GOSH Podcast

In recognition of Cancer Research Month 💜🎗️, we sit down with Dr. Barbara Vanderhyden to reflect on the origins and evolution of the Canadian Conference on Ovarian Cancer Research (CCOCR). What began as a small, ambitious idea in 2001 has grown into a national, multidisciplinary forum bringing together basic scientists, clinicians, epidemiologists, and psychosocial researchers from across Canada.In this episode, we discuss the importance of collaboration in advancing ovarian cancer research, the role of trainees within this community, and how CCOCR continues to shape research, partnerships, and progress nationwide. We also look ahead to this year’s conference at UBC and what attendees—especially trainees—can expect to take away.Resources:https://ovariancanada.org/events/canadian-conference-on-ovarian-cancer-research?gad_source=1&gad_campaignid=23711798144&gbraid=0AAAAADsQjwFfTQHlk_3CNNNXiFv76oiL3&gclid=CjwKCAjw46HPBhAMEiwASZpLRDt6xWhR4LtqEnxWsonv3joiqBGxaEAM78_hbI5MCEBrPwI1WTQoABoCmT8QAvD_BwE For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

🎙️ Next Gen in 10 is back! This episode features Arabella Helgason, a UBC Master’s student supervised by Dr. Aline Talhouk, whose research examines how endometrial cancer surveillance currently works for Lynch syndrome carriers — and how it might be improved. Using population data, Arabella is exploring surveillance patterns and investigating new approaches, including the potential role of self-sampling. 🎧 Tune in to learn how trainee research is helping rethink cancer surveillance.For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

New episode alert! 🎙️How can we move beyond BMI to better understand endometrial cancer risk? In this episode, Dr. Aline Talhouk and Dr. Andrea Neilson discuss the RESTORE study and the use of the Progesterone Challenge Test (PCT) as a functional way to assess hormonal activity in the endometrium — and identify who may truly be at higher biological risk.We talk through the study design, as well as early findings showing strong feasibility and participant engagement. The conversation also explores how this approach could support more targeted prevention strategies moving forward.🎧 Listen now!For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

Can we better predict who will benefit from endometriosis surgery? In this episode, Sabrina speaks with Dr. Dwayne Tucker about developing the Endometriosis Pain Index — a machine learning–based tool designed to help guide surgical decision-making and set realistic expectations for pain outcomes. From predictive modelling to patient-centred care, this conversation explores how data can transform how we approach endometriosis treatment.🎧 Listen now wherever you get your podcasts.#Endometriosis #WomensHealth #SurgicalCare #HealthResearch #NextGenIn10ResourcesEndometriosis pain index: development of a model to predict poor pain-related quality of life after endometriosis surgery through machine learning analysis of registry data https://journals.lww.com/pain/fulltext/9900/endometriosis_pain_index__development_of_a_model.1125.aspxPelvic pain comorbidities associated with quality of life after endometriosis surgery https://pubmed.ncbi.nlm.nih.gov/37148956/Somatic PTEN and ARID1A loss and endometriosis disease burden: a longitudinal study https://pubmed.ncbi.nlm.nih.gov/39701665/Assessing the Utility of artificial intelligence in endometriosis: Promises and pitfalls https://pubmed.ncbi.nlm.nih.gov/38686828/For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

In this episode, Sabrina sits down with Dr. Jennifer Ritonja, a scientist in the Department of Population Health Sciences at the BC Cancer and epidemiologist specializing in modifiable risk factors for women’s cancers. Together, they explore what life-course research tells us about physical activity, body fatness, vitamin D, and the realistic potential of lifestyle-based prevention for ovarian cancer. Does timing matter? Is being active at one stage of adulthood enough? And how do we distinguish between what’s truly modifiable versus what’s simply associated? This conversation dives into the science behind prevention — and the methodological challenges of identifying meaningful risk factors across decades of life. 🎧 Listen now wherever you get your podcasts.#CancerEpidemiology #OvarianCancer #PreventionScience #WomensHealth #LifeCourseEpidemiology #PublicHealthResearchFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

How does contraceptive choice influence ovarian cancer risk?On this episode of the GOSH Podcast, we discuss BEACON, a five-year CIHR-funded research program examining the biologic and population-level links between contraception and ovarian cancer prevention. We are joined by Dr. David Huntsman, Dr. Gillian Hanley, and Dr. Laura Schummers, stepping in for Aim 3 Lead Dr. Wendy Norman, to explore how this interdisciplinary team is integrating molecular pathology, epidemiology, and health policy to better understand how contraceptive decisions may shape ovarian cancer risk.Listen now at the link in our bio!For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

In this episode, we’re joined by Tessa Woodside, MSc student at UBC, whose research examines hormone therapy use and breast and endometrial cancer risk using large, real-world health data from BC and Alberta.Tessa walks us through her research questions, methods, early findings, and why the details of hormone therapy matter when we talk about cancer risk.🎧 Tune in to hear how population-level data can answer questions clinical trials often can’t.For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

New GOSH episode out now! 🎙️ On this episode, we are joined by Dr. Madeline Rhind, a medical oncology fellow at BC Cancer, to discuss her work on druggable targets and prognostic biomarkers in vulvar squamous cell carcinoma. The conversation highlights challenges in rare cancer research and the importance of translating molecular discoveries into clinical care. Tune in now at the link in our bio! #vulvarcancer #gynecancer #bccancer For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

Unmuted: Equity in Focus is back with an episode spotlighting the future of personalized care in vulvar cancer. 🎙️💙 Sabrina is joined by Dr. Amy Jamieson, Gynecologic Oncologist at Vancouver General Hospital and BC Cancer, to talk about the STRIVE trial — a newly launched study exploring whether HPV and TP53 status can guide more tailored, less invasive surgical approaches for vulvar squamous cell carcinoma. Dr. Jamieson walks us through why vulvar cancer has been historically understudied, the critical difference between HPV-associated and HPV-independent disease, and why moving beyond a “one-size-fits-all” surgical model could transform outcomes and quality of life for patients. She also discusses the importance of integrating patient-reported outcomes, such as sexual health and fear of recurrence, and what it will take to translate molecular stratification into real-world practice. Tune in for a clear, accessible conversation about why STRIVE matters — and how this trial could shape the next chapter of vulvar cancer care.  Resources:https://ascopubs.org/doi/10.1200/JCO.2025.43.16_suppl.TPS5637  For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

