All Episodes

Voices of the Next Generation: #BeyondHAE

#BeyondHAE Podcast: Advocating for Rare Disease on Capitol Hill

#BeyondHAE Podcast: Moments That Mattered: HAEA Youth on 2025 and Beyond

#BeyondHAE: High-Fiving Palm Trees

#BeyondHAE Podcast: Advocating for Yourself As You Transition into College

#BeyondHAE Podcast: A Family’s Journey with HAE

#BeyondHAE Podcast: Young Advocates on Capitol Hill Fighting for Rare Disease Policy

#BeyondHAE Podcast: A Letter to my 10 year old Self

#BeyondHAE: Meet 2024 Social Media Interns - Jason and Tyler

#BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Kaylee and Kiarra

#BeyondHAE: Meet HAEA Youth Leadership Council Members - Kati and Ella

#BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Cassidy and Skylar

#BeyondHAE: Meet 2024 Social Media Intern - Kailani

#BeyondHAE: Meet HAEA Youth Leadership Council Members - Caroline and Avery

#BeyondHAE: Meet the HAEA's Youth Leadership Council's Newest Member Sully

#BeyondHAE Podcast: A Day in the Life - Jasmeen's Journey of Resilience

#BeyondHAE BONUS Episode: Empowering Youth Voices: Ally & Luke's Journey in Legislative Advocacy

#BeyondHAE: A Day in the Life of Zach

#BeyondHAE Podcast: A Day in the Life of Sanyu

#BeyondHAE Podcast: A Day in the Life of Caregiver Kailani

#BeyondHAE Podcast: A Day in the Life of Caroline

#BeyondHAE Podcast: A Day in the Life of Bryn

Sponsored by BioCryst: HAE, the holidays and you. Navigating the holiday season with HAE

#BeyondHAE Digging Deeper Interview Series: The Parent Perspective (Nikia)

#BeyondHAE Digging Deeper Interview Series: Overcoming Barriers to Pursue A Passion for Filmmaking (Natalie)

#BeyondHAE Digging Deeper Interview Series: Studying Abroad with HAE (Nathan)

#BeyondHAE Digging Deeper Interview Series: My caregiver journey (Eliana)

#BeyondHAE Digging Deeper Interview Series: I am a young adult with HAE (Mariel)

#BeyondHAE Digging Deeper Interview Series: My brother has HAE (Avery)

#BeyondHAE: HAEA Round Table: Young Adults (Kayla, Jack, and Morgan)

#BeyondHAE: My HAE Diagnosis and Management Journey (Ally)

#BeyondHAE: Commemorating HAE Youth Advocacy Month with a talk about advocacy and awareness

#BeyondHAE: Preparing for Back to School (Lisa & Hannah)

#BeyondHAE: I Use Social Media to Advocate for HAE (Maddie)

#BeyondHAE: HAEA Round Table: Anxiety, Stress, and Growth with HAE

#BeyondHAE: Managing my HAE in Middle School (Paige)

#BeyondHAE: HAEA Round Table: How Does It Feel to Be a Kid with HAE?

#BeyondHAE: An Interview with Lisa Facciolla (Sydney & Lisa)

#BeyondHAE: Learning to feel comfortable with my condition (Zanya)

#BeyondHAE: HAE and Dating (Kelsey and Matt)

#BeyondHAE: The first in my family with HAE (Kira)

#BeyondHAE: Finding Comfort in Community (Jess and Hannah)

#BeyondHAE: How Advocacy and Awareness Has Impacted My Life (Emma)

#BeyondHAE: Moving Away for College (Kobe)

#BeyondHAE: Never Give Up (Karissa)

#BeyondHAE: Living #BeyondHAE with the HAEi Youngsters (Nanna, Erini, Isabel, and Nevena)

#BeyondHAE: How I Support Team Jack (Ally)

#BeyondHAE: We are Caregivers (Ava)

#BeyondHAE: Understanding Anxiety (Carlie)

#BeyondHAE: Chat with my Mom: Managing Life's Changes (Sophie)

#BeyondHAE: Modern HAE medication has allowed me to live #BeyondHAE (Sophia)

#BeyondHAE: Interview With My College Roommate (ReyJeanne)

#BeyondHAE: 5 Years Can Make a BIG Difference (Luke)

#BeyondHAE: My Emergency Room Experiences (Jack)

#BeyondHAE: HAE and Sports (Noah)

#BeyondHAE: Talking to friends about HAE (HAEA YLC)

#BeyondHAE: Managing Stress (Ava)

#BeyondHAE: Art is my Therapy (Gabriela)

#BeyondHAE: Maddie's Story

#BeyondHAE: Being Different is Normal (Kobe)

#BeyondHAE: Back to School Tips with the HAEA Youth Leadership Council

#BeyondHAE: Advocating for yourself at school (Gabriela P.)

#BeyondHAE: Independence and Self-Administration (Sophia)

#BeyondHAE: Travel Tips (Kyleigh)

#BeyondHAE: Interview with my Mom (Carlie)

#BeyondHAE: The Impact of COVID-19 on our lives and our HAE (HAEA Youth & HAEi Youngsters Collaboration)

#BeyondHAE: Navigating Friendships and HAE (Jasmeen)

#BeyondHAE: Anxiety and HAE (Jack)

#BeyondHAE: How I Advocate for HAE (Stephen)

#BeyondHAE: My role as a caregiver to my little sister (Ava)

#BeyondHAE: Staying Active Helped Me Push Through Challenges (Luke)

#BeyondHAE: When There's a Will, There IS a Way (Maddie)

#BeyondHAE: Creating a Strong Support System (Noah)

#BeyondHAE: We're in Washington, DC for HAEA's Capitol Hill Day

#BeyondHAE: What is HAE