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PODCAST · health

Hold the Moment

Hold the Moment, a podcast by people living with dementia, is full of real stories about life after a dementia diagnosis.

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  1. 53

    Ask Us Anything: Can Lifestyle Changes Really Reduce Dementia Risk?

    Most of us tend to think about keeping our bodies healthy and the importance around that, but what about our brains? In our Ask Us Anything episodes, you send us your questions about living with dementia and we’ll answer them as honestly as we can. Nothing is off limits here! We explain the research behind dementia risk reduction and explore whether mild cognitive impairment always leads to dementia. If you’d like personalised support, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day, or request a callback, start a webchat, or send an email with whatever is on your mind.

  2. 52

    Brain Health: Unpacking The Latest Insights and Tips

    Janet always wanted to be a writer, but life got in the way, until a diagnosis of  Alzheimer’s disease changed everything.  Janet began writing again, and it’s become a source of silence, self-reflection and even a means of preserving her brain health for as long as possible. Now, she’s running writing workshops for other people living with dementia, including people who were dragged along at first but came to the second session with a stack of fresh stories.  Dr Suraj Samtani, a clinical psychologist and researcher at UNSW, says that alongside engaging mental activities, social interaction is one of the most powerful tools we have when it comes to protecting our brains. Jim and Hamish unpack Dr Suraj’s research and his work on the National Geographic documentary, A Road Trip to Remember, in which Suraj helps actor Chris Hemsworth and his father undergo ‘reminiscence therapy.   +++    Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.    ABOUT THE GUESTS  Janet worked as a teacher, then in women’s education, before completing a PhD in creative writing in her late 50s. Today, Janet lives with Alzheimer’s disease and runs creative writing workshops for other people living with dementia. Dr Suraj Samtani is a clinical psychologist and researcher at UNSW’s Centre for Healthy Brain Ageing, whose research explores the link between social connection and brin health.     NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.    SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-brain-health   EPISODE CREDITS  Produced by Liam Riordan | Sound design by Slade Gibson Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman    FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn    Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

  3. 51

    Ask Us Anything: How Do We Empower Carers to Trust Their Instincts?

    Future Planning means thinking ahead about care, comfort and the kind of support you want as dementia progresses. In our Ask Us Anything episodes, you send us your questions about living with dementia and we’ll answer them as honestly as we can. Nothing is off limits here!  We discuss ways we can empower carers to share their insights as they advocate for their loved ones in palliative care. If you’d like personalised support you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day, or request a callback, start a webchat, or send an email with whatever is on your mind.     +++    ABOUT THIS EPISODE  This ‘Ask Us Anything’ episode was hosted by Jim Rogers with advice from Jayne, Nightingale Program Manager, at Dementia Australia.     NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.    SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-planning-ahead   EPISODE CREDITS  Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman    FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn    Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative

  4. 50

    Planning Ahead: Understanding Palliative Care Support

    Betsy had no idea that the end of life could be so... peaceful. Her husband, Peter, lived with young onset Alzheimer’s disease, and the pair of them didn’t want to even think about the end of his life when he was diagnosed. But as Peter’s condition worsened, he made his desires clear: he wanted to stay at home for as long as possible, and he didn't want his life prolonged when quality was compromised. When they moved to palliative care, everything changed. "The noise went away, the fear went away. There was grief, but lots of love. There was room to breathe."  Palliative care was central to the peace Betsy and Peter experienced at the end of his life, but managing that time can begin much earlier if you want it to. "Palliative care goes from the point of diagnosis," says Jayne, Nightingale Program Manager at Dementia Australia. "It's not about morphine at end-of-life. It's about living well, having good quality of life, having choice." Betsy shares how she and Peter made palliative care their own, and Jayne invites you to start thinking and talking about palliative care early, so it can be exactly what you need when the time comes.    +++    Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.     ABOUT THE GUESTS  Betsy is an Advocate and former carer. An engineer by background, Betsy stepped away from corporate life following her husband Peter's diagnosis with young onset Alzheimer's disease. Peter passed away in palliative care in 2024, on their 25th wedding anniversary. Betsy now works in food relief charity. Jayne is Nightingale Program Manager at Dementia Australia. She provides national leadership in specialist palliative and dementia care, with a background as a Clinical Nurse Consultant and extensive experience across aged care, community, and person-centred practice.     NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.     SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-planning-ahead    EPISODE CREDITS  Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman     FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn     Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

  5. 49

    Ask Us Anything: What Does Supported Decision-Making Look Like in Real Life?

    Making decisions is part of staying independent, but dementia can make that a challenge at times. Supported decision making can help people stay in control with guidance and respect. In our Ask Us Anything episodes, you send us your questions about living with dementia and we’ll answer them as honestly as we can. Nothing is off limits here! We explore how to manage overwhelming medical appointments and put supported decision making into practice.     +++     ABOUT THIS EPISODE  This ‘Ask Us Anything’ episode was hosted by Jim Rogers with advice from Rose, a Policy Advisor at Dementia Australia.      NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.    SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-still-deciding    EPISODE CREDITS  Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman     FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

  6. 48

    Still Deciding: Making Decisions After a Dementia Diagnosis

    Ann is fiercely independent and has spent many years working in health and advocating for people living with dementia. Since her own diagnosis, that work has taken on a new dimension: figuring out what it means to keep making decisions for herself. Her husband Timothy is learning alongside her. The balance they've struck is constant and shifting. "There'll be days where I'm wearing different earrings, and Timothy will say, 'Do you realise you've got one of these and one of those?' And so I'll go and change one of the earrings, and perhaps be a bit terse, but in actual fact, I'm really pleased that he's telling me." A dementia diagnosis doesn't end your right or your ability to make decisions. But it does change what decision-making support you might need, and it can shift depending on the decision, the day, the stage of dementia and other factors. In this episode, Dr Craig Sinclair, a Senior Research Fellow at UNSW who specialises in the field, unpacks how supported decision-making works both legally and in practice, and why the right support at the right time makes all the difference.       NEED SUPPORT? Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.   SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-still-deciding    EPISODE CREDITS Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman     FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn   Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

  7. 47

    Ask Us Anything: What Do I Need to Know About Childhood Dementia?

