Nine Years To Be Believed: The Endometriosis Diagnosis Crisis, The Surgeon Allegedly Performing Unnecessary Endo Surgery & Why Pain Science Education Needs A Female Rewrite | Dr Millie Mardon (PhD) episode artwork

EPISODE · Mar 31, 2026 · 1H 2M

Nine Years To Be Believed: The Endometriosis Diagnosis Crisis, The Surgeon Allegedly Performing Unnecessary Endo Surgery & Why Pain Science Education Needs A Female Rewrite | Dr Millie Mardon (PhD)

from Pain Coach · host Lachlan Townend

Dr Millie Mardon is a pelvic pain researcher at Western Sydney University with her own lived experience of the condition. Diagnosed with endometriosis at 14 after years of debilitating period pain, Millie navigated surgeries and a complex healthcare system — and is now happy to say she is pain-free. That experience became the foundation of her entire research career.RESOURCES:  Try Pain Coach for free Millie's Research "I Wish I Knew Then What I Know Now"  Millie's Instagram  Millie's researcher profileKEY TOPICS:0:00 — Introduction & trailer 1:25 — Why Millie devoted her life to pelvic pain research 3:12 — Millie's personal story: endometriosis from her first period 3:36 — The 7–9 year diagnosis delay in Australia — and why it matters 7:23 — The role of parental advocacy in getting answers 9:26 — Is a diagnosis the be-all and end-all? 12:55 — Pain-free for over 10 years14:06 — What Millie thinks made the difference in her recovery 16:17 — "I Wish I Knew Then What I Know Now" — her landmark research study 18:05 — The 4 pain science education concepts that actually help people with pelvic pain 22:34 — Where lifestyle fits into pain: sleep, stress, diet & exercise 25:40 — How a medical scientist ended up in pain research 27:24 — The influence of Lorimer Moseley, David Butler & Explain Pain 29:45 — What actually is endometriosis? 33:20 — Prevalence: 1 in 7 women, 1 in 5 with persistent pelvic pain 34:48 — Why is endometriosis still so underfunded? 40:09 — Surgery for endometriosis: what does the research actually say? 40:43 — The Melbourne surgery scandal (ABC Four Corners: Scarred) 42:05 — The real numbers: 50% improve, 25% stay the same, 25% get worse 43:26 — Ablation vs excision: which works better and why 48:38 — The danger of swinging too far — biomedical vs biopsychosocial 52:46 — Millie's current research projects 53:28 — The pelvic pain social media campaign for young people 54:39 — The EndoEd trial: pain science education before laparoscopy 56:14 — The big unanswered question: why do some people get better and others don't? 57:14 — Gut health and endometriosis: 97% of people have GI symptoms 59:50 — Millie's parting advice for anyone navigating pelvic pain

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Nine Years To Be Believed: The Endometriosis Diagnosis Crisis, The Surgeon Allegedly Performing Unnecessary Endo Surgery & Why Pain Science Education Needs A Female Rewrite | Dr Millie Mardon (PhD)

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