Karger - The Waiting Room Podcast

For this episode of Karger's The Waiting Room Podcast, we spoke with Konstantina Boumaki. She is a medical doctor with 19 years of experience in patient advocacy. Since her diagnosis with type 1 diabetes in 2005, she has been a passionate advocate, leading numerous projects to improve patient engagement and health outcomes. With regard to this year's World Diabetes Day we talked about her patient journey and her work as a patient advocate. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke with Abby Match. She was diagnosed with triple-negative breast cancer at the age of 35 in 2020. After the diagnosis she became a breast cancer advocate as well as a board member of the US-based non-profit organization Living Beyond Breast Cancer in 2023.  We spoke about her patient journey with breast cancer, her work as a patient advocate as well as Breast Cancer Awareness Month in October. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts.

For the first episode of season 5 of Karger's The Waiting Room Podcast, we spoke with Alastair Boyle. He was diagnosed with myelodysplasia, a type of blood cancer, in 2008 and eventually had to retire from his work as a firefighter in 2014. Ally then focused on patient and public involvement and providing input to charities, research studies and committees, for example, by serving as a Trustee for Blood Cancer UK.  We spoke about his experiences with blood cancer, his work as a patient advocate and trustee as well as Blood Cancer Awareness Month in September. If you are looking for more detailed information on the signs and symptoms of blood cancer, follow this link to the section of the Blood Cancer UK website which discusses them and has a video talking about what to look out for. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke with Roger Wilson. He is a sarcoma patient, patient advocate, founder of Sarcoma UK, as well as Honorary President and active Board member of the Sarcoma Patient Advocacy Global Network (SPAGN). We talked about his patient journey with soft tissue sarcoma, his work as a patient advocate as well as Sarcoma Awareness Month in July, with this year's motto being "The importance of early and correct diagnosis". Since being diagnosed with a soft tissue sarcoma in 1999, Roger has undergone ten operations, chemotherapy and radiotherapy. He currently works with a range of organizations and academic research groups in the UK and Europe. Furthermore, he has honorary doctorates from the Universities of Sheffield and Lancaster in the UK.

