Episodes
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103: Celiac Straight Talk with Jake Eisenberg
Joining us on Celiac Straight Talk is Jake Eisenberg - announcer for the Kansas City Royals. Listen to hear how Jake navigates the challenges that come with living with celiac disease. Jake explores his diagnosis, tools he uses to manage balancing an autoimmune disease with daily life, and tips…
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102: No Wine Left Behind
May is Celiac Disease Awareness month and joining us on Celiac Straight Talk is Fallon - the CEO and Founder of No Wine Left Behind. No Wine Left Behind is an events based company out of NYC that is hosting a Celiac Safe wine retreat in Santorini, Greece. Tune in to hear Fallon's journey so far...
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101: Creative for a Cure, featuring 12 year old Cassin
May is Celiac Disease Awareness month and joining us for an inspiring talk about supporting her younger brother with celiac disease is 12 year old Cassin. Hear how she arms herself with knowledge to help lessen the fears around living with celiac disease. Listen anywhere you find your podcasts!…
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100: Unlocking Autoimmunity Through Celiac Research
March is Autoimmune Awareness Month, and we've compiled presentations from a collection of experts on autoimmunity to tie together how celiac disease research can help us unlock all kinds of autoimmune diseases. Hear from Dr. Arnold Han, Dr. Iain Croall, and Dr. Sónia Gonçalves Pereira on their...
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99: Falling in Love with Food Again with Registered Dietician Julie Kennedy!
We spoke with Julie Kennedy, MPH, MEd, RDN, LDN about falling in love with food again after a celiac diagnosis or other medical diagnoses managed with a dietary restriction. Julie shares her celiac diagnosis story, and how, upon learning how difficult switching to a 100% gluten-free diet can be,...
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98: Kate Avery and ISSCD President Bob Anderson on Progressive Celiac Research
In our first Celiac Straight Talk episode of the year, Beyond Celiac Senior Director of Coalition and Patient Engagement Kate Avery chats with President of the International Society for the Study of Celiac Disease Dr. Bob Anderson about a satellite meeting ISSCD did in conjunction with the…
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97: How to talk about celiac disease and eating gluten-free, holiday edition
Telling someone you eat gluten-free can elicit a wide variety of responses, from sympathetic and accommodating to curious and confused, or even skeptical and derisive. Some conversations are tough to navigate, especially during the holidays, when many folks are reconnecting with family members or...
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96: Host Without the Toast! A Gluten-Free Guide to Surviving Gatherings
Birthday parties, holidays with the family, celebratory team dinners after extracurriculars, or a simple gathering with friends: all can be fraught with tension when you're gluten-free. It's tough to relax and have fun when you're constantly worrying about getting sick or being the odd one out.…
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95: Myths & Misconceptions with Dr. Debra Silberg, Beyond Celiac CSO
In this episode of Celiac Straight Talk, Beyond Celiac Chief Scientific Officer Dr. Debra Silberg fact-checks celiac disease myths and misconceptions. She answers our questions about who can get celiac disease (answer: just about anyone!), as well as some unique symptoms that present in celiac...
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94: The Importance of a Celiac Disease Diagnosis with Dr. Ciaran Kelly and Amy Ratner
In this episode of Celiac Straight Talk, we are joined by Beyond Celiac Director of Scientific Affairs Amy Ratner, who kindly agreed to interview our guest, Dr. Ciaran Kelly of Beth Israel Deaconess Medical Center on his experience diagnosing celiac disease. You can find all episodes of Celiac...
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93: Disability Pride with Reach Beyond Celiac Ambassadors Ilana, Ella, and Tara
Did you know that July is Disability Pride Month? One of our amazing Reach Beyond Celiac Ambassadors Ilana C. reached out to host a disability pride roundtable episode with myself and other Reach Beyond Celiac ambassadors Ella S. and Tara P. We had an amazing conversation about what it means to...
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92: A Very Gluten-Free Pride with Matt Weinstein of Glass of Weinstein!
