The CFRI CF Community Voices Podcast cover art

All Episodes

The CFRI CF Community Voices Podcast — 104 episodes

#
Title
1

Nutritional Needs of People with CF — Emily Yelencich, MS, RD (Video)

2

Nutritional Needs of People with CF — Emily Yelencich, MS, RD (Audio)

3

Cystic Fibrosis Care in Argentina — Ezequiel Baran, MD (Audio)

4

Cystic Fibrosis Care in Argentina — Ezequiel Baran, MD (Video)

5

A Laughing Matter? Stand-Up Comedy & Cystic Fibrosis — Mimi Salonen (Video)

6

A Laughing Matter? Stand-Up Comedy & Cystic Fibrosis — Mimi Salonen (Audio)

7

Cystic Fibrosis Diversity, Equity and Inclusion (Video)

8

I Almost Skipped a Routine Colonoscopy and It Nearly Cost Me Everything — Jennifer Kyle (Video)

9

I Almost Skipped a Routine Colonoscopy and It Nearly Cost Me Everything — Jennifer Kyle (Audio)

10

Colon Cancer Screening in People With Cystic Fibrosis — Gretchen Goble, MD (Audio)

11

Colon Cancer Screening in People With Cystic Fibrosis — Gretchen Goble, MD (Video)

12

IEP & 504 Plans for Students with Cystic Fibrosis — Hannah Pfeiffer, M.Ed. & Rachel Alder (Audio)

13

IEP & 504 Plans for Students with Cystic Fibrosis — Hannah Pfeiffer, M.Ed. & Rachel Alder (Video)

14

Human Papillomavirus and Cervical Cancer in People with Cystic Fibrosis — Christina Thornton, MD (Video)

15

Human Papillomavirus and Cervical Cancer in People with Cystic Fibrosis — Christina Thornton, MD (Audio)

16

Awareness and Advocacy for 50 Years — CFRI Advocacy Film 2026

17

Cystic Fibrosis in the South Asian Community (Audio)

18

Cystic Fibrosis in the South Asian Community (Video)

19

The Changing Landscape of Nutrition for People with Cystic Fibrosis — Kristi Cheng, MPH RD (Audio)

20

The Changing Landscape of Nutrition for People with Cystic Fibrosis — Kristi Cheng, MPH RD (Video)

21

Intimate Partner Violence & Cystic Fibrosis — Brooke Jones PhD(c), LCSW & an Adult with CF (Audio)

22

Intimate Partner Violence & Cystic Fibrosis — Brooke Jones PhD(c), LCSW & an Adult with CF (Video)

23

Vaccines for the Cystic Fibrosis Patient — Richard Moss, MD (Video)

24

Vaccines for the Cystic Fibrosis Patient — Richard Moss, MD (Audio)

25

Gut Microbiome & Cystic Fibrosis — Emily Yelencich, MS, RD (Video)

26

Gut Microbiome & Cystic Fibrosis — Emily Yelencich, MS, RD (Audio)

27

Resistant Infections in Cystic Fibrosis — Ali Al Safi, MD (Video)

28

Resistant Infections in Cystic Fibrosis — Ali Al Safi, MD (Audio)

29

Bacteriophages in Cystic Fibrosis Lung Infections — Paul Bollyky, MD, PhD (Video)

30

Bacteriophages in Cystic Fibrosis Lung Infections — Paul Bollyky, MD, PhD (Audio)

31

Cystic Fibrosis, Body Image & Eating Disorders (Video)

32

CF Bridge of Hope: A Conversation with Dr. Golnar Raissi (Video)

33

CF Bridge of Hope: A Conversation with Dr. Golnar Raissi (Audio)

34

Nontuberculous mycobacteria (NTM) & Cystic Fibrosis - Amy Leitman, JD (Video)

35

Nontuberculous mycobacteria (NTM) & Cystic Fibrosis - Amy Leitman, JD (Audio)

36

Managing CF and Incontinence (Video)

37

Managing CF and Incontinence (Audio)

38

Unique Transplant Journeys: Stories of Strength and Resilience (Video)

39

Unique Transplant Journeys: Stories of Strength and Resilience (Audio)

40

The Impacts of CF on Sinonasal Health & Olfactory Function — Jessa E. Miller, MD (Video)

41

The Impacts of CF on Sinonasal Health & Olfactory Function — Jessa E. Miller, MD (audio)

42

CF and Cancer - Chelsea Lau, MD (Video)

43

CF and Cancer - Chelsea Lau, MD (Audio)

44

CFRI-Funded Researchers Advance Science and Hope (Video)

45

CFRI-Funded Researchers Advance Science and Hope (Audio)

46

Modulators, Pregnancy, & The Power of Advocacy Through It All - Crystal Boeckel (Video)

47

Modulators, Pregnancy, & The Power of Advocacy Through It All - Crystal Boeckel (Audio)

48

Matt De Fina's CF Journey: From Double Lung Transplant to Napa Valley Winemaker (Video)

49

Matt De Fina's CF Journey: From Double Lung Transplant to Napa Valley Winemaker (Audio)

50

Pancreatic Disease and CFRT Modulators: Dr. Katie Larson Ode (Video)

51

Pancreatic Disease and CFRT Modulators: Dr. Katie Larson Ode (Audio)

