PODCAST · education
Lymphedema Podcast
by Betty Westbrook
Lymphedema comes in many shapes and sizes. Not every diagnosis or presentation is the same. As a Certified Lymphedema Therapist specialized in Advanced Lymphedema Management I want to share my experiences and knowledge with anyone looking for answers. If you are just now beginning you search or you have been living with Lymphedema for years, I hope you learn something new through the podcast.
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S5:E21 – Primary Lymphedema with Dr. Cohen
Lymphedema is alot! Genetics is alot! We dive deep into the fascinating world of the lymphatic system and how it can go haywire with Dr. Cohen. From birthmarks to complex anomalies, we explored it all. Here’s a sneak peek of what we covered: The Lymphatic System 101: We discussed how this vital system works to manage fluid balance, fight infections, and more. Genetic Mysteries: Dr. Cohen shed light on how genetic mutations play a role in complex lymphatic disorders, often appearing as a game of chance. Complex Lymphatic Anomalies: We uncovered the diverse range of issues that can arise, affecting everything from bone health to the way blood clots. Guilt-Free Understanding: For parents, it’s essential to know that these conditions aren’t due to anything they did – it’s all about genetic luck. Dr. Cohen is a clinical fellow at the Siteman Cancer Center at Washington University in Saint Louis. Originally from New York, Dr. Cohen now lives in Saint Louis Missouri where he works as a clinical oncologist and hematologist for adult patients. He is also a clinical researcher in the field of lymphedema with a focus on molecular drivers of disease and targeted therapies. He has 2 children, Gabe, age 6 years and Ruby, age 10 years who was born with primary lymphedema and a central conduction lymphatic anomaly. Stay tuned for part two where we’ll explore diagnosis, imaging, and exciting pharmaceutical developments. Remember, you’re never alone on your lymphedema journey. Keep sharing, keep learning, and keep supporting one another!
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Revisiting the basics…what is Lymphedema?
This week on the podcast we are going back in time to the very first episode “What is Lymphedema?” My hope is that this will be a refresher for anyone who listens regularly, pin this important foundational episode to the top of my content, and prepare you for the two part series that will release soon with Dr. Cohen on genetics and their role in lymphedema presentation. Enjoy this baby Betty episode pulled straight from the vault Enjoy this baby Betty headshot as well
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Camp Watchme Sponsor Spotlight
https://www.brylansfeat.org/campwatchme Brylan’s Feat Foundation would like to sincerely thank each and everyone of our Camp Watchme sponsors for truly going above and beyond for our summer camp. We would not be able to host such a wonderful experience for the pediatric lymphedema community without Jobst, L&R USA, Airos Medical, Pure Medical, LymphaPress, Medi for Help, Juzo, LymphEd, Klose Training, Wear Ease Inc., and Bio Concepts. From the monetary support, bandaging supplies, garments, swag, pumps, and product education on-site, these companies/businesses are instrumental in creating such a life changing experience for all that attend. We would also like to extend a huge shout out to our incredible certified lymphedema therapists and patient advocates that volunteer their time and gift campers with their knowledge and expertise to ensure the best care possible.
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Upcoming Conferences and Education Courses
In this engaging episode of the Lymphedema Podcast, host Betty provides a comprehensive rundown of the exciting array of upcoming conferences and educational courses set to take place throughout the upcoming fall season. Click on the links below to access them. Pediatric Lymphedema certification course- Dallas TX Online Seminar//Lymphedema Seminars NLN conference// Philadelphia, PA Canadian Lymphedema Framework Conference// Toronto, ON Boston Lymphatic Symposium// Boston MA Lymphedema Skill Building course// Denver, CO ISL 2023// Genova, IT
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S2:E18
This episode discusses recent changes in Medicare policies regarding a four-week trial for pneumatic compression pumps, used to manage lymphedema. While there was initial confusion that Medicare removed the requirement for a four-week trial, Betty clarifies that the trial is still necessary. However, certain wording and specific anatomical measurements have been relaxed, and the requirement for “no significant improvement” for coverage has been removed. Betty emphasizes the importance of continued education and research to provide accurate information to the lymphedema community.
