All Episodes
RareAF - Advocacy and Facts — 13 episodes
Growing Up Rare: What Happens Next?
Living With Von Willebrand: Jackie’s Story
Finally Being Believed
Seeing Women Fully: Addressing the Disparities in Bleeding Disorder Care - Part II
Seeing Women Fully: Addressing the Disparities in Bleeding Disorder Care - Part I
A Mom’s Story: Loving, Learning, and Living with Duchenne - Part II
A Mom’s Story: Loving, Learning, and Living with Duchenne - Part 1
Rare Lives, Real Need: Blood Donation Matters
Beyond the Rx: The Power of Patient Experience in Rare Disease
You are not alone - resources to help
Specialty Pharmacy 101: What rare disease patients should expect
Welcome to RareAF: Real Talk for Rare Disease
Welcome to Rare AF - Advocacy & Facts