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by [email protected] (Patients Rising)
Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast, featuring honest and helpful discussions about issues impacting those with chronic illness. CEO Terry Wilcox hosts the show, with Robert "Dr. Bob" Goldberg, Co-Founder and Vice President of the Center for Medicine in the Public Interest.
Episodes
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Transportation's Lane in Health Care
Lack of transportation is one of the biggest barriers to patient care. But when employers cover transportation for patients, it can lead to better health outcomes and lower overall costs. Casey Billington of Concierge Nurse Navigators explains why employers need to incorporate transportation into...
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The Broken Vision Insurance Market
Vertical integration in the vision insurance market has led to higher costs and fewer options for patients. Two optometrists, Dr. Ron Benner and Dr. Bill Reynolds, explain how this impacts the price of your glasses, and how the DOC Access Act could fix this problem. And Terry and Bob break down a...
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States Target PBMs
The Patients Rising Podcast has moved to Monday mornings! In this episode, hear how Florida is poised to take on PBMs, the pharmaceutical middlemen, and how potential reforms would help patients access affordable medications. Jared Willis gives his updates from the Sunshine State. And a shortage…
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Healthcare Protections for Rare Diseases with Rep. Cathy McMorris Rodgers
Ahead of Rare Disease Day, Congresswoman Cathy McMorris Rodgers (WA-05) joins the podcast to discuss new legislation that would ban the use of a discriminatory health care metric, quality adjusted life year, or QALY. Learn how the QALY hurts treatment access for patients with rare diseases and...
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Diversifying Clinical Trials
Current barriers to clinical trial access make it difficult for patients from underserved communities to access cutting edge care. Those barriers include restrictive eligibility criteria, which can lead to an underrepresentation of racial and ethnic minorities in clinical trials. Lucile...
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A 600-Mile Move for Health Insurance
Stephen Kay took a job 10 hours away from his wife. Why? Because he needed insurance that would cover the costs of her multiple sclerosis care. While she had Medicare before turning 65, she was unable to purchase a supplemental plan, or Medigap plan, to cover her major costs. This is a reality...
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New Innovations Improve Cancer Care
Over the past 30 years, cancer death rates have declined by 33%. Ahead of World Cancer Day, hematologist Dr. Rafael Fonseca joins the podcast to talk about the latest innovations and improvements in cancer care delivery that have contributed to this decline. Plus, many patients with chronic...
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A Game-Changing Year for Biosimilars
This year, six biosimilars for the top-selling medicine, Humira, will enter the market, with the first launching on January 31, 2023. Increased competition from biosimilars can drive down costs. But experts argue that insurers and pharmacy benefit managers will receive those savings – not…
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What's Up with Congress and Health Policy?
Congress has the power to improve patients' access to affordable and transparent care. That's why it's important for patients to know which lawmakers support legislation that positively impacts patients across the country. To make this information accessible, Patients Rising Now created a beta...
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The Vaccine Finish Line
The finish line for the vaccine race is just around the corner. Terry and Dr. Bob react to vaccine developments and respond to ICER's recent attacks. Plus, the second part of our interview with Dr. Robert Popovian gives us the latest on Operation War Speed, President Trump's executive orders and...
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What Goes Into Drug Prices
Get an inside look into the drug supply chain and the factors that impact your bill at the pharmacy counter. Dr. Robert Popovian, VP of Government Relations at Pfizer, joins Terry to discuss how benefit design and rebates impact the cost of your medicine. Plus Kate speaks with Jackie Price, a...
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Chronic Disease in the Workplace
In celebration of Labor Day, we look at a business that is empowering the chronic disease community. Kate interviews Keisha Greaves, founder of the clothing brand Girls Chronically Rock. Plus, Terry and Dr. Bob discuss a potential COVID-19 vaccine by fall and provide an update on Erica Dean's...
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Finding Cures Faster
The lives of chronic and rare disease patients depend on the progress of medical discoveries. Dr. Gary Michelson explains how investment in innovative, high-risk research will improve patient outcomes. Plus hear from Lindsey Kizer, who depends on the U.S. Postal Service to deliver medication for...
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Calculating the Value of Patient Lives
ICER's pricing models assess the value of a drug and whether your life is worth paying for it. Health economist Dr. Paul Langley explains how ICER's recommendations devalue patient lives and create barriers to accessible treatments. Dr. Bob and Terry examine the high profits recently reported by...
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Adapting to COVID-19 Risks
With a vaccine still months away, Americans with chronic disease are adapting to life with COVID-19. Dr. Paul Offit returns to discuss the status of a vaccine and living with the risk of infection. Terry and Bob consider school re-openings, and Kate interviews patient advocate Michael Smith on…
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Accessing Your Health Records
Patients deserve easy access to their medical records. With digital healthcare solutions on the rise, new companies are providing patient-centric solutions to gather, own, and share personal health data. Dr. Bob speaks with Seqster CEO and Co-Founder Ardy Arianpour, who is striving to make health...
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Trump Acts to Lower Rx Prices
President Trump's recent executive orders are a move to lower prescription drug prices for patients. But what changes should patients expect to see? We talk to the former lead health advisor to President Trump, Katy Talento, who breaks down exactly how the orders will impact patients. Terry and…
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The Push for Better Outcomes
Value-based healthcare models are a way to improve patient outcomes and lower the cost of care. Dr. Bob speaks with former FDA and CMS chief Dr. Mark McClellan, who says the pandemic has shown the benefits of value-based care and digital medical technologies. And as many offices begin reopening,...
