Lewy Body Roller Coaster

This week, welcome Dr. Jason Cohen. Dr. Cohen is a dementia specialist who answered many of our burning questions about LBD. We are sure some of our questions to him are some each of you would have asked. He said he would come on again, so if anyone has other questions to ask, please email them to us at [email protected] his responses made us feel hope and he said everyone needs to share about their LBD experiences because the more we all share, tjhe more people will know what the disease is. Remember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

This week we welcome six individuals who attend at least one of our support group zoom meetings.  We wanted them to share with you all the power of attending a support group. Our hope is you hear from these amazing people and feel more comfortable joining in one of the meetings we hold each weeNaomi from Ireland mentions Lewy Love. That's what you will get when you attend one of our support meetings- people who get what you are going through and understand and never, ever judge. Enjoy meeting these individuals who are members of our Lewy Family. I, for one, am thankful for each of them and their friendships. and k now Curry feels the same way.A shout out to our new and some past Patreon and Go Fund Me SupportersToby Gorelick and Deb and Paul Lannom and Laura Michel, Pia Benard, Marcia TreffmanWe couldn't do this podcast without all of you who support us!Should you wish to bless us with your support you can :Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.Thank you for listening each week.Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

We are back after a much needed break to handle many personal issues. Thank you all for your continued patience. Just as LBD is a roller coaster ride, so has been our lives been the last few months.A big shout out to all of our supporters. We couldn't do all this without your help and support. xoThis episode, we do a quick recap of how this all got started..the podcast, our 5 support groups, 2 Facebook support pages and now  a LBD awareness documentary.We share with you all what we have been involved in over the past year or so that many of you may not be aware of.  We have been working with a film crew on  a documentary about those with LBD and their caregivers. Since that the film is close to completion, we thought now is the perfect time to share more details with y'all.Welcome this week,  the producer and director of the documentary we have been working on titled  Facing the Wind. -Tony Heriza and Diedre Fishel.The four of us share more details about the film and what it was like to be a part of this project.Please consider watching the documentary trailer ( link below) and clink on the donate button  to help get the film completion over the finish line. No amount is too small. Go to: Facingthewindfilm.com or click on link below.https://facingthewindfilm.com/We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

Podcast Linda is taking 2 weeks off for her birthday…so enjoy the replay of Lewy Terms Defined part 2 with  Dr. Sara .Just a reminder- we are not giving medical advice, merely sharing our experiences.This week, Sara returns to help us talk about the many terms you may hear that relate to some aspect of Lewy Body Dementia. When you listen, you will hear the technical definition of the terms and then hear examples from personal experiences which helps us have a better understanding for each terms discussed. There were so many terms many of you sent me to discuss that we needed to break her recording into 2 parts. This is definitely our most educational episode and one you won't want to miss and hear.Should you wish to bless us with your support you can go to:Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6Patron Shout OutA very special shout out to Miriam and Matthew Geraci  and Phyllis Banks for being super monthly patrons BronzeAmySarah SzypulaMatthew SzypulaAndrew SzypulaPolina DinevaGinger GillmoreTedd WinklerRyan SamuelGillian ThompsonSilver Patrons                                         Bonnie Ziegler-Weber                                  Mark Youlden                                                      Lisa DeRosaKaren Klink    Rita McCord       Kathy Deschenaeau                                                       Gold PatronsSharon WelchNancy GuerroPhyllis BanksCindy      Marcia TreffmanJay MacLeanSheila FureyChris OaksLenny AsuncionPat CrawfordBelinda RayCherie LawrenceLinda BolbeckerDaisy BestSara LangerLarry HerigBrian and Amy Dougherty       Platinum PatronsDarlene Passmore-ArmstrongThomas ConnellyPat CrawfordTere WisellRobin LavaronAlisa MahoneyAlbert Ferraro and FamilyNorma LoebSuper Patrons.           Miriam and Matthew GeraciGo Fund Me Shout OutsLisa DeRoaLaketta MitchellLori KragHeather and Lewis GrossitGeri SeraJaneen ObisDeb SummersWendy CoganSusan LavoiceLJean HowellMarcia TreffmanTedde Hope HamiltonGeri SeraMelinda FarmerMichaele CouchPia BedardRussell LebovitzNancy GuerroTaylor SwantekThank you for listening each week.Join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] the show

