Crippled by Culture

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community.Before we jump in, I just want to give a quick shoutout to Brandon Lingle for being my voice transcriber for this episode—thank you so much. Today we’re talking about the intersections of disability and queer creative writing, and I’m really excited for this one.GUEST BIO: JONATHAN PARKS-RAMAGE is the author of the new book IT'S NOT THE END OF THE WORLD, which has been hailed by the Los Angeles Times as "a wild ride of a novel," and selected by The New York Times Style Magazine as a pick for Best Queer Summer Fiction. His debut novel YES, DADDY was named one of the best queer books of 2021 by Entertainment Weekly, NBC News, The Advocate, Lambda Literary, Bustle, Goodreads and more. He is co-creator of the Off-Broadway musical THE BIG GAY JAMBOREE, which was nominated for five Lucille Lortel Awards, four Drama Desk Awards, and three Outer Critics Circle Awards.FOLLOW JONATHAN:https://www.instagram.com/jprampageBooks:Yes, Daddy: https://a.co/d/0cHMgQPvIt's Not the End of the World: https://a.co/d/0bGGuCO6 Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community.Before we jump in, I just want to give a quick shoutout to Raven McFadden for being my voice transcriber for this episode—thank you so much. Today we’re talking about the intersections of disability and workplace equity, and I’m really excited for this one.Guest bio: Dr. Akilah Cadet is the Founder and CEO of Change Cadet, a creative organizational development consulting firm. As a Forbes Next 1000 Entrepreneur her work is behind some of the biggest brands you use everyday. Dismantling white supremacy through storytelling is at the core of her work as a leader, speaker, creative director, producer, writer, editor, designer, co-owner of the Oakland Roots and Soul soccer teams, host of Humane Rights podcast, and author of White Supremacy is All Around: Notes From a Black Disabled Woman in a White World. She literally has all the degrees, lives in and loves Oakland, CA, celebrates her disability, is a proud Beyoncé advocate, and has an incredible shoe game.FOLLOW DR. CADET:IG: @changecadethttps://www.changecadet.com/bookhttps://m.youtube.com/@HumaneRightswDr.AkilahCadethttps://changecadetactionnetwork.substack.com/Sean's links: https://linktr.ee/authorseangold

Before we jump in, I just want to give a quick shoutout to Brandon Lingle for being my voice transcriber for this episode—thank you so much. Today we’re talking about the intersections of disability and inclusion in the entertainment industry, and I’m really excited for this one.GUEST BIO: Avery Roberts is a rare disease advocate, speaker, and professional dancer based in New York City. She lives with congenital muscular dystrophy and has used her platform to challenge stereotypes, dance on some of the most iconic stages in the world—including Radio City Music Hall—and advocate for real policy change on Capitol Hill.Kelly Berger, based in Cincinnati, Ohio, is a 2024 RareVoice Award winner and a RARE Champion of Hope nominee who’s constantly on the move—both literally and figuratively. She’s a relentless advocate for rare disease, a dedicated mentor to other disabled young adults, and a live music fanatic who’s traveled to over 40 states in her accessible van.FOLLOW AVERYAvery’s Facebook: https://www.facebook.com/averyroberts916Avery’s Instagram: https://www.instagram.com/avery.nicole916/Avery’s LinkedIn: https://www.linkedin.com/in/averyroberts916FOLLOW KELLYKelly’s Facebook: https://www.facebook.com/thekellyberger/Kelly’s Instagram: https://www.instagram.com/thekellyberger/Kelly’s LinkedIn: https://www.linkedin.com/in/thekellyberger/Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community.Before we jump in, I just want to give a quick shoutout to Isabella Christine for being my voice transcriber for this episode—thank you so much. Today we’re talking about the intersections of disability, accessible content creation, singing, and being a plus size Black woman public figure, and I’m really excited for this one.Guest Bio: YouTuber and Artist, Kioshi has garnered eyes from Beyoncé, Ariana Grande and much more with her infectious energy and humor! She’s amassed over 87 thousand subscribers on Youtube with her unique and informative music, tv and movie reactions. She also sings, has several covers out and a project on the way! Creating a community full of empathy, acceptance and joy, she is loved and revered by many as a safe space and comfort creator for all.FOLLOW KIOSHIWARRIORhttps://linktr.ee/KioshiWarriorSean's links:https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community.Today I would like to thank Josh Rettig for being my voice in this episode. In this episode, we are talking about the intersections of disability and youth queer acceptance. Guest bio: Jeff Bender is the founder of Lion+Owl, an inclusive children’s apparel brand designed to help kids feel comfortable, confident, and brave. He’s also an author and speaker, using my work to advocate for safe and welcoming spaces