    Childhood dementia is something few have heard of, and even fewer understand. But for the families facing it every moment matters.  In our Ask Us Anything episodes, you send us your questions about living with dementia and we’ll answer them as honestly as we can. Nothing is off limits here! We shine a light on what happens after a diagnosis and how we can better support the families living with it every day.   +++   ABOUT THIS EPISODE This ‘Ask Us Anything’ episode was hosted by Jim Rogers with advice from Meg Maack, CEO and Founder of Childhood Dementia Initiative.   NEED SUPPORT? Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.   SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-childhood-dementia    EPISODE CREDITS  Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman     FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn     Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative. 

  8. 46

    Childhood Dementia: Holding Onto Hope

    Isolation can be a common experience when living with dementia or caring for a loved one. If the people around you don’t understand dementia, they might withdraw, they might not know how to be there for you... This experience is amplified for families faced with childhood dementia. Yes, even children live with dementia. ‘Childhood dementia’ is an umbrella term for more than 100 rare genetic disorders that 1 in every 2,900 babies are born with. There is currently no cure for childhood dementia. For parents Rachel and Eli, spreading awareness and helping to secure research funding are critical sources of hope. Megan Maack, whose children also live with dementia, founded Childhood Dementia Initiative to improve recognition, health care, support and research. She is helping parents like Rachel and Eli connect with other families in similar circumstances and advocate for change.    +++   Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Instagram and find support resources online. Childhood Dementia resources and support can be found at www.childhooddementia.org This episode was produced by Luci McAfee and Liam Riordan, with sound design by Slade Gibson. The executive producers are Sarah Dabro and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.   ABOUT THE GUESTS Rachel and Elijah are advocates raising awareness of childhood dementia through their experience with their own daughter Hannah. Based in regional NSW, they share the realities of caring, grief and adaptation. Working with the Childhood Dementia Initiative, they help create resources and connection for families navigating rare and often isolating diagnoses. Megan Maack is CEO and founder of the Childhood Dementia Initiative, leading world-first action to recognise childhood dementia. A mother of two children with Sanfilippo syndrome, she combines lived and professional expertise to drive change across research, healthcare and policy, improving outcomes for children and families in Australia and globally.   NEED SUPPORT? Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.   SERVICES & RESOURCES Find links, services and information from this episode → https://www.dementia.org.au/episode-childhood-dementia   EPISODE CREDITS Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman   FOLLOW DEMENTIA AUSTRALIA Instagram | Facebook | LinkedIn   Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative. 

  9. 45

    Ask Us Anything: How do I know what touch is still ok?

    The need for love, touch, and closeness doesn’t disappear when dementia enters our lives - but how affection is experienced and expressed can change. In our Ask Us Anything episodes, you send us your questions about living with dementia and we’ll answer them as honestly as we can. Nothing is off limits here! We explore consent after a dementia diagnosis and provide practical advice for partners and families navigating this emotionally complex territory.   +++   ABOUT THIS EPISODE This ‘Ask Us Anything’ episode was hosted by Jim Rogers with advice from Louise, a National Dementia Helpline Advisor at Dementia Australia.   NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.   SERVICES & RESOURCES Find links, services and information from this episode → https://www.dementia.org.au/episode-still-us   EPISODE CREDITS Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman   FOLLOW DEMENTIA AUSTRALIA Instagram | Facebook | LinkedIn   Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative. 

  10. 44

    Still Us: Navigating Relationships, Love and Intimacy

    When Karen was diagnosed with primary progressive aphasia, she and her husband Jonathan knew their relationship would change. What surprised them was how. "It’s just made us more tender and gentle," Karen says.    They've become more mindful, more aware of each other's needs, and they're having conversations they never expected to have, including about consent as things evolve.    When you hear “dementia and intimacy”, sex might be the first thing that comes to mind. But intimacy is about so much more. It's about connection, closeness, and love. And it includes the relationships beyond your romantic ones.   “Intimacy is about a human connection, and that can be sex,” says Dr Catherine Barrett, CEO of Celebrate Ageing, “but it can also be loving your children or your grandchildren, or having other special relationships in your life”. Karen and Jonathan share how they’re managing the changing conditions of their relationship in real-time, and Catherine outlines some of the tools and tactics she uses in workshops to help people of all ages and abilities develop the skills of love.    +++    Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.   ABOUT THE GUESTS  Karen is a Dementia Australia Dementia Advocate and retired teacher, coach and facilitator. Earlier this year, Karen received a diagnosis of primary progressive aphasia (language variant frontotemporal dementia). She and her husband Jonathan speak openly about how their relationship is changing in real time.    Dr Catherine Barrett is the CEO of Celebrate Ageing, a charity committed to combating ageism and building respect for older people. A former nurse with more than 40 years of experience working with older people, Catherine helps people of all ages and abilities develop what she calls the skills of love.    NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.    SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-still-us   EPISODE CREDITS  Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman    FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

  11. 43

    Community Support: Building Powerful Social Connections

    If you’re on North Wollongong Beach in New South Wales around sunrise, you’ll probably see David with his camera. After his daily morning swim, he likes to take photos of the sunrise – whenever he meets someone with young children, he offers to send them photos. “This is the sunrise on the first day of your life,” he tells them to write under the pictures. David was diagnosed with Alzheimer’s disease in 2023 and instead of withdrawing, he asked himself: How can this become a new way to help people connect? Amanda knows about isolation too. She’s been caring for her mum, who lives with Lewy body dementia, since she was just 17. For years, she hid it; embarrassed, exhausted, carrying the weight alone.   But eventually, she reached out for help. David and Amanda share how they’ve built and maintained connections after a diagnosis for their own sakes, but also so they can share what they’ve learned about dementia with their communities.      +++     Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.     ABOUT THE GUESTS  Dr David Williams AM, lives in Wollongong and was diagnosed with Alzheimer’s disease in 2023 after a varied career spanning industrial chemistry, recruitment and consulting, alongside decades of community leadership. He continues to foster connection through daily swims, sunrise photography and his long-standing men’s group, believing openness about diagnosis is how you make a difference. Amanda is a digital and ICT leader who works across complex industries, alongside caring for her mother Petronella, who lives with Lewy body dementia. Through Dementia Australia, she found community, became an advocate, and now speaks openly about asking for help as an act of love, for others and yourself.     NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.     SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-community-support    EPISODE CREDITS  Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman     FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn     Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.   Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

  12. 42

    Ask Us Anything: Where can I connect with people going through what I am?

