If We Knew Then - Down Syndrome Podcast cover art

All Episodes

If We Knew Then - Down Syndrome Podcast — 143 episodes

#
Title
1

208. Changes To Special Education And How We Continue To Advocate with Stephanie Hall Meredith

2

207. The Back-to-School Anxiety No One Talks About in Special Education

3

206. A Pediatrician Answers All Your Down Syndrome Questions

4

205. If Inclusion Is the Goal, Why Are So Many Still Left Out?

5

204. Siblings Of Siblings With Down Syndrome

6

203. A High School Diploma Is Attainable - May Mallari

7

202. Alzheimer's And Down Syndrome - Dr. Brian Skotko

8

201. A Conversation About Down Syndrome If You Happened Upon The Unfortunate YouTuber

9

200. The Power Of Words

10

199. Being Told To Grieve The Child You Didn't Have

11

198. It's Liam's 16th Birthday!

12

197. An Update with Melissa Kynoch - Bertie's In School

13

196. Buddy Up For Life with Beth Gibson

14

195. Yellow Flower Gills Me Whole - Poetry By Sid Ghosh

15

194. That’s Not How It Happened: A Novel By Craig Thomas

16

193. Accommodations In An IEP Are A Right Not A Favor

17

192. Choosing A Pediatrician with Dr. Ilona Kleiner

18

191. Play Dumb and Sabotage - Speech Pathologist Jeaneen Tang

19

190. Advocating Through The Challenges Of A New School Year

20

189. Let’s Talk About Transitions - Middle School to High School

21

188. Preparing for Annual Appointments

22

187. Happy Mother's Day!

23

186. Life and Birth on Amazon Prime with Melissa Kynoch

24

185. Disability Pride and Self-Worth with Vaish Sarathy

25

184. The Adolescent Brain with Christina Aries - Part 2

26

183. The Adolescent Brain with Christina Aries - Part 1

27

182. World Down Syndrome Day - March 21, 2025

28

181. Olivier and Hilda Bernier and Their IEP Experience

29

180. Liam Turns 15: What Have We Learned In This Journey?

30

179. Forget Me Not: Inclusion in the Classroom Documentary - Hilda & Olivier Bernier

31

178. The 2025 DSDN Rockin' Dad Retreat with Ben Hughes

32

177. Showing Up For The Challenges - Karen Maezen Miller

33

176. Revisiting 10,000 Maniacs Founding Member Steven Gustafson

34

175. Communicating Our Stories with Sid and Vaish Sarathy

35

174. Advocating For Speech Therapy - Julie Picot

36

173. The Endless Possibilities of People with Down Syndrome: Revisiting Jake Pratt

37

172. Happy Mothers Day: We Celebrate You

38

171. Alzheimer’s Disease In People with Down Syndrome - Dr. Elizabeth Head

39

170. Celebrating The Life of Carl Erskine with Ted Green

40

169. The Annual DSDN Retreats with Ben Hughes

41

168. Liam's 14th Birthday: Sharing Some Insight

42

167. A Discussion About Using The R-Word with Lynette Louise

43

166. Finding The Right Supports Without Shame - Julie Picot

44

165. Picking The Right Pediatrician with Dr. Ilona Kleiner

45

164. Charlotte and Riley: Not Taking No For An Answer

46

163. Revisiting Patience In The New Year with Maezen Miller

47

162. Living In The Moment and Taking the Time to Reflect On Life

48

161. Down Syndrome Awareness Month 2023: Bringing Awareness to Our Community’s Potential

49

160. The Inclusive Hub: A Gym For People of All Abilities with Liam Starkey

50

159. DSALA and DSC2U: Supporting Our Spanish-Speaking Community

51

158. Best Buddies with Katelyn Quintero

52

157. Ruby’s Rainbow with Liz Plachta

53

156. GiGi’s Playhouse with Nancy Gianni

54

155. Using Your IEP to Make the Most of Middle School

55

154. Revisiting Our Interview with Megyn Price

56

153. Revisiting Jad Issa’s Story: A Man with Down Syndrome Raises a Family - An Interview with Sader Issa

57

152. Revisiting The Canadian Down Syndrome Society’s Project Understood - Training Speech Recognition Technology

58

151. The New York City Buddy Walk and Times Square Video with Abby Brandon-Livits and Misty Adams

59

150. Down Syndrome Research, Ableism and The Right To Just Be with Dr. Eric Rubenstein

60

149. Down Syndrome and Alzheimer’s Research with Dr. Tom Mahan

61

148. RODS Heroes - Our Interview with Brady Murray

62

147. T21 Coffee - Giving Back to the Down Syndrome Community - Johan Lindborg

63

146. Down Syndrome Diagnosis Network (DSDN) with Ben Hughes

64

145. A Grassroots Movement to Change the Narrative: A Conversation with Ted Green

65

144. Non-Speaking Is Not Non-Communicating - Vaish and Sid Sarathy

66

143. Letting Go: A Conversation with Karen Maezen Miller

67

142. Learning From Our Mistakes: Deconstructing an IEP with Julie Picot

68

141. Julie and Aaron Picot: The First 5 Years of Their Journey with Down Syndrome

69

140. Keeping Up with Bertie - An Update with Melissa Kynoch

70

139. Looking Back and Seeing the Effects of a Non Inclusive Environment - Indira Cruz

71

138. ’Yes. No. Maybe.’ - Our Entry In The 2023 Easterseals Disability Film Challenge

