara is the overachiever in so many ways, including voiceover work, and being host of the Positive Gene Podcast. We talk about potential solutions to getting the word out...

  5. AliveAndKickn Podcast - Hanna Lombardi

    I sit down with Hanna Lombardi, lynch syndrome patient at Dana Farber Cancer Institute, mom of 3, who is also running the Boston Marathon to raise Lyncgh Syndreome awareness. Come for the Lynch Syndrome story, enjoy a donut or two, and stay for the guest appearance. Then go for a jog.

  6. AliveAndKickn Podcast - Stef Alastre

    I sit down with Stefania Alastre as we discuss her role as Genetic Counselor at the Moffitt Cancer Center, as well as Assistant Professor at the University of South Florida genetic counseling program, and her role as Certified Medical Translator. We also talk about worm cloning, soccer and the...

  7. AliveAndKickn Podcast - Dr Mev Dominguez

    I sit down with Dr Mev Dominguez, Project Group Leader Inherited and Familial Cancer at the University of Oslo and Director of the Predi Lynch Project. Starting in May 2025, lasting for 6 years, there are 28 partners from 16 European countries acting and working together. Liquid biopsy every…

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  8. AliveAndKickn Podcast - Laura Schneebaum

    I sit down with Laura Schneebaum, licensed mental health counselor and therapist, working with us in the hereditary cancer space. Besides the NYU linkage, we had a lot in common. We talk about trauma informed care and the quote "An abnormal reaction to an abnormal situation is normal." Laura…

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  9. AliveAndKickn Podcast - Richard Wu

    I sit down with Richard Wu, Lynch Syndrome patient and runner in the TCS New York City Marathon. Richard didn't know about his Lynch Syndrome but was experiencing unexplained fevers, especially on trips. At 38, he was surprised to hear of his colon cancer. The immunotherapy not only cured his...

  10. AliveAndKickn Podcast - Dr Yvonne Bombard

    I sit down with Dr Yvonne Bombard, scientist focusing on improving access to genetic testing for personalized medicine, at Unity Health in Toronto, as well as being founder and CEO of The Genetics Advisor. Dr Bombard is a problem solver at heart, always looking for ways to clear access for…

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  11. AliveAndKickn Podcast - Dr Magali Svrcek

    I sit down with Dr Magali Svrcek, Professor of Pathology at the University of Sorbonne in Paris, and she discusses her role as a GI Pathologist. Dr Svrcek discusses Microsatellite Instability, digital tools and Immunohistochemistry. Dr Svrcek wrote her script in English, so I in turn wrote my...

  12. AliveAndKickn Podcast - Dr Luis Diaz Jr

    I sit down with Dr Luis Diaz Jr, physican scientist at Memorial Sloan Kettering, and we share some history of mismatch repair, lynch syndrome and the evolution. Of course we talked about the primary rectal cancer study where they showed immunotherapy was curative for MMR/MSI High tumors. A second...

  13. AliveAndKickn Podcast - Dr Aparajita Singh

    I sit down with Dr Aparajita Singh, Gastroenterologist and Director of the Lynch Syndrome Center at UCSF, where it truly is a team effort taking care of Lynch Syndrome patients. Aside from me mispronouncing Lynch Syndrome, it was a wonderful engaging conversation. UCSF Lynch Syndrome Center…

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  14. AliveAndKickn Podcast - Dr Timothy Yen

    I sit down with Dr Timothy Yen, Gastroenterologist and Clinical Informaticist at Loma Linda University. Dr Yen was building the Lynch Syndrome program at Loma Linda when he discovered Epic Cosmos, where the Epic's Care Everywhere could be used for research, regardless of the health system. Epic...

  15. AliveAndKickn Podcast - Marina Udier

    I sit down with Marina Udier, CEO of Nouscom, a Swiss company working on the Lynch Syndrome vaccine. Nous209 is designed to intercept tumors in Lynch Syndrome cancers. The 209 comes from the frameshifts of neoantigens, whether sporadic or hereditary. Idea is to educate the T-cells before cancers...

  16. AliveAndKickn Podcast - Dr Aasma Shaukat

    I sit down with Dr Aasma Shaukat, Gastroenterologist and Professor of Population Health, who is also trained in Epidemiology and Clinical Research, and Director of GI Outcomes Research at NYU Langone Health, Grossman School of Medicine. We talk about progress in healthcare fields including...