For this episode of Karger's The Waiting Room Podcast, we spoke with Mary Lynne Van Poelgeest-Pomfret. She is the President of the WFIPP, the World Federation of Incontinence and Pelvic Problems. We discussed incontinence/leakage and pelvic problems, the aspect of quality of life, stigma and mental health, as well as the upcoming World Continence Week, which is held from June 17–23, 2024. Lynne is also a long-time international patient advocate and a member of various scientific advisory committees and panels. Furthermore, she is a member of several patient advocacy movements and organizations such as IAPO (International Alliance of Patient Organizations) and EPF (European Patients' Forum). Lynne has a BA degree from the UK and a Drs. degree from Leiden University in the Netherlands. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke with cancer survivor and patient advocate Naniki Seboni about her experiences of being diagnosed with stage 3 malignant melanoma at the age of 25. We also discussed what should be done regarding prevention, screening and awareness of skin cancer – not only in her native country of South Africa, via the Cancer Association of South Africa (CANSA), but also in the rest of the world. Please note that Skin Cancer Awareness Month is held in May each year. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke with Jessica Settle about her experience of being diagnosed with colorectal cancer at the age of 28. Jessica is the dedicated mother of a 12-year-old daughter. She is advocating for colon cancer awareness and spreading hope wherever she goes. Please note that Colorectal Cancer Awareness Month is held in March each year. Published in February 2024, Karger's latest patients' resource on colorectal cancer is freely available here. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke with Emily Lewis about Rare Disease Day on February 29, and how artificial intelligence (AI) and digital technologies could help patients living with a rare disease. Emily (Kunka) Lewis, MS, CCRP, CHES is an opinion leader in the digital transformation of healthcare. She is driven by a desire for the democratization of modern medicine. Emily received a Master of Science in Clinical Research from Northwestern University. She is currently working as a Digital Transformation Project Lead at UCB. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke with Bernie Price about her patient journey, her experiences after a gynecological cancer and hysterectomy, as well as the healthcare system as such. Bernie is an endometrial cancer survivor. She is a Transformational Mindset and Life coach, Tai Chi instructor and athlete. Furthermore, she serves as an advocate for women going through menopause. The booklet "Fast Facts for Patients: Sexual and Reproductive Health After Gynaecological Cancer" mentioned in the podcast episode can be downloaded online free of charge. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke with Claudia Louati about the revision of the EU's pharmaceutical legislation. Claudia Louati joined the European Patients' Forum (EPF) as Head of Policy in May 2023. She leads EPF's policy and advocacy work and steers EPF's engagement with EU and international stakeholders on key policy issues. Before joining EPF, she worked at the Europe Office of the U.S. Food and Drug Administration in Brussels, where she promoted EU–U.S. regulatory collaboration on medical products. Claudia holds two master's degrees in European Affairs from SciencesPo Paris and the London School of Economics. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke with Charlie Bethel about men's mental health in the context of Movember. The awareness month focuses, among prostate cancer and testicular cancer, on mental health and suicide prevention. Charlie is the Chief Officer of the UK Men's Sheds Association (UKMSA) whose mission is "Healthy and Happy Men". He has studied Industrial Design at university and worked in the third sector for over 20 years before joining UKMSA in the summer of 2018. Focused on acquiring and developing resources for the organization, his tasks combine three of his passions: organizational growth, increasing wellbeing and his love of craft and design. This podcast mentions suicide and suicidal ideation, and some people might find it disturbing. If you feel you need support, please contact your local crisis center. For more podcast episodes from Karger please visit https://www.karger.com/pages/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke with Dr José Cândido Caldeira Xavier-Júnior, who is a pathologist. Pathology is a kind of invisible field in medicine. It happens behind closed doors – in the laboratory and in the morgue. Mostly, pathologists are depicted as the ones who determine cause of death. However, this is only one side of the coin! A not so well-known fact is that pathologists are indispensable in helping clinicians to diagnose a condition and to decide on the best cure, especially in cancer. On the role of a pathologist, Dr José Cândido Caldeira Xavier-Júnior also wrote three blog posts for The Waiting Room blog which you find here: ·           The Role of a Pathologist in Diagnosis and Treatment: What Does a Pathologist Do in General? ·           The Role of a Pathologist in Diagnosis and Treatment: What Does a Pathology Report Contain? ·           The Role of a Pathologist in Diagnosis and Treatment: Pathology Is a Varied Medical Field For more podcast episodes from Karger please visit https://www.karger.com/pages/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke with Dr Erik Briers, MS PhD about current screening and testing modalities, as well as mental health and quality of life in connection with prostate cancer. Erik is both an Expert Patient Advocate, member of the European Association of Urology (EAU) prostate cancer guidelines committee and the Vice-Chair of the European Prostate Cancer Coalition, i.e. Europa Uomo – The Voice of Men with Prostate Cancer in Europe. He has a PhD in Chemistry from the University of Leuven, Belgium, and was CEO of a biotech company. His strong social involvement within patient organisations began after his own prostate cancer diagnosis in 2001. For more podcast episodes from Karger please visit https://www.karger.com/pages/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke with Elisa Martini and Helen Crawford from the International Federation of Psoriasis Associations (IFPA) about the skin condition psoriasis and the upcoming Psoriasis Action Month in August. Elisa Martini is the Policy and Advocacy Manager of the International Federation of Psoriasis Associations (IFPA) and is thus responsible for developing and implementing IFPA's advocacy and policy strategies at a global level. She has a Master's degree in pharmaceutical sciences and a Ph.D. with a focus on psoriasis. Helen Crawford is both a Board Member of the International Federation of Psoriasis Associations (IFPA) and Programs Manager at the Canadian Association of Psoriasis Patients. She is committed to patient engagement and has participated in several patient advisory boards. Furthermore, she has a degree in Linguistics from Carleton University and a Certificate in Social Media from Algonquin College. The IFPA works on behalf of 125 million people living with psoriasis and/or psoriatic arthritis. For more podcast episodes from Karger please visit https://www.karger.com/pages/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke with Nomsa Mtshali, Patient Community and Rare Assist Manager at Rare Diseases South Africa. Rare Diseases South Africa is a non-profit organization which aims to assist rare disease patients in receiving access to life-saving treatment and supportive care for improved quality of life. The Rare Bear Project is a community upliftment program under Rare Diseases South Africa. For more podcast episodes from Karger please visit https://www.karger.com/pages/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke with Professor Antonio Piga about thalassemia, which is an inherited blood disorder, and one of the two main types called beta thalassemia in particular. Professor Piga is Professor of Pediatrics at the University of Turin, Italy. Furthermore, he is the author of the recently published Fast Facts for Patients booklet "Beta Thalassemia", which is freely available online.  For more podcast episodes from Karger please visit https://www.karger.com/pages/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke with Anca Toma about the 20th anniversary of the European Patients' Forum (EPF) and its future goals.  Anca Toma joined the EPF as Executive Director in March 2022. She has over 15 years of experience in European health policy, working in policy advocacy, strategic communications, developing and coordinating successful pan-European advocacy campaigns. The EPF is the leading voice of patient organizations in Europe. 20 years after its founding, EPF occupies a unique position as the only cross-disease umbrella patient organization at the European level. For more podcast episodes from Karger please visit https://www.karger.com/pages/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke again with Dr Anne-Marie Baird, who currently serves as the president of Lung Cancer Europe (LuCE). She is a Senior Research Fellow at Trinity College Dublin, Ireland, and a patient advocate. In this episode we are going to focus on non-small cell lung cancer, genetic predisposition, biomarkers and treatment. More information on lung cancer is freely available here: Fast Facts for Patients: Non-small Cell Lung Cancer with KRAS Mutation Infographic Summary Sheets for Patients: KRAS G12C in Metastatic Non-Small Cell Lung Cancer When Checkpoint Inhibitor Therapy Stops Working Biomarkers in Metastatic Non-Small Cell Lung Cancer "Anyone with Lungs Can Get Lung Cancer": An Interview with Dr Anne-Marie Baird (Lung Cancer Europe)   For more podcast episodes from Karger please visit https://www.karger.com/pages/podcasts.