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2023 Lymphedema Podcast Season 5: Episode 17
Sidney Jacobs Primary Lymphedema Journey Have you ever met someone and you hit it off immediately? It’s not until later that you look back and think “I am so glad our lives crossed paths!” That is Sidney Jacobs in a few words. Sidney is the guest host for Lymphedema Podcast this week where she shares her story. She takes you through her diagnosis, lessons learned, and her current inspiration for giving back to the lymphedema community. Please enjoy this episode and share with others who need some Sidney in their life!
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S5:E16
Dating with Olivia & Nicole Get ready for an exciting episode of the Lymphedema Podcast this week, as our fabulous guest host Olivia Eggers takes the reins. Joining her is the incredible Nicole Faccio, and together they dive into the world of dating with lymphedema. From childhood expectations to the reality of challenges, they share their own experiences and remind us all to be true to ourselves. So, get ready to embrace your uniqueness, overcome obstacles, and remember that your worth is not defined by any relationship status. Tune in and let’s navigate the dating scene with confidence and a whole lot of fun!
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2023 Lymphedema Podcast Season 5: Episode 15
In this episode of the Lymphedema Podcast, host Betty welcomes the esteemed Caroline Pinney, a renowned expert from Juzo, to share enlightening insights. Brace yourself for an enthralling discussion as they delve into the exhilarating world of the recently concluded Juzo Power symposium and embark on a profound exploration of the revolutionary Juzo night garment. Caroline Pinney is the National Education and Training Manager for Juzo, Inc. She has developed and implemented numerous educational programs as well as participated in direct sales training for company sales representatives, dealers, therapists, nurses and distributors. She is a certified Juzo fitter in both Juzo Germany as well as Juzo USA.
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2023 Lymphedema Podcast Season 5: Episode 14
WRAP 365 Would you bandage your affected extremity for one entire year? This week’s guest has been a secondary lymphedema patient for about two decades. She decided last year, Mother’s Day 2022, that she was going to do something challenging and daring. Listen to Martha’s story of it’s a wrap 365 challenge… It’s impossible to not be encouraged by her results.
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2023 Lymphedema Podcast Season 5: Episode 13
Kiersten & Trey Honeymoon with Lymphedema On this episode of the Lymphedema Podcast we chat about all things lymphedema wedding & honeymoon. Kiersten & Trey were married in April. Kiersten was diagnosed with Lymphedema in 2014 and a previous guest on the podcast discussing her LVA surgery. In this special episode, we’ll sit down with both Kiersten and Trey, as they share their experiences and insights on enjoying a honeymoon while managing lymphedema. Discover how Kiersten’s openness about her lymphedema journey and Trey’s support, empowered her to savor every precious moment with her loving husband, despite the challenges.
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2023 Lymphedema Podcast Season 5: Episode 12
Kiersten & Trey Wedding with Lymphedema On this episode of the Lymphedema Podcast we chat about all things lymphedema wedding. Kiersten & Trey were married in April. Kiersten was diagnosed with Lymphedema in 2014 and a previous guest on the podcast discussing her LVA surgery. She tells us how she planned and prepared for her wedding with lymphedema. Kiersten is open about her lymphedema journey and didn’t let her disease get in the way of enjoying each and every moment with her husband. Tune in next week as we continue the conversation on honeymoons with lymphedema.
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2023 Lymphedema Podcast Season 5: Episode 11
May is mental health awareness month! There are two people from the lymphedema community that embody this for me, Dominique and Juliana. Both have been vulnerable about their personal struggles with lymphedema, mental health, and physical wellness. Together they started the #sweatcheck movement for the lymphedema community. I hope you enjoy this candid conversation with three friends who want to spread awareness, wellness, and happiness. @theprocess2progress @lymphie.fit
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2023 Lymphedema Podcast Season 5: Episode 10
Student OT review of Lymphedema Clinical Rotation If I am being honest, which I have shared this before, I would have never picked Lymphedema as my career specialty or as a clinical rotation in school. Thankfully, that is not the story for this week’s guest. Addison is in her final year as an student OTD (Doctorate of Occupational Therapy) and has recently completed a 6 week rotation in an primarily lymphedema rotation at a cancer treatment center in Central Arkansas. Listen to this episode if you are a student from any discipline about to embark on you brown lymphedema clinical rotation.