for LGBTQ+ youth and their families. Through fashion, writing, and community outreach, He blends creativity with purpose to inspire change and foster acceptance. The most important job he has is being an open and supportive father.FOLLOW JEFFInstagram: @lionandowlapparelFacebook: facebook.com/thelionandtheowlTikTok: @lionandowlapparelLinkedIn: linkedin.com/in/thelionandtheowlLion+Owl Store: www.lionandowl.usSean's links:https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community.Before we jump in, I just want to give a quick shoutout to Isabella Christine for being my voice transcriber for this episode—thank you so much. Today we’re talking about the intersections of invisible disabilities and navigating from trauma to triumph, and I’m really excited for this one.Guest bio: Rev. Dr. Xenia Barnes is a Motivational Speaker, Co-Author of Triumph in the Trenches, Keynote Speaker, and a Social & Behavioral Scientist. As a passionate Empowerment Advocate, she inspires individuals and organizations to unlock their potential and choose resilience. With a focus on Transformational Leadership and Personal Development, she delivers dynamic workshops and seminars designed to foster growth and ignite change.FOLLOW DR. BARNEShttps://www.patreon.com/RDBSpeakshttps://youtube.com/channel/UC8JSipA2AreaSKdODtn6vDQhttps://www.rdbspeaks.com/https://www.instagram.com/rdb_speaks/https://www.youtube.com/channel/UC8JSipA2AreaSKdODtn6vDQSean's links:https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community.I just want to give a quick shoutout to Brandon Lingle for being my voice transcriber for this episode—thank you so much. Today we’re talking about the intersections of disability, self-advocacy, women with ADHD, and centers for independent livingGuest bio: Jodi Hausen, an award-winning journalist and storyteller with decades of media experience. After being diagnosed with ADHD later in life, she began focusing her work on amplifying the voices of people often left out of mainstream media. Jodi serves on the board of a Center for Independent Living in Montana and volunteers with organizations like Special Olympics and Eagle Mount Bozeman. She also writes the Substack newsletter More Than Normal, where she explores powerful stories and insights around disability and access.FOLLOW JODIjodihausen.comjodihausen.substack.comSean's links:https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community.Guest bio: Derek Canas (AKA D-REK), born a sweet, cute, seemingly healthy baby, had everything going for him until the age of 3 months, when he was surrounded by many doctors talking about transposition of the great arteries, pacemakers, and blood transfusions. His parents now had, what they called a “battery operated son”. This was a scary scenario for his parents with so many touch-and-go moments. 16-years later another illness that Derek had been living with started to show symptoms: HIV. This only brought on a more terrifying roller-coaster ride. With courage, unconditional love and sheer determination, Derek was not going to let any one of his health issues get in the way of his dream of becoming a DJ! Spinning music is the passion of his soul. Today, taking his fight against HIV to new hope, He can be found on WEGO health as a patient leader. A survivor of both open heart surgery and HIV, his doctors refer to him as "The Terminator." And that he is!! He is also the creator of the #EndTheStigma Campaign and D-REK's Angels and Warriors. On the weekends he turns into the crazy DJ – living his dreams!!FOLLOW DEREKhttps://www.angelsandwarriors.org/https://www.facebook.com/DREKSANGELSANDWARRIORShttps://www.instagram.com/dreksangelsandwarriors_/https://x.com/DREK912https://www.tiktok.com/@angelsandwarriorsSean's links:https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community.Today I would like to thank Josh Rettig for being my voice in this episode. In this episode, we are talking about the intersections of disability and parenting from a nondisabled’s perspective. Now Let’s get to today’s amazing guest(s),Guest Bios: Stone Kaufer is an 18-year-old non-speaking autistic individual who, after years of not being able to communicate reliably, found his voice through a spelling methodology at the age of 16. This breakthrough has transformed his life, empowering him to share his unique perspective on the world. Stone’s journey is a powerful testament to resilience, determination, and the belief that everyone has a voice worth hearing. He now speaks to inspire others, offering hope and encouragement to those facing similar challenges.David Kaufer is Stone's Dad. As a passionate advocate for inclusion and presuming competence, David has become a voice for other parents navigating similar challenges. His experience as a father, coupled with his professional background in marketing and storytelling, equips him to share insights on how families, educators, and healthcare providers can create more inclusive environments. David’s personal journey inspires and encourages others to see potential where others may