Next Gen in 10 is back! 🎙️ In this episode, Sabrina sits down with Dr. Alex Lukey, a registered nurse and recent PhD graduate whose work is shaping the future of ovarian cancer prevention. Alex walks us through her research on the acceptability and feasibility of risk-reducing salpingectomy (RRS), shares what she learned from interviewing OBGYNs, and reflects on the ethical, clinical, and equity considerations that come with offering RRS to people at moderate risk. She also discusses her prediction model designed to support informed decision-making — and the big questions she’s excited to explore next. Tune in for a clear, thoughtful look at where ovarian cancer prevention is heading.Resources:1. Lukey A, Sowamber R, Huntsman D, et al. Evaluating Ovarian Cancer Risk–Reducing Salpingectomy Acceptance: A Survey. Cancer Research Communications. 2025;5(1):187-194. doi:10.1158/2767-9764.CRC-24-05662. Lukey A, Howard AF, Mei AJ, et al. Risk-reducing salpingectomy: considerations from an OBGYN perspective. BMC Cancer. 2025;25(1):1011. Doi:10.1186/s12885-025-14384-6For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

🎙️ New on the GOSH Podcast's "Unmuted: Equity in Focus" series!How can language empower women to take charge of their health? In this episode, we speak with Dr. Lesa Dawson, Dr. Reetinder Kaur Brar, and Jessie Kaur Lehail about their groundbreaking project Bridging Language and Health: Creating Culturally Competent, Gender-Sensitive Health Education for Punjabi Women.Together, they’re redefining what equitable care means—by creating translation frameworks that honour culture, gender, and community voice. 💬✨🎧 Tune in to hear how this team is ensuring that language is not a barrier to care, but an invitation.Resources:CBCNews: https://www.cbc.ca/player/play/video/9.6911282For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

In this episode of Next Gen in 10🎙️, Sabrina chats with Dollina Dodani, a PhD candidate in Bioinformatics at UBC. Under the supervision of Dr. Aline Talhouk, Dollina is exploring how the vaginal microbiome 🧫 could be used to improve early screening and detection of endometrial cancer. She shares how she’s using machine learning and transfer learning to build a “General Vaginal Microbiome Classifier” — a computational tool that could transform how we diagnose gynecological diseases. From decoding complex data 📊 to uncovering microbial clues 🔍, this episode dives into the intersection of biology, AI, and women’s health.For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

In this first episode of the Unmuted: Equity in Focus 🎙️ series, hosts Carly and Sabrina sit down with Dr. A.J. Lowik, a sociologist, educator, and advocate whose work centers on making health research and care more inclusive. Together, they explore why sex and gender both matter in gynecologic cancer research and treatment, and what it means to create care systems that recognize and meet the needs of trans and non-binary people. Dr. Lowik shares insights on the barriers trans patients face in cancer care, the impact of cisnormativity on treatment decisions, and how inclusive approaches can ultimately benefit everyone. They also explain strategies for designing more valid, reliable, and inclusive gynecologic cancer research — from rethinking data collection to ensuring representation in study design. From fertility considerations to gender-affirming possibilities within treatment, this conversation highlights why inclusion is essential to equity in gynecologic oncology. Join us as we unmute voices and perspectives that are too often overlooked — and imagine what truly inclusive cancer care can look like. Resources:Article that explores trans folks, cancer and euphoria: https://pmc.ncbi.nlm.nih.gov/articles/PMC10101894/Canadian research project looking specifically at trans gyne cancer: https://queeringcancer.ca/projects-gyne-cancer-careBlog post from the Society of Gynecologic Oncology about creating gender-affirming care spaces: https://www.sgo.org/blog/creating-inclusive-affirming-gynecologic-cancer-care-during-pride-month-and-beyond/Review article that looks at trans peoples gynecologic oncology needs: https://link.springer.com/article/10.1007/s13669-024-00386-x For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

Join us on this episode of Next Gen in 10 as Sabrina sits down with Alice Mei, an undergraduate neuroscience student at UBC 🧠. Alice shares her research on contraceptive use patterns in British Columbia and explores how these trends may relate to ovarian cancer risk 🎗️. From surprising shifts in birth control choices to the challenges of working with large population-based data 📊, this episode dives into the science, insights, and real-world implications of her findings. Whether you’re curious about reproductive health, cancer research, or the next generation of scientists, this conversation is full of valuable takeaways! For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

🎙️ In this episode of the GOSH podcast, co-hosts Carly and Sabrina sit down with Karen Bemister, a passionate advocate and patient partner in research from Ontario, Canada. Karen shares her journey as a patient partner—someone with lived experience who collaborates with researchers not as a participant, but as an equal team member. Together, we explore the value of patient-oriented research, where patients help shape studies, guide priorities, and ensure the work truly reflects the needs of patients and communities. Tune in to learn how centering patients leads to more meaningful, relevant, and impactful research. For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

🎙️ New on the GOSH Podcast! ✨ In our very first Next Gen in 10 episode, we’re spotlighting Sabrina, an MSc candidate at in the WACH UBC program. Her research focuses on preventive care for BRCA mutation carriers—a group at higher risk for breast and ovarian cancer. Under the mentorship of Dr. Gillian Hanley, Sabrina is exploring preventative interventions that can help reduce cancer risk and improve outcomes for hereditary high-risk groups. Tune in to hear about the next generation of research shaping the future of gynecologic cancer prevention.For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

We’re back—and it’s Season 6 of the GOSH Podcast! 🌟🎙 In this episode, our new co-host Sabrina sits down with her mom, Sharon Grover, a BRCA2 carrier and gynecologic cancer previvor. Sharon opens up about what it means to live with an inherited cancer risk, the preventative steps she’s taken, and how she balances motherhood, teaching, and her love of sports and the outdoors. This heartfelt conversation highlights both the challenges and resilience of living as a previvor, while underscoring the importance of family, awareness, and proactive health choices.Resources:BRCA in BC Website: https://brcainbc.ca/BRCA Support BC: https://www.brcasupportbc.org/For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

In this powerful episode of the GOSH Podcast🌟🎙, host Carly sits down with Samantha—recurrent cervical cancer survivor, double ostomate, and fierce advocate for women’s health. From navigating life after multiple surgeries to building a platform that empowers others through storytelling, Samantha shares her unfiltered journey with honesty, humor, and heart. Tune in to hear how she’s turning survivorship into activism, breaking stigma around ostomies, and reminding us all that cancer doesn’t define us—resilience does. 🩵🤍Resources:Samantha's Instagram: @gosamgrowCarly's Instagram Ostomate and the City: @ostomate_and_the_cityFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