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2023 Lymphedema Podcast Season 5: Episode 9
Guenter Klose Returns for a Candid Conversation on MLD, Myth Buster Addition – Part 2 Guenter Klose joins us for episode 9 as we continue the conversation about Manual Lymphatic Drainage. Guenter has decades of experience teaching and treating lymphedema. He is a respected pillar in the international lymphedema community and his knowledge is matched by few. We are so excited to have him back with us as he provides his insights on MLD.
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2023 Lymphedema Podcast Season 5: Episode 8
Guenter Klose Returns for a Candid Conversation on MLD, Myth Buster Addition – Part 1 Guenter Klose joins us for episode 8 of the Lymphedema Podcast as we discuss Manual Lymphatic Drainage. Guenter has decades of experience teaching and treating lymphedema. He is a respected pillar in the international lymphedema community and his knowledge is matched by few. We are so excited to have him back with us as he provides his insights on MLD.
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2023 Lymphedema Podcast: Season 5- Episode 7 Part 2
Life Coaching for the Lymphedema Patient and Clinician, Part 2 On this episode we will continue our conversation with Ellen Faulhaber, A certified life coach. Many lymphedema patients live with depression, grief, anxiety, and suicidal ideations. Medical providers are frustrated, overwhelmed, and live in a state of chronic stress. Ellen is a Certified Life Coach trained by The Deep Coaching Institute, focusing on Presence and Somatic based coaching. She is a Certified Meditation Teacher and believes that a consistent meditation or grounding practice and the embodied practice of leading with love has the potential to transform our way of being and serving. Meditation or grounding is key for a life thriving in optimal physical, emotional, and spiritual health and wellness. Ellen is the Product Manager at Essity for all Lymphology Products in North America.
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2023 Lymphedema Podcast: Season 5- Episode 7
Life Coaching for the Lymphedema Patient and Clinician, Part 1 On this episode Ellen Faulhaber, A certified life coach, will join me in a discussion to encourage listeners that there is help available. Many lymphedema patients live with depression, grief, anxiety, and suicidal ideations. Medical providers are frustrated, overwhelmed, and live in a state of chronic stress. Ellen is a Certified Life Coach trained by The Deep Coaching Institute, focusing on Presence and Somatic based coaching. She is a Certified Meditation Teacher and believes that a consistent meditation or grounding practice and the embodied practice of leading with love has the potential to transform our way of being and serving. Meditation or grounding is key for a life thriving in optimal physical, emotional, and spiritual health and wellness. Ellen is the Product Manager at Essity for all Lymphology Products in North America.
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2023 Lymphedema Podcast Season 5: Episode 4
State of CDT with Guenter Klose This is a wrap on the March series, not all CLTs are created equal. Guenter has decades of experience teaching and treating lymphedema. He is a respected pillar in the international lymphedema community and his knowledge is matched by few. In this interview we highlight the challenges faced by CLTs, challenge CLTs to highlight their skill/needs to their administration, and discuss the state of CDT today. Enjoy this insightful conversation, and I hope you are ready to learn something new today.
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2023 Lymphedema Podcast Season 5: Episode 3
NOT ALL CLTs ARE CREATED EQUAL To continue the discussion for this month’s topic, Not all CLTs are Created Equal, Dr. Heather Evans, Doctor of Chiropractic, Owner of Bodywork RX is joining me on the podcast Continuing the discussion that not all CLTs are created equal with Dr. Heather Evans today on the podcast! Heather has years of experience in multiple roles as a CLT. From PTA, to LMT, to business owner and now Doctor of Chiropractic’s, she has literally seen it all. Now more than ever patients must advocate for themselves and research the medical professional they choose for care wisely. Listen to this insightful conversation with Heather, I hope you are ready to learn something new today!