Just a reminder- we are not giving medical advice, merely sharing our experiences.This week, Sara returns to help us talk about the many terms you may hear that relate to some aspect of Lewy Body Dementia. When you listen, you will hear the technical definition of the terms and then hear examples from personal experiences which helps us have a better understanding for each terms discussed. There were so many terms many of you sent me to discuss that we needed to break her recording into 2 parts. This is definitely our most educational episode and one you won't want to miss and hear.Should you wish to bless us with your support you can go to:Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6Patron Shout OutA very special shout out to Miriam and Matthew Geraci  and Phyllis Banks for being super monthly patrons BronzeAmySarah SzypulaMatthew SzypulaAndrew SzypulaPolina DinevaGinger GillmoreTedd WinklerRyan SamuelGillian ThompsonSilver Patrons                                         Bonnie Ziegler-Weber                                  Mark Youlden                                                      Lisa DeRosaKaren Klink    Rita McCord       Kathy Deschenaeau                                                       Gold PatronsSharon WelchNancy GuerroPhyllis BanksCindy      Marcia TreffmanJay MacLeanSheila FureyChris OaksLenny AsuncionPat CrawfordBelinda RayCherie LawrenceLinda BolbeckerDaisy BestSara LangerLarry HerigBrian and Amy Dougherty       Platinum PatronsDarlene Passmore-ArmstrongThomas ConnellyPat CrawfordTere WisellRobin LavaronAlisa MahoneyAlbert Ferraro and FamilyNorma LoebSuper Patrons.           Miriam and Matthew GeraciGo Fund Me Shout OutsLisa DeRoaLaketta MitchellLori KragHeather and Lewis GrossitGeri SeraJaneen ObisDeb SummersWendy CoganSusan LavoiceLJean HowellMarcia TreffmanTedde Hope HamiltonGeri SeraMelinda FarmerMichaele CouchPia BedardRussell LebovitzNancy GuerroTaylor SwantekThank you for listening each week.Join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] the show

Welcome Back Podcaast Family!This week, we share our thoughts on whether there are stages of LBD. There are so many different sites that speak of anywhere from 3-7 stages. We give our two cents on stages and then discuss what it was like for Podcast Linda with the Brain Foundation and Lewy research.We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

This week we continue part 2 as Curry shares how he is feeling and discussed the new hallucinations he is having and how he is feeling overall including not remembering visitors. We also discuss compulsive behaviors people with LBD may have as this was a big discussion during one of the zoom meetings.Should you wish to bless us with your support you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.Thank you for listening each week.Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

This week Curry shares how he is feeling and discussed the new hallucinations he is having and how he is feeling overall including not remembering visitors. We also discuss compulsive behaviors people with LBD may have as this was a big discussion during one of the zoom meetings.Should you wish to bless us with your support you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.Thank you for listening each week.Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

Hello Everyone! Thank you for your patience. Curry shares this week how he has been on a decline for the last few months and shares, in details, how Lewy is affecting him right now. We have a  special appearance from his wife Linda as she helped him describe his current symptoms.Should you wish to bless us with your support you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.Thank you for listening each week.Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

This week, Curry shares with us his and his wife Linda's experience going to a funeral home to plan their funerals in advance so their children did not have to later on. He shares how he felt during the process and why he wanted to share with our listeners and members of our Facebook pages."I would hate to have left Linda to decide all that in a day or two," Curry confesses, his voice carrying the weight of nine years living with LBD. During a recent period when his symptoms have intensified—increased confusion, slurred speech, and devastating sleep disruptions—he still prioritized this difficult task. The contrast is striking: even as Curry struggles with Lewy's daily challenges, he's thinking ahead to ease his wife's future burden.Should you wish to bless us with your support you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.Thank you for listening each week.Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

This week is part three of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but also keep laughter in your life.Listen in as Curry, Tom and Dorie, Ray, Dan and Effie, Liz and Sharon share their LBD experiences..A shout out to all of our supporters! We couldn't do this without all of ya'll. xoShould you wish to bless us with your support you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.Thank you for listening each week.Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

This week is part two of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but also keep laughter in your life.Listen in as Curry, Tom and Dorie, Ray, Dan and Effie, Liz and Sharon share their LBD experiences..A shout out to all of our supporters! We couldn't do this without all of ya'll. xoZoomA shout out to all of our supporters! We couldn't do this without all of ya'll. xoShould you wish to bless us with your support you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.Thank you for listening each week.Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

This week is part one of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but also keep laughter in your life.Listen in as Curry, Tom and Dorie, Ray, Dan and Effie, Liz and Sharon share their LBD experiences..A shout out to all of our supporters! We couldn't do this without all of ya'll. xoShould you wish to bless us with your support you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.Thank you for listening each week.Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