not.FOLLOW DAVIDhttps://www.linkedin.com/in/davidkaufer/https://www.instagram.com/davidkaufer/https://www.facebook.com/david.kaufer/Sean's links:https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community.Today I would like to thank Josh Rettig for being my Voice Transcriber in this episode. In this episode, we are talking about the intersections of disability, accessibility, and writing.Guest Bio: Dr. Jasmine Simmons is a deafBlind audiologist born with Usher syndrome, affecting her hearing, vision, and balance. She received cochlear implants at age two and now advocates for accessible healthcare and inclusion for individuals with sensory impairments. An author and public speaker, Dr. Simmons raises awareness about Usher syndrome and inspires others through her work and advocacy.FOLLOW DR. SIMMONS:https://linktr.ee/drjasminesimmonsBook: https://a.co/d/7rkLSsR Sean's links:https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Josh Rettig for being my voice in this episode. In this episode, we are talking about the intersections of disability and being a vocalist. Guest bio: With a sound that has been coined as "Gangster Musical Theatre" by Qveen Herby, Durand Bernarr is one-part Little Richard, one-part Rick James, plus a heavy dash of powerhouse vocals & witty lyrical storytelling. The result is uniquely Durand - your favorite singer’s favorite singer! In 2020, Durand made huge waves with his self-titled album DUR&, which debuted at the #1 spot on the Apple Music R&B charts. Featuring collaborations with the likes of Ari Lennox, KAYTRANADA, Anna Wise, & bassist, “Buddah” Foster Jr., DUR& is as playful, witty & sonically imaginative as it is packed with infectious hooks and just plain GOOD singing. FOLLOW DURAND https://www.instagram.com/durandbernarr/ https://soundcloud.com/durandbernarr https://www.facebook.com/DurandBernarr/ https://www.tiktok.com/@durandbernarr Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Terry Briscoe for being my Voice Transcriber in this episode. In this episode, we are talking about the intersections of disability and writing. GUEST BIO: Jennifer is a member of the San Diego Memoir Writers Association, where she was member of the month in September, 2023. Her writing has been published in Shaking the Tree, volumes 3 and 4 and in Six Feet Apart..In the Time of Corona. Her debut memoir “My Unexpected Life: Finding Balance Beyond My Diagnosis” was published on September 7, 2023 and is an Amazon Best Seller, received Honorable Mention in Biography/Autobiography category at the Hollywood Book Festival, is a Notable 100 Book in the 2023 Shelf Unbound Best Indie Book Competition, and won a Gold Book Award from Literary Titan. She is Author of the Month for April 2024 at San Diego Central Library and won a Red Ribbon from The Wishing Shelf Book Awards. FOLLOW JENNIFER www.instagram.com/jennygwriter www.jennygasner.com Sean's links: https://linktr.ee/authorseangold

Today I would like to thank Jonathan Moore for being my voice in this episode. In this episode, we are talking about the intersections of disability and advocating through literacy. GUEST BIO: Tylia L. Flores is a twenty-seven-year-old born with Spastic Cerebral Palsy. Despite her condition that affects her mobility, she does not allow it to affect her will and determination to make a difference in the world. Through her many life challenges and obstacles, she discovered her passion for writing. Tylia’s goal in life is to share her stories with the world. In doing so, she hopes to help others with disabilities realize that they, too, have the potential to make their dreams come true. Previously, Tylia was nominated to Diversability's list of the most influential Disability Impacts of 2022. Tylia is not only an author. She's a radio show personality and disability activist. FOLLOW TYLIA: https://tyliaflores.com https://www.tiktok.com/@tylialflores https://www.instagram.com/stomping_on_cp_with_tylia/ https://www.instagram.com/tylia_l_flores/ https://www.instagram.com/stompersinlovepodcast/

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold and I am author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Jonathan Moore for being my voice in this episode. In this episode, we are talking about the intersections of disability and ableism within nonprofits. Guest bio: Emma Farley is a 30 year old woman based in Brooklyn who is a wheelchair user with a form of muscular dystrophy. She’s currently enrolled in the Disability Studies program at CUNY, and host of a podcast called Unsilent set to be launched in early 2024 where she will take an intersectional approach to discussing disability related topics with guests. FOLLOW EMMA: https://www.linkedin.com/in/emma-farley/ Sean's links: https://linktr.ee/authorseangold