In this episode of the GOSH Podcast, host Carly returns to speak with Ashley Greer, a resilient cervical cancer survivor and passionate advocate. Diagnosed in late 2023, Ashley shares her powerful story of navigating treatment—including chemotherapy, radiation, and multiple surgeries—and how she found strength and purpose through it all. Now cancer-free, Ashley is on a mission to raise awareness about early detection and inspire others with her experience of life after cancer. Tune in for an honest, moving, and empowering conversation. Resources:Ashley's Instagram: @ashleys.pathCarly's Instagram: @ostomate_and_the_cityFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

In this episode of the GOSH Podcast, we continue our rare cancer series with Carly Allen, a passionate advocate and survivor. 🌟🎙 After a  misdiagnosis, stage 3 vulvar cancer, and a recurrence, Carly underwent life-changing surgery—including an ostomy—that ultimately removed the cancer for good. Now, eight years cancer-free, she shares her journey of resilience, self-love, and advocacy for gynecologic cancer and ostomy awareness. Tune in to hear her powerful story and how she’s redefining survivorship.Resources:Carly's Beyond the Stories Episode: https://youtu.be/mfB4u5LWaAE?si=GZikUJNgnsyplFYHCarly's Instagram Ostomate and the City: @ostomate_and_the_city For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

In this episode of the GOSH Podcast, host Sabine continues our rare cancer series with an esteemed guest, Dr. David Huntsman. 🌟🎙 Dr. Huntsman is a renowned pathologist and clinical molecular geneticist at UBC, as well as the Canada Research Chair in Molecular and Genomic Pathology. As the director of OVCARE, BC’s leading ovarian cancer research team, his groundbreaking work has helped shape the future of ovarian cancer prevention, diagnosis, and treatment. Join us as Dr. Huntsman shares his insights on clear cell ovarian cancer, the latest advancements in ovarian cancer research, and the role of the GCI. Don’t miss this expert discussion on the science driving new discoveries in cancer care! Resources:Huntsman Lab - https://www.bccrc.ca/dept/mo/labs/huntsman-lab Donate to the Nancy McKinstry Endowment Fund for Ovarian Cancer at https://donate.bccancerfoundation.com/site/TR?px=2927503&fr_id=4394&pg=personal&s_src=LNY20For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

In this episode of the GOSH Podcast, we kick off our rare cancer series with the inspiring Nancy McKinstry. In 2005, Nancy was diagnosed with clear cell ovarian cancer. Since then, she has embraced her “second life” by championing ovarian cancer research, helping secure $100 million in funding and creating initiatives like the Nancy McKinstry Trainee Excellence Award. Despite a recent recurrence, Nancy continues to make a lasting impact, growing an ovarian cancer research endowment now exceeding $934,000. Her story is one of resilience, generosity, and unwavering commitment to the future of women’s health. Join us as we discuss her journey, the lessons she’s learned, and the legacy she’s building for generations to come. Resources:Donate to the Nancy McKinstry Endowment Fund for Ovarian Cancer at https://donate.bccancerfoundation.com/site/TR?px=2927503&fr_id=4394&pg=personal&s_src=LNY20 For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

On this episode of the GOSH Podcast, we are joined by Golda Arthur, award-winning host of the Overlooked podcast, and her mum Teresa Arthur, whose ovarian cancer journey inspired it all. After Teresa’s diagnosis, the audio diaries she recorded became the foundation for Overlooked, a powerful podcast spotlighting women’s health issues. Golda’s 20-year career as a journalist has taken her from working at CBC and BBC to creating acclaimed shows like Land of the Giants, Today, Explained, and Overlooked. Meanwhile, Teresa has become an advocate in the cancer research community, combining her love of science with her experience as a survivor. Tune in as we explore Teresa’s courageous story and Golda’s mission to amplify women’s voices through storytelling. 🌟🎙 Resources: Overlooked  - https://overlookedpod.com/  For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

Join us for a powerful and inspiring conversation with Dr. Marie-Lyne Alcaraz, a dedicated program manager, and Fiona Barvé, a patient partner at Cancer Research UK Cambridge Centre. Together, they share a firsthand look into how groundbreaking cancer research and personal resilience intertwine. In this episode, Fiona opens up about her journey, detailing how the Patient Partner Involvement (PPI) group became a vital support during her treatment and transformed her experience. Dr. Alcaraz provides insight into how patient perspectives are shaping the future of cancer care, highlighting the immense value of patient voices in research.Tune in to hear how partnerships like these are paving the way for more compassionate, innovative, and effective cancer treatment. 🌟🎙Resources:Cancer Research UK Cambridge Centre - https://www.cruk.cam.ac.uk/To inquire about joining the PPI group, please email [email protected] more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

In this episode, we continue exploring the impactful experiences of the seed2STEM program students. seed2STEM program offers paid internships that offer Indigenous youth hands-on opportunities in scientific research. We hear from Maddy, Alyssa and Madi as they share their journeys working in gynecologic cancer research labs. Whether you're interested in science or looking for inspiration, this episode highlights the power of opportunity and growth through mentorship and education. Shana George (the interviewer) - student at Huntsman lab Maddy Testa - student at Huntsman lab Alyssa Campbell - student at Brotto lab Madi Perreault - student at ________lab Resources:seed2STEM program website - https://icord.org/seed2STEM/ _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]   Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

Welcome to the first episode of Season 5! We kick off the new season by exploring the experiences of students from the seed2STEM program, the Summer Research Program for Indigenous Youth. It offers paid internships that offer Indigenous youth hands-on opportunities in scientific research. We hear from Shana, Caty and Catalina as they share their journeys working in gynecologic cancer research labs. Whether you're interested in science or looking for inspiration, this episode highlights the power of opportunity and growth through mentorship and education. Shana George - student at Huntsman lab Caty Janze - student at Hanley lab Catalina Claxton - student at Hanley lab Resources:seed2STEM program website -  https://icord.org/seed2STEM/ _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]   Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