The conversation takes a surprising turn as they detail a series of household disasters that would test anyone's resilience. A massive 90-foot tree fell onto their house during the night, damaging their electrical system during one of the coldest nights of the season. Combined with plumbing failures affecting both their kitchen and laundry facilities, they find themselves navigating a perfect storm of home maintenance crises while simultaneously managing LBD symptoms. Their matter-of-fact approach to these challenges reveals the extraordinary resilience required when facing dementia alongside life's ordinary problems.A shout out to all of our supporters! We couldn't do this without all of ya'll. xoShould you wish to bless us with your support you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.Thank you for listening each week.Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

Welcome Vangie Jones, a hospice nurse for 20 years as she shares with us all we need to know about hospice including the myth that it is only for the final days or weeks. This will be a three part recording since we had so many questions for Vangie that we all want to knowA shout out to all our supporters including Tom Lawson, Dee C,  Sue, Jane Wakeman,Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska, Kara Biller, Don Pinkos, Dee Richert, Marcia Treffman, and the Geraci's and everyone else who has been with us from day one. We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening each week.Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

A tough topic but one we all need to know about sooner than later. Welcome Vangie Jones, a hospice nurse for 20 years as she shares with us all we need to know about hospice including the myth that it is only for the final days or weeks. This will be a three part recording since we had so many questions for Vangie that we all want to knowThis episode provides valuable insights into hospice and palliative care for families dealing with Lewy Body Dementia.  Vangie shares her expertise on navigating care options, eligibility criteria, funding, and the importance of early intervention.• Differences between palliative care and hospice care• Variability in palliative care access across states• Understanding payment for hospice services• Importance of early hospice involvement• How families can request a hospice evaluation• Tips for choosing the right hospice providerFeel free to share the podcast link with your doctors and family as we seek to spread awareness and understanding about Lewy Body Dementia and its unique challenges.A shout out to all our supporters including Tom Lawson, Dee C,  Sue, Jane Wakeman, Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska, Kara Biller, Don Pinkos, Dee Richert, Marcia Treffman, and the Geraci's and everyone else who has been with us from day one. We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening each week.Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

A tough topic but one we all need to know about sooner than later. Welcome Vangie Jones, a hospice nurse for 20 years as she shares with us all we need to know about hospice including the myth that it is only for the final days or weeks. This will be a three part recording since we had so many questions for Vangie that we all want to knowA shout out to all our supporters including Tom Lawson, Dee C,  Sue, Jane Wakeman,Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska, Kara Biller, Don Pinkos, Dee Richert, Marcia Treffman, and the Geraci's and everyone else who has been with us from day one. We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support you can  use links below.Support the show

This episode sheds light on navigating life with Lewy Body dementia, focusing on the importance of community support and personal stories. We share experiences about hospice care, the unpredictability of hallucinations, and the joy found in good days.• The critical role of support networks for Lewy Body individuals• Insights from hospice care experiences and advocacy need• Navigating the challenges of hallucinations with humor and resilience• Celebrating the significance of good days amidst the struggles• Importance of our supportive Zoom meetings and community connectionsA shout out to all of our supporters! We couldn't do this without all of ya'll. xoShould you wish to bless us with your support you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.Thank you for listening each week.Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

Welcome back for part three of our interview with Dr. Todd Levine from CND LifeSciences to share with us all information about the new syn-one skin test that can help in diagnosing LBD.Our good friend Wendy Cogan joined us to help ask the right questions so we get a better understanding of this new test.This is a three part recording because our interview was well over an hour and a half but we had lots of questions to ask the doctor.Enjoy part threeLink for CNDLifeSciences is https://cndlifesciences.com/A shout out to all out supporters including Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska, Kara Biller, Don Pinkos, Dee Richert, Marcia Treffman, The Geraci's and everyone else who has been with us from day one. We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening each week.Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

Welcome back to part two of our interview with Dr. Todd Levine from CND LifeSciences to share with us all information about the new syn-one skin test that can help in diagnosing LBD.Our good friend Wendy Cogan joined us to help ask the right questions so we get a better understanding of this new test.This is a three part recording because our interview was well over an hour and a half but we had lots of questions to ask the doctor.Enjoy part twoLink for CNDLifeSciences is https://cndlifesciences.com/A shout out to all out supporters including Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska, Kara Biller, Don Pinkos, Dee Richert, Marcia Treffman, The Geraci's and everyone else who has been with us from day one. We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6Thank you for listening each week.Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