Happy Pride! In this chatty episode of the podcast, Beyond Celiac Social Media Coordinator Lauren and gluten-free chef and content creator Matt Weinstein talk about identity, both his diagnosis and coming out stories, and eating gluten-free during food-centric Pride celebrations. Enjoy the…
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91: Can You Trust Your Gut? Neurologist Answers Your Questions About the Gut-Brain Connection
Dr. Iain Croall, PhD, MRes, BSc and Jordan Dubow, MD discussed how eating gluten can affect neurological health in those with celiac disease and non-celiac gluten sensitivity and answered community questions about neurological health and the gut-brain connection. This event is possible thanks to...
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90: Gluten-Free Vacations on Celiac Cruise with Maureen Basye and Bailey Arman
On this episode of Celiac Straight Talk, Celiac Cruise founder Maureen Basye sat down to chat with Social Media Coordinator Lauren Wallach and Associate Director of Communications Bailey Arman about the mission of Celiac Cruise and what it's like to vacation in a 100% gluten-free environment.…
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89: Beyond Celiac Investments & Venture Philanthropy with Eric White
In our new episode of Celiac Straight Talk, we discussed the future of celiac research through Beyond Celiac Investments! We spoke with Eric White, Director of Business Development and Strategic Alliances at Beyond Celiac. We unpacked the concept of venture philanthropy, and how exactly BCI is...
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88: Eating Gluten-Free with Lauren Murawski!
In this episode of Celiac Straight Talk, we chatted with Lauren of @eat.glutenfreewithme! Lauren is a passionate health and wellness creator focused on gluten-free living and autoimmune health. Living with Celiac disease, IBS, and Crohn's, she has transformed her personal journey into a mission…
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87: Back to School with Reach Beyond Celiac Ambassadors Paige and Rochelle
Lauren chatted with two of our amazing Reach Beyond Celiac Ambassadors Rochelle and Paige about their experiences as parents of young children with celiac sending their kids back to school. This conversation was fun, informative, and enlightening, as well as supportive—if you're looking for tips...
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86: Summer Camp Experiences with Reach Beyond Celiac Ambassadors Alyssa and Daniel
Our social media coordinator Lauren chats with two of our AMAZING Reach Beyond Celiac Ambassadors about their experiences with summer camp. Alyssa and Daniel share their insights about attending summer camp as a person with celiac in both camper and counselor roles. They discuss the pros and cons...
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85: Managing the Psychosocial Burden of Celiac Disease with Dr. Anava Wren
Many with celiac disease often report feeling isolated, awkward, and disheartened as they navigate the world on a gluten-free diet. But the future is bright, and there are tools you can use to maneuver the social landscape and cope with the burden of a chronic illness. In this Town Hall…
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84: Controversies in Celiac Disease with Dr. Jason Tye-Din
Beyond Celiac spoke with Australian researcher Dr. Jason Tye-Din about a few of the controversies in celiac disease. In this Town Hall, moderated by Director of Scientific Affairs Amy Ratner and Director of Research and Patient Engagement Kate Avery, MPH, Dr. Tye-Din discusses the safety of…
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83: Talking About Celiac with Liz Purvis from @yeet.that.wheat
Liz (@yeet.that.wheat) has been living with celiac disease for 4 years and creates content focusing on health equity, advocacy, and living a fulfilling gluten free life. She uses her experience as a Black woman with celiac to talk about being gluten free through an intersectional lens. Through...
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82: Minisode with Alice Bast and Casey Walters
In this minisode of Celiac Straight Talk, Beyond Celiac CEO Alice Bast speaks with Casey Walters about the challenges of having a young child with celiac disease. Alice's personal journey as a celiac disease survivor and champion for research in this field, coupled with her prior experience of…
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81: A 90s Retrospective with Amy Ratner
Amy Ratner joined Beyond Celiac in 2016 as the medical and science news analyst to provide coverage of celiac disease research news. She has extensive experience reporting on and writing about celiac disease. She was editor-in-chief, associate editor and contributing editor for 23 years at...