🚀 A New Chapter Begins! Our newest episode is live! Join the conversation as we celebrate the past and look forward to the future with our new co-host, Anita Wright. As Stephanie will transition into her new role as a Knowledge Exchange Leader for Mental Health and Substance Use at Fraser Health, She'll be moving on from the GOSH podcast.  We want to extend our deepest gratitude to Stephanie for her incredible dedication, passion, and contributions to the podcast. Today, we want to take a moment to reflect on the journey of the GOSH podcast. We'll discuss some of the significant milestones we've reached and the impactful stories our guests have shared. Anita Wright is a 76-year-old cake artist from New Westminster. With more than 600 thousand followers on TikTok, Anita, known as 'TikTok Nana,' has captured hearts with her mesmerizing "acrylic piping art." Once a marketing manager, she found her artistry after retiring and starting her own event business in Toronto. Upon moving to Vancouver in 2017, she ventured into baking custom cakes and shared her creations online. In 2022, Anita received a stage four ovarian cancer diagnosis. She openly communicated this diagnosis to her followers and now uses her platform to document her ovarian cancer journey, aiming to increase awareness about this type of cancer. Mentioned Episodes:Season 2 Episode 7: A Chinese Perspective – Hereditary Cancers, Genetic Testing and Language Accessibility (一個華人對癌症遺傳基因檢測的體驗)Episode 8: On Cancer Survivorship, Sexual Health and MindfulnessSeason 2 Episode 8: A New Gynecologic Cancer Survivorship Clinic in BC---For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected] Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

From childhood memories to global aspirations, every plunge counts in the fight against ovarian cancer. Dive into our latest episode with Jim Shepard to learn more!#MakingWaves #GOSHpodcastBio: Meet Jim Shepard. The co-chairs of Plunge for the Cure. The Plunge for the Cure Foundation is a registered Canadian charity that was established to raise funds for drug and treatment development targeting ovarian cancer. Jim initiated the foundation motivated by a family member's diagnosis and the alarming five-year survival rate of under 40 percent.  The foundation's focal point is an annual event held on the last Sunday in May, where individuals and teams engage in fundraising and take part in celebrating the arrival of summer by plunging into the water. These funds are directed towards the world-renowned UBC/VGH research facilities in Vancouver.   The episode aims to spotlight ovarian cancer issues, sharing the inspiring stories and efforts of individuals like Jim Shepard. Their collective goal is to increase awareness and improve outcomes for ovarian cancer, making a meaningful impact in the ongoing fight against this challenging disease. Resources:Plunge for the Cure Foundation website - https://www.plungeforthecure.com/ _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]   Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

Delve into the complexities of endometriosis with Dr. Paul Young, a distinguished gynecologist and researcher. Gain insights into diagnosis, treatment, and ongoing research efforts in our latest podcast episode! #EndometriosisAwareness #PelvicHealth #MedicalResearchBio: Dr. Paul Yong (MD, PhD, FRCSC) is a distinguished Gynaecologist, directing the Research Program at the BC Women’s Centre for Pelvic Pain & Endometriosis. Dr. Young’s clinical focus lies in pelvic pain, with a particular expertise in endometriosis, painful periods, sexual pain, and associated bladder, bowel, and musculoskeletal issues. Dr. Yong's commitment extends to the academic realm, where he serves as an Assistant Professor in the UBC Department of Obstetrics & Gynaecology. His translational research endeavors include spearheading bio-banking initiatives for endometriosis, conducting gene sequencing studies to unravel underlying mechanisms, and investigating nerve formation in the pelvis as a potential source of pain. Beyond his clinical and research roles, Dr. Yong actively contributes to medical education, imparting his knowledge and experience to the next generation of healthcare professionals. His multifaceted approach underscores a holistic commitment to advancing the understanding and treatment of pelvic pain and endometriosis.Resources:Endometriosis and Pelvic Pain Laboratory: https://endopain.endometriosis.org/_For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]   Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiative For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

 Delve into the world of endometriosis education with Dr. Natasha Orr as she shares insights on research, advocacy, and patient-centered care. #EndometriosisAwareness #HealthcareEmpowerment Meet Natasha Orr, a researcher at the University of British Columbia (UBC) with a passion for understanding and helping people with endometriosis and chronic pelvic pain. Natasha finished her PhD in 2022, where she studied central sensitization and endometriosis associated pain. During her PhD, she spearheaded the development of endometriosis educational videos and a workshop for people with lived experience of endometriosis and their loved ones. Now, as a Postdoctoral Research Fellow, her work centers on developing online resources about endometriosis and chronic pelvic pain for healthcare providers in training using patient-oriented research and user-centered design.  Her collaborative approach involves working with patient partners throughout each step of her project, making her research not only academically significant but also accessible and engaging for the public. Natasha's commitment to reducing the delay in endometriosis care and improving healthcare providers' understanding of endometriosis and chronic pelvic pain makes her a valuable contributor to both research and advocacy in women's health. Her Postdoctoral work has received 3 grants to support project costs, a UBC Health Innovation Funding Investment award, a Michael Smith Health Research BC Convening and Collaborating Award, and a WHRI Catalyst award. She is also supported by a CIHR Postdoctoral Fellowship.Resources:Dr. Orr's Website: https://natashaorr.com/Endometriosis and Pelvic Pain Laboratory: https://endopain.endometriosis.org/_For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]   Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

Join us in a powerful conversation with Anna, as she shares her journey with endometriosis, breaking down misconceptions and fostering awareness.🎙️ News Alert! GOSH podcast is now streaming in video format on YouTube.✨  Try out our new format through the link: https://youtu.be/qg5QQb0pyq8Anna's Bio: Anna Leonova is a dedicated researcher currently pursuing a PhD in Women+ and Children’s Health Sciences at UBC. She holds a BSc in Biochemistry and Molecular Biology from Trent University and an MSc in Medical Sciences with a specialization in Physiology and Pharmacology from McMaster University. Anna's academic journey has been intertwined with her personal experience, having battled endometriosis for nearly 18 years. For the past seven years, Anna has focused her research on endometriosis, emphasizing the importance of knowledge translation. She believes in the responsibility of researchers to effectively communicate their findings to those directly affected by their work. Alongside her academic pursuits, Anna engages with the endometriosis community through social media, sharing informative posts to raise awareness and foster connection. Anna's pragmatic approach and commitment to bridging the gap between research and personal experience make her a valuable contributor to the understanding of endometriosis. Resources:Book: “The Doctor Will You See Now” by Dr. Tamer SeckinEndometriosis Network Canada: https://endometriosisnetwork.com/Endometriosis and Pelvic Pain Laboratory: https://endopain.endometriosis.org/Resources, educational videos, research opportunities, and community eventsUpcoming event: Run to end endo (in support of The endometriosis network Canada) – June 9 in Vancouver – follow the lab for more informationMarch – endometriosis awareness month: learn and share about endometriosis!_For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]   Where to learn more about us:   Twitter – @GCI_Cluster  Instagram – @gynecancerinitiative  Facebook – facebook.com/gynecancerinitiative  For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