How do you navigate the often confusing path to an accurate Lewy Body Dementia (LBD) diagnosis? This week we talk about what it’s like when Lewy gets ahold of you and many stories of how Lewy is misdiagnosed. We hope sharing these stories helps those seeking a diagnosis to better arm themselves with notes to take to the doctor as we unravel the complexities faced by those living with LBD and their caregivers. A shout out to all of our supporters! We couldn't do this without all of ya'll. xoShould you wish to bless us with your support you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.Thank you for listening each week.Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

Ever wondered about the connection between sleep disorders and neurodegenerative diseases? Roe shares her experience with obstructive sleep apnea and REM Sleep Behavior Disorder, discovered during an overnight sleep study at the University of Cincinnati. Despite initial reluctance to use a CPAP machine, she faced the alarming reality that a significant percentage of RBD patients may develop neurodegenerative diseases within a decade. Through personal anecdotes and extensive testing, Roe's journey to a Lewy Body Dementia diagnosis unfolds, emphasizing the critical nature of early diagnosis and treatment.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb65Support the showSupport the show

Ever wondered about the connection between sleep disorders and neurodegenerative diseases? Roe shares her experience with obstructive sleep apnea and REM Sleep Behavior Disorder, discovered during an overnight sleep study at the University of Cincinnati. Despite initial reluctance to use a CPAP machine, she faced the alarming reality that a significant percentage of RBD patients may develop neurodegenerative diseases within a decade. Through personal anecdotes and extensive testing, Roe's journey to a Lewy Body Dementia diagnosis unfolds, emphasizing the critical nature of early diagnosis and treatment.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb65Support the showSupport the show

Welcome back Podcast Family!This week we are sharing part three where some of those who were able to attend the Lewy Buddy Meet-Up in Caney Kansas on September 14, 2024 share how they felt meeting people they have only seen on zoom. For some, it was the first time they meet another person with Lewy Body Dementia in person. I know you will hear the Lewy Love shared by those who attended in Kansas. This needs to be in three parts because we recorded our first zoom meeting after the event and we wanted to give each person the opportunity to share how the meet-up made them feel- so very powerful!Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb65Support the show

Welcome back Podcast Family!This week we are sharing part two of three where some of those who were able to attend the Lewy Buddy Meet-Up in Caney Kansas on September 14, 2024 share how they felt meeting people they have only seen on zoom. For some, it was the first time they meet another person with Lewy Body Dementia in person. I know you will hear the Lewy Love shared by those who attended in Kansas. This needs to be in three parts because we recorded our first zoom meeting after the event and we wanted to give each person the opportunity to share how the meet-up made them feel. We pick up from last episode by sharing again what our friend Tom said about attending the event and meeting everyone- so very powerful!Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb65Support the show

Welcome back Podcast Family!This week we are sharing part one of three where some of those who were able to attend the Lewy Buddy Meet-Up in Caney Kansas on September 14, 2024 share how they felt meeting people they have only seen on zoom. For some, it was the first time they meet another person with Lewy Body Dementia in person. I know you will hear the Lewy Love shared by those who attended in Kansas. This needs to be in three parts because we recorded our first zoom meeting after the event and we wanted to give each person the opportunity to share how the meet-up made them feel. Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb65Support the show

Welcome back!Curry shares how his summer went with his LBD causing a few hospital stays. He also shares some important information about Hospice and Narcan Nasal Spray.Four years ago we uploaded and published our first episode. It is just crazy that this will be our 138the episode and we are over 60K downloads so thank you all for your continued support and patience. Lewy sure has been a bugger to Curry this summer.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.Support the show

Welcome back to part 2 with our friend Ray . In this episode, we tackle the complexities of managing Lewy body dementia, from handling tremors and balance issues to dealing with unique symptoms like a persistent runny nose. Ray shares how activities like Rocksteady Boxing have been transformative for him. We also explore various remedies for those pesky muscle cramps, including some unconventional and amusing methods. You'll leave with practical advice, heartfelt stories, and maybe even a new trick or two to try out. Join us for an episode filled with wisdom, community spirit, and a touch of humor. Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.Support the show

Welcome Ray this week.In this episode, we tackle the complexities of managing Lewy body dementia, from handling tremors and balance issues to dealing with unique symptoms like a persistent runny nose. Ray shares how activities like Rocksteady Boxing have been transformative for him. We also explore various remedies for those pesky muscle cramps, including some unconventional and amusing methods. You'll leave with practical advice, heartfelt stories, and maybe even a new trick or two to try out. Join us for an episode filled with wisdom, community spirit, and a touch of humor. Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.Support the show