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2023 Lymphedema Podcast Season 5: Episode 2
Brooke Beilman, MS, CC-SLP, Clinical Doctorate Student NOT ALL CLTs ARE CREATED EQUAL To continue the discussion for this month’s topic, Not all CLTs are Created Equal, Brooke Beilman is joining me on the podcast. Brooke Beilman is a MS, CCC-SLP Clinical Doctorate Student. As a Speech Pathologist she took interest in the changes caused by internal swelling to patients swallow mechanics. Her social media has helpful information about head and neck cancer effects (ie lymphedema) you can find her on Instagram as @brookebeilman
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2023 Lymphedema Podcast Season Premiere
Welcome back my friends to the new season of Lymphedema Podcast! Happy Lymphedema Awareness month to all of the Lymphies on their journey! Episodes will release on Wednesdays this season and I will take the month of July off while away for Camp Watchme. Now that those few housekeeping items have been addressed let’s jump into the theme for this months kick-off series NOT ALL CLTs ARE CREATED EQUAL I am so glad you joined me for this episode, I hope you are ready to learn something new today.
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Camp Watchme 2022 Review
Camp Watchme was such an unbelievable experience this summer! So many new friends made and so many memories we will cherish forever. Please join me and Brittany Williams, Founder and CEO of Brylan’s Feat Foundation-my partner for life-and mom to Brylan, as we talk about our favorite memories from camp. Plus we share what we have going on this fall and our new PLA courses! As mentioned in this episode we launched the LOVE FOR LYMPHEDEMA fundraiser this month! If you would like to donate to team CAMP WATCHME please click this link
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Episode 113: Part 3 on DME, insurance, and product selection with Sophie Long
Part 3 is ready to go!! Check out the final episode on DME, insurance claims, and why having a GREAT fitter is so important! Contact Sophie by visiting their website
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EPISODE 112: PART 2 ON DME, INSURANCE, AND PRODUCT SELECTION WITH SOPHIE LONG
Part 2 is ready to go!! If you want to contact Sophie check out their website
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Episode 111: Part 1 Durable Medical Equipment (DME), Insurance Claims, and Products with Sophie Long
Sophie and Cam When you are looking for reliable advice on insurance claims, product selection, and availability it is VITAL to have someone you trust. Sophie will tell you in this episode just how qualified she is…it’s too much for me to list here, lol. Check out part 1 of my series on DME, product selection, and the nitty gritty of insurance claims! Stay tuned for part 2 and 3 when we talk about specific product selections, by lymphedema classification and location.
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Episode 110: Lindsey Sosovec Juzo Champion
I love sharing stories of people THRIVING with lymphedema, you probably know this by now, right?? Lindsey is a gust of fresh air with a contagious personality! Juzo’s Feature episode this month features Lindsey Sosovec–Juzo Champion, Cancer survivor, Secondary Lymphedema patient, and adventure seeker. I know you will enjoy learning more about her and from her. “Climb your own Everest.” Lindsey Sosovec
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Episode 109: fashionable compression cover up
Do you ever wish you had a stylish option to cover up your leg compression? Stemwear is here for you. The creator of Stemwear joins me for this feature episode on her creative solution to boring beige compression that really didn’t fit her personality or style. Stemwear has styles for men and women, as well as a variety of sizes to choose from. Check out their website for their full selection…PSSSSTT new styles are in the works so keep an eye on their social media pages as well. Facebook Instagram WordPress
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Episode 108: mama bear makes a friend
This will forever be one of my favorite stories to share, for the rest of my life! As a mom I relate so much to the struggles that Tyla has faced, as a CLT I didn’t know how to standby and listen as she shared her struggles. So I invited her to fly half way across the United States for a very fun play date-week! Listen to the full episode as she shares her sons diagnosis as birth, and the lessons she has learn the last 2 years. Love you long time Tyla!!! Tyla and Jeffrey visit Arkansas!!
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Episode 107: Trish’s Post-partum jounrey
In April, Trish and I talked all about her pregnancy and delivery. We talked so much we had to split the interview into two really full episodes. Today I am sharing the postpartum conversation on Lymphedema Podcast. Shared below are the resources shares with Trish during her recovery.
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Episode 106: When Does a Wound Need A wound Care Doctor?
Dr. Jenna Wishnew is back to talk about wounds and lymphedema! Last time she joined me on the podcast we talked about how a wound care doctor is different, and it was very informative! Today we are going to talk specifics about wounds, so pop in your ear buds and take notes because this is an important topic! To learn more about Dr. Wishnew visit her website!