Today I would like to thank Jonathan Moore for being my voice in this episode. In this episode, we are talking about the intersections of disability, media representation and Humor GUEST BIO: Laura is 33 years old and was born with cerebral palsy. When entering adulthood, she knew that it was ultimately up to her to create the future she'd see fit for herself. So, she began persevering and advocating. Laura made sure her needs and desires were addressed and they became true. With perseverance and self-advocating mindset under her belt, she soon discovered her passion to one day be able to help individuals like her accomplish chasing after the things they'd see fit for themselves. If it wasn’t for her being determined and really speaking up for the things she wanted, Laura’s life would look completely different. Her infamous quote is: "You are the Creator of your own future! No one else will do it for you!" FestAbility: https://www.festability.org/ FOLLOW LAURA: https://www.instagram.com/andert_laura/ https://linktr.ee/lauraandert Sean's links:  https://linktr.ee/authorseangold

Today I would like to thank Josh Rettig for being my voice in this episode. In this episode, we are talking about the intersections of disability, media representation and Humor GUEST BIO: Danielle Connolly is a rare disease and disability advocate, content creator, and business and marketing professional. Being born with a muscle disease that still has an unknown origin after twenty-nine years, has given Danielle many unique life experiences that set the course for her various ambitions. After gaining her MBA and obtaining employment as an analyst, she took her first vacation with friends as an adult and realized that she is more capable of traveling than she realized. Upon returning from the trip, she swiftly got her own mobility scooter and started planning more adventures. The idea of documenting these adventures and giving accessibility reviews came about, and then many other ideas for content followed. Thus, Daniellevates was born! Daniellevates is a play on her name combined with “elevates” because the content is all about elevating ideas about disability and rare disease through humor, education, and adventures. FestAbility: https://www.festability.org/ FOLLOW DANIELLE https://linktr.ee/daniellevates https://youtube.com/@daniellevates https://www.instagram.com/_daniellevates/

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Adam Ross for being my voice in this episode. In this episode, we are talking about the intersections of disability, non disabled family members, and finding disabled Role models. Guest Bio: Kelley Coleman is a feature film development executive turned author, whose book Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Systems, Services, and Supports comes out March 12, 2024. Stemming from her own experience, her book gives practical templates, outlines, and worksheets for how to navigate all the paperwork and red tape that can come with getting your child the supports they need, and includes interviews with over 40 top disability experts. Kelley serves on committees for Children's Hospital Los Angeles, the Los Angeles Unified School District, and service dog organization Canine Companions. FestAbility: https://www.festability.org/ FOLLOW KELLEY www.kelleycoleman.com https://www.instagram.com/hellokelleycoleman FB site: https://www.facebook.com/kelley.coleman.56 Get Kelley’s book: https://a.co/d/dzyfa02

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Josh Rettig for being my voice in this episode. In this episode, we are talking about the intersections of disability and psychology. Now Let’s get to today’s amazing guest. Guest bio: Malakai (he/they) is a public speaker, writer and mental health advocate ; who is working toward becoming a licensed therapist to help bridge the gaps between the disability and LGBTQIA+ communities. Malakai holds a Bachelors in Psychology from the University of Nebraska and a graduate certificate in Child and Adolescent Psychology from the Chicago School of Professional Psychology. He is currently pursing a Master’s of Social Work at Capella University. He currently resides in Southern California. FestAbility: https://www.festability.org/ FOLLOW MALAKAI: www.strongwheeld.com https://strongwheeld.com/shop/ Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Adam Ross for being my voice in this episode. In this episode, we are talking about the intersections of disability, mental health, and dating. Guest bio: Tye Martin is a 34-year-old with muscular dystrophy and he has a PhD in Biomedical Engineering. His research focused on Alzheimer’s and disability tech research and development. He was hospitalized with a septic gallbladder in 2021 and placed on a ventilator. Tye lost his ability to talk, eat, and use my wheelchair. Fast forward to today and He’s able to drink his favorite iced latte and eat chips and guacamole. FestAbility: https://www.festability.org/ FOLLOW TYE: Instagram: @dr.tyedmartin Facebook: https://www.facebook.com/tye.martin Blog: https://themighty.com/u/dr_tyedmartin/ Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Adam Ross for being my voice in this episode. In this episode, we are talking about the intersections of disability, Alternative music and concerts. Guest bio: At the self-proclaimed “intersection of emo