 Have you ever wondered about the hidden cognitive risks tied to everyday medical procedures? Listen to our latest episode featuring Jackie Babcock-Brown, who shares her powerful journey with Lewy Body Dementia. Diagnosed at just 55, Jackie recounts how a routine colonoscopy unexpectedly led to severe cognitive complications, unraveling into a sudden and dramatic onset of Lewy Body symptoms. We emphasize the critical importance of being informed about the potential cognitive impacts of anesthesia, especially for those with pre-existing neurological conditions.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.Support the show

This week, Curry and I share  about REM Sleep Disorder and the importance of having your loved on video tape your sleep patterns. This episode also digs into the frustrating journey of finding effective sleep aids, featuring personal experiences with melatonin, Seroquel, Clonazepam, and CPAP machines. We discuss the challenges of distinguishing between dream states and reality, and the impact of sleep disturbances on daily life and relationships. Caregivers will find invaluable tips on tracking symptoms with checklists and journals, and the importance of providing clear evidence to doctors through videotaping behaviors. Lastly, we underscore the power of community, especially through Zoom support groups, as a vital resource for shared experiences and mutual understanding in coping with Lewy Body Dementia.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.Support the show

This week we share comments from question posted in the groups on what you would have wanted the doctor who diagnosed you to tell you about LBD - more than to just get your affairs in order?Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.Support the show

Welcome back to the fold, where the tapestry of human experience is rich and complex, especially when joined by individuals like Carl Ladd, an award-winning educator who's bravely navigating through the turbid waters of Lewy Body Dementia. With laughter and vulnerability, Carl peels back the layers of his life to reveal the onset of severe depression and other debilitating symptoms that came with his diagnosis, challenging his once high-energy existence. His story is a stark reminder that success on paper doesn't shield us from the battles within, and it's a journey we're honored to share with you, filled with the truths of walking the tightrope between professional demands and personal health.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.Support the show

Welcome back to the fold, where the tapestry of human experience is rich and complex, especially when joined by individuals like Carl Ladd, an award-winning educator who's bravely navigating through the turbid waters of Lewy Body Dementia. With laughter and vulnerability, Carl peels back the layers of his life to reveal the onset of severe depression and other debilitating symptoms that came with his diagnosis, challenging his once high-energy existence. His story is a stark reminder that success on paper doesn't shield us from the battles within, and it's a journey we're honored to share with you, filled with the truths of walking the tightrope between professional demands and personal health.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.Support the show

Welcome back! This week, Curry shares with us about his recent medical it and how he is moving forward with his medicine and health care. Curry shares that the doctor signed him up for hospice and describes all that they are going to do to help him and his wife Linda now.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.Support the show

Welcome back everyone!This week, we wanted to share about the Lewy Buddy and Cargiver Meet-Up happening September 14, 2024 in Caney Kansas. Gather 'round the warmth of our virtual fireside, as Linda and I, in a rare moment of quiet reflection, express our heartfelt thanks to you, our dedicated listeners. We're thrilled to extend an invitation to our first annual Lewy Buddies and Caregivers Meetup in Caney, Kansas, a beacon of connection and support in the tempest of Lewy Body Dementia. As we navigate the ebb and flow of this condition together, we welcome your stories and insights, bolstering our mission to educate and unite.You will hear all the details on this event first. And then , Curry share about his newest Lewy dip and what symptoms he has been experiencing.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.Support the show

Bill from Central Texas never foresaw becoming an expert in resilience and caregiving, but life's unpredictable turns have made him just that. As he opens up about his and Linda's encounters with Lewy Body Dementia, you'll find yourself moved by their tale of love, challenge, and unwavering commitment. Their story is a beacon of inspiration, guiding us through the murky waters of diagnosis and daily care.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.Support the show

Welcome back to the podcast Sam and Tracie. Sam has LBD and shares his path to diagnosis. Tracie shares some great caregiver tips. Sam shares helpful uplifting ways he deals with his diagnosis and as Curry says...lives his best life.A big shout out to all of our supporters!!Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.Support the show

Welcome to the podcast Sam and Tracie. Sam has LBD and shares his path to diagnosis. Tracie shares some great caregiver tips. Sam shares helpful uplifting ways he deals with his diagnosis and as Curry says...lives his best life. A big shout out to all of our supporters!!Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.Support the show