  17. AliveAndKickn Podcast - Dr Matthias Kloor

    I sit down with Dr. Matthias Kloor, Acting Medical Director Applied Tumor Biology at Heidelberg University. We discuss the thought process followed by the hurdles faced in trying to get a Lynch Syndrome vaccine, through the phases, to potentially the proverbial bedside. We discussed collaboration...

  18. AliveAndKickn Podcast - Sandra and Javier Corrales

    I sit down with Sandra and Javier Corrales, who share their Lynch Syndrome story. Javier has been open with his diagnosis so his family can be proactive in their care. Sandra, who has a history of cancer in her family as well, has been the teammate in this process every step of the way. With the...

  19. AliveAndKickn Podcast - Dr Jen Hartstein

    I sit down with Dr Jen Hartstein, lynch syndrome previvor and clinical psychologist in New York City. We both hope that others can take away something from us that helps them with their day and daily lives. She also has a media career talking about life, mental health and her own company working...

  20. AliveAndKickn Podcast - Junius Nottingham Jr

    I sit down with Junius Nottingham Jr, founder of JNottGTT, a non-profit for Lynch Syndrome awareness. Junius tells the story of his son Jeremy, who was a secret service agent and so much more, who passed at age 30. Junius discovers his own colon cancer after his son's diagnosis, but it was found...

  21. AliveAndKickn Podcast - Dr William Oh

    I sit down with Dr William Oh, newly appointed Precision Medicine Director at Yale Cancer Center. Dr Oh is a Medical Oncologist who has focused mainly on Genitourinary cancers, so we of course talk about prostates. We discuss high risk populations and of course finding cancer early, knowing…

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  22. AliveAndKickn Podcast - Dr Mohammad Ali Abbass

    I sat down with MSK's colorectal surgeon Dr. Mohammad Ali Abbass just before CGAIGC, the Collaborative Group of the Americas on Inherited GI Cancers. At CGA, Dr Abbass moderated a discussion around colon resection for Lynch Syndrome patents. Dr Abbass and I also discussed a study around the…

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  23. AliiveAndKickn Podcast - Cathy Nobil-Dutton

    From a warm summer day, I sat down with Cathy Nobil-Dutton, lynch syndrome survivor, wellness coach and more. Cathy is the only person I've met who had almost melanoma, sort of. Our conversation is all over the place, as it should be when discussing living with lynch syndrome. Wouldn't have it…

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  24. AliveAndKickn Podcast - Dr. Patrick Soon-Shiong

    I sit down with Dr. Patrick Soon-Shiong, Executive Chairman and Global Chief Medical and Scientific Officer for Immunity Bio, and we talk everything cancer vaccines scientifically, including the potential Lynch Syndrome vaccine. A new term is announced on our podcast, Tumor Educated Lymphocytes.…

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  25. AliveAndKickn Podcast - Diane Hardesty

    I sit down with a reluctant guest, Diane Hardesty finally, Lynch Syndrome patient, speaker and a self-proclaimed Valley Girl. Before Diane's genetic testing results, 10 people in her family had passed away from cancer. Diane's son did not inherit her mutation so it ends with her. Diane is still a...

  26. AliveAndKickn Podcast - Robin Centner APRN, CNM, MSN

    I sit down with Robin Centner, Lynch Syndrome survivor, who talks about how she had a conversation with Dr Henry Lynch himself, her family history, and how she made it her mission to take of her family and make sure they had all the information they needed to take care of their health. Robin…

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  27. AliveAndKickn Podcast - Dr Christina Dieli-Conwright

    I sit down with Dr. Christina Dieli-Conwright to discuss exercise and nutrition, esecially as it pertiains to lynch syndrome patients, but all cancer patients and everyone else. Dr Dieli- Conwright works with cancer survivors exclusively now, and is excited to be working with some of the most...

  28. AliveAndKickn Podcast - Dr Darrell Gray II

    I sit down with Gastroenterologist Dr Darrell Gray II, as we discuss the Association of Black Gastroenterologists and Hepatologists (Black in Gastro) movement, and how he approaches communicating bedside practice to policy. He wants to advance the science and center the community involvement, and...