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80: Town Hall with Dr. Debra Silberg and Dr. Jordan Dubow
In winter of 2023, Beyond Celiac welcomed Debra Silberg, MD, PhD, FACG as our new Chief Scientific Officer and Jordan Dubow, MD, as our new Chief Medical Officer. In this Town Hall, Dr. Silberg and Dr. Dubow unpack their backgrounds and what's in store for Beyond Celiac research in 2024, as well…
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79: New Insights into How Gluten Causes Damage with Dr. Arnold Han
Arnold Han, MD PhD, of Columbia University, was awarded the 2022 Beyond Celiac and SSCD Early Career Investigator Grant to investigate the role of CD8 T-cells in celiac disease. Thus far, Dr. Han's innovative research has found more precise ways that gluten sets off damage to the intestine in…
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78: Interview with Jackson Dunckel
In this episode of Celiac Straight Talk, Beyond Celiac CEO Alice Bast interviews Jackson Dunckel, CFO of AMG, an eco-friendly manufacturing company. Jackson shares his celiac story in a candid conversation, from his delayed diagnosis in 2002 to managing his health today. In particular, Jackson...
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77: When We're Not Podcasting...
In this episode, Beyond Celiac staff recount our recent accomplishments and projects—when we aren't podcasting, you can rest assured that we are working hard to improve the lives of celiac disease patients everywhere! This episode is a recording from our in-person Community Summit event, which...
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76: Interview with 3rd Hour of Today Co-host Dylan Dreyer
In this heartfelt episode of Celiac Straight Talk, join Beyond Celiac CEO Alice Bast as she sits down with special guest Dylan Dreyer, beloved co-host of the 3rd hour of TODAY. The conversation delves into a candid exploration of Dylan's journey when her six-year-old son, Calvin, was diagnosed…
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75: The Empowered Patient with guest TV Personality Jenna Wolfe
This episode of Celiac Straight Talk is a dive deep into inspiring stories and advocacy for health and wellness. In this thought-provoking episode, Beyond Celiac CEO Alice Bast sits down with renowned TV personality Jenna Wolfe for a candid discussion on patient empowerment. Don't forget to like,...
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74: Living Your Best Gluten-Free Life
This is a recording of the "Living Your Best Gluten-Free Life" panel from our 2023 Community Summity. It features four gluten-free influencers, Phil, Liz, Erin and Emily, discussing how they've tackled their health conditions and thrived on the gluten-free diet. Phil is the creator behind...
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73: Patient Empowerment with Juanita Belton
In this episode, we sit down with Juanita Belton, PA-C, MPH, physician assistant in gastroenterology and Director of Patient Empowerment at Color of Crohn's & Chronic Illness (COCCI). COCCI was created to improve the quality of life for BIPOC who are affected by IBD, digestive disorders, and...
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72: Being an Athlete With Celiac Disease
Ambassadors Hayden and Alyssa join podcast coordinator Leah Popovic as they discuss what it's like to experience an athletic life style with celiac disease. To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/
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71: On Opera with Traveling Tenor Arturo Chacón Cruz
We sat down with Arturo Chacón Cruz to learn just how he manages to stay gluten-free while traveling all over the world to sing opera, as well as his advice for convincing others that, while the gluten-free diet can be annoying, your health is worth it. To hear more episodes of Celiac Straight...
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70: Dr. Hilary Jericho, Stanford University Develop Pediatric Celiac Program
Dr. Hilary Jericho became a part of the Stanford University team at the beginning of this year, working for the newly developed celiac disease program at the Lucile Packard Children's Hospital. Learn about how Dr. Jericho's research in the psychosocial effects of celiac disease has made an impact...
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69: Lehigh Valley Gluten Free Creates Community, Camaraderie
Looking for gluten free restaurants in Lehigh Valley, Pennsylvania? Look no further! Meet Jeff Vilson, the creator of Gluten Free Lehigh Valley—a platform where the gluten-free community can connect with peers, doctors and more. This project is pioneering an effort to make celiac disease and…
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68: DIY TikToker Emily Shaw Conquers Celiac Disease
By sharing her DIY interior design creations on TikTok, Emily Shaw became a social media sensation practically overnight. Shaw, who renovates spaces and repurposes budget household items, has nearly six million followers on TikTok alone, and has dedicated her career to this niche craft. Something...