and chronically ill,” Valerie is an advocate and content creator passionate about music, inclusivity, and educating others about disability. FestAbility: https://www.festability.org/ FOLLOW VALERIE: https://www.tiktok.com/@valeriesvoice https://twitter.com/valeriesxvoice https://discord.com/invite/KC3t5yxJmn https://www.instagram.com/valeries_voice/ https://beacons.ai/valeriesvoice Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Terry Briscoe for being my voice in this episode. In this episode, we are talking about the intersections of disability, Sexuality, mental health, community, and healing. Guest bio: Jebin is a teacher, editor, and queer academic. He grew up in a conservative society and suffered from internalized homophobia as a child. Later on, in college, he was diagnosed with depression. Jebin is on the path to healing now. His quest is to find out how we can all heal, particularly in the LGBT community, and live life to the fullest. FestAbility: https://www.festability.org/ FOLLOW JEBIN: linkedin.com/in/jebin-samuel Insta: Samueljebin3 Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Terry Briscoe for being my voice in this episode. In this episode, we are talking about the intersections of disability and parenting from a nondisabled’s perspective. Now Let’s get to today’s amazing guest(s), Guest Bio: Andrea Brown is a Non-disabled disability advocate and mom to an almost ten year old with Pitt Hopkins Syndrome. Formerly worked in afterschool education non-profits, now a full time caregiver. Board member with the non-profit Common Ground Society. Feminist, anti-racist, and anti-ableist middle aged white lady who is doing her best at unlearning a lifetime of privilege. FestAbility: https://www.festability.org/ FOLLOW ANDREA: https://www.instagram.com/centeringdisability Common Ground Society: https://commongroundsociety.org/https://www.facebook.com/commongroundsocietyhttps://www.instagram.com/common.ground.society/ @commongroundsociety Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Adam Ross for being my voice in this episode. In this episode, we are talking about the intersections of disability, The medical system, Black pain, and community organizing. Guest Bio: Dr. Punch loves to heal. Educated in medicine at the University of Connecticut and trained in surgery at the Shock Trauma Center in Baltimore, this desire to heal has brought to life a career with a three-fold focus: education, trauma, and healing. Moving to Ferguson post-Ferguson, he collaborated with numerous stakeholders to create “The T”, a community of health promoting holistic healing from trauma related to bullet injuries and overdose in St. Louis. The T transforms healthcare delivery through education and anti-racist, relationship-based education, engagement, and direct care. This includes the creation of The Bullet Related Injury Clinic (BRIC) and The KEY, a harm reduction program with a focus on overdose risk, both centering the experience of Black men because #BlackPainMatters. FestAbility: https://www.festability.org/ FOLLOW DR. PUNCH: https://linktr.ee/thetstl Sean's links: https://linktr.ee/authorseangold

Hey, welcome to a special season finale episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Adam Ross for being my voice in this episode. In this episode, we are talking about the intersections of disability in Human Sex Trafficking, and Hollywood. Guest Bio: Jeannie Mai-Jenkins Is an Asian-American television host and stylist best known for her work on the makeover show How Do I Look? and an Emmy award-winning host for my favorite former daytime talk show The Real. As a fashion expert, she is frequently featured on television programs such as Today, Extra TV, Entertainment Tonight, and Insider. She has also appeared as a host for E! as well as a red carpet host for the American Music Awards and as a correspondent for the Miss Universe pageant. She is currently a sideline reporter on Holey Moley on ABC, a host on America’s Test Kitchen: The Next Generation, and she has a youtube show called Hello Hunnay. FestAbility: https://www.festability.org/ FOLLOW JEANNIE: YT  @HelloHunnay  Twitter: https://twitter.com/jeanniemai IG: https://www.instagram.com/thejeanniemai/ TikTok: https://www.tiktok.com/@thejeanniemai Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Adam Ross for being my voice in this episode. In this episode, we are talking about the intersections of disability, Racism within our community, Ableism in the medical field, and disability justice. Guest Bio: Mary Fashik is a Lebanese born, queer disability rights activist, author, public speaker, and workshop facilitator. She founded Upgrade Accessibility in 2019, a social justice movement designed to challenge today’s accessibility standards. Since its inception, the movement has grown and broadened its lens to include disability rights and Disability Justice with a focus on intersectionality and equity. Through a variety of workshops and trainings, Mary helps companies understand how deeply rooted ableism is in their organizational