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Cures 2.0 + Upcoming Healthcare Policies
Despite interruptions due to COVID-19, Congress continues working to address health disparities, chronic disease, and relief for coronavirus. Terry interviews Congressman Fred Upton, co-author of the 21st Century Cures Act, to find out what is in store for Cures 2.0. And Kate speaks with Lori…
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How Personal Tech Changes Outcomes
Can technology improve healthcare, even without the in-person relationship? Telemedicine has seen an explosion of utilization due to the pandemic. On this episode, we explore the countless new technologies that are changing healthcare as we know it. Dr. Bob speaks with Dr. Eric Topol on advances…
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Prescription Price Transparency
At the pharmacy counter, patients are often surprised by mysterious high costs, due to pharmaceutical benefit managers (PBMs). These middlemen lead to inconsistent and unclear prices, making it difficult for chronic disease patients to access medication. But some PBMs are breaking this mold. We...
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Inequality in Healthcare
COVID-19 has hit minority populations particularly hard, delivering a wake-up call to healthcare policymakers. How can we change the system to help marginalized communities get access to the care they need? Dr. Bob speaks with Dr. Frank L. Douglas, who describes his experiences fighting racism...
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Accessible Rare Disease Treatments
Patients with rare diseases may soon have better access to treatments. A second installment to the 21st Century Cures Act is in the works that would make improvements to telemedicine and digital health regulations. Find out what this means for the rare disease community in this interview with…
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Safer + Cheaper Drugs
Made in the USA: The return of drug manufacturing to the U.S. could help improve drug safety, cost, and accessibility for patients with chronic disease. Dr. Janet Woodcock is director of the FDA's Center for Drug Evaluation and Research. She tells us about new technologies and processes to make...
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Denied Access to Treatment
A victory for patients in Oklahoma as the state bans a discriminatory healthcare metric. Quality-adjusted-life-years (QALYs) are used by numerous insurance companies to block coverage based on disability or age. Two mothers of children with spinal muscular atrophy (SMA) explain how QALYs impact...
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Your Patient Data
Higher quality care at lower prices might be possible. Some companies are harnessing the power of anonymous, patient data to improve patient protocols and replace pharmacy benefit managers. Dr. Bob sits down with two leaders in the health care data industry that are doing just that. And with...
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Exposing Hidden Health Costs
What will this cost? It's the big question when it comes to healthcare, and it's often impossible to answer. Health care policy expert David Balat explains how transparent pricing models put patients in control of their healthcare finances, and Kate speaks with Siobhan Benham, a nurse…
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The Race for a COVID-19 Vaccine
The nation is focused on development of a COVID-19 vaccine. And there's conflicting information from all sides. For those with chronic illnesses, a vaccine will be even more critical if they hope to return to offices and clinics for routine treatments and doctor visits. But what dangers lie in a...
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Pricing Patient Lives
Health economist Dr. Paul C. Langley explains the faults in ICER's price calculations. Dr. Bob discusses his antibody test for COVID-19, and Kate speaks with a mother whose son passed away due to insulin rationing. Guest: Paul C. Langley, Ph.D. Health economist and adjunct professor in the…
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Last in Line: Chronic Illness
Many patients with chronic illnesses have had their treatments delayed or postponed as healthcare shifts its focus to COVID-19. Lifesaving procedures for the chronically ill have been put on the back burner. How does the healthcare system prioritize who is worth immediate care, and what does that...
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Restoring the Patient Voice
Restaurant menus list their prices. So why not hospitals? Unfortunately, patients usually don't know the cost of their procedure or medication until they get the bill. Getting access to hospital pricing is also just as difficult as getting a hold of your own digital medical records. So how can...
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How to Avoid Drug Shortages
COVID-19 has brought global attention to the fragility of the medical supply chain. For those with chronic illnesses, drug shortages and access to medication often are lifelong battles. As the coronavirus spread begins to slow, will the pandemic bring about increased awareness of the everyday...
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New COVID-19 Treatments
Medical supply chains that transport medications for chronically ill patients are at risk of shutting down due to COVID-19. And for those that have contracted the disease, getting access to clinical trials is not an easy process. For at-risk patients, accessing life-saving medications is becoming...
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COVID-19 Epicenters
As coronavirus continues to spread across New York City, other virus hot spots are emerging across the country, including Detroit and New Orleans. These epicenters are seeing a surge in coronavirus patients but lack the medical supplies and staff to combat this growing crisis. But how exactly do...
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COVID-19 Treatments
Both the federal and state governments have begun turning to the private sector for solutions to supply tests, masks, and other necessary materials for fighting COVID-19. The private sector may also have potential coronavirus treatments, some of which are already in use for other diseases. On...
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COVID-19 and Supplies
Fears of shortages of critical health supplies like hospital gowns, masks and drugs are a big topic on every media channel. Public health leaders are concerned about reports healthcare professionals are running short of the personal protective equipment they need. Government officials are working...
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ABOUT THIS SHOW
Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast, featuring honest and helpful discussions about issues impacting those with chronic illness. CEO Terry Wilcox hosts the show, with Robert "Dr. Bob" Goldberg, Co-Founder and Vice President of the Center for Medicine in the Public Interest.
HOSTED BY
[email protected] (Patients Rising)
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