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67: Fatigue and Autoimmunity Mark Davis, PhD
In March, Beyond Celiac teamed up with Dr. Mark Davis, the Director of the Stanford Institute for Immunity, for a town hall session on t-cell dynamics in autoimmunity. Join us in learning about the importance of human studies and how the development mitochondrial physiology can help those…
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66: Safely & Deliciously Dine Out With Senza Gluten
Looking for an authentic gluten-free Italian meal? Teona Khaindrava will happily provide at Senza Gluten, located in the heart of Greenwich Village, New York City. Khaindrava, who opened the business in 2014, trains her hard working staff to prepare gluten-free pasta, cocktails, desserts and more...
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65: MyMeal CEO Kayla King Kickstarts New App
Kayla King has been living with celiac disease for over 17 years, "centering her life" around food and maintaining a safe, healthy diet. After receiving a business degree and becoming a nutrition coach, King recently launched MyMeal, an app helping people with restricted diets find restaurants...
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64: The State of Celiac Disease
Our webinar from January 19, 2023 discusses some of the biggest celiac disease news and research from the past year. Learn about what is to come with these discoveries and how patients come upon a proper diagnosis, as well as celebrating the organization's 20 years of searching for life-changing...
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63: "The Show Must Go On" with Sam Doumit
Join Podcast Coordinator Leah Popovic as she speaks to well renowned actress and producer Sam Doumit about her experience living with a wheat allergy. Doumit, who starred alongside Rob Schnieder in the film "The Hot Chick," provides insight to working in Hollywood with dietary restrictions, as…
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62: Is a Genetic Test or Biopsy Necessary?
In this episode, we chat with two renowned gastroenterologists, Dr, Benjamin Lebwohl and Dr. Ritu Verma, about the role genetic tests and biopsies play in diagnosing celiac disease. What can these tests tell us about a patient's health? Are they necessary to diagnose celiac disease? The...
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61: Sister, Sister
In this episode, we chatted with Colleen and Libby, two sisters who were diagnosed with celiac disease at the same time, shortly after their older brother was diagnosed. Their story emphasizes the importance of getting relatives tested, regardless of symptoms, and sheds light on what it's like to...
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60: Related Conditions Patient Q&A with Celiac Expert Dr. Guandalini
World-renowned celiac disease expert Dr. Stefano Guandalini, MD, sat down with us to answer your questions about celiac disease and the gluten-free diet. In this episode, the audience-submitted questions focused on conditions that are commonly seen alongside celiac disease. Dr. Guandalini is also...
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59: Therapies Beyond the Gluten-Free Diet with Dr. Therrien
We facilitated a community Q&A with Amelie Therrien, MD, gastroenterologist at Beth Israel Deaconess Medical Center, about potential non-dietary treatments for celiac disease. She answers your questions about how some of these potential treatments work, the role of the gluten challenge in…
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58: Age is Just a Number for Noah Lustbader
Beyond Celiac ambassador Noah Lustbader is one of the youngest scientists working hands-on towards a cure for celiac disease. As a junior in college at Vanderbilt University, Noah is already pioneering a multi-centered project with Vanderbilt's Clinic Director Dr. Dawn Adams, including centers…
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57: Himanshi's Hardships With Celiac Disease in India
Healthcare systems across the globe often fall short when caring for celiac disease patients. Himanshi Pareek shares how misinformation from her doctors in India worsened her condition, leading to her own scientific discoveries which countered the medical advice she received.
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56: Do You Believe in (Roby's) Magic?
Roby Sobieski is an actor, model and magician whose appearance on "The Bachelorette" has lended him lots of social media popularity. His aunt, Alice Bast, founder and CEO of Beyond Celiac, connects him to our organization, where Roby has advocated for greater celiac disease awareness, and even...
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55: Celiac Disease in the Spotlight with Sarah Joy Brown
You might recognize Sarah Joy Brown from her various on-screen acting appearances, such as General Hospital and Big Momma's House. Get to know more about her life behind the scenes as an actress with celiac disease, as she speaks with Podcast Coordinator Leah Popovic on the importance of…
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54: The Sky's The Limit
Hear our Reach Beyond Celiac ambassadors share advice on how to safely enjoy gluten-free foods in foreign countries.