52

Advancing Advocacy and Awareness - CFRI Advocacy Film 2024

53

Updates in Constipation Management for CF: Lauren Kormelink, PharmD, BCACP (Video)

54

Updates in Constipation Management for CF: Lauren Kormelink, PharmD, BCACP (Audio)

55

Renal Challenges in Aging with Cystic Fibrosis: Alexandra “Xan” C.H. Nowakowski, PhD, MPH (Video)

56

Renal Challenges in Aging with Cystic Fibrosis: Alexandra “Xan” C.H. Nowakowski, PhD, MPH (Audio)

57

Understanding CF & Men’s Sexual and Reproductive Health - Georgia Brown and Reuben Samuels (Video)

58

Understanding CF & Men’s Sexual and Reproductive Health - Georgia Brown and Reuben Samuels (Audio)

59

10 Tips for Traveling with Disease & Illness by Full Time Traveler with CF, Caleigh Haber-Takayama (Video)

60

10 Tips for Traveling with Disease & Illness by Full Time Traveler with CF, Caleigh Haber-Takayama (Audio)

61

CF and Cardiovascular Disease: Time to Listen to Your Heart! Alex Despotes, MD (Video)

62

CF and Cardiovascular Disease: Time to Listen to Your Heart! Alex Despotes, MD (Audio)

63

Therapeutic Strategies to Address Medical Trauma in the CF Community - Kate Yablonsky, LCSW (Video)

64

Therapeutic Strategies to Address Medical Trauma in the CF Community - Kate Yablonsky, LCSW (Audio)

65

Panel: Advocacy, Access and Health Equity in Cystic Fibrosis (Video)

66

Panel: Advocacy, Access and Health Equity in Cystic Fibrosis (Audio)

67

Living Proof: Nearly Seventy Years with Cystic Fibrosis - Luanne McKinnon, PhD (Video)

68

Living Proof: Nearly Seventy Years with Cystic Fibrosis - Luanne McKinnon, PhD (Audio)

69

Sexual and Reproductive Health in CF - Natalie E. West, MD, MPH (Video)

70

Sexual and Reproductive Health in CF - Natalie E. West, MD, MPH (Audio)

71

The Power of Passion - Nicholas Kelly, MS, RD, LD (Video)

72

The Power of Passion - Nicholas Kelly, MS, RD, LD (Audio)

73

Book Reading: Love, Courage and Miracles - Robin Modlin, MA (Video)

74

Book Reading: Love, Courage and Miracles - Robin Modlin, MA (Audio)

75

Culture Shift: CF Lung Infections in the Modulator Era - Lucas Hoffman, MD, PhD (Video)

76

Culture Shift: CF Lung Infections in the Modulator Era - Lucas Hoffman, MD, PhD (Audio)

77

Phage Therapy for CF-Associated Infections - Benjamin Chan, PhD (Video)

78

Phage Therapy for CF-Associated Infections - Benjamin Chan, PhD (Audio)

79

Panel: Coping with Cancer and CF (Video)

80

Panel: Coping with Cancer and CF (Audio)

81

Strategies to Address Medical Trauma - Samantha Johnson, MA, CCLS; Kate Yablonsky, LCSW (Video)

82

Strategies to Address Medical Trauma - Samantha Johnson, MA, CCLS; Kate Yablonsky, LCSW (Audio)

83

Aging in the New Age of Cystic Fibrosis - Richard Moss, MD (Video)

84

Aging in the New Age of Cystic Fibrosis - Richard Moss, MD (Audio)

85

Modeling Epithelial Immune Cell Interactions in Cystic Fibrosis - Amy Ryan, PhD (video)

86

Modeling Epithelial Immune Cell Interactions in Cystic Fibrosis  - Amy Ryan, PhD (audio)

87

Exploring Nucleic Acid Based Approaches to Treat People with CF - Jennifer Taylor-Cousar, MD, MSCS (video)

88

Exploring Nucleic Acid Based Approaches to Treat People with CF - Jennifer Taylor-Cousar, MD, MSCS (audio)

89

Making Sense of GHPP and CCS - What Are the Benefits? - Lynne Kinst (Video)

90

Making Sense of GHPP and CCS - What Are the Benefits? - Lynne Kinst (Audio)

91

All That Really Matters: A Conversation & Book Reading with Dr. David Weill (Video)

92

All That Really Matters: A Conversation & Book Reading with Dr. David Weill (Audio)

93

Demystifying the Colonoscopy Process - Jeffrey King, MD (Video)

94

Demystifying the Colonoscopy Process - Jeffrey King, MD (Audio)

95

Stretch Your Budget: What To Make With What You Have - Maggie Williamson (Video)

96

Stretch Your Budget: What To Make With What You Have - Maggie Williamson (Audio)

97

How To Plan For the Future On Limited Resources - Arek Puzia, MBA (Video)

98

How To Plan For the Future On Limited Resources - Arek Puzia, MBA (Audio)

99

Stretch Your Budget: CF Food Expenses – A Panel Discussion (Video)

100

Stretch Your Budget: CF Food Expenses – A Panel Discussion (Audio)

101

Stretch Your Budget: CF Living Expense – Resources (Video)

102

Stretch Your Budget: CF Living Expense – Resources (Audio)

103

Unleashed Stories: CF Pet Perspectives (Video)

104

Unleashed Stories: CF Pet Perspectives (Audio)