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Episode 105: A conversation on product selection
Jennifer Jagielski, CWCMS Sr Clinical Education ManagerMedi USALymphedema / Wound Care Medi USA is back on the podcast with a great interview on product selection. As a CLT it took me a very long time to feel comfortable recommending products, and I still struggle to confidently do so 6 years into this specialty. Jennifer does such a great job explaining 1) Fabric options from Medi USA. 2) Compression dosing. 3) Texture and tissue considerations. Give the episode a listen, take notes, and reach out to your local Medi rep for some samples or product demonstrations.
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Episode 104: Patient Grief
Photo by K. Mitch Hodge on Unsplash As April comes to an end so does the series of grief on the spectrum. Thank you to Marshall Lyles for being a wonderful guest! He had a concussion and injured ankle BUT STILL he pushed through and dropped so much wisdom and insight for all of us. As he mentions in the interview, Guest House by Rumi Patient grief has many faces, stages, and ranges. The one thing that remains true is you are not alone on this journey. Even during your darkest days, loneliest hours, and lowest valleys you have a community of people who care for you, are rooting for your success, and want to help you pull through. Please reach out to me if you would like to talk or be put in contact with others who can help support you with friendship and understanding.
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Episode 103: Partner/Spouse grief
To continue this months series on grief, I want to encourage you to listen to episode 99 featuring Jen Bell. This interview reflects on statements made in episode 99 and overall it is a fantastic resource for anyone in a relationship with someone who has a chronic illness. One comment Marshall made in this interview was something along the lines of “when we are imaging our forever with someone we usually don’t think “and I can’t wait to become their case manager”” This really struck me and has been in the back of my mind since. If you are currently in a relationship with someone who has lymphedema or you have lymphedema and are looking for a partner this episode will be encouraging to you. Like, subscribe, and share if you enjoyed this interview.
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episode 102: Grief on the Spectrum//Parent
Continuing the series on grief this month, listen to this powerful episode for parents! Please like and subscribe to Lymphedema Podcast on the website or on your favorite app! Share this episode with any family you think could benefit from the message.
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Episode 101: CLT grief
This episode is dedicated to John Jones, Luann Jacobs, LaTonya Lomax, Michael Birmingham, Carol Rhoden, and the many other patients over the years who have a permanent place in my heart. In October/November when I was preparing to shut the podcast down for the season, I was so burnt out. Life had caught up with me and I was desperate for a break, so I put the show on pause to reflect and prepare content that I wanted to talk about. Grief was one of the first topics I thought of. In the lymphedema community many people are grieving, each in their own way, and for their own personal reasons. Never did I expect to be in a season of grief when sharing this series, but life has a way of aligning messages when you really need them. Allie was (I HATE using past tense now when talking about her) and will continue to be a shining light for the lymphedema community! Many people have shared personal stories of her kindness and humor—I encourage you to visit the blog and learn from her fashion posts. This series begins with the CLT perspective on grief. My esteemed guest is Marshall Lyles LPC-S, LMFT-S, RPT-S, EMDRIA Approved Consultant, and he was the best guest! Fun, heart felt, professional, and insightful!! If you would like to learn more about him check out his website (linked to his name above)
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episode 100: Trish’ pregnancy journey
Trish wearing compression This is your warning to not play this episode with your in laws or kids around, it’s not *too graphic but unless you want to define vagina for your kids or blush next to your father in law…take my word and listen in your ear-buds or when alone. Trish has 12 years of experience as a labor & delivery Nurse who was diagnosed with Primary Lymphedema before she was pregnant. This episode covers the pregnancy journey and how she planned ahead to manage her lymphedema. There will be a postpartum episode released after April. Ehlers-Danlos Syndrome This is the underlying health condition that Trish describes in the interview. Be sure to like and subscribe to Lymphedema Podcast so you never miss a show! Especially if you want to hear Trish’ postpartum story.
