Building the Noise Podcast

For four years, doctors told Bridget Dandaraw-Seritt that she was fine. When someone finally listened, they discovered a surgical screw embedded in her cerebellum and another working its way in.In this episode of Building the Noise, Bridget joins Matt Toresco for a powerful conversation about medical dismissal, chronic illness, patient advocacy, prescription drug access, and the importance of trusting your own body.Living with rheumatoid arthritis, lupus, Sjögren’s syndrome, a rare form of Ehlers-Danlos syndrome, mast cell activation syndrome, and related complications inspired Bridget to become a determined healthcare policy advocate. Today, she helps patients understand legislation, share their stories, communicate with lawmakers, and fight for policies that protect their access to care.Bridget also explains how pharmacy benefit managers, rebates, formularies, prescription drug affordability boards, and state healthcare policies can influence whether patients receive the medications and support they need.In this episode, you’ll learn:What happened after Bridget’s concerns were dismissed for four yearsHow to advocate for yourself when a doctor does not listenWhy patients should not be afraid to seek another medical opinionHow PBMs and rebates can influence medication accessWhy some drug-pricing policies may create unintended consequencesHow patients and caregivers can influence healthcare policyWhy community is essential for people living with chronic illnessHow healthcare organizations can amplify patient voices without speaking over themPatients are the reason the healthcare system exists, yet their perspectives are often missing from decisions about treatment, coverage, medication access, and public policy. Bridget’s story is a powerful reminder to trust yourself, stay persistent, find community, and use your voice.Subscribe to Building the Noise for more conversations about patient advocacy and healthcare change. Share this episode with someone who needs to hear that their voice matters, and leave a rating or review to help more listeners discover the show.What should patients do when they know something is wrong but their concerns keep being dismissed?#PatientAdvocacy #PatientVoice #ChronicIllness #HealthcarePolicy #MedicalDismissalSupport the showBuilding the Noise with Matt Toresco

After losing his son Lucas to pulmonary hypertension, Steve Van Wormer turned unimaginable grief into a global mission. Today, his work helps patients and families find answers, community, trusted resources, and hope.In this episode of Building the Noise, Matt Toresco speaks with Steve of phaware global association (phaware®) about the diagnostic journey that changed his family’s life and the legacy that continues to help thousands.Lucas was four years old when his health began declining. After months of being treated for asthma, a substitute pediatrician ordered a chest X-ray and discovered that his heart was enlarged. That unexpected finding led the family to UCLA Mattel Children’s Hospital and began a 14-year journey with pulmonary hypertension.Steve explains why pulmonary hypertension is often misdiagnosed, why patients may see several doctors before receiving answers, and why families must trust their instincts when something still feels wrong.He also shares how phaware® uses storytelling, technology, and global collaboration to support the pulmonary hypertension community. Through more than 600 episodes of the Aware That I’m Rare podcast and the HeartWorks app, Steve and his team connect patients with lived experiences, medical experts, clinical-trial information, health-tracking tools, and practical resources.The conversation closes with Lucas’s continuing legacy, including his artwork, the Hearts for Lucas project, and the people around the world who still share how he changed their lives.In this episode, you’ll learn: Why pulmonary hypertension can be mistaken for asthma  How one chest X-ray changed Lucas’s diagnostic journey  Why patients should trust their instincts and seek another opinion  How storytelling helps rare-disease patients feel heard  What Steve learned from more than 600 patient conversations  How the HeartWorks app supports patients around the world  Why clinical trials remain essential to medical progress  What effective partnerships between advocacy groups and industry require  How Lucas’s art and life continue to inspire others  Why a pulmonary hypertension diagnosis is not necessarily a death sentence today Rare-disease patients can spend months or years searching for the correct diagnosis. Steve’s story shows why listening to patients, questioning incomplete answers, and connecting families with experienced specialists can change the course of a life.It is also a powerful example of turning grief into purpose. By preserving patient stories and making reliable resources easier to access, Steve is ensuring that Lucas’s impact continues to reach families worldwide.Subscribe to Building the Noise for more conversations about patient advocacy, rare disease, and healthcare innovation. Share this episode with someone who needs to hear it, and leave a rating or review to help more listeners discover these important stories.#PulmonaryHypertension #PatientAdvocacy #RareDisease #phaware® #CaregiverSupport #PatientStories #HealthcareInnovation #BuildingTheNoiseSupport the showBuilding the Noise with Matt Toresco