structure and how to implement important changes. In 2021, she was named an honoree on Diversability’s D-30 Disability Impact List, where she now works as their Community Engagement Manager. She is also the creator and host of The Politics of Disability podcast which was chosen as Best Interview Podcast at the 2022 Astoria Film Festival. FestAbility: https://www.festability.org/ FOLLOW MARY: https://linktr.ee/upgradeaccessibility [email protected] Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Adam Ross for being my voice in this episode. In this episode, we are talking about the intersections of disability, Racism within our community, Ableism in the medical field, and disability justice. Guest Bio: Mary Fashik is a Lebanese born, queer disability rights activist, author, public speaker, and workshop facilitator. She founded Upgrade Accessibility in 2019, a social justice movement designed to challenge today’s accessibility standards. Since its inception, the movement has grown and broadened its lens to include disability rights and Disability Justice with a focus on intersectionality and equity. Through a variety of workshops and trainings, Mary helps companies understand how deeply rooted ableism is in their organizational structure and how to implement important changes. In 2021, she was named an honoree on Diversability’s D-30 Disability Impact List, where she now works as their Community Engagement Manager. She is also the creator and host of The Politics of Disability podcast which was chosen as Best Interview Podcast at the 2022 Astoria Film Festival. FestAbility: https://www.festability.org/ FOLLOW MARY: https://linktr.ee/upgradeaccessibility [email protected] Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Adam Ross for being my voice in this episode. In this episode, we are talking about the intersections of life with Cerebral Palsy and Embracing the social model of disability vs. The medical model of disability. Guest bio: Victoria Wheeler is a 32-year-old woman who was born prematurely with an official diagnosis of spastic diplegia cerebral palsy within her first year. She had SDR surgery at the age of 4. She is a full-time wheelchair user. She’s even college educated with a degree in Spanish. She is developing a passion for disability advocacy and activism, as well as handmade art and crafting! FestAbility: https://www.festability.org/ Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Yuri Velez for being my voice in this episode. In this episode, we are talking about the intersections of disability representation, inclusion, and accessibility in the music industry. Guest Bio: Lachi is a blind multi-award-winning artist, Grammys Board DEI Ambassador and Founder and President of RAMPD.org. She has dedicated her platform, career and craft to amplifying Disability Culture, promoting inclusion and advocating for accessibility in the Music Industry. Lachi has also hosted a PBS American Masters’ segment highlighting disabled renegades, and appeared in several national ads promoting accessibility. Named a “dedicated foot soldier for disability pride” by Forbes, Lachi has held talks with the White House, the UN, and the Kennedy Center, and has been featured in Essence, Billboard and the New York Times for celebrating intersectionality through art and for her upbeat and unapologetic brand of disability pride. FestAbility: https://www.festability.org/ CONNECT WITH LACHI: www.RAMPD.org https://www.facebook.com/profile.php?id=100050430702272https://twitter.com/lachimusichttps://www.instagram.com/lachimusic/https://www.tiktok.com/@lachimusic Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Yuri Velez for being my voice in this episode. In this episode, we are talking about the intersections of disability representation, inclusion, and accessibility in the music industry. Guest Bio: Lachi is a blind multi-award-winning artist, Grammys Board DEI Ambassador and Founder and President of RAMPD.org. She has dedicated her platform, career and craft to amplifying Disability Culture, promoting inclusion and advocating for accessibility in the Music Industry. Lachi has also hosted a PBS American Masters’ segment highlighting disabled renegades, and appeared in several national ads promoting accessibility. Named a “dedicated foot soldier for disability pride” by Forbes, Lachi has held talks with the White House, the UN, and the Kennedy Center, and has been featured in Essence, Billboard and the New York Times for celebrating intersectionality through art and for her upbeat and unapologetic brand of disability pride. FestAbility: https://www.festability.org/ CONNECT WITH LACHI: www.RAMPD.org https://www.facebook.com/profile.php?id=100050430702272https://twitter.com/lachimusichttps://www.instagram.com/lachimusic/https://www.tiktok.com/@lachimusic Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Yuri Velez for being my voice in this episode. In this episode, we are talking about the intersections of disability, pop culture, and being a YouTube content creator. Guest Bio: Styna is a disabled