When Miriam Owens bravely faced her diagnosis of Lewy body dementia at 54, it was a stark reminder that our health can take unexpected turns. Her story, rich with challenges and resilience, is the centerpiece of our latest episode, offering insights into the nuances of living with early-onset dementia. Join us as Miriam opens up about the changes she's navigated, the importance of advocating for oneself in the healthcare journey, and the empowering role support groups play in fostering community for those affected by LBD. A big shout out to all of our supporters!!Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.Support the show

Welcome back! This week, it's just the two of us as we share some helpful comments on a few questions raised in the groups.... One of our fireside chats as Curry likes to call them. We discuss show timing versus fluctuations, how to deal with hallucinations and a few other topics.We know everyone can't always see all the facebook comments and questions and some people don't even use Facebook so we wanted to share a few topics that have been talked about a lot recently.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.Support the show

Part 2Welcome back to the podcast, Teepa Snow! This time we wanted Teepa to come on and share all she has been up to as well as share all the ways you all can access her information. She discusses her PAC- Positive Approach to Care, her Teepa Talks, YouTube and more. We love partnering with her to bring educational information to you all. Enjoy this two part recording..we were having too much fun talking and sharing that it went longer tan we expected so we had to break into two parts but, and we hope you enjoy listening to this two part conversation.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

Welcome back to the podcast, Teepa Snow! This time we wanted Teepa to come on and share all she has been up to as well as share all the ways you all can access her information. She discusses her PAC- Positive Approach to Care, her Teepa Talks, YouTube and more. We love partnering with her to bring educational information to you all. Enjoy this two part recording..we were having too much fun talking and sharing that it went longer tan we expected so we had to break into two parts but, and we hope you enjoy listening to this two part conversation.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 5Support the show

Welcome to 2024!This week, it's just Podcast Linda and Curry with a fireside chat. Curry's Lewy symptoms have been pretty bad the last three weeks or so and he wanted to share. We discuss how he has gone over 34 hours without sleep , internal tremors and scary hallucinations.  As always, Curry tries to be as strong as he can be and wants to "ride it out" as he shares he has done many times before. It is just amazing how this disease truly has so many ups and downs and that no two people with LBD have same symptomsThank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 5Support the show

This week its just Podcast Linda reading a poem written by one of our members, Rick Phelps. Rick wrote this poem in 2016 and gave us permission to share ith our listeners. It really gives insight from someone with LBD and how he and many feel.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

This week we wanted to take a few minutes to update y'all on how we are doing. Curry's hallucinations have come back but he explains this has happened before and he was overstimulated with many visitors over the last 2-3 weeks so that is one factor that triggered his hallucinations.  One thing he unfortunately got to see that was NOT a hallucination  was the alien trying to come out of Podcast Linda's stomach. Quite a tale we have to share on that crazy yet scary experience. We so appreciate all the well wishes you continue to send us and support us in doing this podcast. Even when we just have our fire side chat where we tell y'all about how Curry is feeling and how he copes.We appreciate each and every one of you more than you know. xoRemember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

Welcome care partner  Chris Gungor. We get to hear a male care partner's perspective as he cares for his love- Jamie Sue. Chris shares with us Jamie Sue's journey to get diagnosed and how they both manage her symptoms now. He also shares many helpful hints for other caregivers.Remember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

Welcome Antionio and Barb G. This week, Antoni and Barb share with us their journey to diagnosis and beyond. They openly share some of Antonio's symptoms and then Antonio shares how he  still lives a good life even with LBD. Very heartwarming interview with two amazing people. Remember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

This week welcome Tom and Dorie. Both Tom and Dorie discuss the  symptoms Tom had that prompted a doctor visit. Tom shares with us how he overcame denial  after being  diagnosed. They both share with us how they feel about attending the support meetings and all they gain from attending the  meetings. You will come to love them as much as all of us in the support meetings do.Remember...We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6 Thank you for listening. Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show

This week we talk about bathroom related issues- specifically peeing and how to help your loved one hit the bowl. We share a lot of great suggestions from listeners and members of our support group pages that we hope will help you or your loved one deal with some Lewy issues around the bathroom.We thank you all for your continued patience during the last months as Podcast Linda navigates life after the passing of her husband and Curry makes a few bigs moves.  xoA shout out to all our supporters Carl Ladd, Eileen McGarity, Karen Wright  and to all of our supporters. xoWe are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support you can  use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6Thank you for listening each week.Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] Support the show