What if your child’s chance of receiving life-saving newborn screening depended on the state where they were born? Rare disease policy advocate Erin Frey calls this heartbreaking disparity “death by ZIP code.”In this episode of Building the Noise, Matt Toresco speaks with Erin about America’s newborn screening system, the Recommended Uniform Screening Panel (RUSP), and why babies are not necessarily screened for the same conditions in every state.Erin explains how a condition moves from treatment approval to federal recommendation and then through individual state review processes a journey that can take years. For rare disease families, these delays may mean losing the opportunity to diagnose and treat a child before irreversible disease progression begins.They also discuss the realities facing public-health laboratories, the future of genomic newborn screening, and why meaningful healthcare change often begins at the state level. Erin shares how successful advocates build coalitions through listening, relationships, persistence, and honest conversations.You’ll learn:Why newborn screening panels differ from state to stateWhat the Recommended Uniform Screening Panel meansWhy screening delays can stretch toward 10 yearsHow early diagnosis can improve rare disease outcomesWhy public-health laboratories need more resourcesHow state legislation can create national changeWhat genomic newborn screening could mean for familiesWhy advocacy requires coalitions, not individual voicesHow Erin transformed personal challenges into a purpose-driven careerFor rare disease families, every minute matters. Closing the newborn screening gap requires more than scientific innovation it requires better policy, stronger public-health systems, and collaboration among families, advocates, healthcare professionals, industry leaders, and lawmakers.Learn more about the State Zebra Network and its work supporting state-level rare disease advocacy:https://statezebranetwork.orgSubscribe to Building the Noise for more conversations about patient advocacy, rare disease, and healthcare policy. Share this episode with someone who needs to hear it, and leave a rating or review to support the show.Support the showBuilding the Noise with Matt Toresco

Doctors told Monica Dudley-Weldon that her son might never walk or talk. One night, he unexpectedly said the words she had been waiting to hear: “I love you.”When Beckett was diagnosed with a SYNGAP1-related disorder, he was one of only six identified patients Monica could find. Getting that answer required 19 specialists, a $13,000 genetic test, a 14-week wait, and the willingness to take a chance when success was far from guaranteed.Monica refused to let the diagnosis become the end of Beckett’s story.A former science teacher, she founded the first organization dedicated to advancing SYNGAP1 research, awareness, and family support. Her work helped establish a patient registry, natural history research, an ICD-10 code, and new collaborations among families, researchers, biotechnology companies, and policymakers.That journey eventually led Monica into law, health policy, biotech strategy, and chemical and biological defense work with the federal government.IN THIS EPISODE, YOU’LL LEARN: Why Monica borrowed $13,000 for a genetic test with only a 20% chance of finding an answer  How Beckett became one of the earliest identified SYNGAP1 patients  How one family helped create an international rare disease movement  Why patient registries and natural history studies matter to drug development  How patient priorities can differ from what researchers expect  Why many rare disease nonprofits need more sustainable business models  How patient data can responsibly support future research  Why community conflict can drive away researchers and biotech companies  How families can recognize unsupported treatments and questionable medical claims  How rare disease advocacy prepared Monica for biotechnology and national defense  What personal loss, faith, and starting again taught her about leadership WHY THIS MATTERS:Rare disease families often live with immediate challenges including seizures, behavioral symptoms, intellectual disability, and uncertainty while treatments can take years or even decades to develop.Monica’s story demonstrates why patients and caregivers must have a meaningful voice in deciding what research addresses first. It also shows what can happen when lived experience is combined with science, business, law, policy, and persistent advocacy.A diagnosis can describe a condition, but it does not have to define a child’s future.CHAPTERS:00:00 Doctors Said He Would Never Talk 01:31 Meet Monica Dudley-Weldon 03:05 From Patient Advocacy to National Defense 08:39 Nineteen Specialists and a $13,000 Decision 10:17 A Genetic Test With a 20% Chance 11:35 Beckett Becomes Patient Number Six 12:42 Building a SYNGAP1 Research Movement 15:55 Turning a 30-Year Timeline Into Eight 22:07 Why Pharmaceutical Funding Is Complicated 24:29 A New Model for Rare Disease Research 28:11 Why Rare Disease Data Is So Valuable 31:30 Hearing What Beckett Would “Never” Do 34:00 The First Time Beckett Said “I Love You” 37:02 Building Something That Can Survive 39:37 When Politics Blocks Medical Innovation 43:22 Identifying Charlatans and Unsupported Treatments 46:56 A Classroom Experiment Inspires Real Research 50:13 What Patients Need Before a Cure 53:08 What Monica Would Tell Her Younger Self 55:50 Choosing Triumph Over TragedySubscribe to Building the Noise for more conversations about healthcare, biotechnology, patient advocacy, public policy, and the people working to improve broken systems.Listen to the full episode, share it with a parent, caregiver, researcher, or advocate who needs to hear it, and leave a rating or review to support the show.SYNGAP1, rare disease, rare disease advocacy, patient advocacy, genetic disorders, genetic testing, Monica Dudley-Weldon, SYNGAP1 research, patient-led research, special needs parenting, intellectual disability, epilepsy, biotechnology, healthcare policy, drug development, patient data, nonprofit leadership, medical research, national defense, Building the NoiseSupport the showBuilding the Noise with Matt Toresco