content creator, author, and artist who focuses on raising awareness, educating, and maintaining a safe space for fellow disabled pals to connect and relate. They have a tiktok following over 33,000, and an Instagram following of over 17,000. FestAbility: https://www.festability.org/ CONNECT WITH STYNA: https://linktr.ee/stynalane Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Adam Ross for being my voice in this episode. In this episode, we are talking about the intersections of disability and accommodations. Guest bio: Priya Ray became disabled in 1999. As a musician and artist that was and is part of a DIY community, she was an ally to minorities. She was shocked that she hadn't realized how we exclude disabled people until Priya had become disabled herself. That was when she decided to dedicate herself to cripping the world around me and bringing everyone along for the ride. FestAbility: https://www.festability.org/ CONNECT WITH PRIYA IG/FB/Twitter: DIYabled Website: DIYabled.com Linktree: https://linktr.ee/DIYabled Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Adam Ross for being my voice in this episode. In this episode, we are talking about the intersections of disability and dance. Guest bio: Miss Marie, AKA MarieBustinMoves is known best for going viral on social media through her amazing dance moves. From making Old school moves like the running man, she had taken over social media one groove at a time. FestAbility: https://www.festability.org/ CONNECT WITH MRS. MARIE: https://mariebustinmoves.com/shop-centrehttps://twitter.com/TheMoRingBunchhttps://www.instagram.com/marie_bustinmoves/https://www.tiktok.com/@mariebustinmoveshttps://www.youtube.com/c/MarieBustinMoves Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Adam Ross for being my voice in this episode. In this episode, we are talking about the intersections of disability, the LGBT Community, and sex. Now Let’s get to today’s amazing guest. Guest Bio: Evan Sweeney is a 39-year-old genderqueer disabled male who works primarily as a sex educator and freelance writer. His topics include disabilities, sex, gender, and queer culture. He has been doing sex and disability workshops for over 15 years and started doing this work because he found a huge lack of good sex-positive information for people with disabilities. Evan wrote the book “Queers on Wheels” and has traveled the country giving workshops about sex and disability. He continues to give workshops online and in-person through “Cripping Up Sex with Evan," and he is also available for private consultations. FestAbility: https://www.festability.org/ CONNECT WITH EVAN: Twitter: @CrippingUpSex Instagram: @CrippingUpSex Facebook: @CrippingUpSexWithEva Patreon: patreon.com/cripadvice Website: crippingupsexwitheva.com Shop: gumroad.com/crippingupsexwitheva Letter Board Demo: http://bit.ly/EvasBoard Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Adam Ross for being my voice in this episode. In this episode, we are talking about the intersections of disability and communicating better with abled-bodied people. Guest bio: Cherith Jones is a 38-year-old born in Arlington Texas and raised in Odessa Texas. Born with Spina Bifida. She used crutches and braces as a child but now is a full-time wheelchair user. She has Associates degrees in General Studies and Interpreter Training, and a Bachelor's in psychology. Cherith is a full-time intern at a nonprofit that helps human trafficking survivors. Live alone, drive independently. Pastors daughter. TRIGGER WARNING: Topics of Abuse FestAbility: https://www.festability.org/ National Sexual Assault Hotline Hours: Available 24 hours 1-800-656-4673 https://hotline.rainn.org/online National Domestic Violence Hotline 800-799-7233 https://www.thehotline.org/?utm_source=google&utm_medium=organic&utm_campaign=domestic_violence Sex Trafficking Hotline 1-888-373-7888 TEXT/SMS ("HELP" To 233733) humantraffickingonline.org CONNECT WITH CHERITH: Tiktok: Sassy_Hot_Wheels Instagram: Sassy_Hot_Wheels Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Yuri Velez for being my voice in this episode. In this episode, we are talking about the intersections of disability, pop culture, and being a YouTube content creator. Now Let’s get to today’s amazing guest(s), Lailah Lynn is an amazing YouTube host discussing topics and headlines in pop culture, especially Daytime TV talk shows such as Wendy Williams, Sherri, and The Real. Her channel has over 360,000 subscribers and her videos have received more than a hundred million views in total. So, this may just become an interview where I’ll get advice and tips as well. We’ll see. FestAbility: https://www.festability.org/ SUBSCRIBE TO LAILAH: https://www.youtube.com/lailahlynntv https://www.instagram.com/lailahlynn_/ https://twitter.com/lailahlynn https://www.facebook.com/lailahlynnTV1https://lailahlynn.com/ Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Adam Ross for being my voice in this episode. In this episode, we are talking about the intersections of disability, fandoms, harmful vs helpful