Welcome to the first episode of the new year! Meet Geneviève Allaire-Stacey, Researcher behind eSense-Cancer 🌱👩‍🔬 Delve into the insightful work of Geneviève, focusing on adapting therapy modules in sexual health for gynecologic cancer survivors. Her commitment to nuanced, patient-centric research is at the heart of eSense-CancerGeneviève Allaire-Stacey is currently doing her Master's of Science in Women+ and Children’s Health Sciences under the supervision of Dr. Lori Brotto. In 2022, she graduated from McGill University after completing her Bachelor of Arts as a double major in Psychology and Gender, Sexuality, Feminist and Social Justice Studies as well as a minor in Behavioural Science. Through her studies at McGill, Geneviève developed a marked interest for women, sexuality, and health, and it is with the goal of having a direct impact on women’s health that she applied for the WACH program. Genevieve’s focus at UBC and in the Sexual Health Research Laboratory is centered on treatments for sexual dysfunction in cancer survivors. Specifically, she works on eSense-Cancer, a branch of the eSense study, which seeks to adapt the original digital therapy modules to gynecologic cancer survivors’ lived experiences with female sexual dysfunction. Geneviève hopes to continue onwards doing work related to sexual health and advocacy once she is done her master’s degree.   Geneviève’s presentation won Barbara Berthon Ovarian Cancer Presentation Award at the annual GCI Trainee Research Day conference.Sexual Health Lab at UBC https://brottolab.med.ubc.ca/ https://brottolab.med.ubc.ca/genevieve-allaire-stacey/   eSense Cancer https://brottolab.med.ubc.ca/studies/esense-cancer/  _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]   Where to learn more about us:   Twitter – @GCI_Cluster  Instagram – @gynecancerinitiative  Facebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

GOSH Podcast survey:https://ubc.ca1.qualtrics.com/jfe/form/SV_9vJ2Jt3Mr6OPJBkIn our previous episode, we heard from Amanda’s mother, Anita, who told her story of her ovarian cancer diagnosis. Today we will hear from Amanda, a beloved daughter and one of Anita's caregivers. Amanda is a Registered Massage Therapist with nearly three decades of experience in her field. She is happily married and the proud mother of a 15-year-old son. Her family extends beyond her immediate household, with a younger sister residing out West near her mother, Anita. However, Amanda's journey has also been marked by loss, as she lost her older brother in 2016 due to a heart-related condition. Today, Amanda will share her perspective as a caregiver and a loved one, shedding light on the journey that came with supporting a family member through a gynecologic cancer diagnosis.  Anita’s TikTok: @tastyentertaining https://www.tiktok.com/@tastyentertaining  Anita’s Instagram: @tastyentertaining https://www.instagram.com/tastyentertaining/  _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]   Where to learn more about us:   Twitter – @GCI_Cluster  Instagram – @gynecancerinitiative  Facebook – facebook.com/gynecancerinitiative  For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

GOSH Podcast survey:https://ubc.ca1.qualtrics.com/jfe/form/SV_9vJ2Jt3Mr6OPJBkIn this emotionally resonant episode of the GOSH podcast, we are honored to introduce you to Anita Wright, widely known as 'TikTok Nana.' Explore how Anita's open and sincere sharing on TikTok has not only increased awareness but has also created a supportive community of followers who rallied behind her. This episode provides a chance to draw inspiration from Anita's experiences and gain valuable insights into early detection, cancer advocacy, and the enduring strength of a TikTok Nana who transformed her journey into a platform for change. Bio: Anita Wright is a 76-year-old cake artist from New Westminster. With more than 600 thousand followers on TikTok, Anita, known as 'TikTok Nana,' has captured hearts with her mesmerizing "acrylic piping art." Once a marketing manager, she found her artistry after retiring and starting her own event business in Toronto. Upon moving to Vancouver in 2017, she ventured into baking custom cakes and shared her creations online. In 2022, Anita received a stage four ovarian cancer diagnosis. She openly communicated this diagnosis to her followers and now uses her platform to document her ovarian cancer journey, aiming to increase awareness about this type of cancer. Anita’s TikTok: @tastyentertaining https://www.tiktok.com/@tastyentertaining  Anita’s Instagram: @tastyentertaining https://www.instagram.com/tastyentertaining/  _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]   Where to learn more about us:   Twitter – @GCI_Cluster  Instagram – @gynecancerinitiative  Facebook – facebook.com/gynecancerinitiative For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

GOSH Podcast survey:https://ubc.ca1.qualtrics.com/jfe/form/SV_9vJ2Jt3Mr6OPJBkDescription: In this episode, we delve into the dynamic world of cancer research, where artificial intelligence (AI) meets oncology to shape the future of healthcare. Our guest, Ali Khajegili Mirabadi, a PhD student in Bioinformatics at the University of British Columbia, takes us on a captivating journey through the impact of AI in cancer research and its potential to revolutionize the field. Discover how AI serves as a powerful ally in the battle against cancer, particularly rare and complex forms. Ali sheds light on the challenges of handling vast amounts of complex data and how AI helps identify patterns and similarities that may be imperceptible to the human eye. These insights have the potential to lead to groundbreaking discoveries in the world of cancer subtyping and personalized treatment. Bio:  Ali Khajegili Mirabadi is a second-year PhD student in Bioinformatics at the University of British Columbia. His research focuses on Artificial Intelligence (AI)-based cancer patient similarity learning to advance clinical precision medicine. He primarily targets rare cancers across all organs, utilizing microscopic tissue images, clinical data, and genome information to enhance AI models' ability to identify patient similarities and trends in treatment. Supported by the UBC Four Year Fellowship in Dr. Bashashati’s research lab, Ali's work carries significant potential for improving patient care. Before joining UBC, he simultaneously achieved two undergraduate degrees in Electrical Engineering and Applied Mathematics with honors from the Isfahan University of Technology, Iran. Link to the Dr. Ali Bashashati's lab website:https://aimlab.ca/team/ _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]   Where to learn more about us:   Twitter – @GCI_Cluster  Instagram – @gynecancerinitiative  Facebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