For this episode of Karger's The Waiting Room Podcast on World IBD Day on May 19, we spoke with Jen Rose, who was diagnosed with inflammatory bowel disease (IBD) 33 years ago. She offers emotional support to newly diagnosed IBD patients and their families and is the author of the coloring journal "Me (and IBD)". In the second episode of our two-part special we talk about the creation of "Me (and IBD)" and Jen's plans for future updates and add-ons. In addition, we are looking at the aspect of mental health and what it takes to become a powerful patient. More information on IBD is freely available here: ·     Infographic Summary Sheets for Patients: What Is IBD? ·     Fast Facts for Patients and their Supporters: Inflammatory Bowel Disease For more podcast episodes from Karger please visit karger.com/podcasts

For this episode of Karger's The Waiting Room Podcast on World IBD Day on May 19, we spoke with Jen Rose, who was diagnosed with inflammatory bowel disease (IBD) 33 years ago. She offers emotional support to newly diagnosed IBD patients and their families and is the author of the coloring journal "Me (and IBD)". In the first episode of our two-part special we focus on what IBD is, what to look out for in terms of symptoms and diagnosis, and what it is like to live with the condition based on Jen's patient journey. The second part of the interview will be published on May 18, 2023. More information on IBD is freely available here: ·     Infographic Summary Sheets for Patients: What Is IBD? ·     Fast Facts for Patients and their Supporters: Inflammatory Bowel Disease For more podcast episodes from Karger please visit karger.com/podcasts.

For this episode of Karger's The Waiting Room Podcast for World Melanoma Day on May 1, 2023, as well as Skin Cancer Awareness Month in May, we spoke with Prof Willie Visser about the importance of skin cancer prevention and regular check-ups with your dermatologist. Prof Visser is the Head of Dermatology at University of Stellenbosch, Tygerberg Academic Hospital, Cape Town, South Africa. An Infographic Summary Sheet for Patients on skin cancer, self-examination and prevention is freely available here. For more podcast episodes from Karger please visit Podcasts Overview - Karger Publishers

For this episode of Karger's The Waiting Room Podcast on Colorectal Cancer Awareness Month in March, we spoke with Stephen Rowley. He is a colorectal cancer survivor, and currently serves as Patient Advisor at Digestive Cancers Europe. In our interview we focus on the aspects of prevention and screening, stigmatization, and cancer rehabilitation regarding colorectal cancer. This is the second part of our two-part special on colorectal cancer. The first part was published on March 9, 2023. For more podcast episodes from Karger visit karger.com/podcasts.