  29. AliveAndKickn Podcast - Roxy Thunder

    I sit down with Roxy Thunder, originally from the Phillipines but now residing in Michigan. Roxy is a bodybuilder, personal trainer and a lifestyle coach. Roxy inherited her Lynch Syndrome mutation from her father, who passed away from colon cancer and was diagnosed at 45. Roxy herself developed...

  30. AliveAndKickn Podcast - LeeAnne Hayden

    I sit down with LeeAnne Hayden, Lynch Syndrome patient, ostomy patient, and host of The Beautiful Bag podcast. Not only does she have an inspirational story, but she is also the first and only (so far) lynch syndrome podcaster that I've had on. LeeAnne has adjusted to her new lifestyle and is...

  31. AliveAndKickn Podcast - Allison Rosen

    I sit down with Alison Rosen, colon cancer survivor and lead on Project Echo for the American Cancer Society. We talk about young adult survivorship, cancer advocacy and of course Lynch Syndrome. While Alison was 32 at diagnosis, she (so far) has tested negative for anything genetic, which was...

  32. AliveAndKickn Podcast - Scott Weissman

    Full disclosure, we recorded this in February, just as the Alabama Supreme Court IVF decision was handed down. I sit down with Scott Weissman, Genetic Counselor and so much more, at the Norton & Elaine Sarnoff Center for Jewish Genetics. Statistically we're all carriers for something in the…

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  33. AliveAndKickn Podcast - Dr. Asaf Maoz

    I sit down with Dr Asaf Maoz, Medical Oncologist at Dana Farber Cancer Institute, who I recently saw at the LynkedIn and Scientific Symposium. We discussed what brought Dr Maoz to this point, discussing immunology, T-cells, receptors and targets. Dr Maoz confirmed that not all Lynch cancers are...

  34. AliveAndKickn Podcast - Emily Goldberg

    I sit down with Emily Goldberg, Genetic Counselor for JScreen. JScreen is a nonprofit that provides cancer genetics testing, but also has a reproductive carrier screening panel. Most patients choose saliva but sometimes blood is chosen by mobile phlebotomy. JScreen which started in Atlanta,...

  35. AliveAndKickn Podcast - Cody Mitchell

    Boise Podcast pro Cody Mitchell joined me on the podcast as we talked Lynch Syndrome as she approaches her 4th cancerversary of endometrial cancer. Cody has been able to turn her diagnosis into knowledge and cohesion among her network. Cody is considered de novo as she is the first in the family…

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  36. AliveAndkickn Podcast - Erica Nelson

    I sit down with the Awkward Angler herself, Erica Nelson, from west of Denver in Crested Butte, Colorado. Erica is a flyfishing guide in the Valley with a Lynch Syndrome story and so much more. Erica also does consulting on diversity, equity and inclusion with her own podcast. The organization...

  37. AliveAndKickn Podcast - Dianne Hammer

    I sit down with Dianne Hammer, who shares her Lynch Syndrome story for the first time on a podcast. Recently diagnosed, Diane is still a previvor, although she found pre-cancer when she had her hysterectomy. She's also unsure which side of her family she inherited her mutation. An avid writer and...

  38. AliveAndKickn Podcast - Rachel Travis

    I sit down with Rachel Travis, otherwise known as the TattedRayofSunshine. Not only does Rachel have a Lynch Syndrome colorectal and peritoneal cancer story, but also an alcohol, a firearms, a weight, a childhood trauma, rape and more. Rachel hopes that her diagnosis was a wakeup call for others,...

  39. AliveAndKickn Podcast - Michelle Vina-Baltsas

    I sit down with Michelle Vina-Baltas, who has been having colonoscopies for 20 years, developed skin cancer 12 years ago, but only got tested for Lynch Syndrome recently. Even as a life coach with tools for mitigating it, Michelle still gets a little anxious before screenings. Michelle works with...

  40. AliveAndKickn Podcast - Amber Eastman

    I sit down with Amber Eastman, Lynch Syndrome survivor, and member of the Confederated Tribes of Ronde in Oregon. Amber confirmed with me that women of color face a more difficult challenge in that they are often noit believed, that they're crying wolf when they come to the physician's office....