GOSH Podcast survey:https://ubc.ca1.qualtrics.com/jfe/form/SV_9vJ2Jt3Mr6OPJBk Welcome to the first episode marking the 4th season of the GOSH podcast! We are excited to share with you more fascinating discussions with researchers and physicians, and inspiring patient stories. Today we have the founders of Down there aware(or DTA in short) podcast which was launched in 2020 to propagate a real and relevant discussion about women’s health. Meet Alex Massey who with her mother Mary co-founded and host Down there aware podcast. Alex was born and raised in Florida and currently resides in the capitol city, Tallahassee, with her perfect pooch, Sadie Mae. At the age of 32, she was diagnosed with endometrial cancer. Her journey with gynecologic cancer motivated her to become an Women's Health advocate and encourage women to be aware of their bodies and become their own best health advocate.  Meet Alex’s mom, Mary Massey is the co-founder of DTA and a retired, career teacher. She began her career as a music teacher and, after earning masters and doctoral degrees, she wrapped up her teaching career as a college professor, training future teachers. Having experienced several serious, and some unusual, medical issues, personally, and through her family members, Mary has developed a keen interest in all things medical, researching and delving deeply into causes, treatments, and outcomes of various health issues. Her incentive to become involved in DTA was to support Alex after her cancer diagnosis and to help inform, educate, and advocate for other young women.  Down There Aware website - https://www.downthereaware.com/  Down There Aware episode: Alex’s Cancer Story - https://www.downthereaware.com/podcast/episode/f4e3dd31/my-cancer-story  Down There Aware episode: A Mother's Perspective - https://www.downthereaware.com/podcast/episode/2bced4d9/a-mothers-perspective  _ For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]   Where to learn more about us:   Twitter – @GCI_Cluster  Instagram – @gynecancerinitiative  Facebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

GOSH Podcast survey:https://ubc.ca1.qualtrics.com/jfe/form/SV_9vJ2Jt3Mr6OPJBk In the last episode of Season 3 of the GOSH podcast, we are honored to have our co-host Nicole Keay sharing her fertility journey as a cervical cancer survivor. Nicole shares her personal experiences with fertility loss and the challenges she had to navigate along the way. Nicole takes us on a heartfelt journey sharing her decision-making process, shedding light on the financial and legislative aspects of surrogacy and egg donation in Canada. Nicole provides valuable tips and resources for others facing similar situations. Join us for this inspiring episode as Nicole's story offers hope and resilience on the path to parenthood.  CancerConnection from the Canadian Cancer Society: https://cancerconnection.ca/s/ Fertile Future - Charity that provides a reduction in cost for fertility preservation for cancer patients: https://fertilefuture.ca/programs/power-of-hope/  If you would like to reach out to Nicole, please reach out at:[email protected] more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

Join us for the final episode of our collaborative series with Ovarian Cancer Canada (OCC), where we delve into the incredible work being done to support ovarian cancer patients across Canada. In this episode, we're honored to have Stephanie, a program director at OCC, and Starla, a patient partner, as our special guests. Starla shares her personal experience as an ovarian cancer patient and reveals how she utilizes social media to document her cancer journey and foster connections with fellow patients. Her story is one of strength, resilience, and the power of community. Stephanie, the program director at OCC, sheds light on the range of resources and initiatives available to support ovarian cancer patients. From awareness campaigns to tailored programs, Stephanie provides valuable insights into the diverse ways OCC is making a difference in the lives of those affected by ovarian cancer. Bio:  Stephanie Gosselin Stephanie Gosselin is the Programs Director at Ovarian Cancer Canada. She has a passion for building community and supporting those diagnosed with ovarian cancer, ensuring that no one is alone on this journey. Stephanie is committed to making sure that everyone in the ovarian cancer community has access to the most up to date and accurate information through a wide variety of education and support programs. She is proud to call Shellbrook, SK her home, where she lives on a farm with her husband and three kids. In her spare time you will find her running the trails of northern SK. Starla Fiddler Starla Fiddler was diagnosed with a rare form of ovarian cancer at age 23. Since being diagnosed, Starla has faced multiple recurrences and rounds of treatments. She is a strong advocate for ovarian cancer awareness by making connections through social media engagements, speaking at events, and doing media interviews. She is from Saskatoon Saskatchewan where she shares her life and makes memories with her 5-year-old son. Ovarian Cancer Canada (OCC) Website - https://ovariancanada.org/ OCC Patient Resources - https://ovariancanada.org/creating-connectionsOVdialogue - https://ovdialogue.ovariancanada.org/Teal Tea - https://ovariancanada.org/events/teal-tea-for-everyone-diagnosed-with-ovarian-cancerOCC email: [email protected] Follow OCC on social media: https://www.instagram.com/ovariancancercanada/  https://twitter.com/OvarianCanada https://www.facebook.com/OvarianCancerCanada/  https://www.youtube.com/user/OvarianCancerCanada https://www.linkedin.com/company/ovarian-cancer-canada/  _  For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]   Where to learn more about us:   Twitter – @GCI_Cluster  Instagram – @gynecancerinitiative  Facebook – facebook.com/gynecancerinitiative For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

Continuing our collaborative series with Ovarian Cancer Canada (OCC), we are pleased to welcome our next guest, Dr. Alicia Tone. In this episode, Dr. Tone shares the personal story of how her work with real women living with ovarian cancer continues to inspire and motivate her work. Dr. Tone elaborates on the critical role of patient involvement in advancing ovarian cancer research and how OCC ensures patient-centeredness in many areas of their work. She also outlines the resources available for scientists in the ovarian cancer field such as an extensive collaborative network of researchers, clinicians, trainees, and patients, funding opportunities, specimen bank and others. Bio: Dr. Alicia Tone is Scientific Advisor at Ovarian Cancer Canada. Dr. Tone has been in the ovarian cancer field for 20 years. Her history prior to joining Ovarian Cancer Canada includes a PhD at the University of Toronto in Ontario, post-doctorate training at BC Cancer, and 7 years as a Scientific Associate in the Division of Gynecologic Oncology at Princess Margaret Cancer Centre.   In 2020, Dr. Tone started her work with Ovarian Cancer Canada where she runs the national OvCAN research initiative and performs collaborative research to understand and improve care along the ovarian cancer continuum (prevention, diagnosis, treatment, supportive care).    Ovarian Cancer Canada (OCC) Website: https://ovariancanada.org/ OCC email: [email protected] Follow OCC on social media: https://www.instagram.com/ovariancancercanada/  https://twitter.com/OvarianCanada https://www.facebook.com/OvarianCancerCanada/  https://www.youtube.com/user/OvarianCancerCanada https://www.linkedin.com/company/ovarian-cancer-canada/  _  For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]   Where to learn more about us:   Twitter – @GCI_Cluster  Instagram – @gynecancerinitiative  Facebook – facebook.com/gynecancerinitiative For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