    Community can make all the difference when dementia enters a family. From practical help to emotional support, there are so many ways that people can stay connected. In our Ask Us Anything episodes, you send us your questions about living with dementia and we’ll answer them as honestly as we can. Nothing is off limits here!  We give advice on supporting people with dementia in public spaces, and ways to connect with other people in your community going through a similar experience.      +++      ABOUT THIS EPISODE  This ‘Ask Us Anything’ episode was hosted by Jim Rogers with advice from Rose, a Policy Advisor at Dementia Australia.      NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.     SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-community-support    EPISODE CREDITS  Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman     FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn     Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.  

  13. 41

    Staying in Control: Managing Money and Finances

    Deanne’s seen it all – with more than 25 years’ experience in banking under her belt, she has encountered customers who have been coerced out of their own money by friends, family members and even strangers. She says it’s even more common for people living with dementia. But when Deanne’s own father was diagnosed with dementia, the issue of financial vulnerability took an even more personal dimension. Robert Fitzgerald AM is the Age Discrimination Commissioner for the Australian Human Rights Commission. He says that for several reasons, financial abuse of older people, including people living with dementia, is only increasing. He lays out the common patterns that lead to abuse and offers advice on protecting yourself and your loved ones after a diagnosis.   +++    Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.    ABOUT THE GUESTS  Deanne is a former carer and Dementia Advocate who her father through Lewy body dementia. With nearly 25 years in banking, she has seen the impact of delayed estate planning and is passionate about encouraging early, proactive decision-making following a dementia diagnosis.  Age Discrimination Commissioner Robert Fitzgerald AM is a respected lawyer and advocate with extensive experience across government and community sectors. He champions the rights of older people, and is working to reduce ageism, prevent abuse and strengthen protections through policy leadership and cross-sector collaboration.    NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.    SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-staying-control    EPISODE CREDITS Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman    FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn    Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.   Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative. 

  14. 40

    Ask Us Anything: How Do I Future-Proof My Finances?

    Managing money is tricky for anyone, and dementia can make it even harder. So what are the best ways to keep control and make informed choices around our finances? In our Ask Us Anything episodes, you send us your questions about living with dementia and we’ll answer them as honestly as we can. Nothing is off limits here! We discuss putting the right supports in place, and what to do if you’re worried someone might be taking advantage of a person living with dementia.    +++     ABOUT THIS EPISODE  This ‘Ask Us Anything’ episode was hosted by Jim Rogers with advice from Rose, a Policy Advisor at Dementia Australia.   NEED SUPPORT? Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week — funded by the Australian Government.   SERVICES & RESOURCES Find links, services and information from this episode → https://www.dementia.org.au/episode-staying-control    EPISODE CREDITS Produced by Liam Riordan | Sound design by Slade Gibson Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman    FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn     Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.   Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

  15. 39

    Residential Care: Understanding Changing Needs

    When Louise’s husband was diagnosed with young onset Alzheimer’s disease, she knew the day would come. What she didn’t expect was how hard it would be to find a place that could actually take him. For Susan, the challenge was different. Her Italian-born father rarely spoke about his wartime childhood. But in residential care, something as simple as a uniform could transport him back decades in an instant. Moving into residential care is one of the toughest decisions for many people living with dementia and their families. When is the right time to move, how do you find an appropriate place, and how do you even start the conversation? Co-hosts Jim and Hamish talk with Louise and Susan about the reality of transitioning into residential care, the hard parts, the unexpected ones, and the small, peaceful moments that made it worthwhile.    +++    Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.     ABOUT THE GUESTS  Former carer Louise’s husband Craig was diagnosed with young onset Alzheimer’s disease at 46. Navigating a system not designed for younger people, Louise founded the Think Again campaign and now raises awareness while sharing her experience supporting Craig through care. Susan cared for her father Tony, a gentle and hardworking man who experienced moments of great distress as his dementia progressed. Drawing on her experience navigating residential care, she now advocates for greater awareness, understanding and more personalised support for people living with dementia.   NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.   SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-residential-care   EPISODE CREDITS  Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman   FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn     Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative. 

  16. 38

    Ask Us Anything: How Do You Find the Right Care for Someone With Dementia?

    Moving into residential care is never an easy decision, but it's about finding support, safety and dignity along the way. In our Ask Us Anything episodes, you send us your questions about living with dementia and we’ll answer them as honestly as we can. Nothing is off limits here! We discuss how to navigate daily routines when your loved one stops wanting to shower, and residential care for people with young onset dementia.   +++    ABOUT THIS EPISODE  This ‘Ask Us Anything’ episode was hosted by Jim Rogers with advice from Jane, a Senior Family Engagement Counsellor at Dementia Australia.     NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.     SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-residential-care    EPISODE CREDITS  Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman    FOLLOW DEMENTIA AUSTRALIA Instagram | Facebook | LinkedIn     Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

  17. 37

    Ask Us Anything: How Do I Balance Life While Caring for My Parent with Dementia?