For this episode of Karger's The Waiting Room Podcast on Colorectal Cancer Awareness Month in March, we spoke with Stephen Rowley. He is a colorectal cancer survivor, and currently serves as Patient Advisor at Digestive Cancers Europe. In our interview we focus on the aspects of prevention and screening, stigmatization, and cancer rehabilitation regarding colorectal cancer. This is the first part of our two-part special on colorectal cancer. The second part will be published on March 23, 2023. For more podcast episodes from Karger visit karger.com/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke with Dr Anne-Marie Baird, who currently serves as the president of Lung Cancer Europe (LuCE). She is a Senior Research Fellow at Trinity College Dublin, Ireland, and a patient advocate. LuCE is the voice of Europeans impacted by lung cancer. The aim of LuCE is to destigmatise the disease and ensure that those impacted by lung cancer get the care they need to achieve the best possible outcomes. For more podcast episodes from Karger visit karger.com/podcasts.

For this episode of Karger's The Waiting Room Podcast on Rare Disease Day 2023, which is held on February 28, we spoke with Lisa Sarfaty from the National Organization for Rare Disorders (NORD). Lisa currently serves as the Vice President of Community Engagement, and particularly focuses on advocacy, education, and capacity building. While addressing the 40th anniversary of the Orphan Drug Act (ODA) and of the foundation of NORD as an organization, we specifically tried to answer the question: "What does equity mean for people living with a rare disease?" We also looked at what should be done to actually achieve this equity in education, the workplace, and everyday life. Last but not least, we had a closer look at NORD's plans for Rare Disease Day 2023. For more podcast episodes from Karger visit karger.com/podcasts.

For this episode of Karger's The Waiting Room Podcast, we spoke with Jade Corbridge from the Zero Suicide Alliance. She is a first class MSci Psychological Sciences graduate from the University of Liverpool. Jade has experience working in the Mental Health and Addiction sector, which is her primary area of interest. Currently she is a Research and Development Assistant for Zero Suicide Alliance, Mersey Care. For more information, go to the Zero Suicide Alliance website. It seems that the word "suicide" alone is a taboo and should not be mentioned. Naturally, this makes it difficult or even impossible to initiate a conversation with someone who might be feeling suicidal. How do you best approach them? How can you help them? However, Jade is familiar with these questions, and luckily agreed to be our guest. For further information, you can also go to the 24/7 Helpline of the Samaritans or find a suitable helpline. For more podcast episodes from Karger visit karger.com/podcasts.

Waldenström macroglobulinemia (WM) is a rare blood cancer that usually progresses slowly. WM can be diagnosed by blood tests, bone marrow biopsy, and scans, and there are a range of treatment options available. In this episode of Karger's The Waiting Room Podcast, we spoke with Dr Shirley D'Sa to learn more about WM. She is a Consultant Haematologist and Honorary Associate Professor at University College London Hospitals NHS Foundation Trust in London, UK. Furthermore, she is the author of the booklet "Fast Facts for Patients: Waldenström macroglobulinemia", which is freely available online. This is the second interview of our two-part special on Waldenström macroglobulinemia. The first part featured Bob Perry, Patient Support Manager at Waldenström Macroglobulinaemia UK. For more podcast episodes from Karger please visit karger.com/podcasts and for your fix of all healthcare related news and posts do visit  thewaitingroom.karger.com

Waldenström macroglobulinemia (WM) is a rare blood cancer that usually progresses slowly. WM can be diagnosed by blood tests, bone marrow biopsy, and scans, and there are a range of treatment options available. In this episode of Karger's The Waiting Room Podcast, we talk with Bob Perry. He was diagnosed with Waldenström macroglobulinemia (WM) in 2015 and treated with chemotherapy. Since then, he set up a support group, the Bournemouth and District WM Support Group aka the BAD WMers. He is also Patient Support Manager at the UK charity Waldenström Macroglobulinaemia UK (WMUK). This is the first interview of our two-part special on Waldenström macroglobulinemia. The second part, focusing on symptoms, diagnosis and treatment of WM, will feature Dr Shirley D'Sa. She is a Consultant Haematologist and Honorary Associate Professor at University College London Hospitals NHS Foundation Trust in London, UK, as well as the author of the booklet "Fast Facts for Patients: Waldenström macroglobulinemia", which is freely available online. For more podcast episodes from Karger please visit karger.com/podcasts and for your fix of all healthcare related news and posts do visit  thewaitingroom.karger.com

In this episode of Karger's The Waiting Room Podcast, we talk with Catherine Richards Golini, who works as a Healthcare Publications Editor at Karger Publishers, about health literacy. The World Health Organization (WHO) defines health literacy as "the cognitive and social skills which determine the motivation and ability of individuals to gain access to, understand and use information in ways which promote and maintain good health". While we can't influence the level of knowledge or personal skills of an individual, we can make sure the information we as a publisher offer is relevant and easy to understand. Thus, we support patients and their supporters in their efforts to make informed decisions and be on a level playing field with all actors of the health care system.

