Can 23andMe Have It Both Ways?

Like millions of other Americans, Dorothy Pomerantz took a 23andMe test on a whim. And like many other Americans, she received some results back that came as a surprise. Just a few weeks ago, she wrote an article in STAT News, sharing her experience of receiving BRCA positive results through 23andMe. Do you have a 23andMe Story to share? You can now leave us a short voice message about your experience or thoughts on the episode here. We may use your message on a future show. Related Links and Resources Pomerantz, Dorothy. ”23andMe had devastating news about my health. I wish a person had delivered it.” STAT News. August 8, 2019. Robbins, R., Garde, D. Feurstein, A. ”A writer shared her story about getting frightening genetic results online. The response was surprising.” August 19, 2019. Follow Dorothy on Twitter: @DorothyPWrites Information about the (lack of) regulation of genetic tests from the NIH National Human Genome Research Institute Riley J and Stoll, K. Blurred Lines: Comparing Direct-to-Consumer and Clinical Testing. Clinical Lab News, AACC. July 1, 2019. Kilbride, MK. Domchek, SM. Bradbury, Angela R. How Should Patients and Providers Interpret the US Food and Drug Administration’s Regulatory Language for Direct-to-Consumer Genetic Tests? Journal of Clinical Oncology. June 7, 2019. Levenson, Deborah. The Case for Population-Based BRCA1 and BRCA2 Testing . Clinical Lab News, AACC. May 1, 2016. King, MC, Evy-Lahad, E. Lahad, A. Population-Based Screening for BRCA1 and BRCA2. 2014 Lasker Award. JAMA. September 17, 2014. Related Grey Genetics News Corner blog posts: What Can 23andMe tell you about your breast cancer risk? NCCN Expands Genetic Testing Criteria to Include More Women with Breast Cancer Family history of breast cancer matters—even and especially when genetic test results are negative. Support Patient Stories! You can now make a donation online! Want to support Patient Stories in a non-monetary way? Leave us a review on iTunes, or share your favorite episodes on Social Media. Patient Stories on Twitter: @GreyGeneticsPod Patient Stories on Instagram: @patientstoriespodcast Are you looking for genetic counseling? Patient Stories is sponsored by Grey Genetics, an independent telehealth genetic counseling and consulting company. Book an appointment with a genetic counselor specialized in your area of concern.