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Episode 99: Spouse/Partner Perspective on Lymphedema
For better or for worse, in sickness and in health, til death do us part…those are the marriage vows most people are familiar with. But what about “for the few days a year I don’t feel overtaken with swelling and depression, in a sickness not many doctors understand and health that isn’t promised to last, til death do us part? This episode is going to be a favorite of mine for a long time to come. Kelly Bell is well respected and known in the lymphedema patient advocacy community. He goes by the veteran fighting lymphedema because he is a retired Coast Guard who has been battling lymphedema more than 15 years. To Kelly I say: thank you for your service to our country and to this community. We are better for knowing you. His loving wife is also a veteran fighting lymphedema, she is a retired Coastie and has dedicated much of her time to helping Kelly find a diagnosis and treatment. Please take some time to listen to the full episode, you won’t regret it. Jen is such an inspiration to me and her wisdom for you is endless. To Jen, thank you for your service to our country and thank you for showing me what true love and dedication looks like.
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Episode 98: *new* Circaid Profile Nighttime compression garment
Medical device manufacturer medi® USA announced the launch of the new circaid® profile foam sleeve for lymphedema management at-home. The circaid profile foam sleeve is an alternative or supplement to nighttime and home-care bandaging applications that applies gradient compression to the effected limb or limbs. Engineered with first-use foam for hygenic confidence and brrr® cooling fabric proven to keep patients cooler, the circaid profile allows wearers to manage their own therapy comfortably at home. The foam creates a massaging effect and promotes continuous airflow, and with an anatomic fit, the sleeve provides full limb coverage. Included standard is an energy oversleeve available in four color choices that provides added compression for maximum effect, an EZ-on system that easily applies the sleeve and the profile anchor system to help keep the compressive oversleeve in place. “The profile showcases medi’s commitment to quality and passion for originality and innovation. From the project start, there was an all hands-on deck approach and shared enthusiasm to breathe new life into a familiar concept,“ said Moses Lipshaw, Director of Research & Development at medi USA. “With simplified donning, cooling comfort, long-lasting compression and premium features, patients will benefit from a new standard in padded night care.“ The brrr® Triple Chill Effect included in the circaid profile foam sleeve has three unique cooling effects – cooling minerals, rapid drying and active wicking – that continually enhance comfort and reduce the temperature of the skin. The circaid profile foam sleeve offers the widest ready-to-wear size range in the market with 16 sizes and 2 lengths, and it has a 30-day fit guarantee. For easy ordering, the profile uses the same size chart as the mediven® harmony and comfort arm sleeves. Along with the ready-to-wear option, it is also available in custom-made sizing and includes a 1-year the New You guarantee for a one-time, free reduction alteration to reward patients who succeed in their treatment plan. The new circaid profile joins a full range of compression products offered by medi in their circaid inelastic compression line, inspired by nature. medi creates compression products that fit every patient for all stages of venous and lymphatic conditions. (https://www.mediusa.com/lymphedema-maintenance-simplified-with-new-foam-sleeve/) Custom-order-formDownload Lymphology-Upper-ExtremityDownload P0843-Rev-A_circaid-profile-brochure_FINALDownload
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Episode 97: Pt2 Medical Trauma
I hope you enjoyed last weeks interview with Allison on Medical Trauma. As we learned, medical trauma is experienced and perceived differently from person to person. Listen to part 2 to learn: action steps toward helping a child (or adult) who may be suicidal, how parents and caregivers can be affected by medical trauma, and a summary of part 1 & 2. Visit last weeks post for links for the book and website resource mentioned in the podcast. Remember to like and subscribe Lymphedema Podcast so you never miss a new show. Leave a review on your favorite podcast app to the website to help others find Lymphedema Podcast.