  41. AliveAndKickn Podcast - Srinivas Pai

    I sit down with Srinivas Pai, Lynch Syndrome survivor from lots of different places including India, Singapore, Michigan, New York and now Indiana. While of course he has a rectal cancer story, how he and his wife, an Internist herself, managed his treatment in 2012, tells a story itself. We talk...

  42. AliveAndKickn Podcast - Jaystan Davis

    I sit down with Jaystan Davis, colon cancer survivor at age 19, as we discuss Lynch Syndrome, basketball, and more. We also talk about how what was originally thought was an infection was actually additional cancers, so being your own advocate is important. His clinical trial of immunotherapy and...

  43. AliveAndKickn Podcast - Dr Toni Seppala

    I sit down with Dr Toni Seppala from Finland, GI surgeon, as we talk Lynch Syndrome and hockey instead of soccer for a change. We talk risk-reducing surgeries, screening intervals, and the debate that continues, especially as it pertains to the different genes within Lynch Syndome. We also…

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  44. AliveAndKickn Podcast - Erin House

    I sit down with Erin House, Lynch Syndrome survivor with a great story, including her running in the NYC marathon on behalf of AliveAndKickn. Erin, originally from Australia, has an interesting story of genetics and international implications. Takeaway is to be your own best advocate and follow...

  45. AliveAndKickn Podcast - Rachelle Manookian

    I sit down with Rachelle Manookian, Genetic Counselor at Children's Hospital of LA. We discuss the transition from adult oncology at City of Hope to pediatrics, and the nuances it entails. Rachelle and I originally met when she was a student at Mount Sinai in New York, and she's running the NYC...

  46. AliveAndKickn Podcast - Dr Jose Perea Garcia

    I talk with Dr Jose Perea Garcia, Digestive Surgeon as well as cancer researcher in Madrid. We talk about how surgery has evolved and management of the Lynch Syndrome patient compared to sporadic cases. We compare some protocols and coverage in the US vs elsewhere such as Spain where there is...

  47. AliveAndKickn Podcast - Dr. Tiago Biachi

    I sit down with Dr Tiago Biachi, Medical Oncologist at Moffitt Cancer Center, as we discuss Lynch Syndrome, GI cancers, MSI, immunotherapy and of course soccer including the women's world cup, the pickup game at ASCO which I was not invited to, and more.

  48. AliveAndKickn Podcast - Dr William Karnes

    I sit down with Dr William Karnes, Gastroenterologist and Director of High Risk and Colonoscopy Quality at the Digestive Health Institute at UC Irvine Health, as we discuss his accomplishments, including the launch of DocBot. We discuss quality measure indicators and what can and/or should be…

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  49. AliveAndKickn Podcast - Dr Harsha Vyas

    I talk community oncology with Dr Harsha Vyas, Oncologist at Cancer Center of Middle Georgia. Dr Vyas is also Advocacy Chair for the Community Oncology Alliance (COA). Belk, Kroger, and WalMart are the centers of the area, so people will come to Dr Vyas and make a day of it while there. Truly...

  50. AliveAndKickn Podcast - Brian Kelly

    I had a conversation with Brian Kelly, life sciences and diagnostics professional. Brian's career is expansive but working with pharma on advanced diagnostics has been his passion for the last dozen years. Precision therapy is not a simple triangle. A lot of parties are involved. Molecular...

View all 100 episodes →

About this show

The movers and shakers in the lynch syndrome field. Join patient advocates, physicians, geneticists, genetic counselors and others in the space, as we go deep into what it's like to LIVE in a world with Lynch Syndrome genetic mutations.

Hosted by

David Dubin

Produced by Robin Beth Dubin

Frequently asked questions

How many episodes does AliveandKick'n the podcast have?

AliveandKick'n the podcast has 100 episodes on PodParley. The most recent episode was published on October 6, 2026.

What is AliveandKick'n the podcast about?

The movers and shakers in the lynch syndrome field. Join patient advocates, physicians, geneticists, genetic counselors and others in the space, as we go deep into what it's like to LIVE in a world with Lynch Syndrome genetic mutations.

How often does AliveandKick'n the podcast release new episodes?

AliveandKick'n the podcast publishes every two weeks, based on its 100 episodes since May 2021.

Who hosts AliveandKick'n the podcast?

AliveandKick'n the podcast is created and hosted by David Dubin.
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