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All Episodes

Lewy Body Roller Coaster — 149 episodes

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Title
1

A Doctor's Thoughts on LBD- We asked Him Many Burning Questions

2

The Power of Online Support Groups

3

Facing the Wind

4

Lewy Terms Defined Pt 2

5

Lewy Terms Defined with Dr Sara pt 1

6

Stages and Brain Foundation

7

Compulsive Behaviors and New Hallucinations- Part 2

8

Compulsive Behaviors and New Hallucinations- Part 1

9

Lewy is in Charge Right Now

10

The Last Goodbye: Planning Your Funeral Before Lewy Takes Over

11

Zoom Meeting: Part 3

12

Zoom Meeting: Part 2

13

Zoom Support Meetings: Part 1

14

When Mother Nature Strikes: Navigating Household Disasters While Managing LBD

15

Hospice 101- Part Three

16

Navigating Hospice and Palliative Care for Lewy Body Dementia-Part One

17

Hospice 101- Part Two

18

Welcome to 2025! Finding Joy and Support in Challenging Times

19

Breaking Barriers in Early Detection with the SYN1 Test - part 3

20

Breaking Barriers in Early Detection with the SYN1 Test - part 2

21

Navigating the Complex Path to a Correct Lewy Body Dementia Diagnosis

22

Roe's Journey: Living with Lewy Body Dementia and Sleep Disorders Part 2

23

Roe's Journey: Living with Lewy Body Dementia and Sleep Disorders Part 1

24

Lewy Buddy Meet-up Part 3

25

Lewy Buddy Meet-Up Part 2

26

Lewy Buddy Meet-Up Part 1

27

Welcome Back After Our Summer Break

28

Navigating Symptoms and Finding Joy with Ray Augusti- Part 2

29

Navigating Symptoms and Finding Joy with Ray Augusti- Part 1

30

Jackie's Story: From Routine Procedure to Cognitive Crisis

31

Navigating Sleep Disturbances in Lewy Body Dementia: Practical Tips and Community Support

32

What Would You Want Dr. to Say?

33

Navigating Life with Lewy Body Dementia: Carl Ladd's Journey of Vulnerability and Resilience Part 2

34

Navigating Life with Lewy Body Dementia: Carl Ladd's Journey of Vulnerability and Resilience Part 1

35

Curry's Fall and Hospice Story

36

LEWY BUDDY AND CAREGIVER MEET UP and Curry updates his health

37

Navigating Love and Resilience: Bill and Linda's Journey with Lewy Body Dementia

38

Resilience in the Face of Lewy Body Dementia Shared by Sam and Tracy-Part 2

39

Resilience in the Face of Lewy Body Dementia Shared by Sam and Tracy-Part 1

40

Navigating the Tides of Early-Onset Lewy Body Dementia with Miriam Owens

41

Questions and Comments from the Groups-Another Fireside Chat

42

Teepa Snow Shares Ways We Can Access Her Great Programs- Part 2

43

Teepa Snow Shares Ways We Can Access Her Great Programs- Part 1

44

Sleepless Nights and Internal Tremors

45

"I Miss Me": A Poem From Someone with LBD-Rick Phelps

46

A Quick Update: Curry's Hallucinations Are Back and Podcast Linda's Alien Invasion

47

Perspectives from a Male Care Partner- Chris Gungor

48

Understanding and Accepting Diagnosis From Two Perspectives- Antonio and Barb

49

Diagnosis Denial and How Support Groups Helped

50

Bathroom Issues with Some Helpful Suggestions

51

Update on Big Moves for Curry and Podcast Linda

52

Curry's Big Move

53

Study: Walking patterns may help differentiate types of dementia

54

The Ups and Downs of LBD During and After....

55

The Struggles Getting Diagnosed as a Woman-Megan

56

Curry Shares As We Start the New Year 2023

57

Podcast Linda Shares her Heartache While Offering Advice to Those Still On the LBD Journey-Pt 2

58

Podcast Linda Shares her Heartache While Offering Advice to Those Still On the LBD Journey-Pt 1

59

How Can a Doula Help those with LBD- Part 2

60

How can a Doula Help those with LBD-Part 1

61

Bonnie Shares about Her Experience with Hospice- Part 2

62

Bonnie Shares about Her Experience with Hospice- Part 1

63

Curry Shares about New and Old Symptoms and We Talk About Depression A Bit Too

64

Take 2:Lewy Terms Defined Pt 1

65

Great Books about Dementia for Kids and Adults by Anne Scott

66

Life with Lewy….Curry Shares About Recent Doctor Appt.