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Season 3//Episode 96
Clinically, Medical trauma is defined as a set of psychological and physiological responses to pain, injury, serious illness, medical procedures and frightening treatment experiences.1 Medical trauma can be viewed as an acute onset of a disrupted physiological system in which the ongoing threat is internal (i.e., the body) and may be long-term or permanent (e.g., cancer treatment).2 This differs from an external trauma (e.g., car accident) where once the event ends, the external threat ends. My guest today is a medical trauma specialist. Allison is a Licensed Professional Counselor Supervisor, a Registered Play Therapist Supervisor, and an Approved EMDR Consultant. Her previous background was in education of the deaf. She currently has a private practice in Texas, specializing in trauma as well as other types of trauma, working with adults, parents, and children. She became interested in specializing in medical trauma during her own experience with a life changing medical issue which involved healing from past traumas as well as her on-going medical trauma as part of her physical treatment plan. Her practice now focuses primarily in training new therapists to be able to understand how client’s real experiences of pain and medical issues can be worsened by past traumas as well as how they are affected by medical treatments, and how getting healing for the psychological trauma can impact the body’s ability to handle the physical issues. Join us for part 1 of our conversation here on the website or wherever pods are cast! If you feel you are experiencing medical trauma, please reach out to someone for help Links from the show: Home Pediatric article: https://jamanetwork.com/journals/jamapediatrics/fullarticle/10.1001/jamapediatrics.2015.2206
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EPisode 95: Part 2 Emotional Wellness Ft. Adie MacKenzie
Last week we left off talking about how it is so hard as a CLT or caregiver NOT to love our patients and have a deep connection with them. Emotional burdens, compassion fatigue, stress, and anxiety that comes from work is SO hard to separate from our personal life, and vice versa. In part 2 you will finally hear my emotional breakdown that happened in the middle of a different (&sponsored) podcast interview a few weeks. It took me a few days to shake the feelings that 1: I just cried in an interview for a product that the company paid for a professional episode, 2: why did seeing that date cause such an immediate flow of emotions and tears, 3: why did I still feel like I needed to cry every time I thought it? We don’t dive into each of those points in the podcast but I do know there are others who are out there feeling the same way. You might be a parent of a child with Lymphedema, a new CLT facing a situation no textbook ever prepared you for, a seasoned CLT who is self-taught to handle tough situations because you never had a mentor, or you might even be the spouse or friend of someone with Lymphedema and you too carry an emotional weight. If you need to speak with a professional or attend virtual groupings on various topics BetterHelp is a great option. Schedule a time that works for you, select the therapist you meet with, and know that you are taking steps toward improving your mental and emotional health. Get 1 week free when you use this link to sign up for virtual therapy through BetterHelp.
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Episode 95: part 1 Emotional Wellness ft Adie MacKenzie, LMT, PTA, CLT-LANA, Health and Wellness Coach
I began creating content for Lymphedema Podcast in the summer of 2018. It started with a “business plan” outlining 52 episodes to cover for a one year podcast with weekly releases in 2019. I launched the first four episodes on January 7, 2019, and although content was not always released weekly I have not stopped to take a break since. At times I wore this as a badge of honor and others as a burden. Today as I type these words, my heart is telling me to stop whining and to keep up the work because someone may need to next episode RIGHT NOW! While at the same time my heart is saying I need a moment to be with my family, work on projects that have been neglected, and to create BETTER content with a fresh set of eyes in a few months. It is fitting that I felt the need to share my little break down with all of you, for a few reasons. 1: I would like you to know that I am a human with feelings, big feelings, and a heart that is often bigger than my brain. 2: Care takers need to take care of themselves. 3: You are not alone in your unique-to-you-struggle. We are all processing feelings, emotions, trauma, and grief in our own way. Adie was so kind to agree to jump on a zoom call to chat with me about emotional wellness. Her years of experience outweigh mine and the depth of her wisdom is welcomed! Part 2 will be released next week as the final episode of the year. New content will resume in March of 2022 as Lymphedema Awareness Month launches. Thank you to everyone who has supported me in this journey to share information on Lymphedema with the world. This year, downloads have grown to over 50k worldwide, and the podcast is listened to in over 90 countries. Thanks again for joining me, I hope you’re ready to learn something new today.
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Episode 94: Juzo {{adjustable and REVERSIBLE}} Compression Wraps
This weeks episode bring my most frequent and fun guest back to the podcast, Caroline from Juzo! We are talking all things compression wraps. What features Juzo compression wraps offer, the benefits to wearing them day and night, and the indications for using them when looking at the big picture. Meaning, do you live alone, are wounds present, is mobility a concern…these are all covered in our conversation. Please be sure to like and subscribe to the podcast. Leave a review so it helps others find the show! As always, I hope you’re ready to learn something new today.