72

137. Citizens of the Wold Charter Schools: Christina Aries and Maureen Lamorena-Tatsui

73

136. World Down Syndrome Day with Dr. Eric Rubenstein and his Co-Researcher Team

74

135. Revisiting with Children’s Hospital Los Angeles Pediatrician Dr. Mona Patel Gera

75

134. Your Dentistry Questions Answered - Dr. Jill Lasky

76

118. The Best We’ve Got: The Carl Erskine Story with Ted Green

77

95. Aorta Borealis: Telling His Story Through Music with Jesse Norell

78

85. Happy New Year: The Chromosome Song

79

82. John’s Crazy Socks - Spreading Happiness with John & Mark Cronin

80

81. USA Skateboarding’s “Skateboarding For All” Initiative with Miki Vuckovich

81

75. A Loving Kindness Meditation Gift from Paul Denniston

82

69. Uncertainties About the Return to School? You’re Not Alone.

83

68. The Importance of Special Needs Trusts and a Conservatorship: with Enrique Perez

84

67. The Beginner’s Mind: An Interview with Karen Maezen Miller

85

66. A Conversation About Alzheimer’s with Dr. Brian Skotko

86

65. The Down Syndrome Resource Foundation, Part 2 with Liv Meriano and Danielle McKinney

87

64. Changing Our Mind and Approach to Education: Down Syndrome Resource Foundation

88

63. Just One Of The Guys: Our Interview with Jake Pratt

89

62. Summer Advocacy: The Challenge Of Letting Go And Taking A Break

90

60. Downright Discrimination - Changing The Laws To Confirm That Every Life Is Equal

91

59. Education, Adolescence and Advocacy: A Community Conversation with Mary Cole

92

58. COVID-19, Vaccinations and Picking Up Where We Left Off on the Road to Inclusion with Dr. Brian Skotko

93

57. Revisiting The Story of Chris Nikic: Becoming an IRONMAN

94

56. My Twin Brother Has Down Syndrome: Our Community Conversation with Julia Toronczak

95

55. Coming Down The Mountain, Part 2: Why This Movie is so Important - An Interview with Director Julia Anne Robinson

96

54. Mother (noun): An Ultimate Example of Its Kind - Our Mother’s Day Message

97

53. Discussing Infertility and a Down Syndrome Diagnosis with Natalie Spiteri

98

52. A Community Conversation with Megyn Price: Celebrating Uncle Bill

99

51. Eleven Years With Liam: Celebrating Another Trip Around The Sun

100

50. Acknowledging and Dismantling Fear’s Presence In Our Lives: An Interview with Karen Maezen Miller

101

49. Discussing Health and Inclusion with Pediatrician Dr. Mona Patel Gera

102

48. World Down Syndrome Day: The Path To Finding Our Celebration

103

47. What Do We Do When Faced with Challenges and Negativity? An Interview with Karen Maezen Miller

104

45. Speech Therapy with Kerri Wake of McRory Pediatrics

105

43. Occupational Therapy with Erin Stanford of McRory Pediatrics - Part 2

106

41. Behavior: A Conversation with Kyle Davis of McRory Pediatrics

107

36. Giving Everyone Access to a Down Syndrome Specialty Clinic with DSC2U - Dr. Brian Skotko

108

35. Building a Realistic Approach to a Healthy Dental Routine - Dr. Jill Lasky

109

34. How To Use The Summertime To Your Advantage

110

33. Our Congratulations Message to New Parents

111

32. Changing Our World - Chris Nikic’s 1% Philosophy

112

31. Using The Arts To Tell Your Story - A Conversation with Nic Novicki

113

30. Down Syndrome Awareness Month: Working Together To Change Perceptions

114

29. Insights Into Our First COVID-19 IEP Session

115

28. A Story of Inclusion with Eleanor Baggaley – ‘Ava the Mermaid’

116

27. Our IEP Process - Some Things We Have Learned

117

26. PALS Programs - A Deeper Conversation About Down Syndrome

118

25. A Right to Celebrate - When the Medical Profession Steals the Joy of New Parents - Rachel Mewes

119

24. The Importance of Disability Inclusion in Film - Nic Novicki

120

23. Raised by a Father with Down Syndrome - Our Community Conversation with Sader Issa

121

22. A Meditation Gift from Paul Denniston - 30 Minute Yoga Nidra Guided Meditation

122

21. A Conversation About Healing and Self Care with Paul Denniston

123

20. A New School Year: COVID-19, IEPs and Supports - Georgianna Junco-Kelman

124

19. PALS Programs - Congratulations Project

125

18. Project Understood - Part 2 - Two Perspectives of Down Syndrome - Ed Casagrande and Matt MacNeil

126

17. Creating a Positive Dental Health Relationship - Dr. Jill Lasky

127

16. Pushing The Limits - Chris Nikic’s Road To IRONMAN

128

15. Project Understood - Part 1 - Our Community Conversation with Ed Casagrande and Matt MacNeil

129

14. An Honest Community Conversation with Julie Picot

130

13. Early Intervention - At Home Tools and Supports - Caroline Bencze-Fernandez

131

12. Our Interview with Melissa Kynoch - Part 2

132

11. The Responsibility and Power of Words on Social Media - Rachel Mewes

133

10. Our Interview with Melissa Kynoch - Part 1

134

9. Sibling Advocacy - Interview with Sophia Saux

135

8. Early Intervention - Interview with Caroline Bencze-Fernandez

136

7. Prenatal Care and Advocacy - Interview with Julie Picot

137

6. Managing The Stresses - The Emotional Parts of Special Needs Parenting

138

5. Preparing For Your IEP - What We Wish We Knew Then

139

Introduction - Our Down Syndrome Advocacy Story

140

4. In-School Physical Therapy - Down Syndrome - Natalie Spiteri

141

3. Early Intervention Physical Therapy - Down Syndrome - Natalie Spiteri

142

2. All That Annual Stuff - IEP and Assessments

143

1. COVID-19 and IEPs - Special Episode with Georgianna Junco-Kelman