67

Helpful and Effective Tips for Some Lewy Problems

68

When the Lewy Roller Coaster Gets Rough- How Curry is Coping with the Ups and Downs

69

When to Tell Family and Friends PLUS a New Caregiver's Support Group

70

Deepness Dementia Media- The Gals from Across the Pond Part 2

71

The Gals from Across the Pond Part 1

72

A Tough Topic But One Needing to be Talked About: Suicide

73

Life Expectancy and Excessive Sleepiness

74

Lost Friends, Showtiming and Bug Feeling Under Skin

75

The Power of Support Groups- Take 2

76

Hard Getting Words Out? Helpful Tips for Caregivers and Advice from those with LBD

77

Positive Words for Caregivers and Discussion About Lewy Ups and Downs

78

How Finding a Way to Share Your Talents Helps with LBD

79

Why it is Important to Share Your Thoughts About the "S" Word

80

Welcome AnnMarie and James pt 2

81

Welcome AnnMarie and James pt 1

82

Diagnosis, Telling Friends and the Power of Support Groups

83

Friend Reactions to Diagnosis, Therapy and Support Groups

84

Sharing Even the Most Uncomfortable Things

85

When You Just Need to Share Your Thoughts on Things

86

Positive Attitude is Everything- Thank You Bill Cramer

87

The Day We Met

88

Kissing Cousins -LBD and PD

89

January 2022...another year..let's see how Curry is doing

90

Misdiagnosed? Go to Doctor Armed with Knowledge

91

What it is really like to have LBD from Curry's experiences

92

Laughter, kindness and accepting the diagnosis but still living a good life- welcome Marcia

93

Anxiety, walking issues and advice for caregivers from two people with Lewy

94

Derek returns almost a year later to share thoughts on moving , hallucinations and tips for the caregiver of someone with LBD

95

Staying positive even when fighting for diagnosis

96

Naomi from Ireland shares story

97

Speech Therapy and Sleep: Our friend from Minnesota shares her story

98

Things to help Lewy life and tips on Moving with LBD

99

We’re back!! Join our fireside chat

100

Lewy Buddies Talk pt 2- replay

101

Lewy Buddies Talk part 1-replay

102

The SYNTap Biomarker Test is now available- hear more on what it is and how to get it

103

Sharing some tips and advice for living a good life with Lewy Body Dementia

104

A year later… looking back

105

Find the Right Doctor, Get the Right Meds and Meds to Avoid at all Costs!

106

How to be Proactive - Welcome Pat Snyder

107

It’s All About Having a Positive Attitude Even With LBD

108

One Caregiver’s Story as an Advocate

109

Alzheimer’s to Lewy Body Dementia: a mother daughter story

110

Teepa Snow Revisited

111

Teepa Snow discusses denial

112

Welcome LBDA's Todd Graham

113

Caring for a sibling with LBD

114

Amazing the difference in someone with the right diagnosis and meds.

115

Lewy in the family and now me?

116

Lewy Terms Defined with Sara pt 2

117

Bonnie and Randy's story

118

But, there's nothing wrong...the long road to diagnosis but there is hope

119

Palliative Care vs Hospice Care- what we learned

120

Game changer test for LBD

121

Lewy Body Dementia Resource Center Founder

122

Our friend from the UK Norm shares about Purple Angels and WRAD

123

A Neurologist's personal story with LBD and Potential game changer info shared

124

25th episode...sharing again

125

Travels with Lewy ...welcome back Brian Doc

126

Stephanie and Ron from Canada share their journey

127

Staying positive even with Lewy and Parkinsonism

128

Looking back, it could have been Lewy

129

It's both of our disease- Janeen and Paul Obis's story

130

Our Talk with Teepa Snow

131

Talk with another Lewy Buddy Mike B

132

More sharing between friends- things you might ask or want answers to

133

Sharing between friends- things you might ask or want answers to

134

Making Memories with Dad Part 2

135

Making Memories with Dad Part 1

136

Matthew and Miriam Accepting the Diagnosis

137

The Importance of Having an Advocate

138

Dad's Battle with Lewy from Two Daughters' Eyes

139

Our Three Year Battle with Lewy and Beyond pt 2

140

Our Three Year Battle with Lewy and Beyond pt 1

141

Susan and Derek Talk with Lewy Buddies pt 2

142

Another Talk with Lewy Buddies-Susan and Derek pt 1

143

Fireside chat..just Linda and Curry

144

Talk with Lewy Buddies Part 2

145

Talk with Lewy Buddies Part 1

146

See You in Six Months

147

When Lewy Comes Knocking

148

Living on the Lewy Body Dementia Roller Coaster

149

Lewy Body Roller Coaster Intro