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Folge 4: Mein Sohn hat LHON – Einblicke einer Mutter

EPISODE · Mar 15, 2023 · 1H 7M

Folge 4: Mein Sohn hat LHON – Einblicke einer Mutter

from rare stories Podcast - gemeinsam weniger selten · host CHIESI & Patients

Birte hat als Mutter aus nächster Nähe die Zeit rund um die Diagnose LHON bei ihrem Sohn erlebt. Sie spricht offen über ihre Gefühle der letzten Jahre. Was sie sich wünscht? Mehr Aufklärung über die seltene Augenerkrankung und somit bessere Behandlungsmöglichkeiten. Und für andere Angehörige von LHON-Betroffenen hat sie gleich mehrere gute Tipps aus erster Hand. Hör mal rein!

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Folge 4: Mein Sohn hat LHON – Einblicke einer Mutter

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