PODCAST · society
What’s Shakin’?! Podcast
by What’s Shakin
Grace and Bree discuss life with epilepsy.
Episodes
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It's Not Just You
*Not intended for young listeners* Bree and Grace talk relationships affected by epilepsy. They share stories from the community dealing with the mental, romantic, and sexual aspects of a relationship* when you hav epilepsy. The importance of having a solid support system, whether it be family,...
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It's Your First Appointment
First appointments can be overwhelming. What will they tell me? What if we’re not a good match? Don’t worry! Bree is joined again by guest host Allie (@) and Dr. Fernando Cubillos (behind itsyourepilepsy.com) to discuss tips for your first neurology appointment. We answer the questions you sent…
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Gimme That....Respect
Grace and Bree are back to discuss a hot topic. Society, specifically social media, is filled with people making fun of seizures. Rappers are incorrectly discussing epilepsy in their music. Dances making fun of seizures are spread by celebrities. Why is this okay? No other group gets treated the...
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It's YOUR Epilepsy
Bree and Grace are joined by guest host Allie (@allisaurus_flex) to chat with the creator of www.itsyourepilepsy.com (@itsyourepilepsy), Dr. Fernando Cubillos. We discuss why the website was created, all the amazing features it has, and how you, the epilepsy community, have been a big part of its...
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Another Fork Stuck in the Road
Bree and Grace talk with Chelle (@chellenotshelly) about traveling with epilepsy. Not only is Chelle a travel nurse, she’s also a hiker! Chelle discusses hiking, preparing for travel, and coping with an epilepsy diagnosis. Friendships, relationships, and the constantly changing emotions that go...
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The Voice of Scars
Meet Robert (@voiceofscars), who not only has epilepsy, but he also has Stevens Johnson Syndrome. Due to being prescribed too much medication, he has endured blisters all over his body, bullying, and more. We discuss treatment options, including medical marijuana, how we can still lives despite...
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Coached Through Epilepsy
We’re travelling down to South Africa! Health coach Dr. Kate (@drkate.smarthealth) joins Grace and Bree to discuss ways to help improve quality of life while living with epilepsy.After living years with hundreds of seizures a day, she’s found a way to live life to the fullest, while helping…
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The Battle Of...Our Brains
Join Grace and Bree as we travel across the pond (virtually) to talk to Emma (@capturing.epilepsy). We discuss our different kinds of seizures, how epilepsy treatment is different in the UK, and why mental health is so important. Emma even got to send a Christmas card to the Queen talking about...
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Aura You Gonna Ask Me?
Bree and Grace talk with Tionna (@tionnaaura) about developing epilepsy from a head injury. Not only does she have seizures, her auras are almost constant. Not only does she share her story on Instagram, she creates music and art to help her cope with everyday seizures. We find out: What are…
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Man, I Have Epilepsy…
Bree and Grace bring on Max (@maxemorgan) to discuss society’s view of men with epilepsy. We discuss how men with epilepsy can help each other, dating, and the importance of sharing our stories. *Adult themes and language discussed* Follow us on Instagram: @whatsshakinpodcast and Twitter:...
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When Dating Gets Shakey...
Dating: every epileptic’s worst nightmare. How do I tell them? How will they react? We asked for your dating questions. We came up with our best answers. As always, Bree and Grace have not had the same experiences as others. TW: Rape and Abuse Follow us on Instagram: @whatsshakinpodcast and...
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Schooled By Epilepsy
We’ve heard of people coding during a seizure, having to leave the military, and getting kicked out of school due to their epilepsy. Meet Stuart: the man who has dealt with it all. He was kicked out of the military for being epileptic. He was kicked out of college for being epileptic. He is in…
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Danny Did...and so can you
Get your tissues ready! Bree and Grace talk to members of The Danny Did Foundation. The foundation raises SUDEP (Sudden Unexpected Death in Epilepsy) awareness in honor of four-year-old Danny Stanton, who passed away from a seizure. We discuss Danny’s story, what SUDEP is, and how to get involved...
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Woo Hoo, Witchy Women
Bree and Grace bring back Angelina (@amperrino) for spooky season. We go through 4,000 years of eerie epilepsy info. We touch on creepy myths, ideas, and how epilepsy was treated in the past. *If you’re queasy, this may not be the episode for you. Follow us on Instagram: @whatsshakinpodcast and...
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Spilling the Anxie-Tea
This weekend was World Mental Health Day, so Bree and Grace tackle one of epilepsy’s biggest comorbidities: mental health. Depression and anxiety are the most common with epilepsy, and something we both have dealt with on multiple occasions. We give our advice for living with epilepsy and having...
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Got PNES On My Mind
Bree and Grace talk with Téa about having epilepsy and PNES (psychogenic nonepileptic seizures). She discusses what PNES is, how the seizures differ from epileptic seizures, and her experiences having both PNES and epileptic seizures. Listen for some tips for those newly diagnosed with PNES and…
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9-1-1, What is Your Emergen-seize?
Grace and Bree chat with Brooke (@squeezerrrrrr), a 9-1-1 dispatcher in Maryland. She discusses information that is helpful for dispatchers, what questions one can expect, and how to best handle medical emergencies. She breaks down how paramedics and police are dispatched, the importance of…
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Epilepsy Isn't Fun...Period
Grace and Bree discuss one of your suggestions: catamenial (hormone-triggered) epilepsy. Aunt Flo brings all sorts of goodies with her, and if you’re epileptic, seizures can be one of them! We discuss our experiences, how it can be diagnosed, and different treatment options to talk about with…
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(Under the) Lights, Camera, Action!
We chat with Miles (@milesdlevin), who wrote and directed the short film, “Under the Lights” (@underthelightsfilm), about a boy who risks having seizures in order to feel normal and attend prom. Miles is also living with epilepsy. He talks about the concept behind the film, seizure misconceptions...
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When Life Gives You Lemons...
We chat with 15-year-old Hailey, whose twin sister, Livy, has cerebral palsy and was diagnosed with epilepsy after having her first seizures just a few hours after birth. Hailey is the CEO of the Epilepsy Foundation Kid’s Crew, a program aimed to help kids learn about epilepsy and advocacy. Along...
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It's Electrifying!
We talk with nightshift EEG (electroencephalogram) techs Amy and Leann (@seize_the_day1020) about working in an EMU (epilepsy monitoring unit). They share stories, how they view epilepsy from the medical side, and discuss different types of EEGs. You may even get some tips on how to get that glue...
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We're Singing Through the Pain
We talk to Jason (@heldenheroique) about singing opera during his stereo EEG (sEEG). He discusses his epilepsy diagnosis, being a professional musician, and how we can stop society’s stigmas against those with epilepsy. (You may even get to hear some pro opera!) Music: “Jump in Line (Shake,...
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Parent Trap
Grace and Bree talk to Jamie (@lovewarriorhugs) and Nito (@nito.epilepsywarrior) about parenting with epilepsy. They share their stories, experiences, and their advice for parents living with epilepsy. Music: “Jump in the Line (Shake, Senora)” by Harry Belafonte, 1961. We do not own the rights to...
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Publicity Stunt
Bree and Grace invite their friend, Angelina (@amperrino), to talk about having seizures in public and how to cope with that reality. Music: “Jump In Line (Shake, Senora)” Harry Belafonte, 1961. We do not own the rights to the music.
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Intro
Meet Grace and Bree.
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