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Episode 93: Active Compression Reimagined with Dayspring Therapy
The future is now, and the Dayspring active therapy treatment device is proof! Exercise, active movement, manual lymph drainage, and compression all play a vital role in complete decongestive therapy…but not often are they able to be combined or applied simultaneously. Until NOW! listen to this in depth conversation with the Andy Doraiswamy the Founder & President/CEO of Koya Medical and Julia Rodrick a Therapist Advisor to Koya Medical. With Andys’ background in med tech and Julias’ extensive knowledge of the lymphatic system/lymphedema, Dayspring therapy is truly a revolutionary treatment device.
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Epiosde 92: NLN Conference Review
Last week was a highlight of my career. In 2019, I presented at the NLN conference for the first time. It was both exhilarating and intimidating to present to a large audience. BUT THIS YEAR it was different. The groups were smaller, the schedule was similar to a marathon, and the audience was 100% my peers. That was much more intimidating and exhilarating. This episode has a few highlights from the conference. It was overall a valuable educational experience with a rockstar lineup of expert faculty.
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Episode 91: When do you need a wound doctor?
Dr. Jenna Wishnew Introducing Lymphedema Podcasts resident wound expert, Dr. Jenna Wishnew! I am excited to have Dr. Wishnew with Lam Vascular as a podcast sponsor. She will feature quarterly episodes on wounds. If you have specific questions for Dr. Wishnew please email them to me at [email protected] or visit her website to make an appointment with her in the North Texas area. Dr. Wishnew is a board certified general surgeon and she specializes in wound care/vascular care in Dallas Texas. Visit her website to learn more
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Episode 90: 5 Curious Questions about Pneumatic Compression with Eric Ansart, President of LymphaPress
Brylan’s Feat Foundation is proud to sponsor this weeks feature episode of Lymphedema Podcast! LymphaPress is a premier sponsor of Brylan’s Feat Foundation. I am in the same Lymphedema social media groups as you and I see many posts with questions about pumps. In this episode Eric Ansart, answers 5 questions I pulled straight from these groups. I hope you enjoy his interview and learn more about LymphaPress pumps. To learn more about how to obtain a pump visit this website To watch the Patient Roundtables Eric and I mention, visit this link
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Episode 89: Guest host Deborah Pearls
Deborah Peniuk, Lymphedema Thriver The guest host for this week shares her story of breast cancer diagnosis and eventual Lymphedema diagnosis. Deborah’s story may sound similar to your personal journey, but what she did AFTER her diagnosis is what is helping so many today thrive and find community. Conversationly Thriving with Lymphedema was launched in early 2020 by Bisa and Deborah with the intention “to help every individual living with Lymphedema and/or any related conditions, access the tools, resources and information they need to manage their symptoms well and improve their overall quality of life.”
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Episode 88: Juzo champion Dominique Rogers
It didn’t take me long to realize that Dominiques’ story is about more than his process2progress initiative. This quote from our interview is still ringing in my mind “The first person I met with Lymphedema was my mom” give me chills every time! Many people go years alone on their lymphedema journey, and Dominique did too, but what is so amazing is how he was able to walk is mom through her diagnosis following breast cancer. He is a Juzo champion with a heart of gold and a powerful message. Listen to the full episode to learn more about this inspiring Lymphedema champion!
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Episode 87: AIROS Medical
Gerry Makoid, CEO of AIROS Medical, joins me this week to talk about their pneumatic compression devices for patients with Lymphedema and Vascular conditions. Later this week, I will release an Unboxing video for you! This is my first time using this device, and it is obvious a few times (: As a CLT I am always looking at new products with patients in mind. How easy is it to actually use? What is the customer service like? How does the product feel when on? I answer all of those and more. Be sure to like and subscribe to Lymphedema Podcast wherever you listen to podcasts. Check out my YouTube channel and IGTV for the unboxing video later this week!
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ABOUT THIS SHOW
Lymphedema comes in many shapes and sizes. Not every diagnosis or presentation is the same. As a Certified Lymphedema Therapist specialized in Advanced Lymphedema Management I want to share my experiences and knowledge with anyone looking for answers. If you are just now beginning you search or you have been living with Lymphedema for years, I hope you learn something new through the podcast.
HOSTED BY
Betty Westbrook
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