We are excited to announce the first episode of our collaborative series with Ovarian Cancer Canada (OCC). In this series, we will have the opportunity to speak with patient partners, research scientists, and program coordinators from OCC, who will share about the research, awareness, and advocacy work they are doing in OCC. As the only registered Canadian charity solely dedicated to overcoming ovarian cancer, the organization provides leadership in research, advocacy, and support, so that women live fuller, better, longer lives.To kick off our collaborative series with OCC, we have Donna Peppin sharing her personal experience with low-grade serous ovarian cancer and her advocacy work with OCC. Donna emphasizes the significance of patient-centered research and how patient involvement has led to a greater research focus on rare subtypes of ovarian cancer. She also provides valuable information on OCC's support services and other resources available for patients. By the end of this episode, we hope that you will feel empowered and inspired, just as we did. Bio: Donna Pepin of Toronto, Ontario, faced a serous borderline ovarian cancer diagnosis at the age of 49.  During her cancer journey, Donna realized that most women she knew were not informed or aware of ovarian cancer, and that there were very few ovarian cancer advocates. So, she decided to become one. She began volunteering with Ovarian Cancer Canada in 2008. From speaking publicly about her experience with ovarian cancer to planning gala events, she focused on raising the profile of this cause. Donna had a vital role in successfully advocating alongside Ovarian Cancer Canada for a historic federal investment in research. Today, she is the Patient Representative on the Governing Council of Ovarian Cancer Canada's OvCAN research initiative and the Patient Lead for OvCAN’s national Patient Partners in Research Team. Ovarian Cancer Canada (OCC) Website: https://ovariancanada.org/ OCC upcoming events: https://ovariancanada.org/events-support/find-local-events OCC guide on clinical trials: https://ovariancanada.org/Research/Clinical-Trials  OCC support serives: https://ovariancanada.org/Living-with-Ovarian-Cancer/Find-Support  Follow Ovarian Cancer Canada on social media: https://www.instagram.com/ovariancancercanada/  https://twitter.com/OvarianCanada https://www.facebook.com/OvarianCancerCanada/  https://www.youtube.com/user/OvarianCancerCanada https://www.linkedin.com/company/ovarian-cancer-canada/  _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected] Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

We're delighted to welcome Dr. Farhia Kabeer as our featured guest, where she shares her expertise on pre-clinical models for research and chemotherapy resistance. Additionally, she highlights some of the promising research projects that aim to enhance treatment strategies and reduce toxicity levels for patients with high-grade serous ovarian cancer. Bio: Dr. Farhia Kabeer is a gynae surgeon from Pakistan. Her cancer research took off from MSc at McGill University studying the metastatic potential of breast cancer cells. Farhia’s PhD research encompassed the fields of cancer evolution and translational breast cancer research. She obtained a real-time look at how cancers evolve and why chemotherapies that are initially effective fail over time. Currently, Farhia is a post-doctoral fellow at OVCARE and her work focuses on high-grade serous ovarian cancer pre-clinical models to test novel combinations therapies.  _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected] Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

In today's episode, we welcome Dr. Melanie Altas. Melanie talked about the struggles gyne cancer survivors face with sexual health. She also outlined useful resources and tools around sexual health available for patients as well as for healthcare providers.Originally from the Maritimes, Dr. Melanie Altas finished her residency in Obstetrics & Gynaecology at UBC in 2007. Currently, Dr. Altas is a Director of BC Centre for Vulvar Health and a Clinical Associate Professor at the UBC in the Department of ObGyn. Her current clinical practice is dedicated to cancer survivorship, menopause, and sexual pain disorders. She is committed to empowering women with education and tools to heal themselves and is a passionate advocate for patient collaboration and shared decision-making. Links: Cancer & Sexual Health Clinic https://bcvulvarhealth.ca/cancer-sexualhealth/ BC Centre for Vulvar Health: https://bcvulvarhealth.ca/about/people/  Hello Vulva! Instagram page: https://www.instagram.com/hello.vulva/?hl=en Dr. Lori Brotto GOSH podcast episode: https://www.buzzsprout.com/1387837/episodes/8056177  Dr. Lori Brotto’s book: https://www.loribrotto.com/  OHNUT- wearable tool to adjust the depth of the penetration during sexual intercourse: https://ohnut.co/ _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected] Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

This episode of the Season 3 GOSH podcast features Lexi Mestas. Lexi shares her struggles of navigating a rare type of cancer as a young adult including feelings of isolation and infertility. You can learn how family support, community, and advocacy through social media helped Lexi in her journey. Lexi is a creative with a background in city development, urban food access, community health, social media campaigns, fundraising, and state-wide project management. In her late teens, Lexi was suffering from symptoms of ovarian cancer but didn’t know they were related to ovarian cancer until undergoing the necessary tests. She was diagnosed with a rare type of ovarian cancer, Low-Grade Serous Ovarian Cancer when she was 27 years old. Lexi became her own advocate pursuing her passions, raising over $72K and spreading awareness through social media campaigns, a weekly newsletter, media appearances, and community partnerships. Lexi's Social Media accounts: https://www.instagram.com/leximestas/?hl=enhttps://www.tiktok.com/@leximestas?lang=enSTAAR fundraiser for women with low-grade serous ovarian cancer:https://staarovariancancerfoundation.flipcause.com/secure/cause_pdetails/MTQzODY5 _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected] Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

Welcome Patrick Mehr to today’s episode of the GOSH podcast!   On the last episode of the GOSH Podcast, we met Helen and learned more about her journey with endometrial cancer during the COVID-19 pandemic. This week, we are back with Patrick Mehr, Helen's husband, to share his experiences as a caregiver during and after his wife’s endometrial cancer diagnosis. In this episode, you will hear about how Patrick took care of Helen and himself during the journey as well as some useful tips for whoever is undertaking the role of a caregiver for a cancer patient. Born and educated in Paris, France, Patrick Mehr is a graduate of École Polytechnique and of France's civil service Corps des Mines. Patrick moved to Cambridge, Massachusetts in 1982 to become a strategic consultant. He then worked for the Boston Consulting Group before running his own consulting practice, advising industrial and high-technology companies on business development and strategy. For the past 15 years, Patrick has been running Plunkett Lake Press which publishes eBooks of non-fiction, including biographies and memoirs. His wife of 40 years is Helen Epstein, author of Getting Through It: My Year of Cancer During Covid. They live in Lexington, Massachusetts, have two grown children, and two grandchildren. Helen's book "Getting Through It: My Year of Cancer during Covid ": https://plunkettlakepress.com/gti  Learn more about Helen’s works: http://www.helenepstein.com/  _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected] Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