    Caring for a parent with dementia in your teens,  20s or 30s brings challenges most people don’t see. In our Ask Us Anything episodes, you send us your questions about living with dementia and we’ll answer them as honestly as we can. Nothing is off limits here! We examine the pressures young carers face and share advice on managing the juggle.   +++   ABOUT THIS EPISODE This ‘Ask Us Anything’ episode was hosted by Jim Rogers with advice from Jane, a Senior Family Counsellor at Dementia Australia.   NEED SUPPORT? Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.   SERVICES & RESOURCES Find links, services and information from this episode → https://www.dementia.org.au/episode-big-responsibilities   EPISODE CREDITS Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman   FOLLOW DEMENTIA AUSTRALIA Instagram | Facebook | LinkedIn   Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative. 

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    Big Responsibilities: Navigating Life as a Young Carer

    Tully was only 15 when her mother was diagnosed with young onset dementia. She figured nobody at school would understand. John’s experience has, thankfully, been quite different. He’s 25 now, and cares for his grandmother who lives with dementia. Caring for her has been so rewarding for him that he’s now a professional support worker and studying to be a counsellor. Caring for a loved one living with dementia always has its challenges, and a sense of isolation is a common one. But for younger carers, that isolation can be even more profound. So few people in their teens or early twenties have done it, so it can feel like nobody around you understands the struggle.   +++   Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.   ABOUT THE GUESTS Tully Smyth is a writer, content creator and Dementia Australia Ambassador who was just 15 when her mother was diagnosed with young onset dementia, an experience she now shares as an advocate for other young carers. John has been caring for loved ones since the age of five and is now a professional support worker studying to become a counsellor. John cares for his Mum as well as his Nonna, who lives with Parkinson’s disease and dementia.   NEED SUPPORT? Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.   SERVICES & RESOURCES Find links, services and information from this episode → https://www.dementia.org.au/episode-big-responsibilities   EPISODE CREDITS Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman   FOLLOW DEMENTIA AUSTRALIA Instagram | Facebook | LinkedIn   Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative. 

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    Still Me: Understanding Identity After a Dementia Diagnosis

    If dementia alters how you express yourself, what you like, even how your senses work... what does it really mean to still be yourself after a diagnosis? Gwenda’s been living with behavioural variant frontotemporal dementia since 2012, and yes, a lot has changed. Her sense of smell is different now. She’s recently moved into a residential aged care community. She lives day-to-day with a progressive neurological condition. But here’s the thing: Gwenda is also living some of the best years of her life. A fierce dementia advocate, and a woman who refuses to be flattened by assumptions, Gwenda is adamant that a dementia diagnosis doesn’t define who you are, and that there’s no single way to “do” dementia. “To assume that somebody living with dementia isn’t meeting the norms is about you not getting to know them,” Gwenda says. “It’s your problem, not theirs.” Gwenda sits down with hosts Jim and Hamish to talk frankly about identity, adaptation and why joy hasn’t disappeared from her life, it’s simply changed shape. They explore how carers and families can better understand the deeply individual ways dementia shows up and how curiosity, rather than fear, can transform relationships.   +++   Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.   ABOUT THE GUESTS Gwenda is a proud Palawa woman, Dementia Australia Dementia Advocate and former member of the Aged Care Council of Elders. Diagnosed with behavioural variant frontotemporal dementia in 2012, she has spent more than a decade challenging the stigma that often accompanies dementia.   NEED SUPPORT? Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.   SERVICES & RESOURCES Find links, services and information from this episode via the Dementia Australia website.   EPISODE CREDITS Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman   FOLLOW DEMENTIA AUSTRALIA Instagram | Facebook | LinkedIn   Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

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    Ask Us Anything: Why are evenings so hard?

    As dementia progresses, the way people express themselves can change, sometimes in subtle ways and sometimes more dramatically.   In our Ask Us Anything episodes, you send us your questions about living with dementia and we’ll answer them as honestly as we can. Nothing is off limits here!   We offer practical and compassionate strategies for people struggling with evening routines, and for when a loved one’s language reverts to mother tongue.     +++    ABOUT THIS EPISODE  This ‘Ask Us Anything’ episode was hosted by Jim Rogers with advice from Louise, a National Dementia Helpline Advisor at Dementia Australia.     NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.    SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-still-me   EPISODE CREDITS  Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman  FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn    Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.  

  21. 33

    Hold the Moment Season 3 Trailer

    Dementia is now Australia's leading cause of death and yet the conversations that matter most are still the hardest to have. Hold the Moment returns for a third season to change that. Co-hosted by Jim Rogers, who is living with young onset Alzheimer's disease, and Hamish Macdonald, a leading journalist who cared for his father through Lewy Body dementia and Parkinson's, the show brings the voices of people living with dementia and those who love them into the open. Real people. Hard questions. No filter. Series 3 goes further than ever before, into the risk of financial abuse, the isolation faced by young carers, the heartbreak and hope of childhood dementia, and the surprisingly peaceful possibility of palliative care. Jim shares how his own condition has progressed since Series 2, and both hosts sit with guests whose experiences will challenge, move, and inform anyone touched by this disease. Alongside the 10 main episodes, bonus Ask Us Anything episodes put listener questions directly to experts, covering everything from consent and intimacy to showering routines and residential care. Nothing is off limits.  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios.   +++   Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. NEED SUPPORT? Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government. EPISODE CREDITS Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman FOLLOW DEMENTIA AUSTRALIA Instagram | Facebook | LinkedIn  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

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    It takes a village - why no one can do it alone

    When Kath who lives with dementia became confused inside a public toilet, her husband Bob knew something had to change.  What started as one small fix in the tiny coastal town of Tumby Bay, South Australia, soon grew into action by the local council — and sparked a ripple effect reaching communities far beyond their town.  No one can make big changes on their own. Dementia Australia’s National Manager Dementia-Friendly Communities Belinda Curtis explains how small actions can lead to lasting change and why connection really matters when it comes to assisting those living with a dementia diagnosis.  +++    Hold The Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers. Follow Dementia Australia on Instagram and find support resources online. Dementia Australia’s Dementia-Friendly Communities program informs and supports people who want to collaborate with people living with dementia to create communities where everyone can participate.      This episode was produced by Amelia Navascues with sound design by Slade Gibson. The executive producers are Sarah Dabro and Kellie Riordan. Production manager is Ann Chesterman.    Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.