They called type 1 diabetes “type white” a dangerous stereotype that can leave Black patients misunderstood, misdiagnosed, and excluded from critical healthcare conversations.Diagnosed at eight years old with a blood sugar level approaching 600, Shay Webb transformed her experience with type 1 diabetes and rheumatoid arthritis into a career dedicated to clinical research, healthcare policy, and patient advocacy.In this episode of Building the Noise, Shay shares what it was like growing up as one of the only Black girls with type 1 diabetes in many healthcare and advocacy spaces. She explains how racial assumptions can affect diagnosis and treatment, why lived experience is a valuable form of expertise, and how patients can advocate for themselves in ways that feel natural and effective.Shay and Matt also discuss why pharmaceutical companies must involve patients earlier, how the lack of diversity in clinical research affects trust and outcomes, and why healthcare resources should be brought directly into underserved communities.IN THIS EPISODE, YOU’LL LEARN: Why type 1 diabetes was sometimes described as “type white”  How racial assumptions can contribute to diabetes misdiagnosis  What Shay experienced when she was diagnosed at eight years old  How patients can use their voices effectively  Why lived experience cannot be replaced by a presentation or textbook  What pharmaceutical companies still get wrong about patient advocacy  Why Black patients remain underrepresented in clinical research  How healthcare organizations can earn community trust  Why patients must be treated as more than diagnoses or data  Why a diagnosis is “a word, not a sentence” Patient advocacy and health equity cannot be separated. Different patients face different barriers, and giving everyone the same resources does not guarantee equitable access to excellent care. Meaningful change begins when healthcare organizations listen to patients, involve them early, and build lasting relationships within their communities.Subscribe to Building the Noise for more honest conversations with patients, advocates, researchers, and healthcare leaders.Share this episode with someone who needs to hear that their diagnosis does not define them. Please leave a rating or review to support the show and help more listeners discover these important conversations.What must healthcare address first: racial bias, patient representation, or community trust?#Type1Diabetes #PatientAdvocacy #HealthEquity #BlackHealth #DiabetesAwareness #ClinicalResearch #BuildingTheNoiseSupport the showBuilding the Noise with Matt Toresco

Dr. Rachel Brem discovered her own breast cancer at just 37 while testing ultrasound equipment. That life-changing moment strengthened her mission to help women understand their risks, detect cancer earlier, and advocate for the care they deserve.In this episode of Building the Noise, Matt Toresco speaks with Dr. Rachel Brem, breast imaging expert, breast cancer survivor, co-founder, and chief medical officer of the Brem Foundation to Defeat Breast Cancer.Dr. Brem explains why breast cancer screening can no longer follow a one-size-fits-all approach. She discusses when women should begin talking with their doctors about mammograms, why dense breast tissue may require additional screening, and how family history, genetics, and lifetime risk can influence an individual screening plan.The conversation also explores barriers that prevent women from receiving excellent care. Dr. Brem shares how initiatives such as Wheels for Women and the B Fund help underserved women access screening and diagnostic services. She also discusses how ultrasound, MRI, artificial intelligence, and other emerging technologies could help identify breast cancer earlier.In this episode, you’ll learn: Why breast cancer screening should be based on individual risk  When to discuss mammograms and earlier screening with your physician  Why women with dense breasts may need ultrasound or MRI  How genetics and family history can affect breast cancer risk  Why access to excellent care, not simply access to care matters  How transportation, insurance, and economic barriers can delay detection  How AI is changing breast imaging and early detection  Why speaking up and seeking a second opinion can make a difference Early detection can dramatically improve breast cancer outcomes, but too many women still face confusing recommendations, limited access, insurance denials, or symptoms that are dismissed.Dr. Brem’s message is clear: listen to your body, understand your risk, ask questions, and don’t be afraid to advocate for yourself.Learn more about breast cancer screening, the Checkmate risk assessment, Wheels for Women, the B Fund, and other resources at: https://www.bremfoundation.org/Subscribe to Building the Noise for more conversations about patient advocacy and healthcare innovation. Share this episode with someone who needs to hear it, and leave a rating or review to support the show.This episode is for educational purposes only and is not a substitute for personalized medical advice. Speak with a qualified healthcare professional about your individual risk and screening needs.#BreastCancer #BreastCancerScreening #EarlyDetection #WomensHealth #PatientAdvocacy #BuildingTheNoiseSupport the showBuilding the Noise with Matt Toresco

