All Episodes
collectively coeXisting — 98 episodes
Ep. 69: Discussing Family Health History with Dena DNA
Ep. 68: Choroideremia with Michelle Holbrook
Ep. 67: X-Linked Retinal Diseases with Dr. Sena Gocuk
Ep. 66: Disclosing an X-linked diagnosis to extended family with Savannah & Alexis
Ep. 65: Association Xtraordinaire Remembers the Girls with CTD
Ep 64: A diagnosis of CTD after 17 years with Bonnie & Andrea
REPOST: OTC Expert Interview with Dr. Andrea Gropman
Ep. 63: A Life with OTC with Kristy McCracken
Ep. 62: Carriers of Duchenne with Dr. Mena Scavina
Ep. 61: Being a Fourth Generation Carrier with Alexandra Wells
Ep. 60: Trina Stelly on Life as a Female with Dystrophinopathy
Ep. 59: Females with ALD with Dr. Eichler
Ep. 58: Raising Awareness of ALD in English & Arabic with Riham
Ep. 57 Fighting ALD Symptoms with Jana
Ep. 56: Aaron Gardner on Passing ALD Down to His Daughter
Ep. 55: Isabella & Beth – Discussing X-Linked Carrier Status with Your Daughter (Their Lived Experience)
Ep. 54: Elsa & Ann – Discussing X-Linked Carrier Status with Your Daughter (Their Lived Experience)
Discussing X-Linked Carrier Status With Your Daughter with Ali Conn, MS, CGC
XLH with Elizabeth Olear, Yale School of Medicine
Episode 53: X-linked Hypophosphatemia with Shannon Sharp
Industry Interview with Lauren Walrath, Kyowa Kirin
Episode 52: X-linked Hypophosphatemia with Sunindiya
Episode 51: Myotubular Myopathy with Meghan Musante
Episode 50: Myotubular Myopathy with Kim Engst
Episode 49: Myotubular Myopathy with Jessica Stanley
Episode 48: Fabry Disease with Taylor & Andrea
Fabry Disease with with Lisa Berry, LGC
Episode 47: Fabry Disease with Sabina
Episode 46: Alport Syndrome with Rachel
X-Linked Alport Syndrome with Jennie Feiger, PA-C, CAQ-neph
Episode 45: Autosomal Recessive Alport Syndrome with December West
Navigating Romantic Relationships as an X-Linked Carrier
Episode 44: Lesch-Nyhan Syndrome with Gaby Ponce
Episode 43: Lesch-Nyhan Syndrome with Michelle Lucas
XLI Expert Interview with Dr. William Davies
Episode 42: Hunter Syndrome with Cristol O'Loughlin
Episode 41: Kennedy's Disease with Joan
Kennedy's Disease Expert Interview with Dr. Christopher Grunseich
Episode 40: Kennedy's Disease with Alison
Episode 39: Barth Syndrome with Kelsey
Barth Syndrome Expert Interview with Rebecca McClellan, MGC, CGC
Episode 38: Barth Syndrome with Kristi
XLH Expert Interview with Marian Hart, RN, BSN, CCRC
Episode 37: XLH with Susan Faitos & Kelly Rushing
Industry Interview with Molly Keane, Horizon Therapeutics
Episode 36: CGD with Jessica Ellen Scott
Episode 35: CGD with Felicia Morton
Fragile X Expert Interview with Dr. Rebecca Kronk
Episode 34: Fragile X Syndrome with Maddy Forrer
Episode 33: Fragile X with Evelyn Gee
OTC Expert Interview with Dr. Andrea Gropman
Episode 32: OTC Deficiency with Autumn Prince
Episode 31: OTC Deficiency with Aimee Boisvert
Fabry Expert Interview with Dawn Laney, MS, CGC, CCRC
Episode 30: Fabry Disease with Taylor Hoffman
Episode 29: Fabry Disease with Claire O'Meara
PMD Expert Interview with Dr. Grace Hobson
Episode 28: Pelizaeus-Merzbacher Disease (PMD) with Esther Hutson
Episode 27: Pelizaeus-Merzbacher Disease (PMD) with Angi Dunham
collectively coeXisting
The Stories Behind TFMR: Episode 8 with Jaclynn Brown
The Stories Behind TFMR: Episode 7 with Sarah K.
The Stories Behind TFMR: Episode 6 with Nicole Hunter
The Stories Behind TFMR: Episode 5 with Kristy McCracken
The Stories Behind TFMR: Episode 4 with Jessica Stephens
The Stories Behind TFMR: Episode 3 with Emma Bliss
The Stories Behind TFMR: Episode 2 with Sarah Myatt
The Stories Behind TFMR: Episode 1 with Brittney Spencer
Taboo Talks Series: The Stories Behind TFMR
Episode 26: Hemophilia B with Lori Long and Shari Luckey
Episode 25: Hemophilia A with Katie Mears + Sonji Wilkes
What is Hemophilia A and Hemophilia B?
Episode 24: Alport Syndrome with Megan Dunleavy
Episode 23: Alport Syndrome with Janine Reed
Episode 22: Alport Syndrome with Afton DeLucca
Episode 21: Alport Syndrome with Cassie Smith
What is Alport Syndrome?
Episode 20: Norrie Disease with Eve Hughes
Episode 19: Norrie Disease with Jillian Spencer
Episode 18: Reproductive Genetic Testing with J.Screen
Episode 17: Aarskog with Tania Rife + Joanne Ewing
Episode 16: Aarskog with Michelle Erskine
Episode 15: Duchenne MD with 4 Female "Carriers"
Episode 14: Duchenne MD with Pat Furlong
Episode 13: MECP2 Duplication with Dr. Amelia Decker
Episode 12: MECP2 Duplication with Jessica Branum
Episode 11: OTC with Amy Englert
Episode 10: OTC with Jessica Stephens
Episode 9: OTC with Kristy KcCracken
Episode 8: Fragile X with Ashley Perez + Janet Bremer
Episode 7: Fragile X with Brittney Spencer
Episode 6: Fragile X with Julia Apodaca-Lane
Episode 5: MTM with Stephanie Payne
Episode 4: MTM with Loris Pesante
Episode 3: MTM with Emma Bliss
Episode 2: ALD with Barbara Machado
Episode 1: ALD with Taylor Kane
Welcome to Remember The Girls!