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    Hold on to connection: How partner, parent and family relationships can change

    So much changes when someone you love is diagnosed with dementia and often the most difficult adjustment can be coming to terms with how it affects your relationship.  You might still be parent-and-child, romantic partners, siblings, but you’ll also have to step into a new role entirely as a carer.   For Col, this feels like ‘taking his turn’. His wife Shirley took on much of the caring work when they were raising kids together, and now Col and the kids are looking after her.   For Sanna, who cared for her mother, the relationship shift was much more dramatic. After being diagnosed, Sanna’s mother didn’t recognise her at all and it looked, for a little while, like their connection might’ve disappeared altogether...  Dementia changes things and it will change your relationship with the person you’re caring for – but you can take steps to ease the change for both of you.   +++  Hold The Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government.    Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  This episode was produced by Gia Moylan and Liam Riordan, with sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman.  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. 

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    Helpline: Reconnecting with a loved one as their dementia progresses

    It’s tough watching someone you love change, especially when it starts to shift the way you relate to each other. As a carer, your role evolves in ways you may not have expected, which can make things feel uncertain. This episode has tips and ideas to help you maintain your connection.  If you’d like personalised advice on how to reconnect or just smooth any tensions as your relationship changes, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day, or request a callback, start a webchat or send an email with whatever is on your mind.   To hear how other carers have re-connected with their loved ones, you can also [listen to this episode of Hold the Moment] .  +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios.   Follow Dementia Australia on Instagram and find support resources online.   This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan.  The National Dementia Helpline is funded by the Australian Government.    Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative. 

  25. 29

    Helpline: How to avoid carer burnout

    Caring for others often means putting your own needs on the back burner but you can’t give your best if you're running on empty. Self-care is crucial to avoid burnout and stay healthy.  This episode has tips to help you find time for yourself while in the chaos of caring.  If you’d like personalised support, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day, or request a callback, start a webchat or send an email with whatever is on your mind.  To hear how other carers are managing their self-care, you can listen to this episode of Hold The Moment]   +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios.   Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan.  The National Dementia Helpline is funded by the Australian Government.    Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.   

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    Carer fatigue: Looking after yourself while caring for others

    Vicki’s pain wasn’t going away and she couldn’t figure out why. She was healthy, ate well, exercised regularly...but the pain just wouldn’t let up, even keeping her from sleeping sometimes. Finally, she realised it might be the culmination of years of stress. She’d cared for her husband, Michael, for over a decade and he’d only just transitioned into permanent residential care.  For the first time, she felt relief – but her body was catching up after years of pushing through exhaustion. Caring for someone living with dementia can be emotionally and mentally overwhelming but it can take a physical toll too. Find out how Vicki regained her health and how you can implement self-care while caring for someone else.   +++  Hold The Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government.    Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  This episode was produced by Gia Moylan and Liam Riordan, with sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman.  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.   

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    Helpline: Finding a balance between work and caring

    Managing paid work and caring for your loved one with dementia is a delicate juggling act, with many balls in the air at a time. While it’s tricky to keep from dropping any, it doesn’t always have to be an either/or decision between caregiving and your career. This episode will give you practical strategies for approaching your employer and finding ways to balance both roles without losing yourself in the process. If you’d like personalised advice on how to balance both worlds, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day, or request a callback, start a webchat or send an email with whatever is on your mind. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

  28. 26

    Working it out: How to balance your job with caring responsibilities

    If you’re caring for someone living with dementia, you know it can take just as much work as any formal job... but many carers need to continue paid work while caring. So how do you manage that juggle? Wendy loves her work, especially the intellectual challenges it presents, so didn’t want to give up her career when she took on caring duties for her dad. Instead, she moved to part-time employment so she could have more flexibility and control over her and her dad’s schedules. Find out how to balance work commitments and caring duties, whether that means a frank conversation with your managers or some clever timetabling around medical appointments. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government.  Follow Dementia Australia on Facebook and Instagram or find support resources on our website. This episode was produced by Gia Moylan and Liam Riordan, with sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  

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    Helpline: Advocating for your loved one’s care needs

    Caring for someone with dementia means you’re constantly learning—how to navigate healthcare, manage family dynamics and balance work with caregiving. You quickly become an expert in so many areas, often without realising it.  But how do you share that wisdom with others? And what happens to all that knowledge once your loved one passes?  Sharing your experiences with other carers can be incredibly valuable, not just for them but for you as well. It helps you to connect with others and can give you a renewed sense of purpose.  If you’d like personalised advice on how to connect with other carers, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day, or request a callback, start a webchat or send an email with whatever is on your mind.  You can also listen to this episode of Hold the Moment to hear more stories of how other carers are sharing their knowledge.  +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios.   Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan.  The National Dementia Helpline is funded by the Australian Government.    Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.   

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    From carer to mentor: The importance of sharing your knowledge

    Caring for someone living with dementia requires you to learn so much so quickly. From navigating a complex healthcare system, to managing family dynamics, to balancing caring duties with paid work – you’ll have to become an expert in a lot of areas very fast.   But what do you do with all that knowledge after the person you cared for passes away?   Miriam’s mum lived with dementia and, in her community in the Northern Territory, the condition wasn’t well understood and rarely talked about. But Miriam’s first-hand experience as a carer, as well as a Family and Community Coordinator for Dementia Australia, made her the go-to person on the subject.   Miriam shares her story and explains why she’s so passionate about passing wisdom on to her community and the next generation of carers.  +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government.    Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  This episode was produced by Gia Moylan and Liam Riordan, with sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman.  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.   