What if fixing healthcare started with truly listening to the people most affected by it?In this episode of Building the Noise, Matt Toresco speaks with Jeffrey Lewis, President and CEO of Legacy Health Endowment, about turning community conversations into practical healthcare solutions from $2 prescriptions and free diabetes care to rural specialty clinics, caregiver support, and women’s health programs.Jeffrey explains why meaningful healthcare innovation begins by understanding the “why” behind people’s challenges. He shares how creative philanthropy, local partnerships, and a willingness to challenge broken systems can make healthcare more accessible, affordable, and human.In this episode, you’ll learn: How a $2 prescription program saved one family hundreds of dollars every month  Why listening is the foundation of healthcare innovation  How rural communities can expand access to specialty care  Why patients, caregivers, and families must all be part of the conversation  How nonprofits can increase their impact through collaboration  Why every child deserves equal access to healthcare Healthcare barriers affect more than a patient’s health. Medication costs can determine whether a family can afford food, utilities, or transportation. Jeffrey’s work shows what becomes possible when leaders listen, act, and build solutions around real community needs.Listen to the full episode now.Subscribe to Building the Noise for more conversations with people transforming healthcare and patient advocacy. Share this episode with someone who needs to hear it, and leave a rating or review to support the show.#BuildingTheNoise #PatientAdvocacy #RuralHealthcare #HealthcareInnovation #CommunityHealthSupport the showBuilding the Noise with Matt Toresco

Patient advocacy is more than fundraising, awareness events, or checking a box. It’s about building meaningful partnerships that turn patient experiences into real healthcare change.In this episode of Building the Noise, Matt Toresco speaks with Susan Hensley about the strategic power of patient advocacy and why patients must have a voice in the decisions that affect their care.Susan shares how patient insights can influence clinical research, healthcare resources, access programs, and innovation. She also explores how AI can help connect patients with credible information and trusted support at the right time.In this episode, you’ll learn: Why patient advocacy should be a partnership - not a transaction  How patient insights can guide healthcare and business decisions  Why advocacy groups and professional societies should collaborate  How AI could improve access to credible patient resources  Why impact matters more than views or surface-level metrics  How long-term relationships create meaningful change for patients Patients face more than a diagnosis. They must also navigate complex decisions, financial barriers, emotional challenges, and overwhelming amounts of information. Meaningful advocacy helps ensure they don’t have to navigate that journey alone.🎧 Listen to the full episode of Building the Noise.🔔 Subscribe for more conversations that elevate the patient voice. 💬 Comment with your biggest takeaway. 📲 Share this episode with a patient advocate or healthcare leader. ⭐ Leave a rating or review to support the show.#PatientAdvocacy #CancerAdvocacy #PatientVoice #HealthcareInnovation #PatientEngagement #BuildingTheNoiseSupport the showBuilding the Noise with Matt Toresco