disability representation, and pop culture. Guest Bio: Nico Meyering will eventually grow up and get a real job. Until then, he is an award-winning Disabled advocate and a member of the National Disability Mentoring Hall of Fame. As a founding member of the Diversability Leadership Collective, which I now love, Nico lives in Philadelphia where he served on the Mayor's Commission for People with Disabilities and hosts a pop culture podcast called "Ask Me! Fandom and People with Disabilities" with Steve Williams. CONNECT WITH NICO: https://twitter.com/namestartswithn https://www.instagram.com/namestartswithn/ FestAbility: https://www.festability.org/ Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disability and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Adam Ross for being my voice in this episode. In this episode, we are talking about the intersections of invisible disability, poverty, domestic violence, and multiple invisible disabilities. This is a warning that the episode may be hard to listen to or watch. Please take caution when listening and watching. Know your own limits. Now Let’s get to today’s amazing guest(s), Guest Bio: Puneet Singh is from New Delhi, India. Punnet is a person with stammering and an undiagnosed learning disability. He identifies as a Neurodivergent Individual. His life has been an intersection of poverty, domestic violence and multiple invisible disabilities and how they navigated and interacted with these intersections.He is a founder of a nonprofit called ssstart, working towards normalizing speech and communication disabilities, especially stammering. He is a disability inclusion and accessibility advocate. FestAbility: https://www.festability.org/ CONNECT WITH PUNEET: LinkedIn - https://www.linkedin.com/in/puneet-singhal/ Twitter- https://twitter.com/puneetsinghal22 Instagram- https://www.instagram.com/puneetssinghal/ Linktree- https://linktr.ee/ssstart www.Isad.com Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Yuri Velez for being my voice in this episode. In this episode, we are talking about the intersections of disability, art, and culture. Guest Bio: Christopher Robin Judson Worth was born with cerebral palsy in Bridgeport Connecticut, his parents due to hardship put him in foster care. While in the system, he was educated in an institutionalized Setting up until the age of 11 when he was adopted by a family from West Virginia. Today Christopher is a community educator/organizer with over fifteen years of experience. He cut his teeth in community organizing through joining the Ohio Valley Environmental Coalition (OVEC), where his organizing efforts centered on the environmental movement, namely the abolition of mountaintop removal. He holds training certificates from Missouri Jobs with Justice and Industrial Areas Foundation (IAF), founded by the father of community organizing, Saul Alinsky. FestAbility: https://www.festability.org/ Sean's links: https://linktr.ee/authorseangold

Hey, welcome to an episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold and I am an author, advocate, and nonverbal public speaker for the disability community. Today I would like to thank Yuri Velez for being my voice in this episode. In this episode, we are talking about the intersections of disability and sex education. Guest Bio: Kendra Holliday is a sex surrogate partner and Co-Founder of Sex Positive St Louis. FestAbility: https://www.festability.org/ CONNECT WITH KENDRA: https://sexstl.com/ Sean's links: https://linktr.ee/authorseangold

Hey, welcome to the very first episode of Crippled by Culture, where we talk about everything in life and relate it to the disabled and chronically ill community. My name is Sean Gold, and I am an author, advocate, and nonverbal public speaker for the disability community. Today I thank Yuri Velez for being my voice in this episode. In this episode, we are talking about the intersections of disability and School accessibility and accommodations. Guest Bio: Brittany Patrick (She/Her) is a doctoral candidate in the department of Special Education at the University of Maryland College Park. As a Project PROPELL sponsored scholar, she studies culturally-sustaining literacy interventions for students with mild to moderate disabilities. Brittany has served as a special education teacher in North Carolina, Washington D.C., and San Antonio, Texas. Presently, she works for the Office of State Superintendent of Education, where she develops special education policies for the city of Washington, D.C. Brittany has also served as an independent curriculum consultant for non-profit organizations, public, and private schools and recently founded the Umoja Collective LLC, a special education advocacy and professional training organization based in Maryland. FestAbility: https://www.festability.org/ CONNECT WITH BRITTANY: Www.umojacollective.net https://www.instagram.com/umojacollectivellc https://www.facebook.com/UmojaCollectiveLLC https://www.youtube.com/channel/UC6HFXRPTkvSOtjJNi-bMG8g Sean's links: https://linktr.ee/authorseangold=