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    Helpline: Strategies to help carers with grief and loss

    People often think of grief as sadness felt when a loved one passes away. But grief can surface at many stages of caring for someone living with dementia, often in ways that you don’t expect.   There are ways to care for yourself, find comfort and reconnect with what brings you happiness. This episode offers simple, practical ways to process those emotions while still embracing joy, connection and the things that make you feel like you.  If you’d like personalised support, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day, or request a callback, start a webchat or send an email with whatever is on your mind.  Dementia Australia offers counselling support for caregivers and family members, find out more here.   You can also listen to this episode of Hold the Moment to hear more about how other carers are working through their grief.    +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios.   Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan.  The National Dementia Helpline is funded by the Australian Government.    Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.   Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.   

  32. 22

    Hold on to joy: Managing grief as a carer

    Jenny started grieving well before her husband passed away.   After Noel was diagnosed with dementia, Jenny knew their life together would never be the same. But the grief she felt about that gave her strength and purpose too...  Grief will be a major part of your journey if you’re caring for someone living with dementia. You might grieve the relationship you had before their diagnosis and you might be grieving after the person you cared for has passed away. It’s a natural part of the process and it’s painful, but there are strategies that can help you manage.   Jenny shares what helped her through and Mara, a Dementia Australia counsellor, shares how she helps carers through tough times.   +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government.    Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  This episode was produced by Gia Moylan and Liam Riordan, with sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman.  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.   

  33. 21

    Helpline:  Your guide to accessing dementia support services

    Navigating the healthcare system on behalf of someone living with dementia can be challenging, especially when the different systems you’re engaging with don’t speak to each other. This episode offers simple tips to streamline the process.   If you’d like personalised support on how to approach appointments or figure out the health care systems, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email with whatever is on your mind.  If you’re considering residential care for your loved one with dementia, you can register for Dementia Australia’s helpful webinar here.    +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios.   Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan.  The National Dementia Helpline is funded by the Australian Government.    Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.   

  34. 20

    Hold on to your sanity: Navigating the health care system as a carer

    Nick’s in a pretty unique position as a carer.   “I can’t fix the problem with my mum but as an engineer, I can problem-solve. I can advocate for her and give her a voice when she can’t navigate the system,” Nick said.  As an engineer, Nick’s used to untangling complex systems. He’s about as tech-savvy as they come but even he found it frustrating trying to access support for his mum, who’s living with Alzheimer’s disease.     Dementia Australia Executive Director Services, Advocacy and Research Dr Kaele Stokes sees the system from another angle, and offers tips for new carers who don’t know where to start.   If you’d like to access counselling services, you can visit the counselling section on Dementia Australia’s website or the CarerGateway.  +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.   For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government.    Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  Production by Liam Riordan and sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman.  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.   

  35. 19

    Helpline: What every carer needs to know

    Whether you're new to caring or have been supporting someone with dementia for a while, it’s not always clear where to turn to for help. Every carer’s path is different, but you don’t have to figure it out alone. This episode offers straightforward advice on where to get help, what support services are available and why it’s never too early to reach out. If you’d like tailored support, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email with whatever is on your mind. If you want to hear stories about other carers’ experiences, [listen to this episode of Hold the Moment].  +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios.   Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Gia Moylan and Kellie Riordan.  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.   

  36. 18

    The juggling act: Caring for a loved one with dementia

    Rachel Corbett couldn’t afford to put her life on hold, even when her mother was diagnosed with Alzheimer’s disease. She was in her 20s, her career wasn’t established and she wanted to have kids, so spent the next few years looking after her mum while juggling everything else in life. Then her dad was diagnosed with Lewy body dementia. Rachel would go on to spend her 30s supporting and caring for her parents. “I did have a difficult time with both my parents because of this, but it connected us in a way that might not have ever happened if they were both well.” Caring for someone living with dementia can be overwhelming, but you’re not alone. Hold the Moment is a podcast by people living with dementia and their families, and season two is all about people who are caring for loved ones with dementia.   +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  This episode was produced by Gia Moylan and Liam Riordan, with sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. 

  37. 17

    Hold the Moment Season 2 - Spotlighting the people caring for a loved one with dementia

    "As carers of people living with dementia, we all have a public face and a private face." When someone you love is diagnosed with dementia there’s a lot you take on – physically, mentally and emotionally. So how do you even start to process all these changes? On Hold the Moment, you’re not alone. Join Jim, who was diagnosed with younger-onset Alzheimer’s, and his co-host Hamish Macdonald, whose dad lived with Parkinson’s and Lewy body dementia, as they learn how their peers are managing their new circumstances. We’ll also bring in a few experts along the way for advice on the especially tricky stuff, like navigating the complex maze of care systems.  Follow Hold the Moment wherever you get your podcasts so you don’t miss an episode. And share it with anyone you know who’s caring for someone with dementia.  +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish MacDonald.   For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government.    Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  This trailer was produced by Liam Riordan. Sound design by Ryan Pemberton. The executive producers are Gia Moylan and Kellie Riordan. Production Manager is Ann Chesterman.  We acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.   

  38. 16

    We’ve got news!

    Over the last few months, the Hold the Moment team has been hard at work... Your response to our first season was incredible, and luckily you won’t have to wait long for more episodes. Hamish and Jim are back for a quick announcement.  +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. Follow Dementia Australia on Instagram and find support resources online.  This episode was produced by Gia Moylan. The executive producers are Gia Moylan and Kellie Riordan. Production manager is Ann Chesterman.  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. 