The Medication Failed Me. I Didn't Fail the Medication. | Abigail Johnston, JD | Building the Noise PodcastWhat if we've been placing the burden on patients instead of the disease?In this episode of Building the Noise, Matt Toresco sits down with Abigail Johnston, JD attorney, metastatic breast cancer advocate, and co-host of Live From Stage IV for a deeply honest conversation about resilience, self-advocacy, and the language we use in healthcare.After being diagnosed with stage IV metastatic breast cancer and given a limited prognosis, Abigail transformed her personal journey into a mission to help patients navigate one of life's most difficult challenges. Her perspective challenges one of the most harmful misconceptions in medicine:"The medication failed me. I didn't fail the medication."Together, Matt and Abigail discuss why patients should never carry the guilt when treatments stop working, the importance of asking questions, building a strong support network, finding trustworthy patient communities, and becoming an active participant in your own healthcare journey.Whether you're a patient, caregiver, healthcare professional, or advocate, this episode offers practical advice, hope, and a powerful reminder that your voice matters.In This Episode:• Why patients should never blame themselves when treatments stop working • The power of self-advocacy in healthcare • How changing our language can change the patient experience • Why patient communities are essential during treatment • Navigating difficult healthcare decisions with confidence • Finding hope after a stage IV cancer diagnosis • Lessons every patient, caregiver, and healthcare professional should hearIf this conversation inspired you, please subscribe, leave a rating and review, and share this episode with someone who could benefit from Abigail's story.🎧 Subscribe to Building the Noise for more conversations with patient advocates, healthcare leaders, and innovators working to improve healthcare through real stories and meaningful dialogue.#BuildingTheNoise #PatientAdvocacy #Healthcare #MetastaticBreastCancer #CancerAwareness #SelfAdvocacy #PatientVoice #HealthcareLeadership #CancerSupport #PodcastSupport the showBuilding the Noise with Matt Toresco

WHAT 20 SURGERIES TAUGHT ME ABOUT LIFEMost people would be broken by 20 surgeries.Matt Hay lost his hearing, faced brain tumors, endured facial paralysis, and spent years navigating a rare disease that affects only a tiny fraction of the population.Yet today, he calls himself one of the luckiest people in the world.In this powerful conversation, Matt shares the lessons he learned through adversity, the moment that transformed him from a patient into a patient advocate, and why suffering doesn't have to define your future.We discuss rare disease, resilience, healthcare, purpose, hearing loss, patient advocacy, career setbacks, and the surprising mindset shifts that helped Matt build a meaningful life despite overwhelming challenges.If you've ever faced a difficult diagnosis, major setback, chronic illness, or simply wondered how people find purpose after hardship, this episode is for you.ABOUT MATT HAYMatt Hay is a rare disease patient advocate, author, TEDx speaker, public health professional, and advocate for patient-centered healthcare. After living with Neurofibromatosis Type 2 (NF2), undergoing 20 surgeries, losing his hearing, and relearning how to navigate life with significant health challenges, Matt dedicated his career to helping patients and families find support, community, and hope.KEY TAKEAWAYS• Why Matt calls himself "the luckiest guy in the world"• The life-changing moment a mother told him, "I'm glad you exist"• How 20 surgeries changed his perspective on life• The lessons he wishes he knew at 22• Why patient advocacy matters more than most people realize• The hidden loneliness many rare disease patients experience• How he taught himself to hear again through music• The mindset shift that transformed his career and purpose• Why sharing your story can change someone else's life• What healthcare organizations still need to learn from patientsWHY THIS MATTERSMillions of people live with chronic illness, rare disease, hearing loss, or life-altering health conditions. Matt's story is a reminder that resilience isn't about avoiding hardship, it's about finding meaning through it.Whether you're a patient, caregiver, healthcare professional, advocate, or someone facing a difficult chapter in life, this conversation offers practical wisdom and genuine hope.👍 If you enjoyed this episode:• Like this video• Subscribe for more conversations on healthcare, patient advocacy, resilience, and leadership• Share this episode with someone who needs encouragement• Comment below: What is the biggest lesson adversity has taught you?#RareDisease #PatientAdvocacy #Resilience #Healthcare #PersonalGrowth #ChronicIllness #Leadership #PodcastSupport the showBuilding the Noise with Matt Toresco

Most people only see the diagnosis. They don’t see what chronic illness quietly takes from someone’s identity, relationships, confidence, and everyday life.In this powerful episode, patient advocate Shelley Gerson shares her journey from surviving one of healthcare’s darkest moments to becoming a voice for patients inside the biotech industry itself.From being told “women don’t have hemophilia” to helping shape patient-centered healthcare programs, Shelley opens up about what patients truly wish doctors, insurers, and pharmaceutical companies understood.We discuss:The hidden emotional cost of chronic illnessWhy patients often feel dismissed by healthcare providersThe truth about patient advocacy and biotechMedical gaslighting and learning to self-advocateClinical trials, trust, and healthcare innovationTurning pain into purposeShelley also shares deeply personal stories about surviving the HIV/hepatitis blood contamination crisis within the hemophilia community — and why she ultimately chose to work inside the very industry she once distrusted.If you or someone you love lives with chronic illness, autoimmune disease, a rare disease, or has ever felt unheard by the healthcare system, this conversation will resonate deeply.🎧 Subscribe for more conversations around healthcare, advocacy, chronic illness, and patient empowerment.👇 Let us know in the comments:What’s one thing you wish doctors better understood about living with chronic illness?#ChronicIllness #PatientAdvocacy #HealthcarePodcast #RareDisease #Hemophilia #MedicalGaslighting #Biotech #InvisibleIllness #Healthcare #PatientVoiceSupport the showBuilding the Noise with Matt Toresco