Welcome to the second episode of the Season 3 GOSH Podcast! Today we are featuring Helen Epstein, endometrial cancer survivor and the author of the book “Getting Through It: My Year of Cancer During Covid”. In this episode, Helen talks about her experiences navigating endometrial cancer during the COVID-19 pandemic and her motivation behind writing the book.   Helen Epstein is the author, co-author, translator or editor of ten books of narrative nonfiction. She became a journalist at the age of 20 and became the first tenured woman journalism professor at New York University, teaching about 1000 students over 12 years. She guest lectures extensively at universities, libraries, and religious institutions in North America and abroad. Just after Covid arrived in North America, journalist Helen Epstein was diagnosed with endometrial cancer — one of a predicted 66,570 new cases of cancer of the uterine body in the United States in 2021. Helen wrote a memoir called “Getting Through It”, a candid and eye-opening account of a medical steeplechase of surgery, chemo, and radiation therapy, bringing together reporting, research, and elements of memoir to tell an important story. Helen's book "Getting Through It: My Year of Cancer during Covid ": https://plunkettlakepress.com/gti  Learn more about Helen’s works: http://www.helenepstein.com/  _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected] Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

To start off Season 3 of the GOSH Podcast, we are excited to share the story of a new educational resource for gynecologic cancer patients entitled "Gynecologic Cancers: Your Journey". This resource was developed in partnership between the Gynecologic Cancer Initiative and BC Cancer to help support gynecologic cancer patients in finding easy-to-understand information and resources after being diagnosed with gynecologic cancer. The resource presents the entire gynecologic cancer journey to them upon diagnosis and points them to relevant information and resources. Through a series of working group meetings and interviews, the resource was developed in collaboration with multidisciplinary teams at BC Cancer and GCI patient partners. This resource was built by gynecologic cancer patients for gynecologic cancer patients but at every step of the way, we received a lot of important insight from Gynecologic Oncology Specialists, Palliative Medicine Specialists, BC Cancer Supportive Care Manager, Plain Language Specialists, Library Services and many others.  The resource is now available on the BC Cancer website:http://www.bccancer.bc.ca/library-site/Documents/Gynecologic-Cancer-Your-Journey.pdf-Welcome the three patient partners Nancy Cleveland, Siv Klausen, and Nicole Keay, who played a really important role in making this resource a reality. Nicole Keay is an experienced communications professional and a patient partner with the Gynecologic Cancer Initiative (GCI). She also co-hosts the Gynecologic Oncology Sharing Hub (GOSH) podcast alongside Stephanie Lam. In her early 30s, Nicole was diagnosed with cervical cancer and underwent intense treatment including surgery, radiation, and chemotherapy resulting in the loss of her fertility. Nicole now uses her experiences to help guide, support, and be a voice for women who have been diagnosed with gynecological cancers. Nancy Cleveland has lived in Vancouver for her entire life and is married and the mom to two beautiful adult children. In her professional life, she spent 35 years as a teacher with the Vancouver School Board. In May 2019, Nancy was diagnosed with Stage 3C Primary Peritoneal Serous Ovarian Cancer after going through what she thought of as a routine laparoscopic surgery for a gallstone. Her journey has had its ups and downs, but she continues to believe that there is a lot of hope for gynecologic cancer patients and survivors. Nancy has had some great experiences with clinical drug trials and research that continues to improve outcomes for patients across BC. Siv Klausen is a Patient Partner with the Gynecological  Cancer Initiative.  After experiencing vulvar cancer in 2018, she underwent surgery, chemotherapy, and radiation at the BC Cancer Agency in Vancouver. Siv lives in Tsawwassen with her husband and son, and JoJo the poodle.  Stephanie Lam is the Research Coordinator for the Gynecologic Cancer Initiative (GCI), a province-wide initiative aimed to accelerate transformative research on the prevention, detection, treatment, and survivorship of gynecologic cancers. Currently, Stephanie supports a broad range of research activities within the GCI including clinical trials, knowledge translation, and educational programs. An important part of her role is in the area of patient engagement and patient-oriented research. _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

The final episode of Season 2 features Jessica Dietcher. Jessica is a fourth-grade teacher and a cervical cancer survivor. She is the happiest when teaching yoga, journaling, and creative hands-on projects. Jessica shares how these activities helped her navigate her diagnosis, treatment, and her recovery from cervical cancer just over two years ago. _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected] Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

On this episode of the GOSH Podcast, we are joined by Shiraz Italia. Shiraz was twelve when her mom died of ovarian cancer at the age of 48. She had also lost her grandmother to cancer. She suspected family history and decided to pursue genetic testing, but was faced with a 12 to 18-month waitlist. Following her gut feeling, Shiraz sought private testing and found out she was BRCA 1 positive.  During her preventative surgery, it was discovered she had a 1 mm-sized tumour on one of her ovaries. Shiraz shares her story on how genetic testing gave her the power to take action.  You can learn more about Shiraz's story here – https://bit.ly/3vQABxRFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected] Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

On this episode, we are joined by Kirsty Browne, a cervical cancer survivor. She was diagnosed at age 26 shortly after requesting an unplanned screening test. After successful cancer treatments, she has been cancer-free for five years and now has a four-year-old boy! Through her story, Kirsty hopes to empower and encourage women to get their regular screening tests for cervical cancer. Learn more about the Conquering Cancer Campaign: https://conqueringcancercampaign.comFollow Conquering Cancer Campaign on Instagram: https://www.instagram.com/conqueringcancercampaign/Follow Conquering Cancer Campaign on Twitter: https://twitter.com/ConqueringCancr-For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected] Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh

On this episode, we are joined by Sue Collins, filmmaker of the impact film Conquering Cancer. The film is a global social impact communications initiative designed to stimulate and celebrate efforts to eliminate cervical cancer around the world. Sue shares what she learned about cervical cancer, the challenges faced in filming, and the impact she hopes the film has on the world. Learn more about the Conquering Cancer Campaign: https://conqueringcancercampaign.comFollow Conquering Cancer Campaign on Instagram: https://www.instagram.com/conqueringcancercampaign/Follow Conquering Cancer Campaign on Twitter: https://twitter.com/ConqueringCancr-For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected] Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiativeFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at [email protected]  Where to learn more about us:  Twitter – @GCI_Cluster Instagram – @gynecancerinitiative Facebook – facebook.com/gynecancerinitiativeTikTok – @gci_gosh