  39. 15

    Helpline: Tips for families supporting a loved one with dementia

    A dementia diagnosis has a ripple effect across families. So where can you turn for information and support?  This bonus episode is packed with tips for families who want to know more about how to support themselves and a family member living with dementia.  Whether you live close to your loved one or further afield, Dementia Australia has many helpful resources and programs specially tailored to family members of any age, including children.  If you’d like personalised support, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email with whatever is on your mind.  For more information, explore our support resources for family, friends, and carers or learn more about staying connected with loved ones.  You can also listen to this episode of Hold the Moment to hear candid stories from families who have been impacted by a dementia diagnosis.   +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios.   Follow Dementia Australia on Facebook and Instagram and find support resources online.  This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Grace Pashley and Kellie Riordan.  The National Dementia Helpline is funded by the Australian Government.   Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative. 

  40. 14

    Hold on to family – Families reflect on the impact of a loved one’s dementia diagnosis

    When Millie Rogers first discovered her dad, Jim Rogers (co-host of Hold the Moment), had received a diagnosis of younger onset dementia, she felt like a rug had been pulled from beneath her feet.   “I just froze. I just couldn’t believe what he was saying.”  In this candid episode, Millie and her sister Daisy open up to journalist Hamish Macdonald about the initial shock of the diagnosis, Jim’s role as a grandfather to their young children, and how it can be hard to be vulnerable when everyone wants to put on a brave face.  Then, Jim Rogers interviews Hamish Macdonald about his experience with his own father’s diagnosis of Parkinson’s disease and Lewy body dementia. Hamish explains why giving his father dignity is crucial and why you need to advocate for your family member.  “People living with dementia need love and they need support, but they need advocates as well…You know, just actually getting your head around the really fine detail of what someone’s needs are and being able to advocate on their behalf.”  +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.    For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government.    For more information, explore our support resources for family, friends, and carers or learn more about staying connected with loved ones.  Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  This episode was produced by Madeleine Hawcroft, with sound design by Sean Holden. The executive producers are Grace Pashley and Kellie Riordan. Production manager is Ann Chesterman.  Thank you to Millie, Daisy and Maggie for being part of the episode.  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative. 

  41. 13

    Helpline: Tips for getting around with dementia

    If you’re looking for new ways to get around town or travel further afield with a dementia diagnosis, this episode is full of tips and resources on how you can do just that.   If you’d like tailored support on travelling with dementia, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email with whatever is on your mind. You can also find some information here.  In this episode you'll hear about a Dementia Australia webinar on driving and dementia – you can watch it here.    If you want to learn more on getting around with dementia, listen to this episode of Hold the Moment. +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios.   Follow Dementia Australia on Facebook and Instagram and find support resources online.  This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. This episode was produced by Luci McAfee. The executive producers are Grace Pashley and Kellie Riordan.   The National Dementia Helpline is funded by the Australian Government.   Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative. 

  42. 12

    Hold on to travel - Navigating planes, trains and automobiles with dementia

    Jim Rogers was once ‘captain organised’ when planning overseas trips with his husband Tyler. But after his diagnosis of younger onset dementia, he’s learnt to get Tyler to assist with online check-in, packing and itinerary planning.   And it’s not just setting off overseas that’s changed. Getting around town has become trickier now that Jim’s lost his driver’s licence.   Like Jim, Juanita wishes she could zip over to the shops to do her weekly groceries. But since being diagnosed with frontotemporal dementia, a trip like this needs a bit more planning.  After losing her driver’s licence, Juanita has relied on public transport and taxis to get around town – but she’s figured out some handy ways to maintain her independence.   Discover the tips and tricks you need to get out and about.  +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.    For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government.    Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  In this episode Juanita discusses how the sunflower lanyard for hidden disabilities has helped her travel independently. You can also watch this Dementia Australia webinar about driving and dementia.  This episode was produced by Liam Riordan. Sound design by Sean Holden. The executive producers are Grace Pashley and Kellie Riordan. Production manager is Ann Chesterman.  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative. 

  43. 11

    Helpline: Tips for managing changes in sleep with a dementia diagnosis

    Getting a restful night’s sleep when you’re living with dementia can be an elusive task. This episode contains tips on managing your changing sleep patterns. If you’d like tailored support to tackle sleep issues, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email. Dementia Australia has plenty of resources relating to sleep on its website here. And for more discussion about sleep and dementia, listen to this episode of Hold the Moment. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram and find support resources online. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Grace Pashley and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

  44. 10

    Hold on to sleep – Why dementia disrupts sleep and what to do about it

    Ann, a former nurse, struggles to sleep because of the symptoms of her Lewy body dementia. Most nights, Ann experiences intense, multi-sensory hallucinations.   Meanwhile, Jim Rogers takes us through some of the long nights he’s experienced since his diagnosis of Alzheimer's disease.   Sleep is vital to both mental and physical health, and it’s disrupted for many people living with dementia. Associate Professor Stephanie Rainey-Smith, a neuroscientist from Murdoch University, explains disturbances in sleep, what causes hallucinations for people living with dementia and has some tips for improving your sleep.  Dementia Australia has plenty of resources relating to sleep on its website here.  +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.    For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government.    Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  This episode was produced by Liam Riordan. Sound design by Sean Holden. The executive producers are Grace Pashley and Kellie Riordan. Production manager is Ann Chesterman.  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative. 