Why are patients losing trust in the healthcare system and who’s actually listening to them anymore?In this episode, healthcare advocate Brandon Macsata joins us for a raw and honest conversation about patient advocacy, the failures of modern healthcare, insurance denials, AI in medicine, HIV activism, and why patients are still being excluded from decisions that directly impact their lives.Brandon has spent over 30 years fighting for patients at the intersection of healthcare policy, HIV advocacy, and public health reform. From the early days of the AIDS crisis to today’s debates around AI-driven healthcare decisions, this conversation dives deep into the systems, incentives, and policies shaping patient care in America.If you’ve ever felt ignored by the healthcare system, frustrated with insurance companies, or concerned about where medicine is headed next — this episode is for you.In This Episode: Why patients don’t trust healthcare anymore  How HIV advocacy changed modern healthcare policy  The hidden reality of prior authorization denials  Why AI in healthcare could become dangerous  How patient voices are being replaced by systems  The truth about healthcare advocacy funding  Why “Nothing About Us Without Us” still matters  The real battle over 340B and patient access  How grassroots advocacy actually changes policy About Brandon MacsataBrandon Macsata is a nationally recognized healthcare and HIV/AIDS advocate with more than three decades of experience in patient advocacy, healthcare policy, and public health leadership. He serves as CEO of ADAP Advocacy and PlusInc, focusing on patient access, health equity, HIV policy, and healthcare reform.Why This Conversation MattersHealthcare impacts every person eventually but too often, patients are left out of the conversation. This episode explores how advocacy movements shaped healthcare as we know it today, why trust in the system is eroding, and what patients can do to reclaim their voice.Support the showBuilding the Noise with Matt Toresco

What if life-saving medicine already exists… but patients still can’t get it?In this episode, Sanofi’s Eric Racine breaks down the real crisis in healthcare and it’s not innovation. It’s access.From personal tragedy to leading patient advocacy at one of the world’s largest pharmaceutical companies, Eric shares why millions of patients still fall through the cracks and what needs to change.Eric Racine is a global leader in patient advocacy at Sanofi, with deep experience across healthcare systems worldwide. His work focuses on ensuring patients don’t just benefit from innovation but can actually access it.Support the showBuilding the Noise with Matt Toresco

What if your diagnosis wasn’t the end… but the beginning?After being diagnosed with HIV, everything changed but not in the way you might think. This powerful story is about finding purpose, strength, and a new life when it felt like everything was over.Sometimes the hardest moments become the turning point.We dive into:Why patients feel ignored and unheardHow pharma and healthcare systems lose trustThe hidden struggles in rural healthcareWhy community-based care is the real solutionWhat needs to change to put patients firstThis isn’t just a conversation, it’s a wake-up call.If you’ve ever felt rushed, dismissed, or like “just another number” in healthcare… this is for you.Support the showBuilding the Noise with Matt Toresco

Our goal is to help patients navigate the complex and often confusing world of the US healthcare system. In each episode, we discuss important topics, such as how to choose a healthcare provider, how to understand your insurance coverage, & how to advocate for yourself as a patient. We also interview healthcare experts and patients to provide a range of perspectives on these topics.Building the Noise will also provide transparency into the many different elements of the healthcare system including: -Pharmaceutical Companies-Biotech Companies-Medical Device Organizations-Insurance Companies (Payers)-Pharmacy Benenfits Managers (PBMs)-and much more!We will conduct live interviews with industry leaders to provide you with transparency on how these organizations are looking to aid patients and change the healthcare system for the better. By conducting these deep, hard-hitting interviews, I hope to gain a better understanding of the work of these leaders and how they are working to support and empower patients!Support the showBuilding the Noise with Matt Toresco

We sit down with Wendy Erler of Sarepta Therapeutics to understand how she developed her passion for patient advocacy, the value of engaging the patient voice and the need for the industry to engage patient communities further to maximize the impact of their lived experience. Support the showBuilding the Noise with Matt Toresco

In this introductory episode, Matt Toresco introduces his audience to what they can expect from the podcast, why he chose to start one, what he hopes to accomplish in building the noise, & what is to come!Support the showBuilding the Noise with Matt Toresco