In this episode of Karger's The Waiting Room Podcast, we talk with Brian Lutchmiah and Piers Wilkinson about the work and achievements of their organization Diversity and Ability (D&A) and the upcoming inaugural congress in December. D&A is a UK-based social enterprise led by and for disabled people, i.e., 85% of their team self-identify as disabled or neurodiverse. Their aim is to support individuals, organisations and social justice projects to create inclusive cultures. This is the second interview of our two-part special featuring D&A. The first part focuses on UK Disability History Month, which runs from November 16 until December 16, 2022. It features Piers Wilkinson and can be found here. For more podcast episodes from Karger please visit karger.com/podcasts and for your fix of all healthcare related news and posts do visit  thewaitingroom.karger.com

In this episode of Karger's The Waiting Room Podcast, we talk with Piers Wilkinson from Diversity and Ability (D&A) about UK Disability History Month, which runs from November 16 to December 16, 2022, and features the theme "Disability, Health and Wellbeing". D&A is a UK-based social enterprise led by and for disabled people, i.e., 85% of their team self-identify as disabled or neurodiverse. Their aim is to support individuals, organisations and social justice projects to create inclusive cultures. This is the first interview of a two-part special featuring D&A. The second part focuses on the work of the organization and its upcoming inaugural congress in December. It will feature Piers Wilkinson and Brian Lutchmiah. For more podcast episodes from Karger please visit karger.com/podcasts and for your fix of all healthcare related news and posts do visit  thewaitingroom.karger.com  

Since late 2019, people all over the world know of COVID-19, or coronavirus. Meanwhile we have also heard about a new development: Long COVID. To learn more, we turned to the Long COVID Alliance and spoke with Emily Taylor, Vice President of Advocacy and Engagement at Solve M.E. https://longcovidalliance.org For more podcast episodes from Karger please visit karger.com/podcasts and for your fix of all healthcare related news and posts do visit  thewaitingroom.karger.com  

In this episode of Karger's The Waiting Room Podcast, we talk with Professor Sir Liam Donaldson. He is the World Health Organization's Envoy for Patient Safety as well as Professor of Public Health at the London School of Hygiene and Tropical Medicine. Sir Liam provides us with a comprehensive overview of why and how World Patient Safety Day was created as an awareness day. Furthermore, he explains this year's theme, 'Medication Safety', and slogan, 'Medication Without Harm', in detail.  For more podcast episodes from Karger please visit karger.com/podcasts and for your fix of all healthcare related news and posts do visit  thewaitingroom.karger.com   

In this episode of Karger's The Waiting Room Podcast, we talk with Cara Mack, Chief and Professor of Pediatric Gastroenterology, Hepatology and Nutrition at the Medical College of Wisconsin, USA. Dr Mack provides us with a snapshot overview of progressive familial intrahepatic cholestasis (PFIC) and shares with us the impact that this group of diseases can have on patients and their supporters. Dr Mack has also recently co-developed a Karger interactive eLearning program to educate healthcare professionals, entitled Finding PFIC: Unraveling Pediatric Cholestasis https://courses.karger.com/courses/finding-pfic-unraveling-pediatric-cholestasis  For more podcast episodes from Karger please visit karger.com/podcasts and for your fix of all healthcare related news and posts do visit thewaitingroom.karger.com 

On the occasion of Dementia Action Week, which is held from May 16 to 22, we spoke with Professor Janice Murray and Professor Adele May. Together with Professor Shakila Dada they wrote the recently published Fast Facts book "Dementia and Augmentative and Alternative Communication: Supporting Conversations". Janice Murray, who is Professor of Communication Disability at Manchester Metropolitan University in the UK, is an advocate for maintaining connectedness with those living with dementia through meaningful, co-constructed interactions. Adele May holds a PhD in Augmentative and Alternative Communication (AAC) from the Centre for AAC at the University of Pretoria, South Africa. She has a special interest in developing interventions that focus on functional real life outcomes for persons with communication disabilities. Download the free Fast Facts book at https://www.karger.com/Book/Home/283341 For more podcast episodes from Karger please visit Karger.com/podcasts and for your fix of all healthcare related news and posts do visit thewaitingroom.karger.com 