  45. 9

    Helpline: Tips on staying connected and managing relationships after a dementia diagnosis

    Your close relationships enter new territory once you’ve been diagnosed with dementia. Roles change, people might pull away but, for the most part, your loved ones just want to know how to be there for you. This episode helps you navigate these changes. If you’d like tailored support you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email with whatever is on your mind. The Dementia Australia website has resources about maintaining relationships for people with dementia and for carers, family and friends. There is also information about navigating intimacy here. If you want to hear more stories about caring, dating and making friends with dementia, listen to this episode of Hold the Moment. +++ Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios. Follow Dementia Australia on Facebook and Instagram and find support resources online. This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Grace Pashley and Kellie Riordan. The National Dementia Helpline is funded by the Australian Government. Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

  46. 8

    Hold on to relationships – Family, friendships and dating after a dementia diagnosis

    Anthony was by himself when he first learned he had dementia. He didn’t feel like he had a close-knit family or a group of friends to turn to for support.  But now, Anthony’s not only made new friends and become closer with his three siblings – he’s also found love again.   So much changes after being diagnosed with dementia, including your relationships. But it doesn’t mean you have to let go of them. When Dom’s father was diagnosed with dementia, she took on some of the caring duties, but she didn’t want to lose their father-daughter dynamic. It took some creative thinking and a lot of practice, but it was worth the effort to keep the relationship strong.   Hold the Moment co-host Jim Rogers is still figuring out what friendship and romance looks like now he’s living with younger onset dementia. And co-host Hamish Macdonald who is navigating the changes with his father, who’s living with dementia with Lewy bodies and Parkinson’s. Join them to hear how others are managing their relationships after a diagnosis.  The Dementia Australia website has resources about relationships for carers, family and friends, as well as people living with dementia here.  +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald. For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government. Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  This episode was produced by Liam Riordan. Sound design by Sean Holden. The executive producers are Grace Pashley and Kellie Riordan. Production manager is Ann Chesterman.  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative. 

  47. 7

    Helpline: Tips for staying active with dementia

    Whether you’ve always been a marathon runner or just love getting out in your garden, staying active is an important way to manage symptoms of dementia.  Here’s your quick guide on building physical activity into your routine in a way that suits your lifestyle.  If you’d like support to stay active with dementia, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat, or send an email with whatever is on your mind.  If you want to learn more on exercising with dementia, listen to this episode of Hold the Moment.  +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios.  Follow Dementia Australia on Facebook and Instagram and find support resources online.  This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. Producer is Luci McAfee, executive producers are Grace Pashley and Kellie Riordan.  The National Dementia Helpline is funded by the Australian Government.  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

  48. 6

    Hold on to exercise – Staying physically fit while living with dementia

    If you take a long walk around Bealiba in regional Victoria, you might spot the occasional water bottle, perched under a tree. Those would be Heather’s.   Heather’s always been a keen athlete and, even now at 80 years old, she loves long-distance running. That hasn’t changed since she was diagnosed with Alzheimer’s disease, but she’s had to adapt her training to make sure she stays safe and on the right track. The water bottles, strategically placed every four kilometres along her usual running route, don’t just keep her hydrated – they mark her trail.   Fitness has always been important to Heather. But Hold the Moment co-host Jim Rogers can’t say the same: “I’ve never been a gym junkie.” But because of his dementia, Jim’s learning to think of exercise as medicine.  You’ll also meet exercise physiologist Nick who has tips on physical exercise that can support your quality of life.  +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.    For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government.    Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  This episode was produced by Liam Riordan. Sound design by Sean Holden. The executive producers are Grace Pashley and Kellie Riordan. Production manager is Ann Chesterman.  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative. 

  49. 5

    Helpline: Tips on “getting your affairs in order” when living with dementia

    Feeling overwhelmed at the prospect of writing or updating a will? Want to better understand things like power of attorney and enduring guardianship? Help is at hand! This episode breaks it down so you can start planning with confidence.  Dementia Australia also has a webinar on ‘Future Planning’ you can watch online and other resources to help get your affairs in order.  If you’d like tailored support, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email.  You can also listen to this longer episode of Hold the Moment to hear more stories of people planning their lives after diagnosis. Hearing how they’ve tackled their affairs might just help you get started!  +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios.  Follow Dementia Australia on Facebook and Instagram and find support resources online.  This episode was hosted by Jim Rogers and Kristin, a National Dementia Helpline Advisor. It was produced by Luci McAfee. Executive producers are Grace Pashley and Kellie Riordan.  The National Dementia Helpline is funded by the Australian Government.  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognises their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

  50. 4

    Future planning - Where to start with wills, guardianship, power of attorney with dementia

    “I was diagnosed early, so I got what I call my ‘active dying plan’ out of the way. And now I’m on my ‘active living plan’ and my adventure with dementia.”  Pam was diagnosed with primary progressive aphasia in her late 50s. Although the diagnosis at such a young age was a shock, Pam wasted no time making arrangements for her own funeral so that when the time comes, her family can celebrate her life the way she prefers.  For Hold the Moment co-host Jim Rogers, the process of getting his paperwork in order started with a long, reflective walk around the Glebe foreshore in Sydney with his husband Tyler. But once the big picture was planned, how did Jim start the necessary legal processes to make sure that big picture would come to life?   Professor Nola Ries can help. She’s a co-founder of the Dementia Law Network. She explains the common (and sometimes confusing) terms you’re likely to hear as you start getting your affairs in order.  Dementia Australia also has a webinar on Future Planning you can watch online, plus other resources to help get your affairs organised.  +++  Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.    For support, you can contact the National Dementia Helpline on 1800 100 500 (24 hours a day, seven days a week). The National Dementia Helpline is funded by the Australian Government.    Follow Dementia Australia on Facebook and Instagram or find support resources on our website.  This episode was produced by Liam Riordan. Sound design by Sean Holden. The executive producers are Grace Pashley and Kellie Riordan. Production manager is Ann Chesterman.  Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples today.  Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

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ABOUT THIS SHOW

Hold the Moment, a podcast by people living with dementia, is full of real stories about life after a dementia diagnosis.

HOSTED BY

Dementia Australia

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Frequently Asked Questions

How many episodes does Hold the Moment have?

Hold the Moment currently has 50 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.

What is Hold the Moment about?

Hold the Moment, a podcast by people living with dementia, is full of real stories about life after a dementia diagnosis.

How often does Hold the Moment release new episodes?

Hold the Moment has 50 episodes. Check the episode list to see recent publication dates and frequency.

Where can I listen to Hold the Moment?

You can listen to Hold the Moment on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.

Who hosts Hold the Moment?

Hold the Moment is created and hosted by Dementia Australia.
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