In this episode of Karger's The Waiting Room Podcast, we talk with Dr Paul H. Sugarbaker, Secretary General of the Peritoneal Surface Oncology Group International (PSOGI) and pioneer of the HIPEC (Hyperthermic Intraperitoneal Chemotherapy) therapy, or the Sugarbaker procedure. Dr Sugarbaker joins us for Appendix Cancer Awareness Month. He provides us with a comprehensive overview of what is a rare type of cancer, including interesting insights on treatment and management from several decades of working with appendix cancer patients.  For more podcast episodes from Karger please visit karger.com/podcasts and for your fix of all healthcare related news and posts do visit thewaitingroom.karger.com

In this episode of Karger's The Waiting Room Podcast, we talk with Dr Cary Adams, CEO of Union for International Cancer Control (UICC). Dr Adams discusses the challenges facing cancer care, particularly inequities and their impact on cancer survival rates, which underpins the UICC's theme of 'Close the Care Gap' for World Cancer Day 2022 and beyond. To find out more about UICC and how it is dedicated to taking the lead in uniting and supporting the cancer community to reduce the global cancer burden, promote greater equity, and to ensure cancer control continues to be a priority in the world health and development agenda visit www.uicc.org  For more podcast episodes from Karger visit www.karger.com/podcasts and for your fix of all healthcare related news and posts visit thewaitingroom.karger.com 

In this episode of Karger's The Waiting Room Podcast, we talk with Vicki Mooney, patient advocate and Executive Director. Vicki provides us with an excellent overview of the work of ECPO, detailing how it supports patients living with obesity, uniting their voice and driving awareness of obesity as a chronic relapsing disease. We also discuss the impact of COVID-19 and its effects on the quality of life for those living with obesity. For more information about ECPO and how it supports patients, including accessing its selection of excellent educational resources visit eurobesity.org.  For more podcast episodes from Karger visit www.karger.com/podcasts and for your fix of all healthcare related news and posts visit thewaitingroom.karger.com

In this episode of Karger's The Waiting Room Podcast, we speak with Jo Balfour, the founding member and Managing Director of the UK-based charity Cambridge Rare Disease Network (CRDN). Jo shares with us details of the Action for Rare Diseases Empowerment (ARDEnt) project and its aim to shed light on the unseen impact of the pandemic on people living with rare conditions to protect the existing services for them and identify what lessons can be learned. To learn more about the ARDEnt project and the corresponding report including its findings visit www.camraredisease.org  For more podcast episodes from Karger including additional interviews on the subject or rare diseases visit www.karger.com/podcasts and for your fix of all healthcare related news and posts visit thewaitingroom.karger.com

In this episode of Karger's The Waiting Room Podcast, we talk with Helena Baker, CEO and co-founder of the Rare Disease Nurse Network (RDNN). Helena shares with us the excellent work that the RDNN is doing for rare disease patients, including its ambition to becoming the 'Macmillan of Rare Diseases' and its determination to create better services for those affected by rare diseases and improved information for nurses. For more information about the RDNN please do visit www.rdnn.org.  For more podcast episodes from Karger including additional interviews on the subject or rare diseases visit www.karger.com/podcasts and for your fix of all healthcare related news and posts visit thewaitingroom.karger.com

In this episode of Karger's The Waiting Room Podcast, we talk with Anna Kole, Public Health Policy Director at EURORDIS. We talk about the importance of raising awareness around rare diseases and the positive impact that Rare Disease Day can have on patients and their supporters. For more information about the work the of EURORDIS and access to their wide range of supporting resources visit www.eurordis.org.  For more podcast episodes from Karger including additional interviews on the subject or rare diseases, visit www.karger.com/podcasts and for your fix of all healthcare related news and posts visit thewaitingroom.karger.com

In this episode of Karger's The Waiting Room Podcast, we talk with Dr. Paula Briggs, consultant in sexual and reproductive health, about all thing's 'menopause'. We touch upon the symptoms of menopause, including those symptoms that are lesser known, as well as the subject of HRT (hormone replacement therapy). Dr Briggs also provides useful hints and tips on where to access good quality and reliable information so that women and their supporters can make informed decisions. This includes the Fast Facts Menopause guide available to download for free from Karger, as well as articles on the consumer health website Embarrassing Problems. For more podcast episodes from Karger visit www.karger.com/podcasts and for your fix of all healthcare related news and posts visit thewaitingroom.karger.com